Don’t call me daughter 6
Yesterday I was in the kitchen with my mother and I was in a mood. I wasn’t feeling so great and just wanted to do what I needed to and go back to my room. My mother was there and asked what was wrong. She wanted me to talk to her. Fuck that. She lost that right when she refused to call me son. From now on I will correct her when she is misgendering me. But I am not going to talk to her for any reason other than what goes on in the house. I am not going to talk to her like I did before about my ailments and doctor appointments. She is getting to be the egg donor and if that is what it takes to cut off feelings from her then so be it.
I’ve been having a hard time with the cramps. I don’t know if they are uterine or bladder related but as an experiment, I cathed and felt relief at first only to have severe pain afterwards. I don’t know what to make of it and I have cathed since. Taking a double dose of Miralax was a bad idea. I had colon blow and woke up with crap in my pants. Luckily, I didn’t get any on the bed. I had to shower and what is worse my mother had to use the bathroom so I was so embarrassed. I need to time taking it right. Thing is it is so unpredictable when it works. It could be a few hours or could be a day. There is no time table to expect when to go.
I am still have cramps and being really down about it. I called my gyn to make an appointment for the exam. It is in May. I see the uro NP this week so I am going to tell her and ask for a urine culture to be done just to be sure I don’t have an infection that could be causing this. I really am not looking forward to surgery again but there is little choice I have. Once the offending organ is gone is should be apparent what is causing what. I doubled my bladder spasms pill yesterday to see if it would help and it did a little bit. Maybe this is bladder related. I won’t know until the uterus is gone. I got my bladder on a schedule again. I didn’t want to do it but I have gone past the six hours I am supposed to go. I can’t keep holding on to my urine for so long. It could be why I have spasms as well.
I wonder if my mother is ashamed of me and that is why she doesn’t want to call me son. It would make sense. I don’t get the sense she is proud of me. I just don’t understand why she can’t accept her child. This bothers me so much. When you bring it up to her, she is dismissive. Then I think about all the abuse she put me through and it just makes me so sad and angry. She used her trust as a mother to do her evil bidding of abusing and touching me when she had no right to touch or look. I get mad at my pediatrician who documented all these things and didn’t do a damn thing about it.
Feeling weak and tired
I haven’t been eating much the past few days and yesterday I didn’t drink enough fluids like I should. I am feeling weak and tired today. I ordered my groceries as I needed half and half. I weighed myself this morning and I am down another 10lbs. My clothes are starting to become baggy on me. I need to take a shower today. I don’t know if I will have the energy for it. I am feeling kind of rotten. I just ordered a caramel macchiato because I feel crappy and need caffeine. I don’t have half and half so I can’t make my coffee. I need the treat anyways.
I had a bowl of cereal today. I got a text while eating to sign up for the vaccine so I did that. I will be going Wed to get the vaccine in Boston. It should be easy to get to as I just have to take the bus and train there. Right now it looks like it is going to rain on Wed. I hate traveling in the rain. But it will be worth going out for this vaccine.
I have therapy tomorrow and I don’t feel like going. I just want to stay in bed. I am in my kitchen as I am waiting for my Starbucks. It should be here soon. I am glad I can get a delivery. It is worth the cost for every now and then. Not every day though. It would be too expensive. I am only having it today because I need caffeine.
I have to go to the pharmacy to pick up my meds. I don’t think I will go today though. I am too tired and weak. I haven’t left the house since I got diagnosed with Covid. I know part of the reason I am so weak is because I haven’t done any exercises or walked since being quarantined.
I am back in my room because I am cold. My sister had the door to the porch open and then tells me I should contact the doctor because I am cold. Sure and maybe if you close the door it wouldn’t be so damn cold in the kitchen either. She has been driving me fucking crazy. I seriously have been thinking of moving out as a friend has been wanting me to live with her for some time now. She has a room for me and it would be less lonely for her to have someone live with her.
I am listening to Taylor’s Fearless album (her version). It is one of my favorite albums. I haven’t stopped listening to the album since I was finally able to download it to my phone. I had four shots espresso with my drink and I am ready to nap. WTF. I hate that sometimes caffeine has the opposite effect on me. The song fearless has me dancing in my seat. I love this song so much. I am calling the new song Mr. Perfectly Fine as the new number one.
Day 6 of covid19
I am in my 6th day of quarantining and being sick from covid. I feel really tired and weak. I have been trying to stay hydrated but it has been difficult as all I want to do is sleep. Today I felt a little better so made my coffee and had my breakfast cookies with it while in bed. My sister has been helpful in getting me food and stuff but I haven’t been too hungry.
Taylor Swift released her version of Fearless today and I have been having trouble downloading the songs after buying the album. There just seems to be a glitch between my phone and Amazon music app. The app is awful and with each update, gets worse and worse. But I am listening to the app as that is the only way to listen to the music right now. I am not entirely up for listening to music because my head feels so wonky due to covid. I just feel like I have the worst cold ever.
I need to shower today. I haven’t had a shower since last week. I know it is going to take a lot of energy to shower and wash up. I know I will feel a little better if I take one. It might clear up my nose for a little bit. I hate a stuffy nose more than anything. I hate being sick. All I keep thinking of is the setback this is going to cost me because I am not being active like I wanted to be. I just want to sleep all the time. I will be out of quarantine Tues. I cannot wait. I probably will still stay in my room but I am going to go for a walk somewhere soon as I get clearance from the government. Then I can schedule my vaccine so I don’t get it again.
I finally got the stimulus money so I plan on calling the probate court when I feel a little better to order a certified copy of my legal name change so I can get my passport renewed. I’ve been wanting to get my passport renewed for a while but I never had the money for it. The total cost for getting it is around $200, which includes getting my certified paperwork.
I am fighting a nap so hard. I am trying not to sleep too much today but it is getting exhausting. The fatigue I feel is way worse than my normal fatigue. I really hate that this is going to decondition me further. I think I am going to have to be in PT the rest of the year to get some of my strength back. My PT is good though so I am glad I have a good therapist. Sucks I couldn’t see her this week though. I canceled my appointment because I thought I would be getting the vaccine and too messed up by the shot to see her. Nope. Now I got to reschedule the vaccine yet again.
I’ve been down since July…
Been listening to the song Evermore by Taylor Swift. It is a song that I can relate to. It means so much to me. I am home alone and listening via my Bluetooth headset. I had two cups of coffee today and I am not feeling hungry at all despite just having the belVita biscuits with the coffee. I am trying to keep track of my bladder function by recording the times I void in an excel sheet on my phone. I just added cath to my med app so I know what time I am supposed to go by. I just drank a bunch of Gatorade so I am hoping to go soon. I am supposed to go every 4-6 hours, more if I drink a lot or have coffee. I have been sticking with the six hour mark rather than four because otherwise I would be cathing instead of voiding on my own. I just don’t get the urge till around really the 5 hour mark. This is all because of the nerve damage caused by the tethered cord that I had and needed surgery for a year ago.
It was a nice day yesterday. I drank my coffee on the back porch. I want to put a chair out there so I can go and sit on the porch and just be outside for a bit. I have to buy the chair. A plastic one so it can be easily washed and not have to worry about the weather spoiling it. Just will have to worry on windy days because it could get blown off the porch!
I had therapy Monday. It ended with me being annoyed. We were talking about my deconditioned body and she wants me to talk to my PT about what I can do about it. Basically it means more PT for me and she said I could have a year of it to regain my strength back. I think she is right. The idea of going back to PT doesn’t appeal to me but I know that I have to do it if I want the short of breath and tiredness to go away. Then I got depressed and we talked about that and how frustrated I am by the managing chronic pain book that I bought. As we ended she said not to work on it until our next session when we can do it together.
I need to shave and shower. I have PT this afternoon. I am not sure if I will be going because my bowels seem to be unpredictable right now. I might have a virtual appointment with her. I need to go out as it has been a week since I last left the house. I had my T shot today in my left nerve damaged thigh. I am kind of hurting but it isn’t too bad. My ankle is hurting me more than my thigh. Having the shot in my thigh always worries me. I need to walk it off and I will today when I go out for my appointment. It is going to be another nice day today, though cooler than it was yesterday.
Last night I was pretty depressed and suicidal. I don’t really know why. I just got overwhelmed with being sad and just wanted to die. I was listening to the song Exile by Taylor Swift. The lyrics were so powerful. I kept wondering why I am still alive. I want to be dead so bad yet the people around me keep me here and I resent them. I really wish I could live some where else so I can be away from my toxic family. I know being around my mother is not good for my mental health but I have no where else to go. I don’t earn enough money to pay rent somewhere. I can’t work. Just sucks and I will always have suicide as an option.