Tag: cauda equina syndrome

difficult night

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Difficult night

Last night my pain skyrocketed. I had already taken my meds and couldn’t take any more to ease my horrible pain. My ankle and foot were competing as to who was going to hurt more and both were winning. I sunk into a suicidal phase. I reached out to a friend, but was left hanging, literally. I got really mad and I am still mad and disappointed. I should have known better but now I know not to reach out to this person next time I am having a hard time. I then emailed my psychiatrist with exactly what I was going to do today and when the next time I felt like I did last night, I was going to act on it. She called me right away and we talked. She wanted me to email her today to let her know how I was doing. I basically lied and said I was okay. Well, not really, because at that moment I was okay. Now I am not.

I am again thinking of my plan as my pain has returned. It’s not as severe as it was last night. Soon as I am done with writing this blog, I am going to do my preparing. I have to. There is no other way out from under this pain. I am not going to act on it today. I made my sauce and I want to eat it and savor it. It came out really good. I put a lot of meatballs in it. But they are small so they are like appetizers. I put in 40 meatballs and just ate three to see how they were. I have two different kinds. I didn’t realize it until I put them in the pot. Oh well. I love meatballs in sauce. I am going to make spaghetti for dinner. I cannot wait.

The reason I am hurting is because I had to go to Walgreens to pick up my prescriptions. I thought they would have the meatballs I needed to complete my gravy. They were all out. Not even their brand was on the shelf. So that meant I had to go to Stop and Shop, something I wasn’t planning on doing. When I had finished buying my things, I saw my mother waiting on a bench. I asked her what she was doing and she said she was waiting for my aunt and cousin. So I had a ride home. I didn’t have to wait for the damn bus. Saved me from walking. I am glad I was going out the door I came in and not the other door where I cashed out. Otherwise I would have missed my mother.

I didn’t sleep good because I had to take another strong pain pill to get my pain under control. Whenever I take two pills, my sleep is disrupted. I woke up every 2-3 hours. I finally gave up around 0830 and made breakfast. I was kind of worried because the house was silent and usually my mother has the TV going. I quickly checked her bedroom to make sure she wasn’t on the floor because her bed was empty. I went downstairs and she was doing some kind of paperwork. I asked if she was okay and she said she was. She asked why and I said because the house was quiet and I got worried. I then made my bacon sandwich. It was good. I kind of burnt the bacon because the cheese wouldn’t separate from each slice and it annoyed me, temporarily letting me forget about the bacon cooking. I like it burnt so it was no big deal.

too much pain and no sleep

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Too much pain and no sleep

After the game last night, I couldn’t settle down right away. I was excited and kept reliving the touchdown over and over in my mind. Then my pain flared up. I took some meds and thought I would be asleep soon. Sleep never came. I was up most of the fucking night. Soon as I got my ankle pain under control, my toes started so I had to take more meds. It was a vicious cycle. It didn’t help that my PTSD anxiety got activated. That just made everything worse.

Before I knew it, 0200 hit. That was it. I was up for the night. And I was. I didn’t go to sleep until I took a Benadryl. This was at 0600 or so. Then I wake up 3.5 hours later. Great. I stayed up till 1330 and then fell back to sleep again. I still don’t feel rested and I just took my night time meds to try and get ahead of the game. I am really tired.

Because I was catching up on sleep, I didn’t do any errands today. I had to go to the bank and the store to buy more half and half. I also want cocoa puffs. I guess I will try tomorrow if the weather isn’t too bad. We are supposed to get snow with freezing rain. It might just be rain, who knows.

I’ve been feeling really depressed most of the day because I had such a horrible night. Being up all night really sucks, especially when you can’t calm down because your anxiety is getting the best of you. Or the slightest move you make hurts you like a SOB. Last night I couldn’t win for trying and it really got to me. I really was thinking of a way out. I started writing in my journal. I just wrote until I fell asleep, basically. It was all I could do to get the anxiety out and the thoughts under control again. Tomorrow is my 16th anniversary of my nerve condition, Cauda Equina Syndrome. That is when all this hell began. No matter how many time I tell myself that I am NOT getting CES again, my body goes into panic mode and I can’t calm the fuck down. It really sucks when you can’t move because that doesn’t help the case.

There really isn’t anyone to talk to when it’s 0300. Not too many night owls to distract you. So you are stuck in your own world until the meds finally exhaust you or you are just plain exhausted and collapse. I really wish I slept longer this morning. I could have done at least one thing like go to the store for the half and half. I could have had my coffee and maybe the day wouldn’t have been a sleep day.

In a Pissed off Mood

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

In a pissed off mood

I didn’t go to sleep till well after 3 am. Then around 0500, my foot explodes and I was woken up from a sound sleep. You got to be fucking kidding me! I am still awake as I wait for the pain meds to knock me back out again. This doesn’t bode well as I had things to do today. I guess they will have to wait till tomorrow. I know I am going to be in a pissy mood most of the day and not wanting to leave my bed. I wanted to get at least three books out in the mail today but that isn’t going to happen. Fucking A, I am so mad!!

This hasn’t happened in a while, but I could have slept a little longer than about 2 hours or so. My foot still hurts so the pain meds still hasn’t kicked in yet, though I have take it an hour or so ago. I am not in a good mood at all. I want to make coffee but I don’t know if I can stand on my foot or it will become really angry if I put weight on it. So I am stuck on my bed until the pain meds kick in. Great life I lead, eh?

I am so sick of being in pain all the damn time and being woken up from a sound sleep. I am listening to my favorite music artist, Mary Chapin Carpenter, to help calm me down. Her voice is so soothing. I am hoping it won’t lead me to my dark thoughts, even though I am in a pissy mood.

My mother will be getting up soon. I will be going to bed. Then we will have the conversation of me “sleeping like sleeping beauty”, which I blew up at her at because I was so pissed off of hearing her say that all the damn time. She thinks sleeping all day is a bad thing but when you are up all night, it’s a godsend sometimes. I can see if I was sleeping all day because I was depressed or something, but when you are up all fucking night due to pain, there is a difference.

I feel like paging my psychiatrist and telling her my plans are still on in full force because I haven’t slept all night but 2 bloody hours, maybe less as I really don’t know what time I passed out. It really sucks when you are in a sound sleep and get woken up by feeling like your foot is being torn apart. I thought at first I was dreaming of this pain but I woke up and it wasn’t a dream. Fucker. Maybe I will take another Ativan yet again to calm my ass down and get back to sleep as this pain medicine isn’t doing shit not after two hours. I am agitated as anything. That isn’t good when you are feeling suicidal. If I had hair, I’d probably pull it out. I am glad I have short hair. It makes it hard to pull on your hair. I might go to the barber when I am better and get buzzed again. My hair has grown back even though it’s only been two weeks since my last cut. My hair grows fast. I think it is because I always cut it. Or it could be my psych meds. I don’t know.

I am going to attempt to get three books from my box that is a foot away from my bed. Got them, I was very careful not to put pressure on where the pain was. But as I was getting back in bed, I accidently did so the pain acted up again. Fuck. It’s going to be a day in bed. I just hope I don’t have to go to the bathroom. That will be torture. Oh, how I wish there was a half bath where the bedrooms were.

It feels like I am putting tremendous pressure on my toes when there is nothing there. I have taken my foot from out of the covers so the sheet isn’t on it. Still in pain. It didn’t do much. This is terrible. I hope the Ativan works quickly before I totally lose my mind! It’s the peroneous tendon that is flaring up. I just moved my toes to see what would happen and felt pain in my ankle immediately. Fuck. This isn’t good. In another hour, I can take my regular pain meds. I hate being on a fucking clock schedule for taking meds. But if it keeps the pain away, I got to be on it or else I pay for it. I had taken the strong pain pill when I woke up 2 hours ago because I couldn’t take my regular pain meds as I just took them before going to bed for my 1.5 -2 hours of sleep. I really just want to die. And that will happen soon, I swear, though I am thinking of changing my method of choice. It will be messy but I think I will go on the outside back porch so the clean up can be better than inside the house or in my room.

Overslept

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, chronic physical pain, depression, mood disorders

Overslept

I had put on my “do not disturb” function on my phone and I thought my alarm would ring despite that. I was wrong. I slept through my grocery delivery. Now it will have to be delivered tomorrow. The guy was nice and waved the restock fee as it was my first time missing it. I know that I am not going to do that again!

After I made a few phone calls, I went back to sleep. I wanted to make coffee but my pillow was calling me. So I slept most of the afternoon. I guess all the meds that I took yesterday to sleep, caught up with me today. I am just so tired. My foot has been acting up but I had avoided taking pain meds because I didn’t want to sleep through dinner. I just took some now. I hope the pain doesn’t get worse. I really don’t want to take the strong pain pill this early in the evening.

Tomorrow I have therapy. I feel like it’s going to be awkward as we haven’t talked in three weeks. I am nervous about it. I feel more nervous that I am not going to talk to her next week either, that the time we had for a month from now will be the time we next talk. I don’t like this arrangement at all. And I am wicked pissed off that she just gave my times away and now she has to wait for a cancellation to fit me in. WTF. I still am so mad she decided to meet monthly and not discuss it with me first. I seriously, at the time, was like fuck you anyways, but I didn’t think getting in to see her would be so damned difficult.

I was talking with a psychologist friend of mine on Twitter. I sent him a DM about my situation and he said he is going to make some calls to some therapists he knows that takes my insurance. I guess when those names comes in, it will really be final that my therapist and I are through. After sixteen years, I still can’t believe it. My psychiatrist says that it’s not my fault. But that doesn’t make me feel any better.

I think I was talking to one of my friends last night before going into oblivion about how I will have to “train” a new therapist in my suicidal ways to help me. The idea of having to do this again just fills me with dread. I don’t know if a new therapist will be open to new ideas or just stuck in their way of treating suicidal patients. If that is the case, it’s not going to fucking work. I can’t work with someone with a “no suicide contract”. Those just don’t work as I can just find a loophole. The whole process is just leaving me feeling so damn nervous. It just makes me say fuck it and just go through with my plan anyways. I just feel so hopeless.

Last night I was having a hard time and I talked with my friend in Canada. We have been through a lot of shit together with CES. And we both get each other. She made me laugh and forget about my troubles for a bit. It was good talking to her. I got her payment for my book today. I will go to the bank on Friday as I am not sure I can use mobile deposit as it’s a money order.