Mixed Messages

Mixed messages

I was talking with a friend of mine tonight. I told her the deal with the trilafon and I realized that my psychiatrist is giving me mixed messages. She is okay with me taking up to 8 mg of trilafon a day but yet she is only giving me 4 mg a day scripts. I have 30 pills to play with. Some days I need 12 mg and I have told her this. I don’t know what to do.

The voices are telling me, of course, not to take anything. Fat chance of that happening. I take it when they are not “looking”. Today I was having musical hallucinations so I had to take something. 4 mg just doesn’t hold me the whole day anymore. It never really did. 8 mg is the magic number. I know that she is hesitant to put me on a higher dose because of side effects. Trilafon can give you nasty side effects worse than the 2nd generation anti-psychotics. But I never had those side effects while taking it. Granted, I have never taken the drug longer than a month at a time and my psychiatrist is being really careful with me. For the first time in over 20 years she did a mini neuro exam while I was in the office, checking for tics and TD and stuff.

I just need more pills so I am not anxious about running out of meds. I am good right now because I just filled my script but in a week or so, I am going to be running low. I don’t see her for three weeks and I have approximately two weeks of meds. That isn’t going to stretch.

I have never been good at asking what I need. It’s easier for me to write an email than it will be to page her and tell her what I need over the phone. Trouble is that sometimes she doesn’t answer the emails right away and there is no way for me to know if she read it at all. Least with me talking to her on the phone, I can get an answer right then and there. But it’s hard for me to say that I need more pills. I don’t know why that is but it is. I feel like I am asking too much. But in reality, I know that I am not. I wish I wasn’t in the predicament. If my doc had just written the script for twice a day, I would be set and wouldn’t be in the conundrum.

Pdoc appt and other things

I didn’t wake up in time to catch the 0950 bus despite setting my alarm. I pretty much woke up to shut it off and then went back to sleep. I should have set a second alarm in case that happened. Luckily, my mother called me at 1000 so I could catch the next bus. I had just enough time to get my latte and leave to catch the train.

My psychiatrist was running late. She always is but today was later than usual. The voices were getting unsettled. It was kind of weird being there in the waiting room while the voices were talking. I should have taken the trilafon before leaving the house but felt it was too early as I just woke up. We talked about side effects of the medication as it’s an older drug and she is comfortable with me taking it as long as it is helping me. She ordered an EKG today as it has been two years since my last one. I am just glad she didn’t order any blood work. I hate getting my blood drawn.

I am glad the bus home was late so I caught it and didn’t have to wait an hour. I went to Walgreens to pick up my scripts that were ready. I was sweating bullets by the time I reached my house. My shirt was soaking wet. I had to take it off because it was making me cold with the AC. The new shirt I put on I then ruined when I opened a can of tuna in oil. I hate when I do that. I try to be careful but today I wasn’t. Now I have oil stains on my shirt. Luckily it’s on the bottom half so it’s not so noticeable.

My mother is thinking of making a “lazy man’s mac and cheese”. Apparently she is thinking of making the pasta and then microwaving cheese on top of it. Whatever. Sounds good to me. I love pasta and cheese so it works for me. I feel like making coffee but it’s kind of late. I just feel so wiped out. The heat and humidity is awful. It was really humid around the hospital because the river is right there. I was drenched before I reached the station. My ankle started acting up on the way home. I knew it was going to because there is a threat of showers today. Plus I did extra walking and stairs today as I had to go from one building to another to get the EKG.

My refill of trilafon is still being processed. I hope it gets mailed out today or I am going to be screwed. I have only a few pills left. I should have expedited shipping. I normally wouldn’t worry about it but the voices have been annoying today so I might need a second dose. I wish I knew where my other pill container was that I carry around. I know there are some pills in there. I tried finding it last night but wasn’t successful. I hate being psychotic. I told my psych today that it’s getting worse as I get older to control. I told her that I was having delusions as far back as March 2015, even with the abilify so obviously the abilify lost its effectiveness and I really didn’t notice it. Course I am so used to the voices it’s hard to discern when they are troublesome and when they are “normal”.

Soap Opera Season has Begun

Soap Opera Season Has Begun

It’s only day three of Spring training for the Red Sox and already it’s turning into a circus. Hanley can’t handle a throw from shortstop so gave Boegarts an error. I am lucky I didn’t see it because I would have been pissed. I am pissed just hearing about it. Then later this evening, a female Sox reporter resigns because her love life can’t include a member of the Sox. Supposedly she had relations with the skipper, Farrell. Whether these relations are continuing or have ended, hasn’t been publicly announced. I don’t understand what business it is for the press to be involved in such matters but they are just looking for a story. And it has begun. I am sure the drama at first base will continue as well as this developing story of the skipper’s love life. I wonder if baseball is going to get covered at all…

I texted my therapist several time today. I was giving her updates on the status of my appointment with my psychiatrist, which I still don’t have. My psych has not responded to the multiple emails I have sent her. I waited a good amount of time for a response. We’ll see if I get one on Monday. I am not going to bother emailing on the weekend, unless something comes up.

I also told my therapist that a slime ball inspirational speaker wants to meet my ex-therapist. I don’t know why I should care but I do. I wanted to respond with “yea, he is a great guy (therapist), but you are an asshole” but I didn’t. This guy, the speaker, pisses me off and I don’t know why. I am sure jealousy is an element on some level. He wrote a book about his experience with jumping off a bridge and surviving. When he was a teen. He is now an adult. I just find his story suspicious and every one is oooing and ahhhing over him. I understand how it is to go through a suicidal episode but you cannot tell me that he hasn’t once thought of ending his life since that day he was rescued. That he is “cured” of being suicidal. And I think that is what pisses me off about him, that he is selling something that isn’t true. I have never heard his story or read his book, so I really don’t know if there have been other suicidal episodes that he discloses. And yes I will admit to being jealous because I too wrote a book about my experience and got fucking no where with it. The only time I get an acknowledgement from the same people this clown hangs around with is when I write academic papers. Other than that, people don’t want to hear my daily struggle with suicide.

I am glad I have this blog because, honestly, I have met some pretty great people that are better than these professionals that I have met on Twitter. There is one clinician that will acknowledge me every now and then, but it’s mostly my physical pain that he responds to. I don’t know when I became a bitter person. Probably when the lab shafted me after 14 years of giving them 110% every time I worked no matter my mental or physical illness was doing to me. I was a body to them and a brain they needed to sort through the shit and foul ups of others. I’ll never forget when a resident came by the lab with four tubes of CSF and had no fucking clue what she wanted tested but expected us to know. Then when one of the tests were short, she didn’t know the difference between mad cow disease and Alzheimer’s. Really??? You are post medical school and studying neurology and you don’t know the fucking difference between these two diseases other than they affect the brain?? I memorized her name because I didn’t want to go near her. Course it has been some time now and I have forgotten it. My memory is not the same as it once was. I do know she became a pedi-neuro. Pretty scary that some parent is going to be trusting her with the life of the child.

Oh and before I forget, again, my oldest niece just published her first paper on E. Coli. I am so proud of her. It was a very HUGE accomplishment and there was a huge collaboration as the author lists just go on and on. She is listed as an acknowledgement but that is still pretty good.

I read the “do I need therapy” blog tonight because my therapist wanted me at my last session. I think it was a stupid blog because I repeated myself several times. I still don’t know what point I was trying to make. Maybe that I felt obligated to be in therapy because I feel like I owe my therapist that much. And I don’t mean monetarily wise. Like I told her in that session, I could owe her nothing yet I still would feel like I did.

My back is really hurting me. I need to lie down but if I go to sleep now, I know that I will wake up at three in the morning. I also want to keep checking my blog stats because I am 4 views away from 60,000. I haven’t taken any pain meds yet. I will once I feel a little more settled down. I got a lot on my brain.

I wonder if I should be in the hospital. I have been against it because there is no treatment there. You just get watched and drugged up and then sent home. Plus with my pain meds, they always fuck it up and I need to request it the way I take it at home rather than how it is written. I have been telling my PCP to change it even before he left but he still just left it at 1 pill every 6 hours. I usually take 2 pills twice a day, some times more, sometimes less. It all depends on what my level of pain is. He knows this and never changed it so I am screwed. Now he is gone and no one asks me if my meds are adequate. But the hospital won’t see it that way. I always get stigmatized about it. And don’t get me started on the pain scale I have to fill out at every single dose. That pisses me off more than the fuck up. Then I got to pack appropriately, write out my medication list, and be sure I can carry all the stuff on the public transportation. Last time I brought a backpack and a carry on. I was in an AFO at the time, so it took some maneuvering to carry everything. My bags were full because I had to carry at least a book or two in addition to my journal. I also carried a notepad with me just in case writing hit me. It’s been almost a year and a half since my last hospitalization but I remember it as if it were yesterday. I don’t really care what becomes of my father’s medication if I do go in. It’s not that hard, really. My sisters could do it if they chose to.

Overtired to the Max

Overtired to the Max

I have been up since 0500. For the last two hours, I have been trying to sleep, but the events of the day keep creeping in my head and I can’t sleep. Plus the damn wind has kicked up a few hundred notches so it’s shaking my side of the house. Just fucking wonderful. I really envy my mother who can sleep through anything and fall asleep at the drop of a hat.

I am feeling better but I am hungry. I am too scared to go down the stairs because I don’t want the dizziness to return. I know I will be starving in the morning. But I will make an egg burrito and that should keep me satisfied.

I emailed my psychiatrist to get a refill on the medication that I need. I thought about telling her about my syncope/vertigo episode but she is out of the office and I was afraid she would want me to go to the ER or something. I want to see if taking all my meds tonight helps. But this feeling of being overtired is making me sick, literally. I feel so nauseous.

I don’t know why I feel like an asshole, but I do. I can’t get the stupid events out of my head from today and I feel like an idiot because of the way I acted, even though I didn’t think I acted out of line. GGGRRRRR. It’s driving me crazy.

I texted my therapist to tell her about the events and how I was feeling. I told her I wanted to talk to my psychiatrist. Then I remembered her pager is probably signed out to another clinician, which doesn’t help me much. All I can do is email her and hope she gets it. I am kind of annoyed that she is out of the office. I understand that a family member is sick and she needs to take care of that person. I just feel shafted because I haven’t seen her in more than a month and there is no indication that she is coming back to the office soon. I miss her and need to talk to her face to face or via telephone not email. I am just frustrated and irritable right now. Even the wind is pissing me off.

I put on my whisperer thingy. It helps my brain to shut down. I don’t know why it works, but I am usually asleep within 15 minutes of listening to it whoosh. That with the Ativan I took, should knock me out and I swear if I wake up before 0600 tomorrow I am going to be really pissed. I have been up almost 19 hours straight. I really would like at least six hours or more of sleep.

I think I need to go back to my repro endo doc because as much as I really like having facial hair, growing it without taking testosterone is concerning me. I had an incidentaloma on my pituitary gland a few years ago. It wasn’t significant at the time but now that more hair is growing, I am getting a little freaked out that it has grown. I have to take a shower tomorrow, as long as I am not dizzy so will shave my face again. I also need to get a haircut.