‘People are tip-toeing around me’

I understand what this woman is going through. I am where she is at.

kayakembe's avatarWhat happens now?

“Life hurts,” the emailed comment began.

What followed is the note that we’ve posted below. It’s a simple, clear description of what it can feel like after an attempt. It also points out so well the need for resources for family, friends and colleagues of attempt survivors that we immediately wanted to publish it.

“Of course you have my permission to post it on the site,” Toni replied. She was more than happy to share her story and even agreed to use her full name, though we decided on just her first name for now. (She can yell at us if she likes … or write another post later on.)

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400th blog post: A post about Edwin Shneidman, PhD

This is my 400th blog. I want it to be meaningful so I thought I would write about Dr. Edwin Shneidman. He was a wonderful man that I really admire. He was the father of suicidology and really pioneered the field.

His famous quotes, one of many, was that you should not kill yourself while you are suicidal. I think he meant it to be as a sort of giving yourself time before acting on such a dangerous act. I know that in my time I have been putting it off. It keeps me here.

My favorite book that he wrote was called “the suicidal mind”. I swear this guy was in my head as I was reading it. It perfectly described everything that I was feeling. The psychache, the despair, the guilty worthless feelings, all of it. He was the one that termed the word psychache, which is feelings of psychological pain that can best be described as feelings of despair, frustration, guilt, worthlessness, hopelessness, and helplessness.

His other connotations are constriction and perturbation. These two words are the most dangerous in a suicidal mind. The constriction means there is a narrowing of the mind, a kind of tunnel vision that is set on one thing: easing the psychache at any and all costs, by killing oneself. Perturbation is the agitation, frustration, the “must do something now” type feeling that provides that person to think about suicide and it is difficult to calm or settle these feelings once constriction is in full gear.

Another word Dr. Shneidman often uses to describe suicidality is press. This word is sort of a disambiguation. He uses it to describe a lot of things but mostly the pressure one feels to act on suicidal feelings and thoughts. It can also be used as a sort of perturbation. In Dr. Shneidman’s eyes, the level of the perturbation, press, and psychache will ultimately lead to suicide. If you were to rate each on a 1-5 scale model and have a 5-5-5, the likelihood of completing a suicidal act is greatly increased. In fact, he has stated that prolonged feelings of these three things are a major cause of suicide. No one can endure psychache, press, and perturbation for any length of time. You can have fluctuation of the these three things but once they have been at a sustainable level for any length of time, suicide is likely to follow.

Dr. Shneidman was a man that I greatly admire and respect. And what is very special to me and what I will always remember is him calling me out of the blue one day to discuss my paper that I sent him on “ten faces”. It was a paper that I wrote up for the AAS 41st annual conference and was my first poster session for this organization. I will always be grateful for that phone call.

distressed

I know I have been writing more and more about my transgender issues and more of my identity crisis that I am. I am deeply distressed right now and don’t know what else to do but write. I started working on a blog for my 400th blog but the meds are interfering with my thought process. I took 2400 mg of neurontin to calm down the horrible burning pains in my foot that I have been experiencing all day. I just can’t take it anymore. I took some of my pain meds with the neurontin and I am kind of feeling kind of out of it but I still haven’t passed out yet. I think I will in a few minutes as I can barely hold my head up anymore as I am fighting the fatigue. I am just so damn upset over the stupid menses. I know that even if I get to my doc there is nothing really she could do. I will still have to wait at least three weeks to see if the next treatment works, that is if I stop bleeding. I would be ok if I would just stop bleeding. It so distresses me and usually I am able to handle it but now this is going on for almost three weeks and I am losing my handle on the rope that is holding me together. I think tomorrow if my flow is still the same I will stop the patch and see what happens. I don’t know what else to go. i will go a few days of not wearing the stupid fucker and see if that helps.

I am deeply suicidal and yet deeply concerned about someone who just wrote to me that she is planning her final affairs. There is nothing I can do to stop this lady, she has her mind set on killing herself. I don’t blame her. I really don’t. There is only so much pain you can take before you finally snap and have to do something to get rid of it. I have been where she is right now. She doesn’t have a good support system and I think she is mad at me in some way that I have abandoned her. I feel bad that I have not called her like I have said before but I just don’t feel like talking. I guess I am afraid of calling a stranger and letting her in my life. I am scared. I once got close to a member of the support group and then she just stopped contact. No more emails, no more phone calls, no messages returned. Nothing. I later found out through her husband that she just got tired of her condition that she became constricted and didn’t want to reach out anymore. It was too painful for her. I lost my friend to this horrible condition because she has the active form due to another dreaded condition that is worse than the other. I would name them but they are conditions that no one really understands. I might as well as be talking about the moon and the stars and how far away they are. I think they name them these big ass names so that no one can understand and push us further apart from the human race.

So Ms. M, if you are reading this, I am sorry that I failed you. I wish there was a way that I could stop you from doing what you are planning but I guess there is no way to stop you. Just like no one can stop me in my planning. I hope that we both succeed. I know that dealing with constant, excruciating pain and loss of bodily functions really suck. I know this first hand. I can’t stand it that someone so sweet could hurt so much and no one notice. It is not fair. But I understand. I really do.

tired of living

I am feeling blah today. I just finished taking a shower and though I feel refreshed, I don’t have any motivation to do anything. I have some time to get my coffee before my therapy appointment in a couple of hours but I just don’t feel like being rushed. Every time I do, I forget something, and usually the essentials, such as the keys to my house!

I responded to an email for my CESSG (Cauda Equina Syndrome Support Group) about physical therapy. I hope that the person doesn’t see a chiropractor. That is how all of my problems started. I think that if I was given adequate pain medication in the beginning of my back pain, I would not have gone to see a chiropractor or if I had stopped once the pain did I would not have ended up with CES. All the ifs that go through my mind, looking back.

I am especially feeling out of sorts today because I still have my fricken, goddamned menses. Just when I thought I was getting over it, it comes back in full force. I seriously am suicidal more so now than I was before. I just can’t take being a woman anymore. I have tried to stop the cycle and I am failing horribly. I am so sad. I hate being in this body. I never am going to be a man. And though I should be possibly reaching out for help, I just can’t. I just can’t bear talking about it with someone because I know I will just start bawling like a baby. Just writing about it is bringing tears to my eyes. It just is a deep emotional reaction. And even though I know there are other FTMs out there, I still feel alone. I just can’t cope with this anymore. I doubt that anyone really knows the frustration of dealing with this. I am trying to cope with it but how do you cope with something you know is WRONG?? I know I should probably go back to my reproductive endocrine doc and be like this isn’t working but why bother? She has been trying to stop this beast and has been unable to do so this past year. My confidence in her is down to nothing. I know I probably should go to the experts and see what they know but this Doc is the tops in her field. I don’t understand how hard it is to stop a fucking period. It just doesn’t make sense to me. And with every mense that I get, the closer I get to killing myself. I am done with it. I just want to die. I am in too much pain anyways. My foot was acting up soon as I woke up this morning. It’s sort of fine now as I took my pain meds.

I just am tired of living. Tired of trying to make sense of all this. I really don’t know what to do about my menses anymore. I wish it was easy to get through this but it’s not. Every time I wipe myself and there is blood I freak out. I just don’t understand why I am still bleeding. It’s been two weeks already. This is my third week. I was hoping it was getting less toward the end of the week but I was wrong. I really hate being like this. I hate feeling like a freak. And nobody understands that I am going to end my life because of it. I wish I knew what I was feeling but all I feel is hurt. I feel pain. I feel hate. Hate that I am not who my brain thinks I am. And I get weaker. I get more tired with each passing day. It just takes so much energy to deal with this. To wear underwear now that are made for females is just killing me inside. I might be called a masculine name but I am far from being it.