Tag: chronic illness

hot day turns into T-storms

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

Hot day turns into T-Storms

I woke up around 10. My mother was already at the hospital. I had a bad night of sleeping and pain. I had already told her if I slept and didn’t have pain, I would go. She understood as there was little for me to do at the hospital anyways.

I made breakfast but not until I shut the kitchen door and let it cool down some. It was a sauna as all the mugginess was in the kitchen. I am glad I was home because the thunderstorms we had would have flooded the kitchen. I made bacon and eggs. It was good. I then had coffee and as usual, felt sleepy so napped. My sister called me when my mother was still in surgery. I was half asleep. I told her I didn’t feel good. My ankle acted up while I was cooking. I spent the afternoon in bed and having a weird dream that I was admitted to a really bad rehab hospital. It was almost like a nightmare. The rain must have been getting in my dream because there was water everywhere.

After I woke from my nap, I called my sister to see how my mother was doing. She was in recovery and soon headed to her room. Surgery went well and she was a little nauseous. My sister texted me her room number. I tried calling a few times but no answer. I’ll call tomorrow to see how she is.

I haven’t done anything other than what I just described. It was very stormy out and I was afraid we would lose power. The temp dropped but the humidity didn’t. I hate that. What is the purpose of rain if it doesn’t get cooler. The All Star game is on but I don’t feel like watching it. They had a delay due to rain. I hope the AL wins, but then I always do. Think I am going to read a couple of chapters of The Poe Shadow. I’m not really interested in it but I started it so I need to finish. It is a fairly easy book to read, not as complicated as Dostoevsky. I’ll take my night meds soon and hopefully have an easy night. I’m not in super pain, which is surprising as the barometric pressure has been all over the place. I somewhat feel a migraine coming on as I have a pain right above my right eye. Allergies have been awful today. I don’t know if it is a migraine or sinus stuff because I am congested. I hate allergies. Stupid pollen! Course being in the kitchen doesn’t help because the windows are covered in pollen. Least I will have the door closed so no more gets in the house. Supposed to be 70 tomorrow. I don’t know what the humidity will be. It was 88% last I check an hour or so ago. YUCK!

A Pissy and Muggy Monday

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

A Pissy and Muggy Monday

I woke up at 0530 from a strange dream, which I do not recall presently. I had to use the bathroom and when I came back, my foot started hurting. I took a breakthrough med but didn’t want to go back to sleep as I knew I would wake up feeling like shit. I just laid down until my alarm went off. I didn’t get up. I just laid there until I had to get up. I took my morning meds then went downstairs to use the bathroom again and brush my teeth.

I checked my text messages when I got back to my room. I was hoping to have time to make coffee but the message said the bus I needed to take was delayed. Just lovely. I got dressed quickly. I decided to let the AC run to keep the room cool. I went downstairs and got a reusable cup and asked my mother if she needed anything while I was out. She didn’t and she didn’t call me back when I reached the stairs. I was barely awake and was putting stuff in my bag then taking them out only to put them back in. I have no idea what the hell I was doing. I finally got my shit together, put my sunglasses on, the Bluetooth on my phone, and left. Bus I was to take went by just as I was approaching the corner. If I “ran”, I would have caught it but then the light turned green and it took off. Oh well. Hope I didn’t have to wait long for the next one.

I got to my PT with a few minutes to spare, but not enough to grab a coffee. I graduated from PT for my groin pain. She was proud of me for sticking with the home exercises and making progress and actually doing more than I was doing. My thigh was not feeling good after she did the myofascial stuff she did but I fared okay. I left and waited for the bus. It was really hot and muggy. I was sweating and getting more pissy as I didn’t have a coffee. I decided I wasn’t going to go from the orange to the red line, but from the orange to green to red to go to my psych appt. I didn’t want to be walking around in circles at the orange line transfer like I did a few weeks ago. It worked as I was about 45 minutes early for my appt. I waited in the lobby and wrote in my journal. I had gotten coffee when the bus dropped me off at the station. Wasn’t the best but it worked.

I met with my psych and discussed the stuff I wrote in the emails, kind of. She wanted to know more about my mother. So I told her about the surgery tomorrow and my anxiety about everything. I also told her I was mad that the pain docs had once again dismissed what I wanted done. I told her I wanted the dose increased and she said they weren’t going to do that. So I am supposed to continue to plan my death and go through with it?? I didn’t tell her that cause that would have landed me in the emergency room. But I just feel like she is siding with them rather than me. I feel so angry. I am so fed up. The next time I see her is the day I planned my next death but I am not seeing her because I moved it up a week. Fuck it. I don’t care anymore. I am so done fighting all the fucking time and getting nowhere.

So next week when I get paid, I am scouting out the area where I wish to die and if it is feasible, find a good spot and return to it a few weeks later. I am done. I am not going to be around the rest of the summer. I don’t fucking care anymore. I will go through the motions like I am, live the double life and all. But other than that, I am going to write these damn letters and say goodbye to my friends and family. I guess that was why my psychiatrist’s letter was kind of easy to write. I no longer respect her as I once did. It hurts. But it taught me that you can’t trust anyone.

Sunday Blog 15-July-18

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

Sunday Blog 15 July 2018

Only thing I did today was go to Walgreens. My sister made dinner so after I showered, I went downstairs. I didn’t want to go because I didn’t want a flare but my niece called and I couldn’t say no. Food was good. I had a cappuccino after I ate. I wanted to make coffee but I forgot to bring down a pod.

My foot is somewhat calmer today than the last few days. I took my morning meds way later than I wanted because I fell back to sleep when the alarm went off. I woke up in the middle of the night for some reason. I was probably cold as my room was hot and the AC was off. I didn’t want to get up for anything. I was just so worn out from the past two days of dealing with a flare.

Sox won. Now there isn’t a game till Friday because of the All Star game. I hate this week. Four days of no baseball, well there is, the All Star game, but I don’t watch it because I don’t watch TV, even though I pretty much have control of the TV as my mother will be in the hospital and later, rehab. Going to be weird her not being home. I hope everything goes okay and there are no complications.

I just set my alarm for tomorrow morning as I got to be up early for my last PT appt, well least with the one I am seeing now. I am waiting for the referral to process for the functional pain program. I’ll probably find out sometime tomorrow if it was processed. Then I got to make my way into Boston to see my psychiatrist. Just fun. Going to be really hot and humid tomorrow. I just hope the trains and buses have AC that work.

pained and pissed off

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

Pained and pissed off

I didn’t go to sleep till 0700. I woke up around 1000. I sorted out my meds and as there was a threat of increased pollen, I took an extra Allegra. I then made breakfast and coffee. I was so sleepy after the coffee that I decided to take a nap. My foot exploded a few minutes after my head hit the pillow. I was so fricken mad.

I tried to calm down so I took some more Ativan and Neurontin. I usually don’t take Neurontin during the day but I wanted to fricken sleep. I had emailed my psychiatrist around 0230. She responded and asked if I can come in on Monday. I told her it would be hard as I have PT in the morning but she had a time that suited when I could get to Boston so I said okay. I really thought today was Sunday all day. I kept having to look at my phone to see that it was Saturday. I am so off from not sleeping.

I was able to fall asleep around 1400. I slept for another 3.5 hours. I was hungry so made a burger. My sister is going to have a dinner for tomorrow so I will try and grill the steak that I have. I asked her to show me how to operate it. She didn’t have time today as she was going out.

The highlight of my day was having my little 5 month old cousin come over. She is such a cutie. She kept crying every time I talked to her so I let her be. She stopped crying when I walked away. HAHA. I came down after I finished my tea because I wanted a pic of her. I snuck it as her mother doesn’t want pics. I am not going to post it but I wanted to show my friend how cute she is (not on social media). I played with her and she was “talking”. Just kind of loud stuff, like she was boss. It was funny. I love her so much.

I came back upstairs and some troll on Twitter responded to a message I had posted at god knows what hour. It was from like 1 am or so. We exchanged a few messages and then I blocked him as he was a troll. He said he was using his friend’s phone to use Twitter. Ya, you are a troll if you do that. Idiot. I am trying to stay awake but my fucking foot feels like it is being sliced open. I didn’t have a number 2 today. I am upset about this because I need to keep track of it. I don’t remember if I went yesterday or not. I think I did but I don’t remember. I am kind of in a fog so my memory isn’t great. I will take some fiber pills with my night meds and just continue to take them until I go. I will take Miralax if I need to.

I had take my blood pressure around 4 am just to see what it was. Damn batteries were dead so I had to find new ones. I found them and put them in. Then took it. It was high on both wrists. Pulse was 91, a little fast. I took it when I woke up this morning and it was a much better number. I am going to keep track of it every day in one of my notebooks. My PCP wants to compare the office visit BP to my home BP readings.

I am kind of scared of meeting with my psych on Monday. If I am cool and collected, I don’t think anything will happen. I honestly don’t know what I said in the email. I know I told her about my mother’s upcoming surgery. What I said after that, I am not sure. I know I was pissed I didn’t end my life yesterday because I was in so much damn pain. I got to get through the to the damn pain clinic that the damn dose is not adequate for flares. I need something that will cover me and the breakthrough meds are not doing that. I am having severe pain, just by moving my foot or sometimes, not even moving my foot. It just explodes while I am on the bed, not doing anything. I can’t stand it. I hate, fucking absolutely hate, not being heard and this pain doc and fellow just does not listen!! They have their own idea of what is wrong and how to treat it and that is that. No intervention or input from the patient. What kind of care is that? Paternalistic! I hate it very much. My former PCP allowed collaboration and things. We might not have agreed on some things but at least we talked about it rather than him saying this is what we are doing end of story. I wish I still had him. I know he would be attacking my weight issues, which would be stressing me out, but at least I could count on him to help control my pain. I don’t think those kind of docs exist anymore.