New Year 2019

I may throw in some goals but I really don’t expect them to come to fruition. I’ve been having a hard time sleeping past few nights. Pain has been making sleeping at night impossible. So I sleep during the day to wake up at night to stay up all night. Fun cycle.

Last night I was trying to sleep. I would slightly doze and then wake up in pain, either my foot or ankle or hip. 3 am my hip was hurting because my body was one way and it wanted to lay flat rather than on my side. Had to use a heating pad which needs replacing because it is worn out. It doesn’t get hot like it did only on high setting. So I had this on my hip. And waited for pain to calm down. Then put of the fucking blue, my foot/ankle explode and I am instantly suicidal. Like I want to kill myself right this second. I didn’t know how but as I lay there immobile, I thought of ways. And I swear if I could have moved and acted at that moment, I would have. I was so pissed off. I was a lot of things i don’t remember now nearly 24 hours later. I took an ativan when these thoughts and impulses passed and I could move my hip without screaming. I think I might have taken another pain med too because I was in pain. Around 6, I took 1 neurontin hoping for an hours sleep. It never came. My brain was just fantasizing all these things I had to do today and just wanted to say fuck it and sleep. Did I do that? No.

Around 1030 I got up to start the day. I had to cook 6 pounds of chicken wings for my sister’s party. I had two glasses of coffee before I started. I had to cut the chicken, wash, then cook it. It was falling off the bone when it was done and it was way too early for people to come in. So it just sat on my sister’s counter because my mother had to use our oven for her stuff.

It was a good party. I had two glasses of spiked eggnog. Hoping that would dull the physical pain. Nope. I had stuff to eat. Talked with my cousins. The pain started to get worse. I could barely walk. Noises were affecting me severely. Like I couldn’t handle the loud talk of anyone or the screaming of the two babies or my cousin playing something on his phone. It was just making pain worse. I left. I said happy new year good bye. I got upstairs and didn’t know if I was going to make it. I thought the eggnog was going to come up. I took some zofran. I was late with my meds so took them. I could not lie down. It cold in my room and my foot was so swollen my slipper made an indentation mark. And it was ice cold. Turn on broken heating pad! Luckily it never got painfully cold but did get painfully hot. I am still trying to sleep and failing. I should be tired because I technically have been awake since 30 Dec 7pm! I am not fucking tired. I should be. And after this, I am shutting off the lights and trying for sleep. I realized I probably been having problems because I turned up the heat a degree. Bad choice. I need cold. I should have known when I was sleeping with just my sheet on it was too hot in my room.

I don’t have any 2019 goals like I said. I wanted to end my life 24 hours ago and it is still fresh. I emailed my psych but she is out of office until Wed so probably not going to get a response. I don’t need the hospital. I really just need to stop having flares or have meds to control flares. And then longer I don’t and the longer they last, I am going to be a suicidal maniac. I am hoping it was just the stress of the holidays but I got huge financial worries this month. I got to pay for my meds which I knew but still impulsively bought shit off Amazon. I won’t know what anything costs until later today, I hope. I still won’t know if my therapist is a provider until I see him Wed. And then I will probably need to decrease our sessions because I can’t pay for them. Fun pit in my stomach right now. And then I worry my pain meds won’t get covered or T. We’ll see. I need a refill sometime this month. But if it is really expensive, I don’t know if I can afford it.

So more stress = more pain. Lovely cycle.

On phone blog: darkness has returned

I’ve been down since last night. With not knowing how my allergic reaction was going to go, I asked my mother to check on me before she went to bed. I was still up when she came upstairs. She didn’t check on me and I felt so hurt. I really think I don’t matter to her anymore. She just expects me to give her half my check for the mortgage and that is all. Maybe go to the store for her for a few things but that is it.

I wish I had a car so I could leave. I would just drive off and not sure where I would go. I just feel like no one cares in my own family. My sister just expects me to go up and down the stairs like they are nothing. I am tired of being used essentially. They only call or talk if they have a problem or need something to be done.

I feel so down. Going to tell my mother no party this year for my birthday. Fuck them. My day so I don’t want to be around them. Maybe I will have a virtual party with my online friends. That will be cool.

I haven’t done anything today but stay on bed. I really haven’t felt well. I had to take some benadryl because my throat was feeling funny. That made me tired so I just stayed in bed all day. I woke up around 2 freezing. I don’t know why. It was 22 degrees out but I had a long sleeve shirt and blanket on. I put on a heavier shirt and my heavier Red Sox throw. Woke up a few hours later sweating. Can’t win. I should open my window so I can get some air. I just don’t feel like moving stuff to get to the window.

I have therapy tomorrow. I sent him the link to my blog and now I regret it. I didn’t think. Oh well, maybe he won’t think to read it that often. I got off about him a lot here. Hate to think my space for venting is now compromised.

I wanted to make coffee using the Keurig but decided not to. Then I found out my sis bought a k-cup holder. Shit. I bought her one, too. If she doesn’t want it, I will just return it.

I never showered today. I never had the energy to do it. Maybe tomorrow. I bought some new soaps from a friend that makes them. Both are made with goat milk. One is lavender and the other is rose clay. Smells so awesome. My mother took the hand spray shower head out so now we have a regular shower head. Boring. But I think it will be better. My mother always gets what she wants. I just hope she keeps the seat clear, or i will fight her on it. I need the seat because I sometimes do need to sit while showering.

I am so tired and feeling shitty. Was talking to a friend last night. She kind of got on my nerves because she is so interested in my transition and how my mother is taking it. None of her damn business. I don’t know why I tell her. My mother doesn’t know I am taking hormones. She doesn’t need to.

That is the other thing. My sisters haven’t asked one thing how it is going. They still don’t use the right pronouns. They will call me G at least. But if my mother doesn’t get it, they will say my birth name. I am so frustrated with it all. I rather be fucking dead. Just can’t handle another depression and my family not accepting me as me. I’m so tired of it. Tired of being in pain, too. Just want to end it.

Another blog by phone: doctors suck when they don’t know what is wrong

Once again I am a ping pong ball between my psychiatrist and PCP. He doesn’t think my feeling crummy and fatigue has anything to do with my sodium levels even though I explained to the jerk that when I was 2 points lower I felt sick. Now I feel sicker because the damn sodium is lower! He has exhausted all medical tests to cause this so I am going with my fucking gut this is due to my mood stabilizer lowering my sodium levels causing this. So I am decreasing the dose by 300 mg. I see my psych tomorrow and I hope she won’t fight me on this and just repeat my tests in a week to see if there are changes.

The asshole wanted to discuss this AFTER my appt. No, not happening. Because you know what is after tomorrow? The weekend! Nothing will get fucking done until Monday and I am sick of feeling like crap so this is happening tonight. Fuck him. I want to see my therapist again without it being a big fucking ordeal. It is bad enough I get flares after I see him but to be totally wiped out the day after? No. I am just not letting this happen again. I waited 8 fucking years for the CRPS diagnosis. I am not waiting another week of back and forth to figure this out. I know it is the med. And if I am wrong, then I am wrong and we go from there. I am willing to be unstable to stop feeling like shit. It is my fucking life last I checked!

The pain program called me this morning. I had talked to them Tuesday saying I was sick and didn’t know when I was going to feel better. I guess they felt I already had too many cancellations so they discharged me. Thank god. I didn’t want to go anyway but was forced by the pain doc because I felt they wouldn’t prescribe my pain meds otherwise. I also went because my PT felt it was a good program but the program changed because they were not doing anything she said was available. I just had OT (occupational therapy) and physical therapy. I honestly felt the PT didn’t understand CRPS. I really didn’t. And like the PT I was seeing, this PT’s exercises caused flare ups. And it wasn’t the muscles that I was stretching but my damn foot because I had to exert pressure on. I won’t be going back. Ever.

Today I felt a little better but after I got my haircut, did some shopping, I was fatigued again. I felt like napping but it has been so hard to wake up. I hadn’t eaten anything all day except for 4 cookies with my coffee until my mother made dinner. I didn’t keep my fluids to 1L. Only because I haven’t had a shit in a week. I am so backed up it hurts. I took Miralax today and felt stuff moving but still nothing. Going to take some more fiber pills and hope for the best at this point. Just hope I don’t get colon blow.

Therapy, fatigue, and still feeling like shit

I managed a shower today. It kind wore me out but I was determined to see my therapist. The bus didn’t give a shit what I had planned as it was like a fucking half hour late. Starbucks didn’t have eggnog so I just had a mocha. I forgot extra shots. Doubt they would have done any good anyway. By the time I reached my therapist’s office, I was wiped out.

We started talked and I profusely apologized for missing Monday. I told him I felt like shit and I must have looked it because he asked if I wanted to go home. I said ok. I thanked him. I said I hope to see him Monday and have a good Thanksgiving.

I took an Uber home. I am glad I did because I was ready to pass out. I told my mother I would be going to bed and she asked if it was because of pain. I said no, I am tired because my blood counts are off. She was confused. I tried to explain it to her last week but she didn’t want to hear it. Now I was explaining it again. I need a salty diet and high protein and low fluids. I still don’t think she understood but not my problem. I went upstairs to change and hunker down. I am hungry but no idea what to eat. I finished off the last of the cold cuts. I want to order out but my funds are low. I get paid Monday though.

I wish I could say I am feeling better but I am feeling the same. Yesterday I slept all day and hope my activities today don’t wear me out so much. I had a rough night as I slept in pretty much the same position all night so was stiff and this or that hurt or was asleep. It is going to be the coldest Thanksgiving on record, with some parts reaching below zero. Much too early for this time of year. But the weather is whacky everywhere.

If you are in the US, I wish you a happy Thanksgiving. I am grateful you read my blog. Hope you have a good day tomorrow.