My pcp is still a dickhead. I asked him if he would fill my female hormones and his nurse said sure what is it. I answered now I have to see the repro endo doc. He doesn’t want to do it. Fucking asshole. I’m still a wreck from yesterday and hate, absolutely HATE having to still take these hormones because my Testosterone therapy got pushed back because of him. Almost a year now he has been dicking me around, one thing after another. I am so sick of it. Am I supposed to just see him for cough and colds? It is looking that way. I don’t need a referral for my insurance so if I want to see a specialist, I am just going to. No point in seeing him first. Just a waste of time I could use to make an appt with the specialist.
Saw the pain program doc today. He is okay. Can’t comment more as all he did was repeat my medical history and type really fast. He wants me to continue to see my pain doc and I told him I might not as he is reluctant to increase my meds to give me some quality of life. How I am supposed to work in this program with horrendous pain, I have no clue. I also need to get a PT eval for my thigh as the program PT is 2 months away. I can’t wait that long. I am going to email my current PT and see what she says but I don’t think I can see two PTs at once. So fucking frustrating.
I had to make a pit stop to the Square because the bus that would take me home was longer than the bus to the square. I don’t care, though my sprain ankle is hurting. I didn’t wear the brace because I didn’t want to be bothered taking off two braces. I’m wearing 2 different sneaks and don’t fucking care.
I had a snickers latte today because I need it goddamn it!! Also had something to eat because of the emotional stuff. I feel better now. I need some protein bars. Getting irrational when I don’t eat is getting more frequent. Hope my diabetes test comes back within normal limits. My psych ordered it but I haven’t had a chance to get it drawn yet. Might get it done tomorrow if I am not up at the crack of dawn. My therapist is back from vaca. I see him tomorrow and I can’t wait. Got a lot to talk about.
My mother needed some things today so as I am out, I got to get them for her. I am going by that way so no big deal. I will get some protein bars with her cash as I am broke until tomorrow.
When i see my psych next i am going to ask her if i can go back to the LGBT clinic for T therapy. I just hope i don’t have to start the whole process over. It will send me over the fucking edge.
I got the cookie dough that I ordered weeks ago and wanted to make cookies tonight but that didn’t happen. Both of my feet have decided that if I try and stand on them, they will attack me with cramps. So I am again stuck in bed to rest my legs and feet. I sometimes wish I had a TV in my room just to have something to do other than this laptop. I know I can watch movies and such on it and can probably watch HULU episodes of stuff but I like to sit on the couch and watch TV not on my bed. Don’t get me wrong, sometimes I do like to watch a good movie while snuggling with my pillow. But other times I rather watch it in my living room so I can have a snack and drink something without having crumbs in my room.
Had a doc appt that went ok though now he wants me to see a surgeon for my CES issues. I’m scared as I never had to deal with this before and it is an embarrassing issue. It has to deal with the bowel. I no longer have normal function of my bowel since my second CES (Cauda Equina Syndrome) diagnosis. I can have accidents of my bladder as well.
The reason I have been referred to a surgeon is because my farts are causing me to have hemorrhoids and there is some fecal incontinence as well. CES’ers like to call these “Sharts”. I find them killing my dignity and sending me into a suicidal crisis every time I have an accident. It’s not that often, but it has been becoming more frequent with my bowels being more “softer” than they have been. I’m not sure if it is because of the new diet pill I have been taking or what but whatever makes me go poop, I am for it. I usually take Senna for it as it is the only thing that works without horrible stomach cramps.
The loss of dignity is what kills me inside every time I urinate on myself or have a loose bowel or my childhood favorite, skid marks. Those usually happen because I didn’t realize I didn’t stop pooping.
This has been difficult to write and I want you to know this because I think there maybe a few people out there in similar circumstances but think they are alone. Those with this nerve injury are constantly fighting their dignity and what it was to be normal every day of their lives. It take a tremendous effort to get through the day without falling apart every day. Today I couldn’t make cookies and it bummed me out. But tomorrow I can, possibly. Well I hope to before Thanksgiving anyways. I know there are people out there that say make each day count but when you only have so many spoons to deal with, it makes each day harder and harder. What is ok for today might not be that way tomorrow. I know that I stood too long today while talking with my former co-workers and that is why my feet are angry with me.
The bowels are a mess because I don’t go every day. Chronic constipation from medications suck. If I don’t take Senna every day or every other day, I suffer from horrible gas and the wet farts that cause hemorrhoids and make my bottom uncomfortable. And now I have to have someone check my bottom for something or for advice on what to do with this incontinence that I wish I didn’t have. I just hope that it doesn’t cause me to become a suicidal maniac…