I am beat

I am beat

I left the house a couple hours before my psychiatrist’s appointment to have some blood work done. I thought a lipid panel was ordered so I fasted. It wasn’t ordered and I was starving by the time I got to the hospital. Figures. There was a wait for the blood vampires and I got one of my friends that I have known for years. Unfortunately, he has never drawn me before and had to stick me twice to get blood. After the poking and sticking, I left for Starbucks. I had about and hour to kill before my appointment. I got something to eat and my espresso. I then went back to the hospital and waited 45 minutes for my appointment. I wrote in my journal while I waited.

I wasn’t nervous until my doc was ready to see me. We talked more about pain control than about my psych issues. She wants me to take more of my strong pain pill than my regular ones because she said I was tolerant to the regular stuff. I didn’t think about that at all as being the reason why I needed so much more meds to calm my pain episodes down. She also is going to email the NP about my issues and see if they can do something for me, rather than just printing off my scripts and saying have a nice day. A monkey can do that.

She didn’t ask what my date was and I didn’t infer I had one. I am going to skip the date, for now and see if anything changes when I have my next pain management appointment with the NP. I see both my psych and the NP the same date, one before the other. Lovely. I should have had my psych appointment after the NP to let her know how it goes. I guess she will just have to get an email from me afterwards.

I missed the bus when I got back to the Square. I had to wait 45 minutes for the next one. I was not happy. My ankle was killing me and then my calf starting cramping up on me from the brace I was wearing. I forgot to put pain meds in my pill box so I went without. An idiotic move, I know. I wanted to get home quickly because my mother was cleaning and huffing and puffing while doing so. I wanted to make sure she was okay. I hated waiting and for some reason my damn Twitter app wouldn’t load new messages, even after I restarted my phone. I hated being twitterless. It helps pass the time. When I did restart, I got a flood of messages so my network must have been down on my phone, even though I had the bars. Weird.

My ankle is throbbing up a storm right now. I might have to take another pain pill. I don’t want to take the strong pain pill just for pain that is manageable. It’s like a 6 right now. I usually take the stronger pill when it’s above an 8. Course, the pain scale can be meaningless for those with chronic pain. My mother just called me saying she was making dinner, but I am not hungry. I really want a damn nap. I am tired after all the walking I did between the buildings of the hospital and going to Starbucks around the hospital, which was a few blocks away.

Mail had come as I was walking out the door this morning. I got my Star Trek shirt finally. I have been invited to a costume party for Halloween and so I will wear it for that. It’s not a real uniform, just a T-shirt with the logos of the Next Gen uni. I love it. I got to wash it though and hope it survives the first wash or I am going to be pissed. It’s got some kind of glittery things on the decals so that is why I am worried. I wish I knew where my real comm badge was. I did have the real uniform at one time but it ripped because I gained weight. I was really sad to throw it away. I kept the pins and the comm badge though but I haven’t seen it in years. Oh well. The place I bought the T-shirt is going to sell a real comm badge that is Bluetooth enabled so it works with your phone. If I live, that will be my reward. It comes out some time next month.

It was surprisingly humid today, which didn’t help my pain levels. Rain was in the forecast so I wore jeans instead of shorts as well as a button down shirt. I was sweating to death by the time I got to the train station. I was also cursing myself because I knew it was going to be near 70 today but thought with the rain it would be cool. I just wasn’t expecting humidity. Damn New England weather. Can never trust it. I have the AC cranking now to cool off. I am very glad I didn’t take it out when we had the low temps two weeks ago. Seems like Indian Summer is still around.

Feeling Nervous

Feeling Nervous

I am supposed to meet my psychiatrist tomorrow. Our last appointment was close to a month ago. I have been keeping in touch via email, sending her blunt feelings about my suicidality as well as blogs relevant to my suicidality and in general how I am doing. I am feeling nervous because there was an email I sent to her last week that basically told her that should I not show up for a future appointment, it is because I am dead. I think in that email, I told her I have a date but I don’t remember. I generally write cathartically so after I finish, it’s out of my mind so to speak. I never got a response from that email so I have no clue if she read it or not, so I could be worrying for nothing. Still, if she has read it, it’s going to be one interesting session.

Rain has started to fall and my ankle is kindly hurting me. I can’t sleep, though I took a nice two hour nap after dinner. My mother made escarole soup. There was no more chicken soup thank god. I wouldn’t have eaten it. I took a shower after the nap so I think that is why my ankle is cranky. I just took some pain meds so I hope it knocks me out soon.

Aside from feeling nervous, I am feeling depressed because I am in pain. It’s that same old thing every single night. I so want a break from it. I just have windows where I don’t have pain instead of more than a few hours. Then the pain meds wear off or I move my ankle and it starts all over again. How I miss the days when I didn’t have to take so many pain pills to get relief. There was a think on Twitter that said that tramadol is being abused in some countries because it’s “as potent as morphine”. I had to laugh. I was on tramadol and it was as effective as Tylenol in relieving my pain. It didn’t do shit. I know for some people it works but for me it didn’t help at all.

When I see my MD in December, I am going to ask for two more pills a day for my pain. The NP that I see really doesn’t give a shit about my pain. She just prints out the prescription and basically tells me to have a nice day. This is all in theory because I plan on ending things soon. The only person that can really stop me is my psychiatrist. That is why I am so nervous about my appointment tomorrow. If she feels I need to be in the hospital, I am going to be so screwed.

Being suicidal is a very ambivalent state. You want to die yet you yearn for hope to keep you here. Guilt also keeps you here, when it gets a hold of you. The guilt of those you leave behind who will be in pain from your loss. I wish I never knew about survivor loss and guilt surrounding it. Not knowing about it made having suicidal plans easier.

Train delays and other things

Train Delays and other things

I got up early, like 0630 early and couldn’t go back to sleep. Pain woke me up and I just decided to start the day as I was hungry and needed to get my disability T-pass renewed. I made breakfast and then caught the bus to the Square to get my espresso. I made it perfectly and went on my way.

I didn’t know what time the office was open to renew my pass so I rode the train until after 0930 had passed. I got to JFK/UMass station and the train got delayed. There was a fire on the tracks at the next stop and the Boston Fire Department stopped trains from passing by that station. I must have waited at least a half hour for things to clear. Then when we got to another station, we were held up again. Unreal. I was regretting my decision to ride the train and should have just got off at Downtown Crossing when I had the chance.

I finally made it to the station and got my pass renewed but they didn’t give me a card. They gave me a temporary pass, which I had to put money on. WTF. I just put money on my card now I had to put more money on this temporary pass. I was pissed. I put $7 on the pass ticket. I was going to vote early but it’s going to eat up money so I am not going to go. I will wait for my pass to come in because it has more money on it. I have until the 4th to vote. I hope the new card comes by then. It’s supposed to take 7-10 days to come.

I made it home and made fish and chips for lunch. I haven’t had it in a while. I started planning out my grocery order for next week. I am going to try not to spend as much as I did last month. Course, I always say that and it never works out. I cleared off some shit on my bed today. I can finally see my comforter. Just a few more things to clear off and then I can change my sheets. I wish this wasn’t a project every time I want to change the bedding. Every time I change my bedding I tell myself not to put stuff on top of my bed but it never works. I guess that is why I am still alive. I can’t keep promises to myself.

Pain has crept up. I had to take two pain pills because it’s above an 8 right now. I think I did too much while getting to where I needed to go today. I stood on the train until a seat became available and I think that is what did me in. Plus, they were doing construction near my bus stop so I got off on the stop before mine. That meant walking a little more than I should have. I had my brace on but my foot was already flared up by then.

When I came home, I was hot so had the AC on even though it was barely 60 degrees out. I waited until I was cold before turning it off. Now I am really cold and want to wear a sweatshirt. I think I am going to take a nap. My mother is going to reheat some chicken soup that is more than a week old for supper. Think I will pass and make a grilled cheese or something.

a midnight ramble about pain

A midnight ramble about pain

Guess what? I can’t fucking sleep. I am tired as all hell but my damn foot/ankle is giving me weird pains. I don’t know what to call them as it’s indescribable. I just know it hurts and it’s like it’s pinging because it will start and stop. Then my right ankle is curling up, by itself. That is painful. I had to take an Ativan to calm that shit down. I need to talk to my psychiatrist about this because I am not sure it is a side effect of the trilafon or if it is just a fucking nerve thing because of the nerve damage I have suffered. Either way, it’s not pleasant.

I am so glad my city has early voting starting Monday. I am going to get there, though I haven’t quite figured out how yet. I know where City Hall is but as I can’t walk there, getting there by public transportation involves buses. What fun that is going to be. And tomorrow I need to renew my disability pass for the T or I am going to be screwed come Monday as my pass expires on Sunday. I should have gone today but I didn’t feel like it. I will go tomorrow morning. I just pray they transfer the money that I have on the card to the new card. I don’t want to lose the money I have on it.

I joined a Spoonie chat this evening. It was good but very fast paced. It’s about dealing with life with disability or chronic illnesses. I met some interesting people. Some are able to work, others aren’t. It was a fun chat. Then I tried participating in the PTSD chat but it was weird. No one was commenting or asking questions so I left. I think they were watching a video of the chat and then commenting. I find it hard to tweet and watch so it was better that I left. I won’t go to that chat again.

I had to take some more Neurontin for my pain because of the weirdness in my foot/ankle. I think it’s some kind of nerve pain I am experiencing. I had taken 600 mg earlier tonight but I guess it wasn’t enough so I took another dose of 600 mg along with a pain pill. It was gross. The pain pill was bitter and the capsules of Neurontin have a weird taste to them. I should have taken them separately. Oh well, what is done is done. I know better for next time.

I have decided to grow my hair out or try to. I just need a trim right now. I hope the barber shop can give me one. Otherwise, I will have to see my cousin. I don’t mind seeing him but he smokes and then I stink of smoke afterwards. I hate smelling of smoke.