Evening Saturday Blog

Evening Saturday Blog

For the first time in the last two weeks, I missed my afternoon dose of trilafon. I am kind of beating myself up about it but there is nothing I can do about it unless my symptoms come back in full attack. They haven’t so I think I am okay with just taking 4 mg tonight. It was one of those, yea I will take it in a minute and then forgot when the minute passed. I do the same thing with my blood pressure meds, which is why I have an app that reminds me to take my meds.

I usually take my first dose of trilafon a few hours after waking up, usually after or while I am having my coffee. I figure if I take it with the coffee it fights off the drowsy effect. Today I had two cups of coffee and I was still tired by the end of the baseball game. I pretty much watched it from beginning to end, well, watched a couple of innings and then listened to the rest of the game. I am happy they beat the Skankees again. When Sandy Leon was batting, I just had a feeling he was going to hit a homerun. I didn’t say anything because that jinxes it. And when I heard Joe Castig say that ball is gone, I was whooping up and down on my bed. It was so sweet. That made it 5-1 at the time. The final score was 5-2. It was a good game.

I finally finished one of the books that I started but my Kindle ran out of juice. That is the only problem with technology, needing power. A regular book doesn’t need that kind of power. You just have to remember to carry it with you. I had already finished the single but at the end it had the beginning chapter of another Keller series. I think I already read it as it sounded familiar. The book is written by my favorite author Lawrence Block. Keller is one of his characters that I like. He plays a professional assassin. Block’s first book that I got hooked on was “Eight million ways to die”. He had this series by another one of his characters called Matt Scudder. I just fell in love with Matt when I was 15. He was struggling with his issues with alcohol and I was struggling to stay alive with my suicidal thoughts. Block’s books gave me the much needed distraction to keep going. I feel like I should write to him, but I don’t want to sound corny. I do have his email address because what I have to say will be longer than 140 characters in a tweet. I am not that tactful.

Now I am trying to get into a Scudder-like mystery/crime novel written by Robert Galbraith aka JK Rowling. I read the first chapter this morning and it was so meh. It was just so ordinary. It reminded me of a book by Block, “out the window”. I know that I shouldn’t be judging this like a Block book but when that is all you have read for the past two decades, you kind of have a standard. But this book, “The Cuckoo’s Calling” was a National Bestseller so who am I to judge it.

I have been reading my blog from two years ago. Seems like almost every day I wrote more about my pain than about the suicidality I was feeling. My blog has taken such a turn from being about my suicidality to chronic pain that I had to change the brief description as it was more about my physical pain than my psychache. I know I don’t write about my suicidal thoughts that much anymore. I still get them when my pain is off the charts. But it’s mostly my physical pain that is off the charts lately. My psychache seems to be in check. I guess being on an antidepressant has benefitted me the last few months. There was a time back in September 2015 after my New York Times article was published that my depression got worse. I am so used to it that I hardly remember when the episodes start and when things get worse is usually when things start clicking that something is wrong. It’s rare that I get physical symptoms of depression. But that is how bad things got. I just wish the weight I lost was more significant than it was. Only because I gained it all back, sadly. I was so damn close to losing my ideal weight but nope, it wasn’t meant to be. I am just grateful that my NP isn’t a big weight freak like my PCP was. It was really stressing me out and actually caused me to gain weight than lose it.

I have no idea where my writing is going. I have thought about it a million times but nothing comes to mind about what I want to write. It’s been months since I wrote something. The only thing that I did write while I was in the hospital was the first hour of my father’s home visit before he died. He lived only two hours after bringing him home from the nursing home. I still haven’t written it up. Nor did I finish it. The last hour was difficult to write without having PTSD symptoms. I never wrote it. Tonight I was thinking about the last time I saw him before he died. It wasn’t as painful as it once was. I also wrote a lot about him in 2014 in the blogs that I read. That was when he had a GI bleed and his hydrocele surgery. I didn’t write in detail about his illnesses because it is my blog and feel that I should be writing more about my feelings than him. He was the source of my suicidality for a long time. Now that he is gone, I am less suicidal. Don’t get me wrong, I still get suicidal. It’s just that his joking and torturing that made me want to die is gone. He just made you feel like a nobody. And that is how I felt whenever he was around. I also felt like I didn’t matter, that his needs were more important than mine, because they were. He had to come first and if he didn’t, he got so mad. That was how he was. And unfortunately, I miss the bastard.

made it out for coffee and pizza

Made it out for coffee and pizza

I woke up in time to catch the next bus to the square, though my uncle saw me at the bus stop and offered me a ride. That was so nice of him. It was really muggy today. There were hardly any seats at Starbucks when I got there. I had a double shot of espresso over ice and then added soy milk. It’s better than spending $4 for a soy latte. My friend told me about this and I have been drinking it when I don’t have my cold brewed coffee. I wanted to read some psych today but I just couldn’t get in the mood to read. I was sitting in an uncomfortable chair so I just decided to write in my journal until the next bus home came.

I got my prescription filled and ran my mother’s errand. She called me on the bus ride home. I wasn’t too hungry when I got home and then I did so I ordered a pizza. I didn’t feel like having it delivered so I just took a walk and picked it up. I was sweating bullets by the time I came back home with the hot pizza. I had two slices and then I was full. I plan on having more tonight for dinner. I can eat pizza the whole day. It’s one of my favorite foods.

I paged my psych to tell her how things are going. I am still waiting to hear back from her. I hope the talk goes well and doesn’t end up with me going to the psych ER. The voices have been fairly under control with taking 8 mg of trilafon. I have been keeping the 4 mg doses apart and it seems to be working well. Sometimes you just got to play a little to know what works. It’s always a trial and error when using psych medications. Thing is, remembering to take it. I took the dose before I left the house because going on the bus and train sometimes causes me to get agitated. It can be a little sedating but I had the coffee so it perked me up.

Baseball game is on tonight. They are playing the Skankees. They suck more than we do so I hope we win. They are playing in NY, which I am sure is more humid than Boston right now. I hope the second half of baseball goes smoothly for my guys. It’s been a rough start but we are still only two games back from 1st place.

I feel like making coffee even though I just had a cup. I try not to have more than one cup of coffee a day because I can get agitated and that is the last thing I need right now. I sometimes will have two cups but only if they are spaced out so not to give me the jitters. I don’t know why I crave a second cup of coffee lately. I am just afraid it will mess with my sleep if I do have it.

My psych got back to me. She is glad she heard from me. She is okay with the 8 mg but would like me to go back down if I can. I really don’t want to because things were pretty scary with just taking the 4 mg.

Reading Randomness

I’ve had a long day and it’s been pretty exhausting, though I didn’t really do much. I had called my cousin to tell him I wouldn’t be visiting him because of my pain and he was not sympathetic at all. I knew he wouldn’t be. I was to say hi to him in the morning but he never called me so I went about my day. It was muggy so I pretty much just stayed in my room.

I finally finished Harry Potter and the Half Blood Prince. I spent most of the afternoon reading. I am glad I am done with it because I have finished the series. Now I can move on to my other books. If I am up to it, I will start “The Cuckoo’s Calling”, which is another book by JK Rowling written under her Pen Name Robert Galbraith. If I like the series, I will read the other two books. It’s amazing what you learn from Twitter about authors.

My voices are quiet but the songs in my head are still going. They aren’t as loud as they have been. I forgot to take my dose earlier this afternoon. Yesterday, I took 12 mg of trilafon to quiet things down. Now it seems to be wearing off. I meant to call my psychiatrist but I haven’t done so. I will try tomorrow. I don’t feel like talking to anyone tonight.

The Sox are still off. They don’t play again till tomorrow night. I miss hearing about baseball. The sox are still trying to get a high school left handed pitcher. He went for a physical today, but there has been no deal yet. I wish they would sign him already.

My mood is pretty much the same: bleak and sometimes gloomy. I just can’t get out of this funk I am in and I don’t know how much the psychosis is playing a part. Most of the time I feel flat, like I don’t have any emotions at all. When I am not feeling that way, I feel sad and depressed. I don’t feel joy or any positive feelings. Nothing makes me “happy”.

I have been fighting sleep since I woke up. I just feel really tired. I have no energy to do anything. It took all my spoons just to take a shower this morning. But I know if I lie down, I will just wake up in ten minutes or my ankle will explode in pain. That seems to be happening a lot more frequently. I lie down and my ankle hurts big time. It doesn’t really bother me while I am in a seated position but soon as I lie down, forget about it. Pisses me off.

I had texted my therapist this morning to see if there were any openings to let me know. So far there hasn’t been and as the night goes on, I don’t think there are going to be any. The only thing I have planned for tomorrow is to go to Walgreens to do an errand for my mother. She needs some stuff for the house. I might go to Starbucks in the morning and then go on my way home. I really should get cracking on the psychology 101 book that I bought. I am almost done with chapter 1. There are long chapters in this book. I can only read so much before my brain gets fried or I lose interest in what I am reading. I am glad I am not in school or I would have flunked by now.

feeling exhausted from psychosis

I took a nap in the afternoon and I still am not quite awake. I really am not looking forward to tomorrow where I said I would be going to a BBQ. I didn’t realize that my mother’s sisters would be going as well. I am going to be bored out of my tree. I had thought of going into the hospital but am afraid my mother’s blood sugar would crash. She has been stable since being home from the hospital. I just worry the stress of me going to into the hospital might cause her to become unstable. I could be wrong but I don’t want to be right.

I talked with my therapist about going in the hospital as the voices are just getting worse and not better despite me taking the trilafon regularly. I am still up to 8 mg a day, which is a moderate dose. I told my therapist I would page my psychiatrist but still haven’t done it. I am kind of afraid that my psych will tell me I need to be in the hospital and then I will have no choice but to go. I really don’t want to go in, for the reasons I have mentioned. I am supposed to babysit next week and that will be difficult if I am in the hospital.

My therapist and I talked more about how the psychosis is affecting me. It is blunting my emotions so it is hard to feel anything. When I do feel something, it’s mostly depression. Last night I was feeling sad because I was thinking about my father. I was tempted to call my sister but it was late. I had briefly discussed the grief of my father with the NP I saw yesterday. She still says what I am going through is normal, what ever that means.

Since waking up at 0300 this morning, I have had the shits. I don’t know why. I haven’t eaten very much in the last couple of days. It’s taken a lot out of me. I think that was why I feel so tired today, despite drinking coffee. I just feel really exhausted. I don’t think I am going to go out with my cousin and aunts tomorrow. It’s going to be too stressful for me and that is the last thing I need right now.