New Year new positive
So my nephew is positive for Covid and so we need to isolate for the next week or so. I will have to test one of these days but I am not sure where to go as the place I went to in the past is closed. I will have to call my doctor’s office and find out where to go.
I have been going through my inbox trying to clean it out. I have 48 unread messages, down from 60. I also have been sending read mail either to the trash or to read mail for archive. I haven’t gone through all 100+ emails yet but I am sure by day’s end, it will be cleaned up.
I plan on reading more this week. I have less than 100 pages in the Medical Apartheid book I am reading. I can’t wait to be done with this book because it is so sad and angering. I plan on reading Rory O’Connor’s book When it is darkest next. It is about his suicide research and about suicide in general. I heard it was good and I have followed Rory’s research the past several years now. He is based in Scotland.
I still need to do my meds for the week. I got to call my pcp office tomorrow. I don’t know who will be prescribing meds for me from now on as my PCP has left the practice. I don’t know if I will need to be seen because my heart rate has been in the 100s the past few days. I have stopped the new meds and my blood pressure was high this morning. I will have to check it again tomorrow and see what it is.
The new box of catheters I opened has a lot of defective caths in it. So far there have been five in the box. I took a pic of the lot number I plan on sending to the company when I am done with it because there may be more in there that I don’t know about yet. I have an appointment with the uro NP this week. It will be good to see her to check in. Things have been going okay so far. I still have the bladder pain when I empty but I guess that is just something I have to live with. I am glad I got my uterus taken out so I don’t have to guess anymore where the pain is coming from.
My shoulder pain has been mild the past few days. Taking Excedrin has been so helpful. I cannot put on sweatshirts/hoodies. It hurts too much to pull the shirt down. I also hurt when pulling up my pants so I got to be careful about how high I go. I cannot scratch my left boob or side without excruciating pain. I am glad I have a back scratcher for my back itch. I am glad it is settling down some. Still two weeks before I see the surgeon.
I think because I have been taking extra pain meds my CRPS pain has been down. My ankle hasn’t been as flared up as it usually is. It will still get cold and I will have to wear socks to warm it up and keep it warm.
Long PT session and other things
I woke up with my arm very sore. I don’t know what I do in my sleep that makes it angry. I had my coffee and my biscuits. I had an appointment with my psychiatrist that I had to be at my PT place for because the times were close together. We talked on the phone because zoom was not a good connection. He agreed to give me the 90 day Latuda and refilled my Ativan script. He thinks my frozen episodes are anxiety related and wants me to try and take an Ativan before it happens or when I feel it coming on. I am glad it is not a medication issue.
PT was not so great. My arm is more sore after seeing her. We went to do the stick exercises and my bicep muscles flipped out. I hurt so much. I thought I was going to cry. The muscles are so tight and sore. I got to put more heat on them. I am to lay off the exercises for tomorrow but to do them half step the following day. The PT said it could take up to four months before I am better. Fuck. I am two months into this so hopefully I am halfway there. The ortho was vague in his notes about how to proceed. I see the shoulder guy next month. Maybe I will get better answers from him. I never broke a bone before so I have no idea what time it takes to heal. I know that lifting my 5lb weights are off limits right now. I will only aggravate the muscles more than they are irritated.
My psychiatrist said that a secretary will be calling to book our next appointment. That if I don’t hear from them in a few weeks to send him a message. I asked if it will be in person and he said no. His department is still virtual due to the new threats. So weird because I will be seeing my therapist tomorrow. I told my PT I was seeing her and she asked how long has it been. I said more than a year and a half. I have my outfit all picked out. I am going to wear my new cardigan with my jeans. I haven’t decided if I am going to wear my khaki colored jeans or blue ones. I will decide tomorrow.
My mother had supper for me when I came home from PT. I had just planned on making a frozen dinner. I had hot dogs and potatoes with an artichoke. It was good. There was also chicken cutlets so I had one. Now I am going to color a dinosaur and post it to Twitter.
I had a difficult night sleeping. I had a bad dream where my molester was at my house and I was accusing him of abuse, which he denied. Then he got so mad he tried to kill me. I woke up very scared and it took me a while to get back to sleep. I then had to pee and I must have been holding on to the pee longer than I thought because then my abdomen started hurting after I was empty. I managed to go back to sleep and slept till a little after 8. I used the bathroom again and it was the same thing. I was very full and my bladder hurt when I was empty. I didn’t drink that much during the time I was awake. I was careful not to. I took my morning meds when I came back to my room and then went back to sleep again. I woke up a little after 12 and I was so damn tired. I wanted to go to the grocery store to exchange a coffee but I fear the trip will wear me out too much so I don’t want to go.
I also have been having frozen moments where I feel like I can’t move. Like I am stuck. I don’t know if it a symptom of PTSD or a side effect of the medication I take. I got to talk to my psychiatrist about it when I see him on Tues. I also need to ask him if he would give me a 90 day supply of the Latuda as it is the most expensive medication that I take and it will a lot when I have to pay again next year. I got to budget my meds until I reach $300 deductible. I have six meds that I get at the retail pharmacy. The rest are mail order. If I can get the Latuda on mail order that would be good because it is $140 for 90 days.
I took a double dose of Miralax today because it has been days since I moved my bowels. I am getting so backed up. When I got up, I had two cups of coffee and sometimes that triggers me to go to the bathroom but lately it hasn’t done it. I will double dose until I go and then go back to regular dosing. I take this with Gatorade and it just seems like the stuff takes away the flavor and just leaves the sugary taste behind. That is all that I feel like I am drinking, sugar.
Usually after every shower, I take a selfie and post it. I do this so there is a record of when I last showered as I usually don’t remember. It has been five days since I last took one so I might end up taking one tonight before bed. I stopped shaving the back of my head and sides so I am just going to let it grow. Yesterday I was going to see my barber but I used the money to get the keys to the house as my mother didn’t have the full amount to pay for them. I canceled my appointment but will go sometime next week.
Shoulder is really hurting so when I went downstairs to put my dinner in the oven, I heated up the heat pack. It helped a little bit but caused my neck to hurt. So now when I go back downstairs, I need to put heat on my neck. I am making a beef pot pie for dinner and hope I don’t burn myself again. I have not had luck with these pies. The first one, I got a 2nd degree burn and the last one I made, I burned my finger. Think I got to wear oven mitts when taking the pie out of the oven and when I transfer it to a plate.
Groceries and more groceries
I had my groceries delivered today. I ordered a lot of Gatorade and Powerade to last me for the month. Every month my mother asks me why I buy so much and I tell her it is my monthly supply. I brought up all the bags except for my cereal. I totally forgot they were there until I came home from the pharmacy and saw them there. There are like ~7 bags left to bring up to my room. I have been doing it by myself, which is taking me some time because I have to take breaks. My arm is so damn sore but it is a good sore not a bad one.
I sent my therapist a message last night about how I was suicidal but I was too tired to kill myself. I said I was pathetic. She responded and said that I wasn’t pathetic. I need to address the pain. I asked how and she said by talking about it and using coping skills. I hate coping skills. It is just this broad umbrella of things. It is like saying you need a screwdriver for the screw you want to tighten but you have so many damn screwdrivers you don’t know which one to use. It is really frustrating. And when you are already upset and looking for something to soothe you, you want something right now that will work not something that will frustrate you more.
I ordered my glasses and will file a claim with my insurance company so I can get reimbursed. Hope it isn’t a hassle. I have not done this before. They should be shipping out soon. I just hope the frames fit me. I ordered a small so we’ll see. Friday I need to start the process of changing my bedding because I spilled Gatorade on my blanket and sheets last night. I grabbed the bottle a little too tightly and it spilled. Most of it got on me so I had to change my shirt.
I am in a lot of pain with my shoulder because of lifting all the bottles of Gatorade and Powerade I bought. I don’t think I can lift the remaining bags tonight. I still haven’t changed back into my PJs from when I left for the pharmacy. I might keep on the thermal socks. It is supposed to snow tonight. I hope all the snowing happens tonight and not in the morning. We aren’t supposed to get that much, only an inch or so but walking in it can be yucky. I rescheduled my appointment with my PT for tomorrow morning. I hope I sleep tonight or getting up is going to be difficult. I also scheduled an appointment with OT for January. I thought it was for pelvic floor but it is for cathing. It is with the same OT I saw last year.
I think I am going to have to double dose the Miralax as the new meds are really constipating me. And because I mostly stand when I cath, I am not using the same muscles to poop. I was able to crap a little today but it wasn’t enough. My stomach feels so awful.
I have three updates and need to restart my laptop. I just installed Win 11. It is okay so far. All my programs seem to be running okay. Tomorrow in between appointments I will be going to see a locksmith about getting some keys made for the screen door that was just put on. It is an odd shaped key so I hope they can do it. I don’t know who else will be able to do it.