Tag: hopelessness

Nobody Knows…

by Midnight Demon, posted in cauda equina syndrome, depression, mood disorders

Nobody knows…

Today was a horrific day. I spent the morning at the hospital with my dad, having his testing done. Apparently they found something and it had to get checked out. Like today. Not tomorrow or next week. Today! I was so pissed. But luckily, I was able to squeeze in my therapy appointment, though we again just talked about how my father takes up so much of my time and that it is not appreciated, at all. And I still got to finagle getting medical records from one hospital to another. I don’t know how I am going to do this, as I know my father needs to sign his release form. I can’t do it. It’s not my records. Which means I got to drag him to get the forms released. And I have a week to do this. Talk about pressure. But I think I can talk my sister into it. He has another lovely appointment on Tuesday and I don’t have to be apart of it. I just get to hear about it.

I had about a half hour before I had to go to South Station to meet up with my friends for dinner. It was a race to the bathroom soon as I got off the bus. Both bowels and bladder decided they were going to race me to the bathroom. I lost, they won, though I didn’t realize it. I thought I had just peed myself but the second race on the way home proved that I was wrong. I changed my underwear, washed up, and now I am typing this blog because no one will fucking care that I crapped and peed my pants. The only ones that will understand are those that suffer from CES, or some other neurological condition that affects the bowels and bladder. I think MS might affect both, but I am not sure.

Nobody understands what I go through on a daily basis. No one stops and thinks that I am disabled. No one enters their mind that I might be in too much pain today to do something. Nope, they just want ALL of me there, right now, right away. Even my therapist doesn’t get it. She could have cancelled the appointment today but instead she kept it. It would have been a weight off my mind so that I didn’t have finagle the bagel to find a spot to talk to my therapist, and then keep my voice low so that people are not hearing what I am saying. I don’t know what I wanted to talk about with my therapist but I know I didn’t want to talk about my father and how he is making me lose spoons I don’t have.

I should have canceled my dinner plans but I am stubborn and I wanted to see my friends’ kids. I haven’t seen them since January. Now I am hurting and frankly, I don’t care. I am not doing a damn thing tomorrow except to eat my fettucine alfredo with butternut squash and chicken. I also have bruchetta and garlic breadsticks. I will have a good lunch tomorrow. And besides, if I didn’t go out, I would have missed the free pasta and tomato sauce they were giving out when you exited the train station. My mother is going to like that, the pasta anyway. A free box of 32 oz. will last us a good while.

But nobody knows that I lost all my spoons today and more that I cannot reclaim. I am in the negative and even though tomorrow I might be eating a good meal, I won’t be able to do much else. Which further adds to my depression. Nobody will know that I messed my pants. Nobody will know that on the way home, I almost couldn’t make the last block. My leg just had enough. But like everything else in my life, everything gets dumped on me when I can barely lift it. I am just so tired of it all. I am tired of crapping and peeing my pants. I am sick that I have to wear diapers if I want to go out of the house for more than 4 hours. And I don’t know where I am going to the money for diapers. It’s not in my budget. I still have two medications I need and I don’t know where I am going to get the money for them.

Nobody cares that my blog can be crap at times, that my writing is just isn’t good enough (by my standards). I am just sick of all the running around and not being appreciated for it. I am sick of being in horrible pain and not having a rest day in between. I am sick of being in pain, period! And nobody cares.

Better, but not great

by Midnight Demon, posted in chronic physical pain, depression, mood disorders

Better, but not great

I slept fairly well last night, despite being in horrible pain. I woke up a few times before 9, but I was able to get back to sleep. It wasn’t until my phone’s app started beeping for me to take my blood pressure meds did I get up. Then I realized that I had to go to the post office to drop off the book for my neurologist. I sent her an email saying it is on its way. I should have put the review books in the mail. I think it would be nice to get reviewed by the American Association of Suicidology. But I am too scared of rejection that I hold back.

Today is a warm day. I was sweating by the time I came home from my errands. I picked up my meds too while I was out. My ankle is kindly thanking me now. I really want to go out and get coffee but I just missed the bus and the next one isn’t for another hour. So no coffee today. I could make it at home but I don’t feel like it. Making coffee at home just doesn’t have the same appeal as going out for coffee.

Last night I was in a rough spot. I hope that I don’t ever be in that spot again. The suicidal thoughts were great and it would have been easy to take 14 pills. That was all that I needed to help my pain or make me sicker than a dog. I am glad I didn’t find out. But it scares me that I feel like that in the moment but this morning, I don’t feel like I did last night. Granted I am in less pain than I was in but still, I could have injured myself and no one would have known about it, least not until it was too late. My therapist wouldn’t get the texts until Monday. That wouldn’t have been any good.

I seriously thought about calling my psychiatrist but I had already spoke to her that day. Granted it was an urgent situation and not a “hi, how are you” one. I just think that I can get through the episodes on my own, that I don’t need any help. I feel funny asking for help. It is like it goes against the grain of what I am feeling.

I have been in this situation plenty of times. I feel like if I do reach out for help, I am a bother. And I know that if I call my psychiatrist, she most likely will tell me to go to the ER and I don’t want that. The ER is not going to help me with my pain. They won’t find anything wrong with me and then ship me off to psych ER for further evaluation. Maybe they will put me in the hospital, maybe they won’t. I just know that I don’t want to go to the ER at all because it is a waste of time for me. And being in the hospital is a bigger waste of time, as I found that out in August.

Thing is, I was in a lot of pain, more than my normal amount that I am in. And it wears you out, both mentally and physically. Now that I am not in so much pain, I can look back on what was going on and be insightful.

in so much pain

by Midnight Demon, posted in chronic physical pain, depression, suicide, writing

I don’t normally write these types of blogs. But dammit, I am in so much pain that I just don’t know what else to do but write. It started when I got home from my appointment, around 3 pm. I didn’t walk too much, except to get my haircut down the street from the hospital. I just don’t know why my pain meds are failing me. Usually they work and I should be sleeping by now. I am listening to music to distract myself because I am staring at the bottle of my pills and thinking about just emptying it. It will harm me, there is no doubt. Might even kill me as I took my night meds as well. I just have to get through the next hour so that the meds can work. I have tried going to sleep or snoozing but I just can’t get comfortable. my foot is throbbing so bad.

I really want to talk to someone yet i don’t. I have had enough of trying to talk to people today. If my psychiatrist doesn’t get it then I doubt anyone will. I just feel like no one believes me anymore when I say that I am in pain. Course I act like a “normal” person. No one can see the hurt. No one else feels the hurt. I don’t even have a limp. I might drag my foot but that would be it. But right now, I am not doing anything but sitting on my bed, having my foot up, resting as comfortably as I possibly can. But it’s not enough because I am still in pain. My foot is not swollen, least not as I can see. But it hurts like a SOB. I really hate feeling like my world is ending because of this pain. I know it should be getting better but it’s not. It feels like it is getting worse. I have to wait two weeks for my new doc appointment to find out what is wrong with my foot. I bet you 100 bucks that they find nothing wrong with it! That will just about kill me, I swear. I see my psychiatrist the week before my appointment. I am going to tell her that if they don’t find anything wrong with it, I am done seeing doctors and I am done with life. There is no reason for me to go on if i am going to be in pain all the time. This just sucks so bad.

I don’t know what my therapist is going to say. I texted her that I was thinking of emptying the bottle. I doubt I will get a response. I never get a response from her. I get frustrated with her, too. I am just in agony and no one knows about it, except for you, the blogger world and internet. But will anyone care that I am in horrendous pain? I doubt it. I am just so tired, exhausted, of dealing with this pain all the time. Sure it is worse at night. At night I battle it more. I don’t know why that is. No one knows why that is. I guess because I am at rest? but that doesn’t make any sense! I shouldn’t be in pain if I am at rest!! I should take some neurontin. Maybe what I am feeling is nerve pain, not physical pain and that is why the pain medication isn’t working. I don’t know. I really don’t want to get up again to get more pills. I am tired of taking pills. I take so many pills for different conditions. One for this, another for that. It is so redundant. Yet without these pills, I can’t function properly.

I don’t want to die right now. Yet I don’t want to live either. It is such a conundrum. I just want the pain to stop. I don’t think that is too much to ask for?? I really feel like no one understands the pain that I am in. If they did, they would try and help me more. I get to see one more doctor for the same condition that i have had for the last three years. I thought that the AFO would have helped me but no, it is making things worse. Yet if I don’t walk with it, I am in more pain than without it. I know I am probably feeling sorry for myself. But if I don’t, who is?

agitated ramble

by Midnight Demon, posted in blogging, chronic physical pain, depression

I didn’t have therapy today. I was hoping a spot would open up but it never happened. Now I have to wait till Tuesday to talk to my therapist again. This sucks. I had a very busy day and need to talk about it.

I took my father to his appointment and surprisingly, he didn’t cause my already high blood pressure to skyrocket. I went to my appointment and just as I thought, my PCP increased the new blood pressure medication that I am on. Luckily, I was spared the weight issue/reprimand.

I have been feeling anxious all day. I have been up since 0530 and I can’t seem to calm down. I took an Ativan when I took my morning meds, hoping that would calm me down some but it hasn’t. I don’t know why I am such a friggen wreck. I am wicked tired, actually, I am beyond tired. I know that I won’t be able to rest as I am too restless to stay still long enough to sleep. I just have been going all day. I had a bad dream that caused me to wake up at 0530. I don’t remember what it was about now. I know it had to do with my mother. I just hope the dream doesn’t come true.

I think most of it has to do with the transgender piece I wrote yesterday, not the public version but the password protected one. I don’t think my therapist has read it yet and I am nervous about it.

I got an email from my pdoc asking if I can come in earlier tomorrow and I am like whoa, our appointment isn’t until next week. I really don’t want to do ANYTHING tomorrow because my leg is acting up. I got the nerve pain zaps last night and my foot has been on fire since it happened. I haven’t been able to calm it down because there is nothing I can take for it. I need a day to rest after I spent most of the day in my AFO brace (ankle/foot orthotic). My leg is also angry at me because my PCP had to press on my leg to see if it hurt. Fucker. Now I have to take my pain meds to quiet that down too. I am just going to have a party tonight with my meds and see what works and what doesn’t. I got to get rid of this anxiety first though. I think I will take an Ativan and hope for the best. Then I can take the nerve pain med and hope it puts the fire out in my foot. It sucks to have your foot constantly burning and knowing there is nothing you can take for it. I was driving today so I was limited in what I could take. It is just driving me crazy and I know that is probably one of the reasons why my anxiety is up and why I am so restless. I just can’t sit still. But writing has given me something to focus on, least for the time being.

I don’t really feel like I am hypomanic as I do not have a good mood. I am still really depressed. This agitation is killing me though. I think I am going to take some of my nerve pain meds and see if that calms me down. If it doesn’t, I will take an anti-psychotic. I just cannot stand being like this. And I really want to take a nap, though it is getting close to bed time so I probably shouldn’t. UGH!!! So frustrated.

I am happy that my PCP didn’t restrict the number of pills I got for my pain meds due to my psych hospitalization. He asked if I did something and I told him no. He doesn’t need to know what lead to the hospitalization, just that I was there because my blood pressure was crazy! This is the second time that my blood pressure was out of control during an inpatient psych visit. I don’t know if it was because of the stress that I was under or what. But I do know that I need to lose some weight to keep it under control with ONE medication rather than two. My biggest fear is that I will become hypotensive (low blood pressure). But I have been monitoring my bp at home so I don’t think that will be a problem. I take my blood pressure twice a day and the pressure seems to be worse at night. Happened while in the hospital too so no change there. Though I did want to slap one of the mental health workers when she asked me if I was drinking enough. Stupid dumbass. My pressure would be low if I was dehydrated. And I drank lots while I was in the hospital. Mostly ginger ale and juice cocktail (OJ and cranberry juice). I wish I could have had some vodka with the juice sometimes. I swore I was going to have a shot of gin when I got out but I still haven’t had it. I lost the feeling for drinking. Plus, it doesn’t mix with my pain meds.

I took my nerve pain meds. It better knock out the stupid burning pain that I am experiencing. I don’t usually have this type of pain. I usually have a physical type of pain that is helped with pain meds (narcotic kind). The nerve pain meds are not narcotic. And it doesn’t make sense since I have increased my mood stabilizer as that also can knock out nerve pain. Man, things are really messed up. I am on too many meds. I got to find a way to get off them.