Category: Chronic pain

lack of sleep is a costly thing

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, chronic physical pain, depression

I can’t sleep but then it’s early for me. I have been thinking about all the nights I have not been able to sleep because of pain, because of worries, because of things that keep running through my head.

Tonight I feel suicidal but I am not going to act on it. I just don’t feel the lethality of my thoughts anymore though if given a chance to actually act on them I might do it. I just don’t care anymore. If I live, if I die. What difference does it make. I still will be doing the same thing tomorrow that I am doing today, nothing. I realized that because I don’t sit down, say in a chair, it has helped my leg get better. I don’t know how better as the pain is less but when I walk or have a long day, it will flair. Even on days when I don’t have long days or walk it will flair up. There is no rhyme or reason as to why this happens. But it bugs me. I need something to do because I am going out of my mind. I have MASH DVDs that I can watch but I don’t watch them. I have other programs I can watch but I don’t. I can clean my room but that just overwhelms me. I try to go out at least once a day but even that seems to be too much of a hassle for me. I am becoming a hermit and I don’t like it. I know tomorrow I will have to go out to pick up my prescription. I probably will get a soda as I have not had one in a few days. I might get a tonic water to avoid the calories of a soda as I am watching my weight. I also might mix this tonic water with some gin and have a drink. I love gin. It tastes so good but I can’t have too much or I will get sick.

I just tried stretching my legs. It felt good. I wish I could remember to do it every day. Maybe then they won’t be so tight. Right now it’s nine thirty in the evening and I am thinking of going to bed but it hold no good dreams for me. I dream about work or killing myself. And this saddens me. I hate trying to go to sleep. Unless I am severely exhausted, I will fight it till the end. No matter how many pills, I take to get to sleep it seems my body always fights it no matter what. It is so frustrating. My lovely Neurontin that I love to take to zone out no longer works for me, even at high doses. I used to be able to sleep a good twelve hours, now I’m lucky to sleep five. That is my interval, four hours maximum. Where I used to sleep till 10 am or later, I am now waking up between six and eight in the morning. I hate this. I need something that makes me sleep longer but I don’t know what to take to let me sleep. Maybe some benedryl. I don’t know…

And this is all if I don’t have pain keeping me up. If I have pain then I am not sleeping at all. I writher in agony until the pain meds bring me some relief. Then soon as they wear off I am in pain again it starts the cycle all over again. The doctors don’t get it. They see me at 2-3 in the afternoon when I am not at my worst pain and think I am doing ok or better than I was the month before and give me my pills and say have a nice month before coming back to tell them the same story of losing sleep because of pain. Pain that wakes me up. Pain that keeps me awake. They don’t care. I am the one paying the price and they don’t care. They think that 2-3 pills a day is an adequate dose to keep me from withering in agony but they don’t see the price it is costing me. Lack of sleep. Lack of ambition, lack of motivation to do things I normally do. I tell them all this and still all I get is lose weight and be more active. I’ll be more active when I am dead…

new coffee and ramblings

by Midnight Demon, posted in Chronic pain, depression, mood disorders

I made it to my Starbucks and ordered a new coffee, Isla Flores from Indonesia. As long as it keeps me awake, it will do it’s job. It tastes really good so I am glad I got it iced.

Yesterday was a bad day for me. I slept most of the day. I don’t remember if I had therapy I was so sleepy. I didn’t sleep too good the night before. I feel asleep around 2200 and then woke up at 0200. Stayed awake till 0400 when some moron called me at 0821 and then again at 0921. I was pissed because it was an unknown called. I wouldn’t mind the wake up call but I was in the middle of a dream and if left me feeling really sleepy. I think my therapist called two hours later and I know I feel asleep until 2pmish. I stayed up enough to make myself a peanut butter and jelly sandwich and after that I think I went back to bed. No writing, no journaling, just sleep.

Today I am feeling a little bit hungover from sleeping so much but at least I am out. I plan on working on my book long as the coffee and sandwiches hold out. Though I am tempted to go to McD’s and get another cheeseburger for dinner. Maybe I will…but not now. I need to do write this blog.

The group went ok even though I still am on suicidal watch with my therapist. I just got so upset I told her anything that would get her off the phone. I was so tired so she didn’t believe me. Figures. I really hate my life and I want so badly to end it. Sunday is my father’s birthday so I guess I can’t do it this weekend even though I should. That would send him a message but he is probably too stupid to realize it. Today is my fiend’s Ivan’s birthday. I don’t know if I should call him as we don’t really have a policy of calling one another on each other’s birthday. But I bet it would surprise him.

I wrote my vocabulary of suicide the other day and posted it. It got a few hits. I don’t know why I can’t be writing like I used to be. I just am so tired lately that I can’t think. All I can do is play my internet games and then go to sleep. My mother said that I should get a job as it would get me up. But I can’t work right now. I don’t have the patience to go find a job nor do I think I can handle the pressure of work right now. I know it’s been almost a year since I have been out of work but I am still afraid that I will have a set back and want to kill myself more than I do now. Plus it would cause trouble and I might lose my insurance from my old job if I do.

As I am listening to Starbucks, a new Mary Chapin Carpenter song comes on the radio. This makes me happy. I love MCC. I am going to see her in May with Shawn Colvin, who I don’t like as much. But Mary Chapin is the only artist that I can hear when I am in a bad mood and feel better afterwards. She has such a soothing voice. I wonder if her voice sounds the same in real life. I always wanted to meet her. I would die if I ever did, but I wonder what it would be like meeting with her in person. I think I would be so filled with awe in would take me few minutes or more to compose myself.

I have to buy dress clothes next week for a wedding as nothing fits me anymore. I figure I will buy some Dockers and a new dress shirt. Black and blue shirt should do fine. I wish my chest binder would be here by then but it won’t come in until after April 10th. I hope the weather is warmer by this wedding and there is no snow. We have had too much this winter but then we didn’t get any last winter so it’s a trade off. I can’t believe my little first cousin is getting married. Though she is almost 30 years old, I still think of her as my little cousin. They grow up so fast.

I cleaned out my DVR recording of old Criminal minds episodes that I have already seen. I don’t know why I have gotten out of sync with the show. I just stopped watching it after the 6th season and can’t seem to get back into it. I guess after Haley died and Hotchner felt that huge loss, I did too. Plus the show just got weirder and if people are really out there doing this stuff it scares me. Sometimes the line between fact and fiction can be so blurred.

my thoughts for the day

by Midnight Demon, posted in Chronic pain, depression, mental disorders, psychache, suicide, suicide attempt, transgender

Today was a snow day. I didn’t go out because it was plain yucky out with freezing sleet and rain at times. I have to go out tomorrow so that will be better. I plan on taking a shower tonight so I don’t have to take one in the morning. Sometimes a shower can exhaust me so it is kind of good that I take it at night.

I started writing another paper on suicide. I don’t know where it is going but I decided to define some terms that I think will be valuable and then take it from there. I have to remember to put in copyright at the end of the paper so no one steals my work. I know it could be “stolen” anyways or parts of it very easily with copy and paste, but at least with the copyright it might prevent that from happening.

I made some progress with one of my characters with my game that I play. I am glad I did cause I didn’t think I could as I don’t play it very often. I have three Facebook accounts for this game so I can get the stuff I need to play. Between the four accounts, I use it to advance in the game as best I can. Course I have other player that help out too, but not so much for my other accounts.

Because today was a snow day, I didn’t have therapy this afternoon. I am glad because I was already in a bad mood this morning. I really wanted to go out today but I couldn’t because of the snow. Hopefully tomorrow I will be able to get to McD’s and get a cheeseburger. I have been thinking of it every time it comes on the radio. I know they are bad for you and everything but they just taste so good.

I tried working on my book today but that didn’t happen. I need a break from it for a little while. It is stirring up too much stuff.

I don’t really want to go to group tomorrow. I just feel like I opened up tomorrow and I need more time to process what I said. I just feel really terrible that I talked about transgender and didn’t get a trip to the hospital. It was really weird. I thought I would go in the hospital because people don’t talk about it. My therapist was telling me that Kelly Curic had done a segment on kids that were transgender. That is all well and good but I didn’t have that growing up. I couldn’t express my feelings because it meant I would get smacked in the mouth. Nor did I have the words for what I was going through. I just knew that I was a guy at a young age but I was forced to conform to being the sex I was born with. I had to act like a girl. I couldn’t play sports I wanted to. I couldn’t wear the clothes I wanted to. I couldn’t even wear a baseball hat. My father threatened to cut them all up if he saw me wearing one. So I couldn’t be who I really am without having physical violence with my parents. It killed me whenever he threatened to destroy my property. I just wanted to die all the more. I figured what would be the point in living if I couldn’t be who I was. I envy the kids today that are getting the support and transitioning that they are doing. I wish I had that growing up.

tired

by Midnight Demon, posted in Chronic pain, writing

Tired

I took about three naps today. I just couldn’t get my motor running. I just wanted to stay in bed all day and that is basically what I did. I needed the rest from the past two days of running around.

I have been off my diet for the past few days. I really have been bad. But I don’t care anymore. I can’t see starving myself as a solution and I can’t see how cutting back on the food I love is helping because they are the only food that I eat.

I have not written in my book all week. I have stopped at where my therapist cries and I am not sure how to continue from there. I am still thinking about it. I was hoping to work on it today but I have been so exhausted. I picked up my niece and needed another nap. I didn’t have coffee today so maybe that is it. I hope that I can work on my book tomorrow or I will just get behind.