Tag: CRPS (formerly RSD)

Did too much and paying for it

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Did too much and paying for it

Nearly every day this week, I have made a trip to Starbucks. And practically every night, I have been paying for it. I usually go every other day because I need a rest day in between. But I didn’t take a rest day because I felt “okay”. Now it’s the end of the week and I am hurting really bad. So bad, that it’s making depressed.

I wish I was seeing my psychiatrist earlier than next Friday. I feel like I am hanging by a thread today. The voices have been non stop since I let them in. They just won’t shut up. I don’t understand it because I haven’t been stressed and we were just having a normal conversation. Nothing stressful or triggering. Now my brain is just firing away and the voices are wicked loud. I am in serious pain and I just can’t quiet them down to think of what I can do to ease it. I have music playing to try and distract me.

I took some pain meds once I got a break. Then I was quizzed on how many I took and why I was taking them. They always want me to take more than what I need, like more is better. More isn’t better. It’s no more effective than taking a handful of Tylenol for a headache. They just want me to hurt myself. I will do it with other drugs but not my pain meds. I don’t want to die like my father, with liver problems due to the Tylenol that is in my pain meds. I am not stupid like the voices think I am.

I haven’t told my therapist about all this. Not much she can do about it anyways. Even if I text her to talk to her, the most she is going to say is for me to page my psych or go to the ER. If I go to the ER, chance are I will be admitted. I don’t want to be admitted so the ER is out. I can be admitted after the 17th when I see my psych and get my pain meds appointment. I really was hoping that I wouldn’t need another admission so soon after my last one. But then, I wasn’t expecting to become psychotic either.

Being in pain is not helping my thoughts. I feel really depressed and it’s feeding the suicide demons. For the first time in two months (?), I am thinking of taking my life again. It’s not serious. It is just in passing, like what if I would take my life? Then I think of the plan that I cooked up a few months ago. I can still go through with it. It could work this time. A more lethal medication. Only question is, do I actually have enough to kill myself. The LD is 10 mg and I am not sure I have it. I have to count the pills and I am scared to because it will just mean one more step closer to killing myself when I want to.

After my father died, I was thinking about getting a life insurance policy. I got a response from the one I applied for online. They want medical documentation for my illnesses. Nope. Not getting it. Chances are they will have this information just to deny me. I will find another policy holder. I thought it would be too easy to get on the first try. I never got life insurance through my work. I did have insurance in case something happened to me while I working. It was something like $100,000 coverage in case of injury or accidental death and it was for something ridiculously small amount of like $6/wk. There were higher amounts but that was the cheapest and in my line of work, the risk of me losing a limb was quite low.

I wanted to get the life insurance just in case something happened to me. Then my family wouldn’t have to scramble like we did for my father with arrangements and such. I do have a pension with my work but I don’t know what happens to it when I die. Maybe I should find out. It most likely will die with me.

Soon as the pain meds kick in, I will take my night meds. I was going to listen to the game but I don’t feel up to it. I will follow it on Twitter or the MLB website until I can’t fight sleep any longer. Or I might just read something so I can feel like I did something productive today. Today just feels wasted. Voices are loud now. They are pissed I am typing and ignoring them. Maybe I will take a trilafon, too.

Agitated, depression, and pain don’t mix

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Agitated, depression, and pain don’t mix

I am feeling wicked agitated right now and I don’t know why. I just bought 10 books for $15 about the business of writing. Lawrence Block sent out the link and I wanted to get it before it disappeared forever. I could buy the book individually but it would cost me more than $15. I had a little trouble getting the last 5 books. It wouldn’t sync to my tablet. Then the whole 10 started so I had to delete the duplicates. I was getting really annoyed.

Then I kept thinking about my father. My sister had invited me to lunch on Saturday. She works in the same town my father lived, literally down the street from him. I was going to ask if she was going to swing by my father’s to check on him. I had to bite my tongue and it’s killing me that he isn’t around anymore. I can’t believe I am missing him. This is something I was not expecting.

Then my foot/ankle (left/bad) is killing me. I can’t seem to get the pain under control. I have taken two pills before 1800. So now that it’s 2200, I took two more. I know it’s because the doc had move my foot in ways that it doesn’t like to be moved. And he was pressing on the part of my ankle that is really sore. So the whole fucking thing is aggravated, which is annoying and pissing me off because I really want to get to sleep. I wish there was a baseball game playing that I could watch but I no longer have the MLB network.

Another thing that was pissing me off is that the Sox drafted a high schooler and people were comparing him to a pitcher that now sucks for the Sox. They are worried about how he is going to spend his money and things like that. UM, we didn’t get him for his financial spending. We got him for his pitching. I guess this kid was pretty excited because he really wanted to play for us. Hell, if I was drafted by my dream team, I’d be pretty excited, too. I just hope he pans out. Last year we had a problem with a young player that thought he was above the law because he was a baseball player. He went away. I forget his name.

I have been listening to my music the last few hours to try and distract me. Some songs are helpful. Others, I have to skip, which annoys me. Also, I had to put the do not disturb function on my phone because I kept getting text messages from the T with delays. I am just in a wicked agitated state. I might have to take some trilafon. I don’t think this agitation is good. I don’t know what brought it on. I know I am still annoyed I still have my menses. I thought it was going away this morning because things were clear. But as the day progress, that wasn’t the case. I am so pissed off I got to deal with this. I really want a hysterectomy. I am going to ask my NP if I can get one. I have no use for my uterus. It really is useless.

I still am depressed. I thought I was “recovered” from it but I guess it’s still sticking around. The gray clouds have shown up. I just feel so bogged down. I know it’s because I am still a fucking female. I hate my breasts and I hate myself for not doing something about it when I had the chance to. If I had a noodle in my brain, I could have used one of my credit cards to get the surgery to remove them. But it’s too late now. Now I got to see if my insurance will cover the cost of removing them and I have no idea what the copay, if any, it will be. Not that I wish cancer on anyone but if breast cancer ran in my family I could possibly get them removed as a proactive case to prevent the cancer from showing up. But nope. Cancer doesn’t really run in the family. God I hate myself. I just want to die. I could kill myself now and then worry about nothing. I am such a fucking idiot. A complete loser. I really loathe myself and there is nothing to contradict this. I am just a scumbag.

Ankle Chronicles 12

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Ankle Chronicles 12

I haven’t written a chronicle in a while so I thought I would as my ankle is being a fucker right now and I don’t know why. I didn’t do anything like I did yesterday so not sure if this is a delayed reaction or what. I just know that I am in pain.

I ordered my Chinese food tonight. My stomach is nice and bloated. I don’t know why I was eating while standing. That might be why my ankle is upset with me. I then stood to finish watching the game. Sox came back in the 11th inning to win 5-3. I usually stand in the kitchen because the box is hard to read, even with my glasses on, when I am sitting. I like to see the pitch count and other stuff. I finally figured out today what the fourth box was when they showed the score. It was LOB, left on base. I don’t know why they are showing this stat. It’s annoying.

Pain begins in my ankle and then trickles down my foot into my toes. It drives me nuts that this is the pattern every single night. Then when it is in my toes, I am in agony. I have yet to figure out the right combination of pain meds to stop it or at least decrease my pain. If I take it before it starts, I have a good chance but it’s hard to tell because I never know how severe the pain is going to be. It can be a 5-7 on a scale of 1-10 and then quickly move to a 9+. It’s worse if I get a cramp or a spasm. Sometimes I will get a “tic” where the foot will just jerk upward. It’s not really painful but it’s uncomfortable. I have to take an Ativan to calm these jerks down or I get no relief from them. It took me a while to realize I was having these things happen because they would be so far apart from one another. I still have no idea what sets them off.

After the pain settles down some, then comes the nerve pain. I really hate this part because I have to take gabapentin to settle it down or my foot will burn and feel like it’s on fire. It really is uncomfortable. Sometimes it is so bad that I can’t have anything touch my foot, like the sheet or sock. It just makes the pain worse. I hate having to take the gabapentin because the next day I will get the hungry horrors. It’s like no matter what I eat, I am still hungry afterwards. It’s like I have a bottomless pit for a stomach. I have to be really careful because I don’t want to gain back the weight I lost when I was severely depressed. I am back to eating solid food again instead of just drinking Ensure. I have three packs of it left because I didn’t think my depression was going to get any better. But with the increase in my antidepressant, I am feeling better and my appetite is back.

Because of stupid pain, I can’t walk like I used to anymore. Some days I can walk a few blocks and be okay. Other days, those same few blocks seem like an obstacle course for me. It’s hard to gauge when I will be in severe or moderate pain and when I will be in little to no pain. I think the weather has some say in it. Rain or dramatic changes in temps will cause my pain to flare up. Like yesterday it was 92 degrees. Today it has been in the mid-50s for most of the day, an almost 40 degree difference. Ouch.

Stair climbing is another reason my foot/ankle will flare up. I try not to but sometimes my mother will go shopping and need help bringing the shopping up the stairs. Other times, I am up and down because I need to use the bathroom or eat. I don’t keep food in my room because I don’t want pests. I do have some pretzel bites in a sealed plastic baggie. That is only in emergencies when I am hungry but am in too much pain to go down stairs. I keep it on my nightstand.

Being in pain all the time, makes you tired. It’s exhausting both physically and mentally.

Sad and Hurting

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Sad and Hurting

I had a meeting with my father’s treatment team today. He is improving as well as a dying man can be. They think with time, he will be able to come home once his stamina and strength are back. I went to see him in the afternoon as I needed to sign some papers and give a copy of the health care proxy. When I went to his room and he was sleeping so I just let him be. I didn’t want to get him riled up. Walking to the place from Mass Ave was a doozy. It was a steeper hill than I thought it was. I was able to climb up it but it took a lot out of me. Then I stood for the hour for the bus. My ankle and calves are not happy with me. I know I am going to need extra medication tonight for pain. I already took an Ativan to calm the calf muscles down some. I know I am going to be sore tomorrow and I need to go out to see my psychiatrist. I have the rest of the week to rest. I now know a better way to get to the nursing home than the way I went. I am glad the place is T accessible or I would be screwed to get there. I would have to go with my sister every time and that is annoying.

I only had a cold cut sandwich today for breakfast. I am not hungry for anything except a pastrami sub. I have no idea why that is my comfort food right now but it is. And the thing is, I am running low on funds so I might only be able to get one more and that is it. Sucks living off a monthly check.

I had therapy today. We talked about the Zoloft. I think it’s starting to make me sick but I have Zofran to counteract the nausea. I just have to run it by my psych that it’s ok to take it. I think it’s helping me to cope with all this stress. I don’t want to increase it just yet because if it is making me sick, it will just get worse. I might have to lower the dose. The nausea is worse in the morning then gets better so we’ll just have to see how it plays out. Plus I have post nasal drip that is also worse in the morning so it could be a combination of medication and the PND making me sick.

We also talked about my father for most of the session and my mother’s latest spell. I am just sad that both are sick at the same time. But the good news is that being sad is normal and different than my depression. It’s kind of weird being sad when you are depressed. I am very stressed about my father’s illness and his cognitive decline. He was at the conference call with the treatment team but didn’t understand what was going on. That was part of the reason I didn’t want to wake him up because I knew he would want me to sign him out. And I didn’t want to be the bad guy.

My ankle is throbbing so bad right now and I can’t find my compression bandage wrap thing. You always find it when you aren’t looking for it. I know I need to get another one because the one I have is too tight due to the swelling of my ankle. I think I will need an XL. I need to go to Walgreens because trying to find it online is not as easy as it sounds. You only get a million choices and you really don’t know if it’s really what you are looking for. I already took two pain pills for the throbbing. I hope to sleep in a few hours from now. I really hope the throbbing doesn’t get worse or turn into severe pain. I know I did too much standing today and I am going to pay for it. I just hope I can walk tomorrow so I can see my psychiatrist.

My therapist asked about my writing. I told her about the difficulty of writing my blog some days. Like yesterday it took me an awful long time just to write a little more than 300 words. I had a lot to say but I just couldn’t get my brain to crank out the words with my fingers. I actually did better writing in my journal than typing. Maybe I will do that next time and then try and type what I write. She said to bring this up to my psychiatrist as it’s a symptom of the depression. I don’t know when this cognitive stuff is going to leave me. I thought being on an SSRI would help some of the physical symptoms but it hasn’t. I have low appetite, sleep is affected, energy is affected, I feel guilty most of the time for no reason, also feel worthless, and now the cognitive stuff. It just really sucks. I want to be able to be there for my family but I am declining. I am so tired all the time, even with getting at least 8 hours of sleep at night. I am surprised I had the energy to climb up the hill to the nursing home but now I am totally wiped out. I know tomorrow is going to be worse.