what it’s like to be in physical pain

Last night I was in wicked bad pain. I started to think about ending my life again. The pain was that bad. I don’t know what caused my pain to flair up. I didn’t do anything more than I usually do when I have a day to chill, which is most days. I took a walk to the post office and sub shop to get a sub, then went to the liquor store to get a drink and cash my scratch ticket. Then walked home. I guess I was walking out of sorts as I didn’t wear my AFO. It sucks to use it for short walks but I guess me not wearing it is causing some flare ups.

Today pain is not that bad. I did some reading on a big book that I am reading, Alexander Hamilton. I am making headway slow but sure. I have to read it when I am not too tired as my eyesight will become unfocused now. It really sucks but this week I am going to visual therapy to correct it. My eye muscles just need some adjusting. I should also be taking a multivitamin but it is a pain to remember everything I have to take. Last week I filled my weekly pill holder with everything I have to take with extras such as omega 3, vitamin d, senna, and iron. My night time meds looked like a meal. I normally take at least a half dozen pills a night, not including my pain or anxiety meds so with these pills added, there were a lot. Then I had to eat something to cover it so to coat my stomach. I tried not to eat too much, just a bowl of cereal or a slice of toast. But sometimes I will have a meal, like scrambled eggs and toast. My eating habits are not usual as I don’t eat regularly. I tend to eat every 6 or 7 hours, if that. And usually only have one or two meals a day, even though I am home and it isn’t good. I just don’t have an appetite most days.

I take a lot of meds for my various medical and psychiatric illnesses. I used to only take meds for my psych condition but since CES entered my life, I am on more meds than I can shake a stick at. And that is if I am having a good day. A bad day, I take more, especially to control the pain. Or if I just want to escape I will take some Neurontin. That drugs takes your to another planet for a couple of hours but lately it hasn’t been as effective as it once was. Which is disappointing. The only downside of this med is that it gives you the hungry horrors the next day. I have gained more weight on this med than any other but I try and eat better when I have the horrors because I know I will be eating more. It is the only time that my appetite will increase.

Anyways, last night was a bad night and now I am feeling fine and good, least for now. Pain doesn’t usually start until around 2100. If it is not too bad I will take pain meds and then be able to sleep in an hour or two. If I am up more than that, it’s going to be a night similar to last night where nothing can touch my pain and I am off to thinking bad thoughts again.

Sometimes weather can play a part in it. Right now it’s snowing so I know that the pain last night was more because there was precipitation on its way than anything. I am sensitive to this. I am just grateful it didn’t knock my back out. I have had rain storms do that and soon as it stops, I am fine. It is the weirdest thing to be in excruciating pain, not being able to move any back muscles one minute and then be fine the next.

struggles

Been thinking really hard today about what my next move should be. I told my therapist goodbye but she didn’t accept it. She refused my cancelations so I have her on voicemail only on my phone. See how she likes that. Not like talking to her does much help anymore. Nothing seems to help. I am just a pitiful excuse for a human. I feel so awful I can’t even begin to describe it. I haven’t showered or brushed my teeth since Wednesday. I am going to brush after I send this blog out. I hate not being able to take care of myself at times. I just don’t think about that kind of stuff anymore since being out of work.

I am still thinking about my plan. I always have a plan. It is how I cope. Doesn’t mean that I will go through with it but I have it none the less.

I have a busy week next week. I have to see my PCP to get my pain pills refilled then see a friend on my way home to pick up my gift for my psychiatrist. It will be perfect because I see her on Wednesday. That is the other thing that is bothering me. How can I tell her happy 20th anniversary and then kill myself that weekend? I hate this tug of war with life. I really do. And don’t give me the crap that because I care means I am fighting to live. I can counter with I am fighting to die too. You people that think that way have no clue how frustrating it is to try and want to kill yourself and having all the responsibility to stay alive around you. You want so badly to die yet something keep holding you back. I call it hope at times that gives me another day. I really do because without it, I know I would not give myself a week to plan my death.

I also have group. Yes I will be going back if only to see if it is better than I think it is.

Struggle. That is all I do and I hate it. I just want the struggle to end. Is that too much to ask?

the end

I have not been feeling too hot the past day or so. I went to group yesterday and it was a disaster, though most of it was good…in other respects. I got call Mike and I could see a lot of heads and eyes turning. People were respectful but I could see that all they saw was a female and not a man. That killed me and so I plan on ending my life soon because I just can’t live like this anymore. It is obvious that I can never be seen as a male, just an overweight female. And that hurts way too much for me take.

support groups and other things

I had emailed my eye doc saying I was having problems with my eyes while reading, especially when I was tired. I just coughed it up to being fatigued but he wanted to see me the next day (today) and did some tests. Apparently my eyes have decided to go in different directions when I am reading so I have to go to visual therapy. It is basically physical therapy for the eye. Oh joy.

I am going to dinner tonight in Stoughton, south of where I live with some friends of mine. We have a good time and because my friend just came back from Germany, I am sure she has some chocolates for me . German chocolate is sooo good. Last time I had it, the damn mice ate it when we had a few. I was so mad. Mice enjoying my chocolate. Damn rodents!

Yesterday I was supposed to have a blog post in the AAS but it got scrapped for another few weeks. The post that got published was a hit. It was about support groups and now everyone wants one for suicide attempt survivors. If I knew the platform, I would do it. I am glad my post got bumped because support groups are important. I know that if I didn’t have my CES group, I would feel alone and probably would have killed myself because of the isolation you feel after something so traumatic happens to you. You are never the same after something like CES affects you. I know with suicide attempt it is similar. People attempt for different reasons but mostly to escape the psychological pain they are feeling.

Speaking of psychological pain. I recent came across another psychological pain scale that has some promise if it ever gets across the board. But the hard part is that most of these scales have to go through rigorous critical review from committees of all sorts before being accepted as an assessment tool used for the emergency rooms and urgent care units. Plus in busy settings, things will get missed and then what are you going to do when the person is positive for psychological pain? You can’t just leave them hanging and say have a nice day or come back when you have more pain. That would be unethical and unprofessional. And most academic psychiatric emergency rooms are almost always filled with “real” psychiatric emergencies such as the actual attempts and psychotic behaviors of drug use or because of schizophrenia/mania. Though each case should be evaluated by a mental health professional before an attempt be made. I suppose if this were to be implemented a special unit would have to be designated for it to speed up the process and long waits avoided. Or if this were implemented in the psych ER it would be more ideal than the general ER (Emergency Room/ward/department).