Tag: complex regional pain syndrome

Saturday Blog 26 August 2017

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Saturday Blog 26 August 2017

I woke up around 8ish. My foot was being crushed and my bladder needed to be emptied. I played with my phone for a bit and wanted to go back to sleep but knew if I did, I wouldn’t go out to the meat shop. I checked to see when the next bus was and it was at 0915. I got dressed and then went to the bus stop. My mother didn’t hear me leave. She never does.

I got breakfast at Starbucks and wrote for a bit. Then I checked when the bus home would be. It was in about 40 mins so I left to do some shopping. I had to get eggs and my ground beef. The meat market had the ground beef on sale so I got a big package as that was the only way to get the special price. I didn’t want to get 4 pounds but whatever. I’d use some and then freeze the rest.

I called my mother when I got to the bus stop waiting area. I told her I got the eggs and she said she was calling me a mouse from now on because she didn’t hear me leave. Whatever. She asked how much the eggs were and then called me a “good girl” for getting two dozen. I cringed. She wanted me to get chicken wings but I told her I had already left the store. The chicken breast was too “expensive” and she was glad that I didn’t get it. For some reason, it didn’t look right to me so I didn’t want to get it anyway.

I came home and put the stuff away. I’m always super careful when I buy eggs because I can be a bit of a klutz. I have broken one too many eggs in my lifetime because I wasn’t careful. I took out some butter for making the chocolate zucchini bread I plan to bake. I was going to make it yesterday but was too tired. Today is still cool so I can turn on the oven. Shredding the zucchini is going to be fun, I hope. I bought four because it calls for I think 2 cups packed. It also calls for a lot of chocolate. YUM! I bought dark chocolate. I hope it comes out good.

I’m listening to Taylor Swift because I am in that kind of mood. I’m still on the fence on liking her new song. I don’t know what to make of it. I know it will grow on me if I listen to it enough. I can’t wait for her new album to come out.

My laptop screen is really going. The glitch problem is getting worse. I can only have my screen a certain angle to have it clear. I am so annoyed. I got to get in touch with my friend to find out how much a new one is going to cost. I hate to buy a new laptop when everything else on this baby is working fine. I eventually need to upgrade Microsoft office but I’ll do that when I feel like it or buy another laptop. I will get two licenses so I can put it on this laptop and the new one. Sucks that they will only allow a licensed copy on one computer when the software costs so damn much. No more sharing of CDs though I think now you just download the software. Most new laptops don’t have a CD drive anymore. Pretty soon they will be obsolete like the 3 inch diskettes.

I’m going to make Manwich for lunch. It will be my meal for the next few days because I am the only one that likes it. I haven’t had it in a long time.

Dentist and other things 2

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Dentist and other things 2

I woke up in pain so took some pain meds to settle it down. After a while, it didn’t seem to work so I used some lidocaine. Then I made some coffee and breakfast. By the time I finished my coffee, it was time to leave for the dentist appointment. He looked at my gum and said it was still swollen. He wants me to continue to use the rinse. He thinks that it will go away once the bone heals. He doesn’t think the cavity on the other side needs work. Just to use the special toothpaste and the rinse. I was happy about that. Now to get myself into a routine that I stick to about brushing my teeth. It’s really hard on some days because I just don’t feel like it. I have to be better about it to avoid further teeth damage.

I came home and wanted to bake something. But I didn’t know what to make, cookies or bread. I looked over the ingredients and found that they both needed things like butter at room temp. I didn’t take anything out and I didn’t feel like waiting. I’ll bake something over the weekend. I just hope it stays cool.

Tomorrow I need to go to the meat shop to buy ground beef so I can make Manwich. I’m the only one that likes it. My mother told me to buy a big package of beef. This way I can use half and freeze half. So I will. I can always use it to make another “dirty” gravy.

Taylor Swift just came out with a new single. I bought it today as it wasn’t available last night. It’s okay, lyrics are kind of weird but I am sure I’ll get used to them. I can’t wait for her new music to come out. I love her.

Pain just shot up. And I can’t take any more pain meds for at least another two hours. Just lovely. Maybe I’ll take some Ativan so I can go to sleep. It seems that is when I have the least amount of pain. Last night I was curious to see if I fit the proposed criteria of CRPS, complex regional pain syndrome. I asked my support group what the criteria was named as I forgot. It’s called the Budapest criteria. I fit some of it but not all the characteristics so I’m kind of nervous now whether or not when I see the new neuro in Oct I will definitely be diagnosed with it. I am going to print out the sheet that I found on the net and show it to my psychiatrist. Maybe she can help me with it. I still need to email my neuro and see what the hell she was talking about when she was telling me about small muscle fiber neuropathy. I don’t know if that is the same thing as CRPS or if I have that or what. My sleep deprived brain doesn’t remember much. I just know I was mad that she didn’t exam my ankle/foot because I had the AFO on.

My depression is in sync with my pain today. I really just want to fucking die. I am just so fed up with severe pain every single day. It’s draining the hell out of me. Every morning, afternoon, night. No sleep some nights. Intense pain increases my suicidality. I just don’t know how to manage anymore. I wish the hospitalization was more helpful for me but I got a crap shoot deal. I also wish my therapist was a little more helpful in helping me with my problems rather than just have me vent to him about my frustrations which just leads me to feel more frustrated. I want to give up so bad but my “kids” keep me here. I don’t think I can kill myself knowing how hurt they will be and the subsequent consequences of having to deal with my death.

the many pains of CRPS

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

The many pains of CRPS, Complex Regional Pain Syndrome

I woke up around 5. I checked to see if my check was deposited and it was so I paid a few bills. I am going to be dreading what my account is going to look like tomorrow. I think I’m going to have around $30 for the month. I had my mother save $50 for me towards my name change. She doesn’t know that, yet. She will in time.

I got hungry around 0630 so I made an egg burrito with lots of cheese. Flour tortillas seem to be my favorite thing right now. After breakfast, I still had an hour before I had to leave the house to meet up with her for coffee. It was cool so I shut the AC off and just had the ceiling fan on. I decided to nap. I didn’t put the blankets on. The air from the ceiling fan was bothering my CRPS foot. So I moved it to go under the blanket. WRONG MOVE! OMG Pain!! It felt like my ankle was being ripped apart. I swore and cussed and clutched my pillow. Fucking A. I couldn’t move as I was in so much pain. It settled down after lying still for about 15 minutes. Then I lifted the blankets with my right foot and snuck my left foot under. No pain then. I fell asleep until my alarm clock went off. I didn’t want to get up.

I got dressed and took a strong pain pill before leaving my room. I got to the bus stop and waited. Pain levels were fluctuating but tolerable. I had bought a gel cushion for the sole of my foot and put it on the AFO. It was killing me by the time I got to Starbucks. So I wasted $7. I couldn’t return it because I used it. I was disappointed. I hoped the burning at the bottom of my foot would pass and it did. My friend came and we had coffee. We talked for about three hours. It was good. Then my friend had to get her daughter so she left. I stayed to write a little bit but played with my phone instead. I then went to the bus stop to go home. My pain was manageable. I was looking forward to making a turkey roll up with cranberry sauce.

I got off the bus and started walking home. I got to within a block of my house and my ankle gave out on me, again. WTF. Two days in a row! I am not happy. I came home, made myself lunch and then took my pain meds. I then took a nap as I was exhausted. I had put my feet under the blanket so the fan wouldn’t bother them. I got hot and woke up after a couple hours. My ankle is still sore.

My groceries are coming sometime after 2000. I had picked a late time because I went out and wasn’t sure what time I would be home. I didn’t think it would be that late but whatever. I hope the pain meds have a chance to work by then. I am going to take another strong pain pill. I can’t take my regular one for another couple of hours.

Last night I got a message from someone who was looking for a guess blog post. I had given her my blog address and she got back to me saying my blog was about “BPD”. I have no idea where she got that from as I don’t have that disorder. I got offended and told her not to contact me anymore. Whether she thought the pain I write about is emotional pain and not physical, I don’t know. She wasn’t a mental health professional as far as I know. I hate it when people diagnose someone and don’t have the credentials. That is like me telling someone they have the flu because they have an earache. Dumbasses.

thought today would be a low pain day, wrong!

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Thought today would be a low pain day, wrong!

I slept through the night for the first time in months. I woke up around 0630 just to use the bathroom. I wasn’t in that much pain. I was hungry though as all I had to eat yesterday was a turkey and cheese roll up. I couldn’t go back to sleep so I went out after I paid a few bills and ordered my groceries.

I wanted to leave after I had my breakfast but I also wanted some more turkey breast as I used the last of it yesterday. I had a few minutes before the next bus so went to the grocery store. I thought I said turkey breast but when I rang it up, it said ham. I had to go back to the deli counter. By then I had missed the bus so I got another bus to take me down the street to take me home.

I had some scripts at Walgreens to pick up and I also wanted to get a foot cushion for my AFO. My foot was starting to hurt but it wasn’t too bad. As soon as I got to the street and a few steps beyond Walgreens, my ankle gave out. I was in severe pain. Fuck. I had a block to walk before I reached home. I was not happy. I basically tried walking without putting weight on my ankle. It was tough. I had taken my pain meds before I left the house so I needed to take the strong pain meds to settle down. Now I am bedridden the rest of the day. I just hurt so bad.

I had to restart my laptop as it was slow and the screen was getting glitchy. I need to have it replaced. I don’t know if my laptop is slow because of it being old or what. When I get the screen replace, I’ll have my friend take a look. Maybe I need more RAM or something. It seems to be fine now but that can change.

I finally finished the antibiotics today. I hate taking meds three times a day. It sucks! My gums still hurt and are still swollen. I am finally able to eat on that side without too much trouble though with the swelling, it always feels like there is something stuck there.

I was reading an article on CRPS that was written in Australia. They call this the “suicide disease” because it is so painful. I believe it. More than a few times, I have thought and planned to end my life because of the pain. I seriously am thinking of getting my medical records from my neuro so see what she wrote for yesterday’s visit. It’s kind of a blur to me and it’s still not clear if I have CRPS or she was diagnosing me with small fiber neuropathy. I was so sleepy that I just didn’t have her full attention. I do know it pissed me off that she didn’t exam my foot/ankle because I had the damn AFO on. Jerk. I guess I need to wait until Oct to get a clear cut answer, I hope. All this rift raft is driving me crazy. And in the meantime, I am in horrendous pain that makes me want to die and feel useless.