Tag: sleeplessness

lack of sleep is a costly thing

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, chronic physical pain, depression

I can’t sleep but then it’s early for me. I have been thinking about all the nights I have not been able to sleep because of pain, because of worries, because of things that keep running through my head.

Tonight I feel suicidal but I am not going to act on it. I just don’t feel the lethality of my thoughts anymore though if given a chance to actually act on them I might do it. I just don’t care anymore. If I live, if I die. What difference does it make. I still will be doing the same thing tomorrow that I am doing today, nothing. I realized that because I don’t sit down, say in a chair, it has helped my leg get better. I don’t know how better as the pain is less but when I walk or have a long day, it will flair. Even on days when I don’t have long days or walk it will flair up. There is no rhyme or reason as to why this happens. But it bugs me. I need something to do because I am going out of my mind. I have MASH DVDs that I can watch but I don’t watch them. I have other programs I can watch but I don’t. I can clean my room but that just overwhelms me. I try to go out at least once a day but even that seems to be too much of a hassle for me. I am becoming a hermit and I don’t like it. I know tomorrow I will have to go out to pick up my prescription. I probably will get a soda as I have not had one in a few days. I might get a tonic water to avoid the calories of a soda as I am watching my weight. I also might mix this tonic water with some gin and have a drink. I love gin. It tastes so good but I can’t have too much or I will get sick.

I just tried stretching my legs. It felt good. I wish I could remember to do it every day. Maybe then they won’t be so tight. Right now it’s nine thirty in the evening and I am thinking of going to bed but it hold no good dreams for me. I dream about work or killing myself. And this saddens me. I hate trying to go to sleep. Unless I am severely exhausted, I will fight it till the end. No matter how many pills, I take to get to sleep it seems my body always fights it no matter what. It is so frustrating. My lovely Neurontin that I love to take to zone out no longer works for me, even at high doses. I used to be able to sleep a good twelve hours, now I’m lucky to sleep five. That is my interval, four hours maximum. Where I used to sleep till 10 am or later, I am now waking up between six and eight in the morning. I hate this. I need something that makes me sleep longer but I don’t know what to take to let me sleep. Maybe some benedryl. I don’t know…

And this is all if I don’t have pain keeping me up. If I have pain then I am not sleeping at all. I writher in agony until the pain meds bring me some relief. Then soon as they wear off I am in pain again it starts the cycle all over again. The doctors don’t get it. They see me at 2-3 in the afternoon when I am not at my worst pain and think I am doing ok or better than I was the month before and give me my pills and say have a nice month before coming back to tell them the same story of losing sleep because of pain. Pain that wakes me up. Pain that keeps me awake. They don’t care. I am the one paying the price and they don’t care. They think that 2-3 pills a day is an adequate dose to keep me from withering in agony but they don’t see the price it is costing me. Lack of sleep. Lack of ambition, lack of motivation to do things I normally do. I tell them all this and still all I get is lose weight and be more active. I’ll be more active when I am dead…

Dreaming about pain

by Midnight Demon, posted in CES, Chronic pain, chronic physical pain, depression, mood disorders, physical pain, writing

Dreaming about being in pain

Today I woke up at 05:30 after having a dream that my foot exploded into pain. I woke up to find that I was indeed in pain. I had somehow rolled onto my back (I am usually a side sleeper) and crossed my feet, which my bad foot didn’t like. I took a couple of pain pills and then tried to go back to sleep but I couldn’t. The pain just wouldn’t ease up until the meds kicked. By then I became fully awake and have been up the past several hours. I am starting to get cranky to the point of yelling at my deaf mother for having the TV too loud. I just took some more pain meds and some Ativan to try and take a nap.

I had therapy again today. This time I just bitched about my horrible day yesterday and we talked a little about yesterday being the anniversary of why I got into therapy to begin with: my father. I don’t like him anymore today than I did 22 years ago. He is the source of my problems and last night even though I was struggling, I really wanted to cut like I did when this whole thing started. I won’t go into detail about it because I am just too tired to stir up memories of that night. Actually today is the day I first started therapy 22 yrs ago. But it was the events on the 5th and 6th that lead up to it and me wanting to kill myself. Funny how chronic pain changes you. 22 years ago I wanted to die because my father was and still is an asshole and today I want to die because I am in chronic pain, physically and mentally. I know that I never will have a dad though I still call him that. To me he is just a sperm donor. The love I once had for him has been long gone and it isn’t coming back.

The weather certainly has got me still in pain. My spine is still aching and my thigh is just in nerve pain hell for some reason. I don’t know why. I haven’t had this type of nerve pain for at least a year or two. I hope that it doesn’t indicate that my scar tissue has grown more on my nerve root. I am always fearful of that but then the docs will just chock it up to me being overweight and the weight is compressing my nerves. I had a conversation with a doc that said that even if I was normal weight or sub-normal weight I still would have the same back problems. Being normal weight or less than what I am now is not going to really change the fact that I have had four surgeries at two different levels and that I have a deteriorating spine.

Despite being up early, I was not so productive today. I had to cancel my eye appointment because there was no way I was walking on icy sidewalks and risk spraining an ankle in this weather. I had breakfast and lunch and my coffee. I just got my tribute blend coffee from Starbucks in the K-cups for the Keurig. I love this coffee. It is such a very full bodied coffee that just tastes so good. I just wish it would keep me from being foggy brained but I think the meds are kicking in…

On another note before I take a nap, I finally found my missing journal. When I changed the sheets the other night I placed it somewhere and forgot where I put it. I knew it was somewhere in my room because why would I take it out. But it got buried in a hamper so I didn’t see it right away. I haven’t written in three days. That is a long stretch for me as I usually write every night before going to bed. It helps to relax me. Which is probably why I have been so worked up the past few days. I started writing this morning and probably will write another entry before bed. I am so glad I found it because I really like writing on paper more than on the computer. Just an FYI, there was an article I read a few days ago that said that people read slower on electronic devices than a hard copy paper. I found that interesting that the brain has to slow down to catch up with electronics than it does with say a book. But then, that is how most of us grew up with, a book and paper. I find that I have to print out PDF’s because 1) I can’t highlight the information I am reading on a computer screen and 2) I like to keep the hard copy just in case the computer malfunctions or key drive gets lost.

weepiness and not enough sleep

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, mental disorders, mental illness, suicide, suicide attempt

Have not been myself the past few days. I have been wicked emotional since my TG piece got posted. I had 19 people read it so far and only 1 comment. No likes but it still is early. My first piece didn’t get anything until weeks later and then it was on fire.

I think I put a lot of myself out there and that is why I am still in a weepy state today. I just am emotionally drained from writing it as well as what my therapist says, I hide myself pretty well. I haven’t left my house. I have not showered in a few days time. I don’t think I have had the energy or inclination to brush my teeth. My eyes have been blurry today and I don’t see the head honcho of the neuro-opt until next week. It’s driving me crazy that I can’t see, even with my glasses on. My left eye seems to the trouble today. I just can’t focus.

Tomorrow I am supposed to go see my dad but I think I won’t. I don’t need his antics when I haven’t been having a good few days. He always makes me feel like a shitbag. But that is just the way he is.

I think the whole mess of not being able to work anymore and collecting disability has finally sunk in and I just have been so weepy. It’s hard because I have always been a good worker and now that I can’t it harder because I don’t have something to look forward to every day. I have my writing and blog but I don’t have the outside contact of being with someone or people contact that I normally get. And just when I think I can go back to work, I stand for longer than I should and have a pain attack that night. It’s really depressing me not having something to do except writing. I could clean my room but I don’t have anything or anywhere to put all my clothes. I don’t have bookcases for my books and other office style stuff. I can clean my office but I get so overwhelmed that I just end up not doing anything at all. My office has become one side of my bed, which probably has contributed to my sleep problems. A sleep doctor would have a coronary if he ever evaluated me. But then I always have had trouble sleeping. I had trouble getting to sleep, staying asleep, and going back to sleep. I know it doesn’t help that I have my laptop next to me in bed or my books or my journal or the 3 notebook/pads I have for writing my ideas down.

What ever is causing this weepy business, I hope it stops and I hope my pdoc calls me back. I want to get started on a new/old medicine to try and help me sleep better and stabilize my mood.