Tag: writing

spoon shortage

by Midnight Demon, posted in blogging, chronic physical pain, depression, mood disorders, suicide

Spoon shortage

Earlier this week, my mother asked me where our big spoons were. I said I didn’t know, maybe the dishwasher ate them. She wasn’t amused.

It got me thinking about how much I need spoons lately. Just for me to shower and go to the store took more spoons than I realized. Spoons, for those that don’t know or are new to my blog, is a metaphor for energy based on a blog I read years ago. I have posted it here so you can try and understand what I am talking about.

I am in a lot of pain right now. I think I am done for the day and that is too bad because I wanted to see my Australian friend today. He said we would meet up sometime in the afternoon but I still haven’t heard from him. Maybe he is out of spoons, too. He was in a car accident the other day and has whiplash. He was hurting pretty good. Whiplash sucks. I experienced it once and never want to again. Tonight is also my nephew’s birthday party. I don’t know if I will be making an appearance or not. Depends if I can get this pain that I am feeling under control or not.

It sucks being in chronic pain. I haven’t had a break all week. Today was going to be a rest day but I had to shower and then go to the pharmacy to pick up my prescription. I also wanted chocolate. So after my shower, I got dressed and went to the pharmacy. I also did some shopping as my mother wanted pudding. My protein bars were on sale so I grabbed some of those as well. I got home and my mother flipped out on the “junk” I bought. I didn’t say anything to her. I swear sometimes she thinks I uses HER money to buy MY stuff. I don’t. If I want to use my money to buy “junk”, then so be it. Least I didn’t order food like I wanted to. I have been craving Pad Thai but I am doing good and not buying it. I still have to go to the meat market and get my burgers. I also need to learn how to cut up an avocado so I can have it on my burger. I love avocados.

I was feeling some more of the self hate again today. I saw a shadow of me and one of things on my chest and I got really sad. I so want to be flat chested. It’s very distressing to me and I can’t talk to anyone about it. I don’t think I can even talk to my therapist about it because then she wants to “fix” the problem and have me see the people at the gay clinic. I just can’t be bothered with it. I just rather die than deal with it. Even if I could grow facial hair, I still will have breasts. And I doubt testosterone fixes that. It’s really hard for me to talk about. It’s just another thing about self-image that I cannot tolerate. My therapist says I don’t see myself, that the image is not what it is. She is right. I don’t see myself as a man and never will as long as things are the way they are. She just doesn’t get how much it hurts me to the point of wanting to take my life. And if I ever have the opportunity to take it, you know that damn well I will take it.

blog views and self hate

by Midnight Demon, posted in chronic physical pain, depression, suicidality, transgender, writing

Blog views

Today I hit 25,000 views on this blog and I want to thank all that read it. Without your readership, it would not be successful as it is.

Last night, I was in a lot of pain. I couldn’t go down the stairs and I wanted a burger so I literally bumshuffled down the stairs to get to my delivery. It was a long wait and just as I was going to call, they called me and said my burger took a “field” trip. I don’t want to know what that means but the guy said he would make a fresh one and it would be on him. It was so good. I need to learn how to peel an avocado. I love them and especially like them in my burger.

I had a crappy sleep. I woke up at 0430 in pain. And it took almost three hours to go back to sleep. I slept for a few hours and then I had to get up. I had to run some errands before my father’s doctor appointment. I finally faxed my forbearance for my student loan so they can stop hounding me. Apparently being on disability is not a “hardship”. UGH. I just am glad they will leave me alone now, least for the next few months.

I really felt suicidal today for the first time in months. I am having severe body image issues. I keep bumping into things with the honkers on my chest and I hate the gap between my little stubble on my face. I really want to get it even so that there is no gap but no matter how much I shave in between, there is no hair growth. I hate it. I just want to be ten feet under. I haven’t thought of a plan to kill myself. I just want to die. No one understands and it hurts so bad to be in the body I am not in. I think if I were male, things would have been different. But no, I am transgender so my life has to be harder. I hate my life. I hate ME, period. I hate living life the way that I am because it is not me and if I am ME no one will accept it. No one will love me, not like many people love me now but still. I have no worth, no purpose. I hate the things on my chest. I wish I could cut them off for good. But I can’t afford it. If I had any brains I would save up for the operation but that is hard to do with disability. Plus, I am not sure I can find a good surgeon in the area that won’t leave me with an infection of some sort. Hospitals are breeding grounds for bugs these days. I am tired of fighting with my mind over this matter. It is time to put the matter to rest and the only way I know to do that is to plan my death. It is what I do best.

Still hurting big time

by Midnight Demon, posted in cauda equina syndrome, chronic physical pain, depression

Still hurting big time

I tried to take it easy today, I really did. I only went out to pick up my niece from school and I stayed in. I iced my ankle and leg while I read with my foot up on a chair. My niece was good, entertained herself with TV or the computer. I made her read for a little bit after watching a TV show. Only time I got mad was when she wasn’t careful taking out something from the fridge and dropped dip on the floor, then walked away from it like she did nothing wrong. She didn’t even bother to attempt to clean it up. That got me really mad but I didn’t yell at her. Just grabbed some paper towels and cleaned it. It hurt to do it because I am not supposed to be on my feet but I couldn’t let the house stink of sour cream and onion dip!

I went up to my apartment after my niece decided she wanted my mother to show her how to operate a sewing machine. It was a little one. Well, that was it for me climbing stairs. My leg gave out after I made myself something to eat for dinner. I shuffled to the kitchen to make myself a glass of ice tea and then retired to my room, where I have been the last couple of hours. I still am hurting despite the rest. I just don’t know what I am going to do. I have a friend from Australia in town and I really want to meet up with him but I am not sure I can. He is only in my neck of the woods for a few days. I left him a message that tomorrow night might work but I don’t have a car like I used to. He came here a few years ago and I am hoping to meet him at the same place as it is more convenient for me. But he hasn’t answered my message.

I had therapy today and it was determined that I am dissociating from my pain. Makes sense because I can feel it but not feel it. Like this morning. I woke up at 0600 kicking my leg and moaning but I didn’t know why. After I woke up a little more I realized I was hurting so I took some pain meds. It was the oddest sensation. My left leg was really hurting but I couldn’t figure out why until I woke up. I just remember it being odd that it was hurting and me shaking the leg like as if a bug was on me or something. Usually, if I move my position, the pain goes away. But I was laying on my left side. I was on my right so I was confused why it was hurting me so much. Then it dawned on me that I have nerve damage and that it was acting up. I hate waking up in pain. But my brain couldn’t process it so only gave me a little hint that it was hurting. My therapist says that I should take my pain meds even though I am not feeling the pain. It just feels so far away from me, like my leg is another person’s or something yet I am feeling their suffering. What is driving me nuts, is that the pain is there but it’s not. I feel it for a few minutes and then it tones down. I still feel it but unless I concentrate, I really can’t feel the intensity. My brain is zoning out on it. I can’t handle the pain I guess and that is why I am dissociating from it. Either that or my leg/ankle/foot are all numb and I really can’t feel it. But I can wiggle my toes, as painful as it is. Any movement in my foot causes me leg pain. It is half way down the side of my leg just in the middle of my calf muscle and goes down into my toes. I know the perneous tendon runs that way and it is all inflamed. I took some Aleve today to try and calm it down but it hasn’t done shit. I still am all swollen and hurting like a SOB. I have to take my meds every few hours to keep from hurting or I am in trouble. But I was able to sleep most of the night. I am grateful for that. Just sucked that I have been up mostly since 0600. I only got about 2 hours of sleep before I had to get my niece. I made breakfast and thought today was going to be ok but I guess the pain meds wore off and now I can’t stand to save my life. My foot keep going asleep on me and when I move it to “wake” it, my leg pain starts up. I really am miserable. It’s awful not being able to walk. I wish I could cut my ankle off. Then if it hurt, there would be a reason. But right now, there is NO fucking reason why I should be in pain. I didn’t do anything but normal stuff like walking up and down stairs. I didn’t stand too long anywhere. I just rested. But I guess I did one too many flights of stairs and now I am paying for it.

My therapist wanted to continue with the SSF and she tried to assess my mental status. Frankly, I don’t know what my mental status is right now other than being really pissed off because I can’t walk. It really is killing me that I can’t do a damn thing without setting my leg pain off. And the swelling is hurting me more than anything and I can’t get it down. I tried elevating it and icing it. NOTHING. I really flared it up and I don’t know what I did. I could kill myself but why and with what? I am trying to just be comfortable being a suicide attempt survivor who is now an author. I don’t think it would be good if I killed myself two months after my book is out.

did too much

by Midnight Demon, posted in chronic physical pain, depression

Did way too much today. I woke up early to meet up with a friend but her commuter rail line had problems so she couldn’t come into town. I was sad as I really wanted to see her today. But we decided to reschedule so that was good. I then had a few hours to kill before my pdoc appointment so went back home and had my coffee. I also wrote a bit while making an appointment for my father and emailing a junk yard to see if they wanted my car.

My pdoc appointment went okay but I am frustrated that there is nothing new to try to get me out of this depression that I am in. I could go back to the Cymbalta but why? I will just get sick from it, eventually. So we go another two weeks without med changes and me suffering. I told her I was mostly depressed because of pain and she said I am doing too much. I know I am. I walked more today than I have all year and now I am paying the price. My ankle is so swollen I can’t move it and it hurts so bad when I do. I am in bed until 1145 tomorrow when I have to pick my niece up again. I still have not finagled how I am going to watch her while I have therapy at 1230. I hope I am home in time to get her settled while I talk on the phone for 50 minutes.

I really need to have a rest day but that isn’t going to happen until Friday of this week. I am picking up my niece from school MTW and then I have my father’s doc appointment Thursday. I have to be up at 0630 Thursday to get my sister’s car so I can take him. I will be finding out where my sister’s work in Cambridge is located. It will be good to know in case I have to go there one day. I know I am doing too much this week and obviously I am still not rested from my activities from Saturday. This totally sucks and no one gets it. I just am in disbelief about how I was able to work two jobs while in this much pain.

My cousin came over my sister’s while I was babysitting. I do not like this cousin as she is very dramatic and high strung. She is also a hypochondriac. She was telling me today that she thought she had breast cancer at age 15. I guess that is when it started for her. It turned out she just had fibrosis. She is about 8 years older than I am. And as bad as I didn’t feel good, she just kept on yapping and yapping. When she told me she was on Adderall, everything fit. Supposedly she is on it because she has ADHD. I think she is just bipolar and not diagnosed. She didn’t care that I was in pain, and kept asking me what was wrong. It was like talking to a brick wall. She just wasn’t getting it. I wish she would have just left but she just made herself at home, fixing herself something to eat and drink. I couldn’t believe it. I couldn’t wait for my sister to come home so I could leave. There was nothing more that I wanted to do than to get the hell away from her. Course, all I wanted to do at that point was to be in my bed with my foot up.

I am very tired as it has been a very long day and tomorrow is going to be longer as I got the munchkin all afternoon. I really am not looking forward to it but someone has to watch the munchkin after school. Last day of school is Wednesday. That is because my city calls snow days at the mention of the word snow in the forecast. Doesn’t even have to have a snowflake on the ground and school will be called off.