Tag: complex regional pain syndrome

tiring day of appointments

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Tiring day of appointments

I reluctantly got up this morning and didn’t want to leave the house. I had slept through the night but was still exhausted. I had coffee and then counted down the minutes to when I had to get ready to catch the bus. My legs were so heavy today as I walked to the bus stop. I knew it was going to be a challenging day for me as I had a lot of walking to do today.

I saw my PCP and we discussed my fatigue. He thinks it is multifactorial so he is sending a message to my psych team to try and find ways for me to sleep better. I told him my blood pressure has been high lately and he checked it. It was high so he is adding a new blood pressure medicine. Yay a new medicine. Not. I see him in three months.

I then went to my second appointment at the other end of the hospital for the covid blood draw. He couldn’t get me so asked one of the other medical assistants. She got me right away. After the blood draw I went to get my haircut. I slept on the train ride back home. I was so tired. I had to stop a few times.

I came home and was hungry. I didn’t feel like cooking so I had some cereal. I made a cup of coffee to try and avoid a nap. While I was eating, I did my shoulder exercises. I had worn the sling all morning so it was good to move it about. It still hurts. When I went to my room, I took off my sneakers and socks. Soon as I got into bed my ankle flared up and I had to take a BT med. I also took some ibuprofen for the shoulder pain. I don’t know why the CRPS is flaring lately. I started to hurt on the walk home from the bus stop. Each step I took was more painful than the last. I was dreading the last block home.

I am doing nothing tomorrow and if I sleep all day so be it. I am just going to have a down day. Might order pizza again. Actually, might order it tonight. I am a pizza junkie. I can eat pizza every day if I am able.

I need to schedule an eye exam so I can get new glasses. I haven’t had an exam in almost two years. I tried reading from my sunglasses today and it was difficult so I know my prescription has changed. I just don’t like the eye doctor I see. It is hard to see someone else because of my insurance. I’ll probably see someone by the end of the year though.

Saturday Blog 30102021

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 30102021

I started a blog yesterday afternoon when inspiration hit and unfortunately, my emotions shut it down. I still can’t go back to it yet so I sent it to my therapist and maybe I can finish writing it. I think it is an important thing for me to write about but the emotions surrounding it are powerful.

I woke up around 2 last night in pain. I emptied my bladder because it had been close to seven hours since I last did it. I tried going back to sleep but I was too woken up. I stayed up for a few hours and then finally went back to sleep. I don’t remember my med alarm going off but I must have shut it off. I didn’t stir but just went back to sleep. I hear notifications go off on my phone but I just ignored them. Then my mother called me at 1pm and I reluctantly got up. She needed to get a few things at Amazon so after I had a bowl of cereal and made my coffee, I searched the things she needed. Now I feel ready to go back to sleep.

I made an appointment with my barber for Tues. My royalties for this month were more than I was expecting, which was good because it pushed my account to where I have the twenty bucks for my hair. I think I am going to go to a three when I see him. I rather him do it than me try it. I need to shave today. I also need to pick up my meds. It’s raining out. I was hoping they would be ready in the morning but they just got done now. I’ll pick it up tomorrow. I don’t need it until then anyways.

I have no idea what I am going to eat today. I might order Chipotle. I have added corn salsa to my burrito bowl and it is so damn good. But I am not hungry right now so I don’t want to order it. Yesterday I ordered a cheese pizza because I was craving it. It was pretty good. I might order it again. Or I will just have cereal, my inexpensive go to when I don’t feel like having nothing else.

I have a sort of busy week next week. Monday I have therapy and then Tues I am seeing my pcp, getting my blood drawn for a study, and then getting my haircut on the way home. I am going to be wiped out. The following week is going to be busier with MTW appointments that are all in person except my therapist appointment. I am going to be exhausted. I am exhausted just thinking about navigating around the hospital for Tuesday’s appointment. The place I got to have my blood drawn is at the complete end of the entrance, the furthest building on campus. And the only way to get there is through the main entrance as the other doors are closed due to covid. A lot of fucking walking for ten bucks.

therapy and shoulder pain

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Therapy and shoulder pain

I was so damn tired today. I only woke up twice during the night. One to pee and the other because of shoulder pain. My med alarm went off and I wanted to throw my phone across the room. I shut it off but didn’t get up until an hour later when I had to pee again. I took my meds and used the bathroom. I was still tired so I just went back to bed. My hip was hurting me from the dampness. I didn’t wake up till almost twenty minutes before my therapy appointment. Yikes!

I quickly made a cup of coffee as I logged on to my laptop. Shoulder pain had calmed down. Therapy started a little early and we talked about dating as I joined a dating app and have been talking to someone. We talk about how great it is but at the same time I am apprehensive about them dealing with the medical side of me. It is very complex and I am on a lot of meds for the different conditions I have. I just am worried they are going to see me (if we meet in person) and I am going to be a turn off because I won’t be what they imagined I would be. I never thought someone would be interested in me because I am so hard with my esteem issues. We also talked about my shoulder issues. I told her the conflict I have with back PT and shoulder PT. I said that I want back PT because if I can’t move there is no way I can do shoulder therapy. She was okay with that then asked if I do the exercises outside of therapy. HA! I do them. But not usually all of them. The PT I have usually gives only three or four exercises rather than like 10 so it is easier to remember and do them but they will be the same exercises I have been doing for the past twenty years.

After therapy, I took a shower and shaved. It was the first time in a week that took one. I have been shaving but not showering. I still have to get my haircut. I am thinking of just getting it down to a three. I just am scared because I might end up shaving my whole head with it that low. I never done that before. I have had my hair really short, like whiffle short before but it has been a while since I have had it that short.

My lower back has been bothering me most of the damn day. Weather sucks. I don’t ever remember a year where we have had so much rain. It is going to be cloudy and rainy all week. I am just glad the temp isn’t colder or we would get snow. That would really suck. I don’t have to go out except to the pharmacy to pick up my meds. I hate to go out in rainy weather. I used to love it. I rather have a cloudy day than sunny. My back does not like the rain though.

painful and depressing Sunday 24102021

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Painful and depressing Sunday 24102021

I woke up several times during the night because I was in pain and had to pee. I didn’t have the urge to pee but several hours had passed without me going so I figure I might as well empty while I was up. Today I had two bowel movements while I voided. I didn’t check to see if there was residual urine. I just didn’t feel like checking. I have been in an awful mood since I woke up around 9. I am in pain with my shoulder and I have pain going down my arm into my hand. There has been a few times where my hand felt numb so I am glad I am seeing the doctor tomorrow. I have neck pain as well. I think that is because I am not using my shoulder the way I should because it is injured.

I got my benefits package in yesterday’s mail. Everything is going up. Copays for PT and specialists are now $30 but mental health is $10. Meds are the same but as one of my meds are brand name, I asked my doc for a 90 day supply as it would be cheaper for me. I am waiting to see what he says. My deductible has also gone up to $300 before they pay for everything. Hope I can swing it.

I have been tired most of the day but haven’t been able to nap. I had a second cup of coffee with lunch. My sister made chili that was really good. I had a yogurt for dessert. My groceries came in and I had some donuts. I think that will be my dinner. I was going to make buttermilk biscuits but I don’t feel like cooking. My arm is really sore. My thigh has been flared up with nerve pain so my whole left side is full of pain right now. I am thinking of putting a lido patch on my thigh soon. I might put one on my arm too.

Since I have been taking magnesium, the spasms have stopped in my back. I still feel achy there. I will call the PT office to set up some appointments with hopefully the same PT I have been seeing. I have a slow week of appointments this week. Next week I have a lot. I am going to wait to call the PT until after I see the ortho guy for my shoulder in case he wants me to have PT there first. I am kind of concerned that there is a fragment in my shoulder caused by one of the fractures. I don’t know if that has to be taken out or not. I am really nervous that I will need surgery for my shoulder and then I won’t be able to take care of myself one handed. I am going to go for X-rays tomorrow to see how things look. Hope things look better. I just hope I sleep tonight or getting up in the morning is going to be tough. I have to be at my appointment fifteen minutes early so they can do the x-rays. I will want to have a cup of coffee before I go and something to eat.