Tag: disability

just a blog about nothing

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Just a blog about nothing

I woke up around 0330 because my bladder said so. It was hard to go back to sleep when I came back to my room so I stayed up for an hour or two. My med alarm went off around 8 and I took my BP med then went back to sleep. I had a crazy fucked up dream when I woke up. My mother had fixed my clothes that were in the hallway and just laid out my t-shirts. The rest of the clothes had disappeared and I had no idea where they were. I kept meaning to ask her but I didn’t want to start a fight. Weird.

I got up and there was no snow. The storm was a crock. It was raining at 330 am when I was up and was still raining a little when I got up around 11. I brushed my teeth and then made breakfast. I made four burritos, freezing three and eating the one. It was good. I am out of burrito wraps. I will get more next week. I then made coffee, but I made it too sweet so I couldn’t drink it. I think I will make a cup of tea. I am fricken exhausted. I felt like going back to sleep but decided I would go to Walgreens to fill my script.

I am glad it wasn’t icy out. It was really warm in the store and I should have just wore my sweatshirt. My insurance would only fill one script. The other was too early so I need to come back tomorrow to get it. I am out anyways so no big deal. My mother wanted a few things so I picked that up. I bought some Reese’s dark peanut butter cups as I wanted something sweet. I have such a headache. I came home and while I was taking off my socks, damn elastic flared my foot. It felt like I was trying to remove the bones in my foot. I hurt so much. My pain wasn’t too bad up till then.

I’m getting hungry and think I will make a tuna sandwich. I’ve been wanting to make one for a while but it has always been at weird times (like 9 pm or after). I will be getting sliced carrots for a muffin recipe next week. I can use the left over for tuna sandwiches. I love having something crunchy in the sandwich. Tastes better.

I would be listening to the game but my head hurts too much. I woke up with my head between the two pillows and my neck at a weird angle. Hate when that happens. I can’t have my head flat on the mattress as it always gives me a headache. I took some advil to try and ease it.

My niece is home from school today because they cancelled school. I will be making her mac and cheese for supper. I’ll have some with my tuna sandwich. Sounds like a plan to me!

The Hunt for Picante Sauce

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, painsomnia

The hunt for Picante sauce

I was in severe pain last night after taking my night time dose of pain meds. It wasn’t even two mins in my system when I moved to lay down that my ankle exploded in severe pain. It was then the waiting game of what to do/take. I was up till around 4. Around 3 I got hungry and heated up the breakfast burrito I made a few days ago. I wanted something spice and found a packet of picante sauce from McDonalds. YES! It was so good. My belly was full and I was able to get to sleep, though it wasn’t restful as I kept waking up every couple of hours, with my med alarm scaring the crap out of me. I would have stayed in bed but I had to see my therapist. I woke up shortly after 11 so there was no chance of a shower. I went downstairs to brush my teeth and use the bathroom. My mother made pancakes and saved me some. I took them with me to have at Starbucks with my much needed espresso.

I got to Starbucks and had 5 shots of espresso and the pancakes. It was good. I then wrote in my journal until it was time to leave for my therapist’s office. It was bloody cold but I was wearing a heavy sweatshirt and that made me sweat. My ankle was still bothering me so I took a strong pain pill to keep it quiet. In my Painsomnia state, I had written an email to my psychiatrist that was basically telling her I was going through with Plan A. She had responded with some weird inquiries so I had some explaining to do. We exchanged emails and I think everything is sorted. Not quite sure though as she never responded with my last email.

I went to my therapist’s office and session went well. He was surprised that the pain doc and my PCP had decided to go collaborate and not include me in the conversation. It is still a mystery why my psychiatrist needs to be involved. I asked him if the LGBT doc had been in touch with him and he said that they were looking for my entire record from him. He didn’t send it because he wanted to talk to me first and I am glad he did because I do not want them to have the record. They may talk to him, but I do not want what we talk about to be shared. He said that he is willing to write a letter if they need it but it will cost me. I am not worried about that. He said he would prefer a phone call. I agreed. So Friday when I meet with the doc, I will ask him what he wants with my therapist. As of yet, the LGBT doc has not contacted my psychiatrist. I have no idea if he got my medical records or what. Now I am really nervous about the appt.

I am on the fence on moving forward with my transition because of my plan. I am going to send my PCP a message about what he plans on doing with my pain meds. I am planning on picking up the script on Wed, if they are ready. After therapy, I went on my picante sauce hunt. I went to the grocery store at the Square and they had shit selection but no picante sauce. The eggs were also up thirty cents since I bought them Saturday. I went to another grocery store and they had the picante sauce! Yay! I bought three dozen eggs and a half gallon of juice, my kind as the one my sister bought my mother sucks. It is from concentrate and I like it not from concentrate. It just tastes better. I got home and had to shower. I was sweating and because I was holding my urine, I leaked pretty good. I felt gross. I knew my ankle wasn’t going to like it but that is what pain meds were for.

After the shower, I had dinner that my mother made. Then she yelled at me because I spent so much on the eggs. I should have destroyed the receipt but I forgot I left it in the bag. It wasn’t even her money! She said she wasn’t sending me shopping anymore. Fine. Whatever. I don’t give a shit. You buy your eggs and I’ll buy mine!

I just made a cup of orange spice tea and I am going to relax the rest of the night. My back and ankle are killing me. I hope I am not up all night again. I need to clean out my backpack and find out what the hell is so damn heavy. I think I am going to switch to my messenger bag. It is time for a change anyway. Time to rock the Pearl Jam bag!

counting down toward baseball 11 days

by Midnight Demon, posted in baseball, Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

My ankle has been hurting me most of the day. I woke up at 6 in pain, managed to go back to sleep and got up around 1400. I made coffee and walking was difficult. Any weight that I put on my ankle made it hurt more. I had some cookies as I didn’t know what to eat. I was watching the game. It was the top of the 5th and they scored soon as my coffee was done. YAY! My “boyfriend” Benny Biceps (Andrew Benintendi) scored a home run. I decided to make some boiled eggs and toast before going back to my room.

My mother wanted me to look up some cleaning machine on my computer. I told her the price and I guess it was too high as she didn’t say anything else. I don’t know why she wants another one. She bought one for the kitchen floor that she has yet to use. I don’t get it. She has bought several sets of pans that are on the porch. Guess she is waiting for the ones we use every day to fall apart before we can use them. I don’t know. They are the copper ones they show on TV. I used one of them while making the beef for Manwich. It was good as things didn’t stick to it. I might use the smaller pan when I make scrambled eggs.

I am so exhausted from being in pain. It is draining the fuck out of me. My psychiatrist never responded to the email I sent her about what the pain doc said. I have no idea if my PCP has contacted her or what. I hate that I am not being included in the conversation. It IS my life they are talking about and MY care. I hate that this is just dragging on. I am still going to go through with my plan. I will make phone calls tomorrow, though that is giving me anxiety. I hate talking to people on the phone. I rather text or email. I know it will be a few transfers to get a hold of someone that is in charge of getting my pension and what to do with it. I also know that once I start the process, there is no looking back. I know I don’t have to do this but I can’t stand being in pain 24/7 anymore.

When my check comes in this month, I plan on ordering my books so I can give them to the libraries. I want my hometown to have a couple of copies and the idiot town I live in, even though I hate this city very bad. I also need to get my spare phone fixed. No point in getting new glasses. HA, one less expense, though I currently am hating the pair I have right now. I should make a list of all that I need to do. I have two places I want to eat at before I go.

Even though my feet have been under the blankets the past two hours, they are ice fricken cold. It’s kind of cold in my room. For some reason, the heat only goes on at night, least in my room anyway. I don’t mind it being cold so long as my nose doesn’t get cold. Then I need heat. But my feet are different. I need to put on thermals and I just don’t want to be bothered. Damn, heat is making a liar out of me as it just kicked on! Fucker. LOL Must have knew I was talking about it.

Sox won 2-1. 11 days till Opening Day. I cannot fricken wait!! Seems like forever since I last heard or watched a night game. The spring training has been meh. Nothing exciting except one catcher that has done really well. I don’t know who will be staying or going. I guess that will be happening sometime within the week.

oh my blood pressure!

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Oh my blood pressure!

I had about 4 hours of sleep last night. I just couldn’t sleep. My brain couldn’t turn off and then pain started. I couldn’t get comfortable. I was talking to one of my British friends and she was telling me about strong tea. She gave me the brand she uses and in my Painsomnia state, I ordered it. I have been making a lot of purchases while I am up all night. I told my psychiatrist and she said that if my spending got out of hand, to let her know. I said I would.

I had six shots of espresso and that wasn’t a good idea for my appts as I was kind of jittery. My emotions were all over the place because I didn’t sleep. I lost track of when I was supposed to take my pain meds so was late by the time I got home. I saw my psychiatrist and all I did was cry out of frustration. She read the notes from the pain doc and it said what I told her. She encouraged me to collaborate with the pain doc. So I settled down and said I was going to try. That was the plan. Should have worked, right?? Yea, like a snowball in hell!

I met with this fellow that I swear is stalking me. Nearly every new appt I have had the last few months, he has been there. Today he was the fellow I saw before the attending. We chatted for a bit and then he went to get the attending. I told him I wanted to be put on methadone before leaving. He said he would relay the message. The attending comes in and said he had a long conversation with my PCP about what to do. Now it becomes a three ringed circus, because these two doc (pain and pcp) will collaborate with my psychiatrist before deciding on what to do. WTF!! I asked what I was to do in the meantime. He didn’t say anything. He did say that if I had continued bone pain, to let my PCP know so he could order a bone scan to check for a bone infection. I have been having this pain for more than a year. I had a bone scan in November that didn’t say a thing about infection. I am so fucking pissed. I am done. I was speechless. As I walked to the train station, I put on Pearl Jam and listened to it LOUD.

My psych wanted me to let her know how the appt went. I told her I would page her when I got home. I emailed her because I was watching the game and didn’t feel like talking. I came home, made dinner as I watched the ball game, tweeted or posted on Facebook on the plays. I was so exhausted. I still am. I feel so lifeless. I have decided to put my plan into motion. Monday I will be making some phone calls. Soon as I have my affairs in order, I plan on going through with my plan.