Can anyone understand??

Can anyone understand?

So flipping fed up. After I made my squash and was putting it away my whole ankle and foot seized up. Told my mother I wasn’t sure how I was going to go upstairs. She says I need to rest until the pain goes away. Frack!! Really? I could rest for days and it will still hurt. Then she says I go up and down the stairs sometimes like it is nothing. No. It still fracking hurts. I still have pain. Then she says not to yell at her, it’s not her fault. JFC. So fucking done. Taking an Ativan. Can’t deal anymore!! No one fricken understands. If resting worked, I should be cured by now.

I watched cat and dog videos after I sent this to my psychiatrist. I am just having a bad pain day. I am so stressed out. I am worried about tomorrow as I will be seeing a new doctor. I have no idea how it will go. I have been trying to stay together just for this appointment. If it goes poorly, I don’t think I can handle it. I feel like there is no understanding anymore. I am skeptical this doc will allow me to get hormones to be the man I know I am. It is just so difficult. I have chronic pain that is driving me insane and the walk I got to take tomorrow to get to the building is a ways from the station. I plan on making a detour so I can get my Starbucks before the appointment. I wish someone was going with me but at the same time I don’t think I could handle company. I have no idea when the bus will come as I usually don’t take it that early in the morning. My appt is at 0830 and I got to be there early as my name has changed since I was there. I have decided not to use Medicare as my insurance, just keep my BCBS. I think it will be easier that way. I am paranoid that if I use Medicare for my transition, I might be on a list of some kind and the government will get me as long as Cheeto is in “charge”.

I made the butternut squash, as I said before. I used too much brown sugar so it is really sweet. I used half a cup. I should have went with a quarter. Oh well. It was still good. My mother is making a stir fry tonight with rice so I will have it as well. I bought a Pyrex loaf pan with a lid so I can make the zucchini bread and have a place to store it. My mother is using both her cake storage containers so I don’t have a place to store the bread once I make it. I will see how I am Saturday, though I plan on changing my sheets then. All depends if this pain settles down some. I can function if it is below a 7. Right now it is close to a 13 and am just crying. I took my pain meds though I didn’t want to. I really don’t think they work for me anymore. I am just dependent on them. Either that or my pain has just been so bad there is nothing to take for it. It is a new pain, not my normal kind of pain, that I have been experiencing.

I emailed Dell to find out if I could get a memory upgrade or if I am stuck with what I have. I think I can upgrade my hard drive but I am not sure. If I can’t use the memory that I bought, I will sell it on Amazon or someplace. I doubt I can return it. Still mad at myself that I bought a cheap laptop to stay cheap. I only need more RAM so I can run Facebook without the memory flag going off. So stupid.

I think I am going to put on some lidocaine. It might not help 100% but it might just bring my pain down to bearable. Fucking 13 is not fun. I seriously am thinking of cutting it off, and probably would if I had the implements to do it.

I forgot to take my morning blood pressure pills when I woke up this morning. I will take the night dose. I have been checking my BP to make sure it doesn’t get high or low and to keep an eye on my pulse.

screwed up with my laptop

Screwed up with my laptop

My RAM for the laptop came in. I took the laptop apart and found that there were no memory slots. I emailed Dell and they said the unit came like that. WTF. I am going to see if I can return it. No use in having it if I can upgrade it. In the process of fiddling with it, I somehow caused the mouse to become non-functional. I will have to take it apart again and see what I messed with. A wire might be loose or something.

I went for blood work this morning as my psychiatrist wanted to check my chemistries. Everything came back within normal limits. The phlebotomists sucked. They stuck me twice and were poking with the needle. Assholes. I wasn’t feeling like picking a fight with them so I just let it be. I was tired and hungry and just wanted to leave. My foot has been bothering me all fricken day. I canceled physical therapy. I am so tempted to cancel my remaining appts. I am just fed up with being in pain and nothing really helping. It’s really hard to do the home exercise routine when you are in pain worse than you were the day before. I am trying to do at least one thing but that doesn’t always happen. I keep blaming myself for this, which I know isn’t helping but at the same time I can’t help but think I am not trying. Yet if I am able to go to Starbucks for the day, then that is something more than just doing some exercises.

Can’t believe in two days I see the LGBT doc. I am really nervous about it. I keep imagining the worse, which is him saying no, I can’t have hormones ever. That will just crush me. I know there might be some hinderances, especially with my damn current reproductive system that may or may not cause delay. My biggest fear is that I will need an MRI to check my pituitary before I start hormones. I hate brain MRIs worse than back MRIs. I am a little claustrophobic and because they have your head in this cage thing, just makes it worse.

I need to change my bed sheets this weekend. It’s a chore I fricken hate with a passion but needs to be done. The foam topper is sliding off the mattress and because of the nice straps I bought, they are keeping the sheet in place, which makes it hard to move the foam back in place. It is very annoying.

I need to make the vegetables that I bought last week. I really want to make the butternut squash and mash it with brown sugar and butter. I’m not sure what to do with the zucchini. I wanted to make chocolate zucchini bread but my mother is using both her cake holders. I won’t have a container to put the bread in when it is done. I might cut it up and put it in Tupperware containers or something. Depends on how I feel tomorrow as I don’t want to be hurting all day tomorrow as I need to get up early Friday morning for the doc appt. I will be going in the opposite direction of the Square as I need a different train to get to the doc’s office. It is right by Fenway Park, which I will drool a little bit as baseball season is around the corner. Seemed like forever for it to come. Just two weeks away from pitchers and catchers reporting. Going to be an interesting season with the new manager. Man, I miss baseball. I need to finish the history book I am reading. I only have two chapters left. I wanted to read one this afternoon but my damn laptop distracted me. I will read one before bed. So much for reading 1 book a month. I am disappointed in myself for not being able to do this.

Another twitter rant on suicidal thoughts

Another twitter rant on suicidal thoughts

Severe pain is an apparent suicidal trigger for me as I am sure others with Chronic Pain are too. In that moment, you just want to die as you don’t know if relief is coming or not. With CRPS, pain changes. Bone pain could become foot pain. It is never ending. Suicidal thoughts are fluid in people with chronicity. I can feel it for a few minutes to hours to days. It just takes a spark to ignite. Add hopelessness and the longer it lasts. If I feel trapped, I start planning my death. Sometimes I will give myself a date. Having that date comforts me. I can act on that date if I am still as intensely suicidal as I was in the moment of planning my death. Otherwise, the day passes like an ordinary day. Tonight I just had the passing thoughts of death and intense feelings of Joiner’s interpersonal theory of burdonsomness, better off without me feelings. I still don’t know why I am still here. I don’t wish to be. Guess I am just a coward to act. I have felt intensely suicidal a lot. I’ve given myself so many dates it is not funny. I fantasize about my plans and going through with them. Yet I am still here. As long as I have the fantasy of death, it keeps me here. It is a great escape, especially when pain keeps you from moving. Hopelessness intensifies the suicidal feelings more than being depressed or sad. I don’t have to be depressed to think about killing myself.

suicidal triggers, how fast they come

Suicidal triggers, how fast they come on

I’ve had a long day. I had appointments with my psychiatrist and therapist back to back. I left my house around 1130 and didn’t get home till around 1800. Meeting with my psych went well. She wants me to call her after my appt with the LBGT doc I see Friday. I had to laugh because she said it so eagerly. I told her I would page her when I got home that day. As I was leaving the building, I bumped into my former supervisor in the lab. We talked for a bit before going our separate ways. I told her to say hi to the folks in the lab for me, especially the other supervisor. I really miss being in the lab. It was my life for 14 years.

I was feeling kind of sore as I walked toward the station to go to my therapist’s office. I had to take a little break about half way there. I had been having dizzy spells on and off all day. I was making sure to keep hydrated today. My therapist and I had a good chat. We didn’t stay on any one topic for too long. I felt good after seeing him. I decided to go to Chipotle for dinner. I grabbed something then made my way home. The train was delayed at points, much to my annoyance, as I wanted to get home, eat, and then sleep. Finally got to my stop and I stood up. HOLY PAIN. My ankle scooping pain that I have been feeling for a week returned and felt like my ankle bone was going to pop. I swore as I hung on the railing to keep from falling. I limped to the escalator and the rest of the way through the station to get to the busway. My mood took a nosedive. My sister had texted me and I responded that I was on my way home and hurting. As I waited for the bus, I sat there pondering why I am still alive. What is the purpose of living if I am just going to be in fucking pain. I was so fed up. I felt like I was no good to my family. They would be better off without me. I felt such high despair it was unbearable. I didn’t let my sister know any of this. She said she hopes the pain settles and that she loves me. I responded thanks and love you too.

The bus came and it felt like forever getting to my stop, not like I was looking forward to getting off the bus. I had to walk 2.5 blocks to my house, which I knew would be in agony. I really just wanted to disappear forever. I slowly walked home, watching each step I took so I didn’t further hurt my aching ankle. I got to within a block from my house and I carefully watched my steps because last week I stepped on a rock that hurt my ankle. Luckily, there were no rocks in my path. I was starting to feel dizzy again. All I thought was please don’t let me pass out as I walked up the stairs.

I made it and I still was feeling lousy emotionally. I still wanted to die. I had my dinner, which was cold but I didn’t care. I listened to music as I ate. My mother came into the kitchen and moved my bags that I had on the table. I finished my dinner and threw out the bags. It was really painful to stand, let alone walk. My mother had done laundry but there was no way I could navigate carrying the clothes while holding onto the railing. They would have to wait. I went to my room and carefully changed into my pajamas. I opened the box that I had, the few things I had ordered from Amazon.

I kept on feeling off. I was feeling dizzy and panicky. I took an Ativan and some pain meds to try and calm things down. I took my pulse because I felt like my heart was palpitating. It was a slow beat, which was odd. I measured it with my phone and it was 58. I don’t ever have a slow pulse. Maybe that is why I feel so dizzy. I tried to take my blood pressure but the batteries on my monitor need to be replaced and I don’t have the batteries. I’ll have to get them tomorrow. That would explain things. I don’t think I will take my night time dose of blood pressure pills. With all the fluid that I drank today, my pulse should not be 58, especially after going up the stairs. I’ll be calling my PCP tomorrow to let him know this. He might want to lower my BP meds or something.