Golf ball post

I should write a song about golfballs being an ankle. That is the type of swelling I have right now and it hurts like hell. I guess I did too much cookie making this morning. Course last night I ended up taking a few too many of this and that. I am really surprised I woke up today. If I didn’t I would be happy. I hate not being able to sleep for more than a few hours these days and not being able to see with my new glasses. Is that asking too much??

Because of my medication OD, I swear to God I thought today was Wednesday all day. Wed I am supposed to pick up my niece at 12. Well seeing as I got my days wrong, I went to the school anyway and at 12 was wondering why no one was coming to pick up their kids. Place is always a mad house when school is let out. I go on playing with my phone and then realize today is TUESDAY not WEDNESDAY ya dummy….so I walk home. Only to reach the front steps of my house when my cousin kindly reminds me that I should get rid of my junk box and get a car. If another family member on my mother’s side tells me I should just buckle down and get a fricken damn car, I am going to put a sock in their mouth!! A nice dirty smelly sock!!

So I am going to go off to dream land for a bit. I’ll probably be back around 3-5 am when I wake up to use the bathroom or just wake up to start the day. I kid you not, the past few nights have been torture and trying to get back to sleep has been hell…

Frustrating day

I got the cookie dough that I ordered weeks ago and wanted to make cookies tonight but that didn’t happen. Both of my feet have decided that if I try and stand on them, they will attack me with cramps. So I am again stuck in bed to rest my legs and feet. I sometimes wish I had a TV in my room just to have something to do other than this laptop. I know I can watch movies and such on it and can probably watch HULU episodes of stuff but I like to sit on the couch and watch TV not on my bed. Don’t get me wrong, sometimes I do like to watch a good movie while snuggling with my pillow. But other times I rather watch it in my living room so I can have a snack and drink something without having crumbs in my room.

Had a doc appt that went ok though now he wants me to see a surgeon for my CES issues. I’m scared as I never had to deal with this before and it is an embarrassing issue. It has to deal with the bowel. I no longer have normal function of my bowel since my second CES (Cauda Equina Syndrome) diagnosis. I can have accidents of my bladder as well.

The reason I have been referred to a surgeon is because my farts are causing me to have hemorrhoids and there is some fecal incontinence as well. CES’ers like to call these “Sharts”. I find them killing my dignity and sending me into a suicidal crisis every time I have an accident. It’s not that often, but it has been becoming more frequent with my bowels being more “softer” than they have been. I’m not sure if it is because of the new diet pill I have been taking or what but whatever makes me go poop, I am for it. I usually take Senna for it as it is the only thing that works without horrible stomach cramps.

The loss of dignity is what kills me inside every time I urinate on myself or have a loose bowel or my childhood favorite, skid marks. Those usually happen because I didn’t realize I didn’t stop pooping.

This has been difficult to write and I want you to know this because I think there maybe a few people out there in similar circumstances but think they are alone. Those with this nerve injury are constantly fighting their dignity and what it was to be normal every day of their lives. It take a tremendous effort to get through the day without falling apart every day. Today I couldn’t make cookies and it bummed me out. But tomorrow I can, possibly. Well I hope to before Thanksgiving anyways. I know there are people out there that say make each day count but when you only have so many spoons to deal with, it makes each day harder and harder. What is ok for today might not be that way tomorrow. I know that I stood too long today while talking with my former co-workers and that is why my feet are angry with me.

The bowels are a mess because I don’t go every day. Chronic constipation from medications suck. If I don’t take Senna every day or every other day, I suffer from horrible gas and the wet farts that cause hemorrhoids and make my bottom uncomfortable. And now I have to have someone check my bottom for something or for advice on what to do with this incontinence that I wish I didn’t have. I just hope that it doesn’t cause me to become a suicidal maniac…

Dark Heart

30-Jan-11

Been up the last few hours. I have such a heavy heart that it is ready to kill me. I am haunted by everything that is wrong with my life. Been thinking about my cousin who is now a marine and yet I hardly know because my family drifted apart. It saddens me that I don’t know my “little” cousins anymore. The oldest is engaged and will be married later this year. I feel less a part of their lives with each passing year.

I do not know who I am anymore. Last night in a fit of torment I threw down the gauntlet and told my ptx that I will die this weekend. I so wish I could act on these feelings. The brokenness inside kills me every night. The sorrow that is deep within my chest shall never be revealed nor relieved in any such way. I am just a freak who is suffering silently with only these words to fall on silent blogs. I only wish to end this daily torture. Animals are treated more humanly than human beings. It has been said that you control your own life and happiness. Well my happiness lies beneath the earth or as a pile of ash. I do not care what remains of my bodily essence. My consciousness is what is the death of me. I am not truly dying a slow death but am only being tortured every minute I dare to breath. This can’t be what life is about. To go on suffering just so others do not feel your loss. I have snapped and I don’t know if there is any coming back. I want to put a plastic bag over my head and die of asphyxia. Yes it may be painful but once that last breath is gone, I shall be free

suicide notes

I found my note that I wrote about a year ago, maybe more. It was also my will as I stated what to do with my things after I had passed. It was creepy finding it. I forgot I had written it. I know that I have another “note” that I borrowed from Night falls fast by Kay Redfield Jamison. It adequately depicts my struggle with depression and states how sorry I am that I had to choose this way. It reads:
“Do not grieve for me. My nerves are shot and for the last year I have been in agony day and night, except when I sleep with sleeping pills, and any peace I have by day is when I am drugged by pills.
I have had a wonderful life but it is over and my nerves get worse and I am afraid they will have to take me away. So please forgive me, all those I love and may god forgive me too but I cannot bear the agony and it is best for everyone this way.
NO ONE IS TO BLAME. I have wonderful friends and they do all the can for me, including my care treaters (AE and LP). I have tried very hard all I know for a year and it gets worse inside, so please take comfort in knowing I will not suffer anymore.”

I have been going over my journal and keep finding all that I have been going through the past three years. I honestly have no idea why I am still alive. According to this journal written in 2009, I should be dead. But I am not. I guess that is a miracle some how but I still don’t want to live. Yet I do. Next to this suicide note is my crisis response plan. VERY IRONIC.