another day of chronicity

Another day of Chronicity

I had to pick up my prescription, even though it was ordered wrong, I decided to get it. I also needed some other things at Walgreens and so did my mother. I should have taken the rolling bag that I usually use but I used a handbag instead. Huge mistake. By the time I got to the end of the block, my back was aching me. The stuff I had was not heavy. I mean how heavy could 4 boxes of tissues and a thing of juice really be? Plus I had to be careful of my steps because there were parts that weren’t shoveled. I ended up walking in the street most of the way home, being mindful to look up every so often so I didn’t get hit by a car. I had only worn a heavy sweatshirt and I was sweating big time by the time I came home. I had to change my shirt as it was wet. My back was killing me and I couldn’t wait to rest on my bed.

I think I got a cold sore on my lip and it hurts. I have tried several different lip balms but it won’t go away. Guess I am going to have to wait it out. My foot is thanking me kindly for going to Walgreens. I wasn’t going to go but I am almost out of Neurontin so I needed to get my prescription. I wanted to email my neuro and tell her she called it in wrong but I didn’t. I’ll just take lump sums of the 300 mg capsules when I need them rather than taking less pills with the 600 mg tabs. I really am disgusted that my neuro didn’t read my email to change the script.

I had to deal with a troll on Twitter today. I had sent an article about the EFFECT of crisis response plans vs safety contracts. NO where in the article did it say the effectiveness or effective nature of safety contracts. So this bozo, who I have dealt with before, says “should ‘effective’ and safety contract be used in the same sentence”? That wasn’t the scope of the article!! Then I pointed that out to him, after he caused memes and gifs, and other conversations. No response, as usual. I did get a like for pointing out the difference. But everyone else ignored me. Figures. I am having a friend get the article for me as I am not paying $35 for the article. He goes to psych grad school so can get it easily. I need it for my library.

I got an email from my psychiatrist. It was about a group dealing with chronic pain and she was wondering if I was interested in joining. I just sent an email to the interested party and I hope I get a response. I also left a message with a potential new therapist that my friend gave me. I was kind of nervous so it was terrible. I hate leaving messages. I haven’t received a call back yet. I hope I do. I might send her another email as she didn’t respond to the first one. I am really missing having someone to talk to every week. I like talking to my psych every week but we don’t focus on things and it’s not really therapy.

When I see my psych this Friday, I am going to ask her to see if going up on the Zoloft would help me. I have been in a low mood and wonder if increasing the med might help me feel better and not be so destructive when I have a flare up. I hate increasing it but if it will help, I will be for it. It’s been months since my last increase. I just hope I don’t get side effects of an increased dose. That wouldn’t be good. I know my psych is worried about me because I have been seeing her every week since January. Usually I see her every 2-3 weeks. But with the whole no therapy, she has been my sole support. I miss my therapist. I hope the therapist I called today has openings or I will be really sad.

Weird day

I was up all night because of pain. I caught a two hour nap and then woke up at 5. I made breakfast as I was hungry, took a shit load of meds, and went back to sleep. Before I did, I emailed my psych saying I wasn’t going to the hosp today. I might go in the afternoon but the morning was out. 

I had a weird dream, one I don’t care to remember because it was so bizarre. I got up and was hungry. It was around 3 pm.my mother wasn’t making anything special so I decided to order a burrito. It was good. They again didn’t give me sour cream or guacamole in it. It was fine.

I went up to my room and it was a sauna. My mother had turned up the heat. I was so hot I took my shirt off and took a nap.I shouldn’t have done that but I was tired. I woke up just in time for my night meds.

I counted each one out as I didn’t have them in my box. Tonight will be the last time doing so. I’m not going to the hospital so I can put my meds in the box tomorrow. I’ll take my chances with my flare ups. I don’t care.

having a hard time with pain and sleep

Having a hard time with pain and sleep

I slept barely two hours and when I woke up, I was in pain. It was severe enough that I had to take another strong pain pill. Because I went to bed so late, I have decided not to go to the hospital today. I am medicating myself until I sleep for hours on end. I don’t know if I will be successful but I can at least try.

I made breakfast. We are almost out of orange juice so I had apple juice. I was kind of pissed off because I really wanted OJ. My mother bought milk but didn’t buy juice. Figures. I will get some later this afternoon when I go to Walgreens to pick up my wrong prescription. My neurologist called in a refill for the Neurontin but didn’t give me the strength I requested. She just refilled the script that was there. I am so angry because I specifically told her what I wanted in the email. Pisses me off when they can’t fucking read. Now I got a bottle of pills that I need to take multiple quantities of to achieve the dose I need. Just lovely.

I had a sore on my lower lip that was kind of small. Now it seems to have gotten bigger overnight and I just want to slice it open to let the shit out. I’ve been putting Blistex on it but it doesn’t seem to be helping any. It hurts but only if I accidentally hit it while eating. Having breakfast this morning was a challenge. Every bite hurt.

I’m getting sleepy now so I will write more later. I am still waiting for my psych to answer my emails.

chronic pain and being lazy

Chronic pain and being lazy

I woke up at 7 in pain. I took my meds and within an hour, it toned down. I took the opportunity to take a much needed shower. I then made breakfast after I finished getting dressed. While I was making my coffee, I started to feel dizzy, but not the dizziness I have experienced in the past. I drank my coffee and it put me to sleep so I took a nap for a couple of hours. I woke up to my med app telling me it was time to take my meds so I turned over and took them. The dizziness was gone and so was my energy levels. I was completely wiped out.

I had to pack my suitcase for tomorrow’s admission. I was hoping to find a journal that is missing that was in my bag that I had my blanket in but it wasn’t there. I have no idea where this journal went. It’s really bugging me. Anyway, I finished packing and then noticed I forgot to pack my slippers. I’ll stuff them in later. The blanket took up most of the room in my suitcase as it’s just a carryon type. I was able to fit my clothes and stuff so that was good. Now I just need to fit my slippers and I will be all set. I still need to make my backpack “hospital safe”, which means I got to take out anything that could potentially be considered a sharp or a hazard. It’s a pain in the ass. It shouldn’t take me too long as I think the only thing that is compromised is my bottle of aspirin for my headaches. Everything else should be okay. I still need to pack some Powerade bottles and water. I’ll see if I can stuff them in the suitcase as the backpack will just hurt my back.

I plan on leaving early tomorrow morning before people are up. If I get there early, I hopefully won’t be waiting too long. Though last time I still had to wait like 15 hours before I was transferred. It was a long day. I hope tomorrow isn’t too long and I don’t get a moron doc that thinks I don’t need to be in the hospital because I came in before I did something. Some medical doctors are so judgmental.

I had emailed my neurologist to refill my Neurontin. I specifically told her I wanted 600 mg tabs twice a day. What does she do? She refilled my previous prescription so I got 300 mg caps three times a day. WTF. I am so mad. They better not try to give me 300 mg three times a day in the hospital. I don’t take it that way. Last night, I carefully wrote out how I take my meds. Hopefully the hospital staff listens to me rather than what is actually ordered. Otherwise I will be a fucking zombie while in the hospital. Just got an email saying my prescription is ready. Wonder if I should pick it up or just wait till I am home from the hospital. I’ll wait. I don’t feel like going out. I really just want to go back to sleep.

I haven’t had lunch or dinner. I might have the last piece of pumpkin cake as both. I don’t know what my mother is planning on making for dinner. Probably the bean soup she made yesterday. I don’t want that. I wish I had deep dish pizza but I think the last box is in the basement freezer. I’m not that desperate to get it as that means going outside. I have no idea if there will be snow near the entrance or not. I don’t want to find out. I’ll probably have the cake and then if I get hungry later, I’ll make some toast or something. I got to remember to pack some protein bars with me so I don’t have to buy food while I wait. They serve you lunch but you got to ask for it and last time I didn’t get dinner so I was really hungry when I got to the psych hospital. I’ll get breakfast at Starbucks so I will have something in my stomach. I will need my espresso so I stay up.

I really want to sleep but I need to finish my tasks so I am just ready to go in the morning. I hate feeling lazy and sleepy. I had emailed my psych last night in a fit of despair. Pain was driving me nuts and I had to take the strong pain pill to quiet things down. Even then it took a while for it to work. I haven’t heard back from my psych.