Category: writing

sad and exhausted

by Midnight Demon, posted in blogging, depression, transgender, writing

Sad and exhausted

I was up in the wee hours of the morning. I had slept late and wasn’t really tired. I had finished the last of the casserole. I woke up and needed coffee. I had taken my morning meds and then went back to sleep for a couple of hours. I kind of planned the day of taking a shower, brushing my teeth, delivering the books to the Transgender Program, and then to Starbucks for coffee and lunch. I also planned on reading through my manuscript to see what else needed to be written.

The shower exhausted me. I had shaved and then I brushed my teeth. By the time I was in the shower, my back was flaring up. I had just finished washing my hair when I had to sit down. Cramps flooded my back and it was quite painful. I managed to get the bar of soap before sitting down so as I sat, I washed up. Drying off I nearly slipped in the shower stall. I managed okay then got dressed. I sat on my bed to rest and hydrate for a bit. I had no idea what I was going to wear. It was cool out but not quite cool enough for jeans. I decided on a button down shirt with my shorts. I then called a cab as I put my socks and shoes on. There was no way I was going to walk to my pcp’s office. I just didn’t have enough spoons for it.

The cab came. I put everything in my backpack and got in the cab. Traffic was bad. It normally takes like twenty minutes today took more than a half hour. I am glad I didn’t have an appointment or I would have been late. I dropped of the books and then ordered my drink and something to eat. I then walked to the Starbucks. There was a table free so I sat there and ate. After I ate, I tackled my manuscript. I got to like the 25th page and the printing was bad. The toner had already started to go and I didn’t notice it. Reading what I wrote stirred up some emotions and then I read the letter I sent my mother back in 2021. I got really sad. The pages were impossible to read so I called it off and then headed to the station. I got to the Square and picked up my meds that were ready. I thought about getting another coffee but it was past 3pm and I would be up late if I did so didn’t. I was exhausted and just wanted to go home. My nephew was in one of his moods as he didn’t even say hi to me when I greeted him. Whatever.

I thought about my mother all through the ride home. I was really sad. I still am sad. I am sad because my mom died and that I have no fucking clue where to go with my book. I couldn’t read what I wrote because there was a huge gap in the page. I am going to have to reprint the pages. I have a new toner that I haven’t installed yet. I’ve been lazy about it. People think writing a book is easy until they have to do it. I didn’t have pages to guide what I wrote so things just went on and then a new idea started and I was like WTF is going on here. I want to write more but I don’t know what I already wrote. I hate reading from a screen. I like pages in my hand to get something. This book is too important to me to just gloss over. I am going to try and see if Random House will publish it. No idea what is involved in the process. But I am half way where I want to be with 62 pages. I just need about 60-70 more to write. I’ll replace the toner in my printer sometime this weekend and then print out the 40 or so pages needed so I can read the rest of what I wrote. Hopefully it won’t hit me like a ton of bricks like it did today.

What do you enjoy most about writing? #WPDP

by Midnight Demon, posted in blogging, writing

What do you enjoy most about writing?

I love the catharsis and feeling on pen on paper when getting my feelings out. Half the time I forget what I write. Then when I read what I wrote, I am shocked. Sometimes I can’t believe what I wrote because it is awesome. My New York Times piece is that.

a busy past few days

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression, disability, FTM, gender dysphoria, mood disorders, psychology, PTSD, suicidality, writing

A busy past few days

I have a busy week with a lot of appointments. I had two today, back to back. Tomorrow I see my pcp to discuss my cardiac markers and a BP med. I am hoping she listens to me and puts me back on labetalol rather than another med. But if she isn’t open to it, then I will go on what she suggests.

I saw my TG doc today. She had a fellow interview me first. Things went well. The fellow tried to get me a 5mL vial of T but the pharmacy just filled a 1mL vial. I have enough T to last me the next few injections. She also referred me to plastic surgery so I could get a top surgery consult started. I am glad because my pcp never responded to my request from last week. The fellow also answered my concern about whether T had caused the dislocation in my shoulder. It didn’t. I am glad. She did say that because I had removal of my ovaries, I have to be concerned about my bone health. But I am still young enough that I don’t have to go for a bone scan. The only bone scan I want to do is on my shin to see if the CRPS has spread to it. I have been having severe pain for no reason and it is worrying me.

After my TG appointment, I had the chronic pain group, which had already started. I was about fifteen minutes late but they accepted me anyways. We had a good chat about families not getting our disabilities and I told them how rough it was living with my sister who triggers my PTSD often. I also came out to them as transgender and they didn’t seem to care, which I was glad about. We also talked about how our families don’t believe our pain and disability. It was a good group. I did talk about how my therapy session went and got support around it. There maybe future discussions about CBT.

I had therapy yesterday and we talked about my ED visit went. I told her I was freaking out over my lab results, thinking I was having a heart attack. Tomorrow when I see my pcp I am going to discuss what the lab values mean as having this marker in the blood indicates some kind of cardiac injury. I also asked my therapist if we could role play a bit about me asking for the blood pressure medication that I want so that I don’t get turned down. I didn’t want to come off as obstinate but I really think this med will be better as I have been on it before and had little to no side effects from it. We talked for more than a few minutes about it and I wrote down how to approach my pcp on this issue. I just hope I remember.

We then talked about how I feel we are divided and not on the same page about things. That is when she said to me “take the reins”. I was like what? She repeated what she said, adding that I was in charge. I was flustered. I couldn’t believe what she had said so I got my journal that has the notes to the bCBT book and shared with her what a structured session looks like. It had listed “agenda” and then went on to list other things. I asked the author of the book what is meant by this and he gave me a more descriptive outline of what the session looks like. I think there should have been an “:” to indicate this. So I went to my blog for the crisis response plan (Suicide Crisis Response Plan – midnightdemons7). This needs to be reviewed. In it, it said that if I get specific I should contact my therapist or psychiatrist. I should ask them if this is right or if I should just go to the psych ED. My therapist might not be available but I will bring it up with her when I meet with her next as that is when we will start with the new sessions I guess. She agreed to allow a new skill to be introduced and to practice it while in session. I think this is going to work out now as this seems more collaborative than what it was in the past where I spent the time just talking or not talking during session. I asked her if she was more DBT oriented or CBT. She said she was CBT so that will help a lot during the next few weeks. I am glad this is happening because I really felt like we were going on different directions. It just seemed like we would talk about stuff and then she would ask what is helpful but never follow up on what was helpful during the week or if I had practiced or done what was helpful. Mostly that meant me reading this manual for discussion. I felt like I was alone in reading it but it not going anywhere. I also felt like it was pointless to read if I couldn’t share what I was reading.

I have a busy week. Tomorrow I see my pcp and that is going to take a lot of energy. I wanted to get my hair trimmed but my barber had a death in the family. I contacted him today and he said his sister died. Her breast cancer had come back and it wasn’t a good prognosis. I am surprised she last this long. It was more than a year since she was diagnosed with this. I set up an appointment with him for Sat. Fri I plan on making his favorite dish, chili cornbread. I just have to get the ingredients. I will Thurs after my session with my psychiatrist. I will also ask him if I can contact him in an emergency as we have never discuss this before. There wasn’t really a need to as I really haven’t been in crisis since he became my psychopharmacologist.

By Sunday, I am just going to rest as I will need it. I don’t know when I will be able to read. I got hit with a flare up and couldn’t finish this blog yesterday. The flare was so bad that the bones in my foot and leg were aching very deeply and intensely. The pain in my leg is higher than it was and I fear that the CRPS is spreading. I want to contact my neuro and see if I can get a bone scan to see if it is CRPS or something else. I don’t think an X-ray will show anything as It only hurts when my ankle or foot is flared up and when I am resting on my bed. It doesn’t hurt when I put weight on it or walk on it. It is a very unusual type of pain when it comes on. I am feeling better because I got some sleep. I woke up around 0030 and had something to eat as I was hungry. I had honey nut cheerios. I emptied my bladder because it had been more than five hours since I last emptied it. I probably will have to go again as I drank the milk in the cereal and had some water afterwards. It’s 0130 now and I am not so tired. I might read the book for a bit until I am tired and can get back to sleep. My pain has finally settled down.

Sunday Blog 22082021

by Midnight Demon, posted in baseball, blogging, CRPS, depression, FTM, mood disorders, PTSD, writing

Sunday Blog 22082021

Post op day 4 hysterectomy

I got some good sleep finally. I feel really good. I am not in as much pain as I was in yesterday. I made sure to empty my bladder throughout the night and that helped. I am cathing every four hours to make sure I am empty completely. It hurts to void so that is why I am cathing. My genital area is sore but that is to be expected and the vaginal entrance is a little swollen. I noticed some clear discharge that is not mentioned at all with the post op stuff so I hope it is nothing to be worried about. I sent my surgeon a message anyway to ask if it is a concern or not.

Only thing I am planning on doing today is reading my MLB book. I started reading it last night as I couldn’t sleep. I read for about an hour and it helped to relax. I wanted to finish the chapter but it was too long. It was covering the two decades of 1900 and 1910. A lot of interesting baseball stuff happened during those years. I am having my doubts about being able to write a book about the history of team names. There is a lot of cross over between the leagues and some cities stays and it just gets confusing because things changed year to year, season to season.

I also plan on watching DS9. I can only watch so much TV before I get bored so if I watch two episodes, I will call that a win. Because of Tropical Storm Henri, baseball has been canceled for today in the New England area. We already had a tremendous thunderstorm and heavy rain. It is supposed to continue until tomorrow. I just hope nothing floods.

I am trying to fight off a nap right now. I am so tired from just having a cup of coffee and some breakfast. I know I am tired from post op. That is a given. It just comes on so suddenly that it is overwhelming sometimes. I am not having a lot of pain today. I made sure I took my pain meds during the night as I had my med alarm set to go off. I still only slept every three hours or so because I had to empty my bladder. My bladder seems to have its own schedule. I am glad I cath. It makes me feel like a man because I am standing while peeing.

I have been in the mood to write something profound but words are escaping me. I want to write a letter to my therapist about my trauma, just talking about one aspect of it and see where it leads me. I have so much emotion pent up in me right now that I think writing about it might help. I might post it on my blog if it isn’t too graphic in detail. I think writing about my cousin’s molestations might be helpful for me. I have been having intrusive memories about it the past few days. The one thing about anesthesia that I had is it brings things to the surface that you are trying to keep undercover. But with trauma there is always something under the surface. Anything that has to do with my genitals is a trigger for my sexual abuse to be in the forefront of my mind, even if I am not conscious of it.