chronic pain and being lazy

Chronic pain and being lazy

I woke up at 7 in pain. I took my meds and within an hour, it toned down. I took the opportunity to take a much needed shower. I then made breakfast after I finished getting dressed. While I was making my coffee, I started to feel dizzy, but not the dizziness I have experienced in the past. I drank my coffee and it put me to sleep so I took a nap for a couple of hours. I woke up to my med app telling me it was time to take my meds so I turned over and took them. The dizziness was gone and so was my energy levels. I was completely wiped out.

I had to pack my suitcase for tomorrow’s admission. I was hoping to find a journal that is missing that was in my bag that I had my blanket in but it wasn’t there. I have no idea where this journal went. It’s really bugging me. Anyway, I finished packing and then noticed I forgot to pack my slippers. I’ll stuff them in later. The blanket took up most of the room in my suitcase as it’s just a carryon type. I was able to fit my clothes and stuff so that was good. Now I just need to fit my slippers and I will be all set. I still need to make my backpack “hospital safe”, which means I got to take out anything that could potentially be considered a sharp or a hazard. It’s a pain in the ass. It shouldn’t take me too long as I think the only thing that is compromised is my bottle of aspirin for my headaches. Everything else should be okay. I still need to pack some Powerade bottles and water. I’ll see if I can stuff them in the suitcase as the backpack will just hurt my back.

I plan on leaving early tomorrow morning before people are up. If I get there early, I hopefully won’t be waiting too long. Though last time I still had to wait like 15 hours before I was transferred. It was a long day. I hope tomorrow isn’t too long and I don’t get a moron doc that thinks I don’t need to be in the hospital because I came in before I did something. Some medical doctors are so judgmental.

I had emailed my neurologist to refill my Neurontin. I specifically told her I wanted 600 mg tabs twice a day. What does she do? She refilled my previous prescription so I got 300 mg caps three times a day. WTF. I am so mad. They better not try to give me 300 mg three times a day in the hospital. I don’t take it that way. Last night, I carefully wrote out how I take my meds. Hopefully the hospital staff listens to me rather than what is actually ordered. Otherwise I will be a fucking zombie while in the hospital. Just got an email saying my prescription is ready. Wonder if I should pick it up or just wait till I am home from the hospital. I’ll wait. I don’t feel like going out. I really just want to go back to sleep.

I haven’t had lunch or dinner. I might have the last piece of pumpkin cake as both. I don’t know what my mother is planning on making for dinner. Probably the bean soup she made yesterday. I don’t want that. I wish I had deep dish pizza but I think the last box is in the basement freezer. I’m not that desperate to get it as that means going outside. I have no idea if there will be snow near the entrance or not. I don’t want to find out. I’ll probably have the cake and then if I get hungry later, I’ll make some toast or something. I got to remember to pack some protein bars with me so I don’t have to buy food while I wait. They serve you lunch but you got to ask for it and last time I didn’t get dinner so I was really hungry when I got to the psych hospital. I’ll get breakfast at Starbucks so I will have something in my stomach. I will need my espresso so I stay up.

I really want to sleep but I need to finish my tasks so I am just ready to go in the morning. I hate feeling lazy and sleepy. I had emailed my psych last night in a fit of despair. Pain was driving me nuts and I had to take the strong pain pill to quiet things down. Even then it took a while for it to work. I haven’t heard back from my psych.

Snowy, Sleepy Sunday

Snowy Sleepy Sunday

Well, we had snow, though it’s been coming in spurts rather than all at once. I don’t know if that is good or bad. I guess the heavy stuff is going to happen later tonight. I plan on packing my bag tonight just in case the weather isn’t bad tomorrow morning and I can go into the hospital. If not, the plan is still to go in on Tuesday, when most of the snow will be cleared. It’s still not clear to me whether snow is in the forecast for tomorrow. According to Weather bug app it is, but the weathermen haven’t said. So weird. Guess I will find out tomorrow.

I haven’t done anything today except sleep. My foot is still bothering me and I just don’t want to do anything. My mother made some kind of bean soup with chickpeas so I didn’t have dinner. I don’t like chickpeas. They make me sick. She never called me down for supper so I guess she decided to mix everything together. She had like four different pots on the stove. I guess I will make some eggs for supper. I am kind of hungry. All I had to eat was my cake.

My friend annoyed me on Facebook. She always wants to chat but she never responds after she sends me a message until later. It’s like what is the point if you aren’t going to chat right away. Just annoys me. Or she will start a conversation and then go to Walmart or CVS so I am left hanging for a half hour or more. Just talk to me when you have time or don’t bother. Or at least tell me you are going out and will be back soon so I am not left hanging.

I’ve been in a low mood for most of the day because of pain. I need to take my night meds soon but I can’t fill out my med box because I will be going to the hospital. Which reminds me, I got to fill out a sheet of how I take my meds. I am not looking forward to it but I think it will be easier and no mess ups if I write it out as clear as day. Least I am hoping that to be the case. We’ll see if it works out the way I want it to.

I think there has been thunder snow happening because there have been some loud booms. I can’t really tell if it’s that or if it’s just the snow crashing off the roof tops. It’s loud and scares me.

My brother in law just called saying he made some dinner. He made chicken thighs and potato salad. I really don’t like chicken thighs. I don’t feel like going downstairs so I am just going to text him thanks but no thanks. I’ll make scrambled eggs for supper. It’s my go to when I don’t know what else to eat.

freezing out but my room is a sauna

Freezing out but my room is a sauna

It’s 10 degrees out or there abouts. I had to turn down the heat because my room is so damn hot. I can’t stand the heat. I am grateful for it but I rather be cold. It is what I grew up with as my room didn’t have a radiator. I had to have multiple blankets on me to keep warm during the winter. I didn’t mind. I liked it.

I can’t sleep mostly because of pain. I had a study interview today about chronic pain. It went well, though we went over the time by a half hour. I didn’t mind. It was good talking to someone about my pain. They wanted to know more about my use of social media and how I talk about my pain and so I told her. It was a good interview. I hope they learn what ever it is they are trying to learn.

I am really tired but I just can’t sleep because of the heat and pain. My foot is killing me. I had to have something to eat so I went downstairs. That aggravated my foot. Then I went back up the stairs which didn’t help matters. I took another pain pill hoping to speed up the other two that I took. Lately, the regular pain meds are having no effect on me as they don’t make me sleepy anymore. It still works for my pain but it seems that it takes longer to do so. I am worried now that I am tolerant to the meds and need to find something else.

I went to bed around midnight and it’s still hot in my room, despite lowering the heat. I didn’t lower it too much, just one degree. I fell asleep and just woke up now, 6 hours later. That must be the latest I have slept in a while. I am not going to go back to sleep because I need to leave the house around 0850. I might take a shower, though I am really not wanting to. It’s going to be freezing in the bathroom as there is no heat so I will take it tomorrow when the temps are below 20 degrees. It’s 12 degrees right now. I still haven’t decided if I am going to wear my long johns or not with my jeans or sweat pants. I haven’t decided what I am going to wear. These decisions are always hard for me.

I might make a cup of tea just so that I have a little caffeine on board. Think Earl Grey would be nice. I haven’t had that in a while. I still have to pack my bag for the hospital. I have decided to use my suitcase so I need to transfer every thing from my backpack to it. Then I need to stuff my blanket in. I think I will put the blanket in first and then put the clothes on top of that. I might be snowing on Monday so I think a suitcase would be better for my travels than my backpack and bag. I still will take a backpack for my journal and coloring books. That might kill some time while I am there and don’t want to go to group or something.

Today would have been the day I would try to kill myself. I feel defeated that my plan didn’t work out and that it would just make me sick rather than kill me. I hated when I have botched plans. It really sucks. I just feel like a loser. Now I got to figure out another way to die and hope I succeed.

I have thought about getting a haircut but I am getting low on funds and it’s going to be two weeks before I get paid again. I still need to pay for my prescription that I will be picking up today. And I need a refill on my Neurontin as I am running low. I need to email my neurologist to get that script because my PCP’s office won’t prescribe it to me. Ridiculous. I hope she will allow me to take 1200 mg at night as I have been taking that to help with the burning pain. It seems to work at least 24 hours so I have good coverage. Some nights I don’t need to take it because it’s not every night that I have the pain.

As I prepare for my hospital admission, I got to take my meds with me because I don’t want to take a million pills. I also need to fill out my medication list and how I take my meds because I don’t want there to be a hassle with my pain meds. I really wish the doc wrote that I take 2 tabs every 6 hours rather than 1 tab every 4. 1 tab doesn’t do shit for me. We’ll see how the docs at the hospital decide to write the order. They all have the same computer system now so it’s going to be difficult to get my meds the way I take them. It’s so frustrating. I’ll also have to prepare for taking my psych meds differently than what I take them at home. Man this is going to be so annoying. I am going to be a zombie in the morning and a night owl at night. Not looking forward to this at all. I am going to ask my psych today when I see her if I really need to go in or not. I know I am still feeling suicidal and the hospital will be a respite from my urges, but I just hate the medication piece of the puzzle. It always gets fucked up. And it’s frustrating to fix because I usually have to wait 24 hours for the changes to occur. Annoying!!

PTSD anxiety is so much fun, NOT

PTSD anxiety is so much fun, NOT

I had a PTSD flare because of pain. It brought out anxiety. I tried to get a hold of a friend to talk to but she was not available. I paged my psychiatrist and we chatted for a bit. She said I am going through a lot and I am managing but she thinks the hospital would be better for me. Why, I don’t know. I really don’t want to go back to the hospital. It’s nothing more than a babysitting service.

I cried while I was on the phone with my psych. I couldn’t help it. I was so revved up with anxiety and I am not an anxious person. The pain was driving me mad and today being an anniversary day was just too much. I kept going through the red flags of CES, telling myself I didn’t have it but my brain just wouldn’t get it off it’s mind. No matter that I could walk, wiggle my toes, have control of my bowels and bladder, etc. it just wouldn’t calm the fuck down. The pain was really the trigger and I couldn’t go anything to bring the pain levels down. I had taken my meds but it would be a while for it to kick in. I told my psych this and she tried waiting with me about what to do to calm me down. She said to watch TV but I don’t watch TV. I read. So I read Huck Finn for a bit. I told her I was going to read 1984 but she said that might be too much. So Huck Finn it was.

I read four chapters of Huck Finn and then the anxiety went down a notch or three. I am feeling tired now. I have to call my psychiatrist tomorrow after my therapist appointment to let her know how it goes. I was going to email her but I think I will page her. Then we can talk about if I need to go to the hospital or not. I really want to see my psychiatrist on Friday so I really don’t want to go into the hospital on Thursday.

I have my bag packed but I think I might bring my suitcase with me instead of my backpack. It might be easier and then I will bring my backpack with me so I can bring my books and journal. It will also be less stress on my back. I will bring my Sox blanket with me. It comforts me when I am in the hospital.

I didn’t tell my psych that I had suicidal urges earlier this afternoon. She knows I don’t page her unless I am really in need to talk to someone and not having a therapist the last few months has really been a struggle. She says that I am managing well as I can be. It felt good to hear her say that. I know I should probably be in the hospital for supportive care but I really don’t want to go. I hate being in the hospital. I don’t sleep well. And I always have to ask for my meds when I am in pain. I have to be on their schedule, not mine. It sucks. And I won’t be able to get my strong pain pill should I need it. I am really sad about this. But this is a psych unit not a medical one.

My psych wants me at the hospital that I usually go to. I hope they have a bed. I am going to try and talk her into going in on Monday. That is when they have discharges and beds are more available. We’ll see. I hope it’s Monday but if she wants me in on Thursday, that will be okay too. I just need to pack a little faster than I need to.