Tommy Copper Time

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Tommy Copper Time

My ankle was swollen and I couldn’t find my ace bandage slip-on so I put on the Tommie Copper compression thing. I hope it helps because the pain is still there despite taking all the meds I took. I spent $40 on the thing so I hope it does help the pain and swelling. This is how desperate I have become.

I was going to sleep but I am in pain and I got the damn writing itch so I apologize for all these blogs. I like to write when I am able to because I really can’t sleep unless I get the words out. It’s not that I have a lot to say it’s just that I feel the need to write.

While I was talking with my therapist today, we discussed the picture I am going to place on my new book. It’s one that I chose that is close to 20 years ago. It was take around 24 hours after my niece was born. I helped deliver her and basically cut her out of the pic and just had my mug shot. I really like the pic but having it as my profile pic on Twitter is annoying me so I need to change it to something else. I can’t stand looking at myself for too long. I just start noticing imperfections and then it just spoils the picture for me. My therapist likes the pic as she thinks I look cute. I told her it was an older pic and she said that I don’t age. I said I was about 80 pounds lighter in that photo. I also didn’t have facial hair because I was so “young”. I am not saying that I am old. I believe you are as young as you feel, regardless of your age. If you blog readers want to see my pic, just drop me a comment and I will post it in my next blog. But I must have at least 5 people minimum that want to see it.

I have been resting my foot since I came up from the stairs in agony. Only time I have been on my feet was to check out a growth in the corner of my eye and to take my night meds. I need to see my eye doctor about the growth, though I am not sure what he can do about it. I am only concerned with it because it has grown over the last few weeks. I thought it was eye crud but it hasn’t gone away. Then it looked like a zit so I tried popping it but I can’t because it’s in a weird spot. I don’t think it is a zit, but it is something. UGH.

I am feeling a little better since my last post. I talked to a friend about how I am feeling and found out she has been feeling the same. We both suffer from Cauda Equina Syndrome (CES) though she is affected on her right side while I am affected on my left. Hers was lower than mine and she only had it once. I have had it twice. I hope her pain is nothing but muscle related pain. I know mine is because I can feel the tightness. If I could just stretch the damn hip I would be so much better but I just don’t have the flexibility I once had. It sucks. I would go to physical therapy but it’s a waste of time because they always give me the same exercises that I have been doing for years. I have been doing them but it doesn’t help so why go? I just need someone to massage the area that hurts and see if that helps it. Unfortunately, I can’t reach where it hurts so me rubbing it is not ideal. Sucks.

I plan on seeing my therapist next week and I think I will stop at McDonalds to have their Big Mac. I have been craving it for a while. I haven’t had McD’s in a long time because the one in the Square closed. I thought it was odd because they just renovated the place and the next week it was done. There is only one left in my town but it’s a hike to get to, least by public transportation anyway. I miss the grease, LOL.

I gave my therapist “homework” to do. It’s not really, but it is important. It’s my LTD paperwork that needs to be filled out by my provider. She will be giving it to me next week when I see her. She is going to have a rough draft filled out so I know what she is telling them. I am glad we can collaborate on this because it’s so important to me. I need the LTD payments to supplement my SSD otherwise I am screwed financially.

I didn’t kill my therapist

I didn’t kill my therapist

I had told my therapist to text me after she eats my cake but never got a text. I thought I killed her sweet tooth for good. That was until my pain shot up and I had real thoughts of ending things so I texted her our code for her to get back to me ASAP. She was at a professional engagement so couldn’t call me but we texted for a few minutes. She wanted me to go to the ER, which I declined because what were they supposed to do that my doctors couldn’t? And what ER would I go to, the medical side or the psych side? Either would be hours of waiting and I just am not up for waiting. I told my therapist I would take my meds early and hope for the best. I was crying at this point because I am so damn frustrated.

I didn’t really do anything but go up the damn stairs after going to the bathroom. Soon as I felt the pain, I snapped. I started crying and wonder what it would be like to go to my spot right now and take the pills with me. Kind of play with fire and see if I get burned. I didn’t care. Before I did get dressed and try and figure out how to even walk to my destination, I called my therapist. I am laid up but tomorrow is another day. Unfortunately, I have to talk to my therapist so I can’t be running off to my spot to end my life. Not that I could run, but you get my point.

It sucks that I didn’t talk with my therapist. I really could have used hearing her voice one more time today. Now I have to wait till tomorrow to hear it. I hate that I am crying like a baby with being in pain. I don’t know how much of it is because of sadness and how much of it is because of the frustration that I can’t do anything to help myself. I did take a sugar pill to see if it does anything. You know, in case this pain is truly in my head and not in my ankle. So far there has been no change in pain levels. But then I have taken a full dose of pain meds and Neurontin. I haven’t broken out the strong pain pill yet.

I was thinking of writing how traumatizing it is to be in pain all the time, every single day and not have a rhyme or reason. How many people go upstairs every day and not experience what I experience? I say that it is traumatizing because it makes me think of my bigger illness, cauda equina syndrome. When I was first diagnosed, I lost feeling in my lower extremity and my left leg/foot was in pain. So I associate that pain with getting CES. And since that day, because I am vulnerable to PTSD (I already was diagnosed), I keep having mini flashbacks of that terrifying time. No matter how many times I try to talk myself out of the feedback loop that this is happening again, it doesn’t seem to work until I take some Ativan to calm myself down. Then I can think a little clearer and see that it’s not happening. That I am just having a pain flare up and things are going to be okay even though I am in agony. I just need to wait till my pain meds kick in. I sometimes wish I had IV drugs to make it happen quicker because waiting up to 45 minutes is torture.

I really hate talking about trauma stuff because I am in denial that things happened the way they did. I was twenty-five when this happened to me so I really was naïve to the situation. I just thought that I needed some pain meds and some physical therapy and I would be good as new again. I had no idea how serious my condition was and it wasn’t like the doctors were all that helpful. Hell the surgeon told me I would be up in three days. Three days later, I still couldn’t move my feet or toes. It wasn’t until a week later I could move my big toe. Things came back so damn slowly. Then when I thought I was doing better I got hit with a staph infection that really knocked me off my feet again. But that is another story for another day.

When I finally saw my therapist three months later in person, she had said that I was traumatized by the surgery and what my body did to me. I didn’t want to believe her. That was 15 years ago. Now I get it. And it’s this trauma I keep experiencing every single night that is driving me whacky. I am sure my hormone levels are off kilter in some way shape or form from going through this every night. No wonder I can’t fucking sleep. I am too stressed from being stressed. I might not understand it physiologically but I know that eventually this shit is going to kill me if it’s not dealt with.

Ac in October, why not?

AC in October, why not?

I just came home from my therapy appointment. It warmed up considerably as I made my way back home. I am sweating so I turned on the AC soon as I got in my room. It was supposed to be in the 80s but it’s 10 degrees cooler. I don’t care as long as I have AC.

I woke up five minutes before my alarm was set to go off. I waited it out before I got up to take a shower. Then I killed time before I trekked to the car. It wasn’t bad as it was last time. I guess because I wasn’t in as much pain. Surprisingly, I didn’t have to put gas in the car as it had more than a half tank. I set off and got to my appointment a half hour early. I waited in the car listening to the radio and checking Twitter.

Therapy went okay. She wasn’t able to read the password protected blog I sent her because she was putting in the wrong password. She didn’t read the text completely so didn’t see what the password was. She isn’t that technological. I told her what the password was and what the blog was about. I also told her that I emailed my psychiatrist bluntly about what is going on. We talked about my pain most of the time and how yesterday was a really bad day for me. I never cry because of pain but yesterday between the sleep deprivation and the loss of my father hitting me hard, I was more vulnerable.

We talked about my suicidality but I didn’t give her my new date and she didn’t ask. She understands why I go there and how things get so bad so quickly. What I don’t think she is getting is how fucking close I am to attempting. I am beyond snapped. I just got to get the courage to go through with it and I hope to do it sometime soon. My biggest fear stopping me is being found before I am dead and then I survive. That is the problem with taking pills, they take a while to work before they finally kill you.

We did talk about my “lovely” father as his six month anniversary is coming up next Tuesday. I really can’t believe it has been six months already. It still feels like yesterday. It’s weird yet relieving that I don’t have to deal with his abuse anymore. The hard part is that I miss his banter, his stupid, demanding phone calls. I had a voicemail message come through last week. I missed his voice so I replayed one of his old voicemails. When I played the message thinking it was the new message I was shocked for a little bit. Then I realized I didn’t get out of the message. I miss that fucker.

My therapist hasn’t texted me about liking the cake I sent her. I hope the sweetness didn’t kill her. That would be the first. Death by pumpkin cake. My mother is making lasagna for dinner. I am going to be loaded with carbs tonight. Lasagna is not my favorite dish but I will eat it if I am hungry enough. After therapy when I came back to Boston, I went to Kelly’s for roast beef sandwich and onion rings. I ate the sandwich but couldn’t finish the rings. It’s the only thing that I have had today other than a latte.

My mood is still kind of sour and my ankle is throbbing. I took some pain meds when I came home and the voices started on me. They want to know why I just don’t take the bottle. I didn’t take the afternoon dose of trilafon because I was on the road. I took it with my pain meds to shut the voices up. They have been really ornery lately, especially when I am vulnerable with pain overload. I told my therapist that my PTSD is up because the pain is so awful. I really don’t know what is going to get me out from under this. It just seems so pointless and I just want to die so I don’t have to deal with it anymore. I told her I was just mentally and physically exhausted from dealing with it night after night. I am being conditioned to fall asleep around 0300 nearly every night. If I can’t break the cycle, I dread what will happen. I need two pain meds to get me through these horrible nights. I know part of it is the anxiety I have when the pain is peaking, making it hard to settle down. Then it’s pure exhaustion when I do finally sleep. It’s good that I don’t work because I would be sleep deprived nearly every work day.

It’s late again and I can’t fucking sleep

It’s late again and I can’t fucking sleep

My foot/ankle has been non-stop throbbing me for the last several hours. And now that I want to sleep, it’s saying “fuck you, too bad”. I have tried taking all the pills I can take, including the strong pain pill but still the throbbing has not gone away.

The voices have crept in. They want me to take a bottle of pills and it doesn’t matter which one I choose. I should page my psychiatrist but I don’t want to go to the ER. Besides, I think the meds are starting to take effect as I feel drowsy all of a sudden, even though the throbbing hasn’t decreased at all.

I was talking with a friend of mine who recommended my book to someone. She told me that there are sellers selling my book for $86! What??!! I immediately wrote an email to my publisher because it looks like they stole my book with a false ASIN number. I hope they respond soon and nobody buys this book at that outrageous price. I am selling my book for $15, legitimately.

I am so tired and wish I could just fall asleep. I’m tempted to take a 3rd Ativan but I have already taken enough medication tonight. I don’t want to go overboard because I need to be driving tomorrow, well, really today. I hate being up this late. It never bodes well.

I need to get some forks tomorrow. I am giving my therapist some cake and I don’t have any disposable forks at home so I need to get some. I would hate to give her the cake without anything to eat it with. Maybe I can get a fork from Starbucks when I get my espresso. I am glad I don’t have an espresso machine at home because I really would never leave the house. I can have my coffee and espresso whenever I wanted it. I would just have to buy the soy milk and I would be set. I do need to get more Pike coffee as I am down to a little bit. I don’t think I have enough for another cup of coffee. I have the house blend coffee but I don’t like it as much as the Pike.

I finished off the last piece of cake that I had made over the weekend. It was very good. Now I am looking forward to making another cake. I love having cake. It’s my favorite dessert. But I am out of cool whip.