Got a stupid migraine today that is incapacitating me. Every sound and light beam is making my head hurt. I woke up with it and I hate that more than when I get one during the day. My right eye hurts and the area around it is numb.
How do you feel right now? what are you thinking about?—Stationary Addicts tweet for today. Seems appropriate somehow. I feel like crap and my head is pounding. I don’t want to have a session with my therapist tomorrow but she is being a fink and won’t let me cancel. She is worried about me because of my suicidality has peaked. I still have not told my psychiatrist what is going on. I just don’t want to. I just want to be left alone with myself for once and think things through enough to end my life. Why is that so bad?
I’m thinking about my friend who I told about my plans. She says she wants me to tell her goodbye. I don’t know how. I never have told anyone good bye before right before I acted on a plan so this is weird. I am also thinking that if I don’t go through with these plans I am never going to be free from my suffering.
Someone once asked me if you had to suffer and have misery to be happy. I would say that yes. For me in order to write I have to feel something powerful to get it out on paper. My journals are filled with my pain and suffering. But also writing on this blog has helped me to see that my writing helps people. I think the main reason for this is that most people suffer but do not know how to articulate it very well. I have a knack for being able to articulate these dark thoughts and put them out in the open (aka, the WWW). I don’t know how I am able to do this, my writing style has always been free, but I think I have learned some stuff from my English professors at the junior college I attended. They were really good in ripping my papers apart and having me redo them. But it taught me to write the way I write.
Song of the day is Casey James’ crying on a suitcase. I love this song and the guitar chords. I have a knack of finding a song that connects with me. I can’t explain it. Whatever I am feeling, a song will come on the radio to describe it perfectly. I have made CDs for my therapist trying to explain how I feel about her through the music and lyrics. I have been doing this since I first met her. It is sort of our thing now. Funny story, when the song by Sugarland came out, I didn’t play it for her because it was so freaky. Somehow the song came on her radio one day and told me about the song and I was like OMG no way! Song is called Stuck like Glue and you can say that the lyrics mean something for us because no matter how much we have tried to end this (Or rather I have tried) it seems like we were meant to be together.
Category: CES
disability
For the past eighteen months, I have been in chronic pain with my left ankle. It started as a sprained ankle and blossomed into CRPS, Complex Regional Pain Syndrome. I have nerve damage in this ankle from Cauda Equina Syndrome (CES) and CRPS affects 80% of those affected with this condition. In my case I am repetitively inflaming my peroneous muscles and tendons as I do not walk correctly. The result is constant burning and swelling of my ankle and foot.
This condition limits my walking due to pain. In December of 2011, I decided to go on medical leave of absence to try and give myself a mental and physical break from working two jobs. I was working as a lab assistant in both research and clinical areas of a large hospital. Four and a half months later, I was out of both jobs. I had decided at the end of January to work just one job and that proved to be an error on my part. I think that if I was working with research my life would have been simpler as I wouldn’t be walking so much anymore. I am now on disability and I have to say that it sucks. I went from a working member of society to nothing in just four months. I just couldn’t do the work anymore. Walking around the huge lab was killing me. I had put in job restrictions and it was rejected. After working fourteen years in the same place, I was sure to get “special” treatment. But that was not the case. I had to move to do something more sedentary. That caused me to have a mental breakdown. I was in the hospital in April of this year and then again the end of June. June was a long stay. I was there for two weeks because mentally I just could not handle doing nothing anymore. I became psychotic with the stress of not having a financial income and not being able to pay my bills. Stress always brings out the hallucinations and most of the time I can handle it but this time the voices wanted me to cut my leg so I had to go back on my meds and stay longer to have it work.
It is very depressing to be disabled. It cuts you deep inside and makes you feel so bad. Although I am collecting I’m still trying to find myself. I have days where I do absolutely nothing, least that is what I call it. I might go out to Starbucks for a coffee and write or read. I might just stay home and sleep. I might write a blog or try and read. Most of the time I play on my computer, playing online games.
When I have the energy and creativeness to write, I write about my mental state and being suicidal, what it’s like being in chronic pain, and how I am living this way. I have a lot of time on my hands and don’t spend most of it in front of the TV. There are not that many shows that I watch on a regular basis. I record my favorite shows (CSI NY, CSI, SVU, Hart of Dixie) and watch them at my leisure, which is sometimes a few days after they air. I am just too restless to sit for forty-five minutes in front of the tube.
It hurts not being able to do something during the day. I wish I loved cooking but I can’t stand too long to do something like that. I like making cookies but I don’t like the clean up. As November is slowly approaching, I am thinking of making my first pumpkin pie. That will be my goal for the holidays. I just hope that I can stand long enough to mix the batter.
Freedom from CES
weather and nerve pain
4 feb 2011
This week in Boston we got hit with heavy snow. Actually, we have gotten more snow in January than I can remember in my lifetime. So Saturday night after my shift at work, my left leg was really aching and sore. I was the person that was moving samples to be spun, taken over to heme, aliquoting, and running the electronic version of myself, the MPA. I thought it was sore and achy because of all the running around during the 8 hours plus I did a few more hours before my shift as I had to pull some specimens for a study that was to be shipped out on Monday. However the pain stayed with me the next few days and when the snow started which was Tuesday, I was in really bad pain as I could hardly bear weight on my left leg. Ten years ago this week I was first diagnosed with CES and had similar pain and problem so I was freaking out big time. Wednesday I paged my pdoc because I was in major PTSD mode and my therapist was unavailable due to being snowed in. She said go to the ER but by the time she returned my call, my leg was feeling a little better and when the snow stopped Wednesday evening, so did my pain. I was shocked because usually my back goes out. I have never had leg pain due to the weather. It was the weirdest thing.
I told my neurologist about this and we increased my neurontin to help with the nerve pain. I love this drug more than any other drug out there. It’s not a narcotic and doesn’t have any “high” properties but it kind of just zones you out at high doses and leaves you feeling great the next day because you sleep so soundly. Least it does for me. Now I am NOT recommending anyone should take a high dose of this drug for this purpose. But my nerve pain seems to diminish for at least 24-48 hrs at a time, usually with one or two doses in a 24 hr period. And that in and of itself is blissful. No burning of the soles of the feet, no feeling like snapping turtle are nipping at your toes. No zapping feeling.
The only down side of this drug is that it makes you hungover. It’s so hard to wake up the next day and get moving. But even though I know this, I still feel something is wrong with me. My fatigue level has increased in the last few weeks. I can only be up a few hours before I need a nap. I lose motivation for working and then need to come home and rest. I am just so exhausted. Take yesterday for example. I got up around 11:30 am because I had an appt with my psychiatrist. She had cancelled because the weather was bad but I didn’t know this as she emailed me at 6:30 in the morning. My car was buried in the snow and there was no way I was shoveling out so I hung out with my niece for a couple of hours watching her and her mother play on the Wii (video game) and had lunch with them. By 2 pm, I could have gone back to sleep I was completely exhausted. But I had to go to work because I thought there was a sample waiting for me. I struggled past this exhaustion, get to work and find that the pt that was supposed to get drawn got discharged. I came to work for nothing. I was not happy! I might go to the doc next week to find out why I am so damn tired all the time.
midnightdemons7 
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