trying to do chores with CRPS

Trying to do chores with CRPS

I somehow slept through the night, once I went to sleep around or after 0100. I woke up 1 minute before my med alarm went off. I quickly cleared it before it went off and took my meds. Today is the start of increasing the new med, Vimpat, twice a day. I am now at 100 mg/day. I was feeling okay, pain wise. I stayed in bed and I think went back to sleep. My sister texted me saying my mother didn’t want to go to the ER to get checked out. I told her to threaten to call an ambulance but she didn’t. My sis wanted the number for the visiting nurse. I told her I would text it to her, which forced me out of bed. I went downstairs. I brushed my teeth and then got the number for my sister. My mother was on the phone and she sounded horrible. Her voice is shot to hell. Her cough is worse and her breathing is heavy, more than usual. I really think she should see her doctor so she can get on an inhaler to help her breath better and maybe some antibiotics to prevent pneumonia. She has emphysema and I think the virus is making her breathing so much worse. I will be home and I hope my mother doesn’t cancel when the nurse calls tomorrow. I will be very upset. I told her it is important to have her come to check her lungs out because she could have walking pneumonia.

I then made breakfast, my go to, egg McMuffin. Then I made coffee and think that is what caused my ankle to go berserk. My mother wanted tea and because she is deaf, I had to keep walking back and forth from the kitchen to the living room multiple times. I asked her if she wanted me to make a sauce as there was none. She said there was some in the fridge. There wasn’t. I found a container in the freezer so took it out. She made a list of things she wanted at the grocery store. I went through the paper and found some things I wanted. I put the list on my phone so I knew what to get. I will go later this week when my food stamps money comes in. My mother wanted my brother in law to take me but I don’t have the money right now.

I went upstairs after finishing my coffee. My mother wanted me to water the plants so I did that before I went upstairs. My ankle didn’t like this extra effort. By the time I got to my room, it was hurting and my foot was telling me to fuck off. I took my pain meds. I wanted lentil soup so asked my brother in law to get some before he came home. He said the grocery store parking lot was full and couldn’t find a spot. I told him it was okay. I would get some later in the week. I haven’t had lentil soup in a long time. It was about noon and I had to make supper around 4ish for my mother. It was going to be difficult so I just rested. I read some of the baseball history book. I timed myself. After about 50 minutes, I couldn’t read anymore and I couldn’t finish the chapter. I stopped where there was a gap. I goofed off on social media, going between facebook and twitter. I decided that any facebook post older than 3 days I would “hide”. It helped to get more recent posts. Around 4 I went downstairs to make the spaghetti and heat up the sauce.

My mother was not feeling good at all. I wanted her to shower but she felt too weak. I told my sister and she understood. After we ate, I took down the garbage and recycling. I finally got rid of the Christmas ham that was in the fridge and a few other things that were there for god knows how long. I also emptied the bathroom trash. My ankle was getting upset again. I went upstairs and relaxed for a bit. I had to do the day’s dishes. I got the brilliant idea of showering and then doing the dishes. I don’t know what the fuck I was thinking. Between my back and my ankle/foot, I was in rough shape. I was so mad at myself for thinking I could do all these things. I probably am not going to be able to do shit tomorrow. I have no idea if I will be able to sleep tonight. My pain is a 9 right now. I took my meds a little while ago and my right calf cramped up on me. I stretched it out by putting it on my bed and slightly leaning forward. I had trouble getting it off my bed. Then I decided to do the same to my left leg and last only a few seconds. My ankle was not having it.

I limped to bed and fixed my body pillow as it was bunching up near the headboard and trying to get on my nightstand. It is starting to annoy me so I am not sure how much longer it will stay on my bed. It is shaped like a U so one arm is dividing my bed into my sleep and office area. Problem is, I don’t have enough space like I used to and I feel kind of crowded.

So between making breakfast, coffee, watering the plants, making supper, emptying the trash and recycle, showering, and doing dishes, I am spent. I hope my mother feels better soon because I can’t continue to make supper and do dishes every night. I just can’t, it hurts too much. If I didn’t have chronic pain, it wouldn’t be a problem. But I am struggling just to make do to help my sick mother.

first Saturday blog of 2018, 6 Jan

Freezing day

It is cold out, very cold. It is in the single digits. I woke up around 5 in pain. My foot was throbbing. I had to use the bathroom but couldn’t move. I guess I didn’t have to go bad as I went back to sleep. I woke up around 0830 and needed to go. I checked on my mother and was worried as she was sprawled out on her bed. She was having trouble getting up. I helped her up and then used the bathroom. My foot hated me. It felt like it was being crushed. My ankle was telling me to fuck off, too.

I managed to make coffee and breakfast. Just eggs and toast. I didn’t want anything more elaborate but then my breakfast is usually just eggs and toast anyway, unless I buy bacon. It’s been a while since I bought bacon. Maybe I will next week when it is slightly warmer out. After I finished eating, I checked on my mother if she wanted a cup of tea or anything. She didn’t so I went upstairs. I read Facebook for a bit and then Twitter. The orange buffoon was calling himself a genius for winning the presidency. Sometimes I swear he still thinks he is campaigning. Every other day he has something to say about Hilary and how “crooked” she is. Meanwhile 9 million children will have no healthcare, some schools can’t afford heat, and the poor become poorer but it’s totally “okay” that the rich become richer. Dumbass.

My pain just shot up in my foot. This isn’t good. Maybe I will watch Money Pit again. That movie is a good distraction. I would like to read a chapter or two on my baseball book. I haven’t touched it since Monday. I want to try and set a limit on my social media time. I am finding it hard though. It provides me with a needed distraction throughout the day. I got the radio playing as silence was driving me nuts.

Just heard on the radio that a woman in New York wanted a $1 scratch ticket but the cashier rang her up for a $10 one. Not wanting to make a fuss, she paid it and won $5 million. Lucky.

Don’t know what is more distressing. That I have severe suicidal thoughts at night and forget about them in the morning or having the thoughts themselves and not acting on them when I don’t want to live. It also is distressing the severity of realizing I had such thoughts. I don’t recall having severe pain last night so not sure why I was in such despair. I know I wanted to write about it but decided to sleep instead.

Pain has been high most of the day, in spurts of a few hours. Last night my cousin called me. I just hear his ringtone and it annoys me. It was 2130 and he wanted to talk. I wanted to sleep. I was tired. But to him he said that I was frustrated, irritated, etc. I told him, no. I wanted to go to bed. He then told me to call him today when I woke up. I told him I sometimes am up at 7 did he really want me to call him? He said no, around noon would do. I literally was on the phone with him for a minute and thirty seconds. Like what the fuck! Don’t be wasting my time having me call you just for you to tell me you go things to do and you got to work tomorrow. I don’t fucking care. If he calls tonight, I am letting it go to voicemail. Some days I don’t mind talking to him but lately, he just has been annoying as fuck. If he doesn’t get a hold of me, he calls my mother. Or he’ll call my mother to find out where I am, like why can’t he call me? Why does he have to bother her? I hate that!! He acts just like his mother, my mother’s sister, who I can’t stand.

First Blizzard of 2018, AKA “Bomb Cyclone”

First Blizzard of 2018, AKA “Bomb Cyclone”

The snow was as predicted, around 15 inches in and around Massachusetts. My back porch has snow drifts that are up to about my neck. Snow is blocking the door. It will all turn to ice tomorrow as the temps are going to be like 12 degrees.

I have been turning my ceiling fan on and off most of the day because I was cold. Then the radiator would kick on and I would be hot again. Thankful I have heat as I am fortunate. During one of the off cycles of my ceiling fan, I heard a rattling of my blinds and movement among my drapes. There is a draft as my window isn’t insulated that much but it shouldn’t be rattling. I got up and pulled the blinds as sometimes when my window is unlocked, the top window sinks down. Sure enough, it was down by almost an inch. Crap. I couldn’t reach to put it up and lock the window so called my brother in law. I made way so he could get at it. Then decided to change the curtain rod my drapes were hanging from. One had bent and it was sagging. I didn’t want to hear a crash during the night when it finally gave way. I thought I would be able to put it up by myself. HA, I am funny. I could get one side up but not the other. I called my niece up to help me. She was able to do it in like 5 minutes.

The books that I had scattered around the window were on my bed. I figured I might organize them so they wouldn’t topple over. I thought of putting them in alphabetical order or by subject but after vacuuming the rug a little, I just wanted to get them off my bed as quickly as possible. I grouped likewise books together and then piled the shorter and thinner books on top I made three piles, hardcover, paperback, and my journals/notebooks. Least I will be able to find what I am looking for fairly quickly when I need it.

My mother is sick. She has some laryngitis thing going on. I hope I don’t get it. She was quick to point out that I should organize my whole room (because I 1) don’t have anything else to do and 2) I am “healthy”). We argued until I said I don’t want to hear it anymore. She says the same things when she gets into a mood and that I am “nothing” because I don’t do nothing, though she will deny saying this when you tell her how you feel. My ankle and back are killing me. I took a shower because I was full of dust and my feet were dirty. I had bought a shower mat and I love this thing. I should have bought one sooner. It is like a defatigue mat in the shower. I seriously do not have to worry about slipping, which is a good thing. I don’t think my mother has taken a shower in a few weeks though she washes up. I hope the mat helps her to be confident in the shower.

Protected: dark thoughts continue

This content is password-protected. To view it, please enter the password below.