Category: CES

Golf ball post

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, depression, mental disorders, mental illness, mood disorders, psychache, suicide, suicide attempt

I should write a song about golfballs being an ankle. That is the type of swelling I have right now and it hurts like hell. I guess I did too much cookie making this morning. Course last night I ended up taking a few too many of this and that. I am really surprised I woke up today. If I didn’t I would be happy. I hate not being able to sleep for more than a few hours these days and not being able to see with my new glasses. Is that asking too much??

Because of my medication OD, I swear to God I thought today was Wednesday all day. Wed I am supposed to pick up my niece at 12. Well seeing as I got my days wrong, I went to the school anyway and at 12 was wondering why no one was coming to pick up their kids. Place is always a mad house when school is let out. I go on playing with my phone and then realize today is TUESDAY not WEDNESDAY ya dummy….so I walk home. Only to reach the front steps of my house when my cousin kindly reminds me that I should get rid of my junk box and get a car. If another family member on my mother’s side tells me I should just buckle down and get a fricken damn car, I am going to put a sock in their mouth!! A nice dirty smelly sock!!

So I am going to go off to dream land for a bit. I’ll probably be back around 3-5 am when I wake up to use the bathroom or just wake up to start the day. I kid you not, the past few nights have been torture and trying to get back to sleep has been hell…

Frustrating day

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, depression, suicide, suicide attempt

I got the cookie dough that I ordered weeks ago and wanted to make cookies tonight but that didn’t happen. Both of my feet have decided that if I try and stand on them, they will attack me with cramps. So I am again stuck in bed to rest my legs and feet. I sometimes wish I had a TV in my room just to have something to do other than this laptop. I know I can watch movies and such on it and can probably watch HULU episodes of stuff but I like to sit on the couch and watch TV not on my bed. Don’t get me wrong, sometimes I do like to watch a good movie while snuggling with my pillow. But other times I rather watch it in my living room so I can have a snack and drink something without having crumbs in my room.

Had a doc appt that went ok though now he wants me to see a surgeon for my CES issues. I’m scared as I never had to deal with this before and it is an embarrassing issue. It has to deal with the bowel. I no longer have normal function of my bowel since my second CES (Cauda Equina Syndrome) diagnosis. I can have accidents of my bladder as well.

The reason I have been referred to a surgeon is because my farts are causing me to have hemorrhoids and there is some fecal incontinence as well. CES’ers like to call these “Sharts”. I find them killing my dignity and sending me into a suicidal crisis every time I have an accident. It’s not that often, but it has been becoming more frequent with my bowels being more “softer” than they have been. I’m not sure if it is because of the new diet pill I have been taking or what but whatever makes me go poop, I am for it. I usually take Senna for it as it is the only thing that works without horrible stomach cramps.

The loss of dignity is what kills me inside every time I urinate on myself or have a loose bowel or my childhood favorite, skid marks. Those usually happen because I didn’t realize I didn’t stop pooping.

This has been difficult to write and I want you to know this because I think there maybe a few people out there in similar circumstances but think they are alone. Those with this nerve injury are constantly fighting their dignity and what it was to be normal every day of their lives. It take a tremendous effort to get through the day without falling apart every day. Today I couldn’t make cookies and it bummed me out. But tomorrow I can, possibly. Well I hope to before Thanksgiving anyways. I know there are people out there that say make each day count but when you only have so many spoons to deal with, it makes each day harder and harder. What is ok for today might not be that way tomorrow. I know that I stood too long today while talking with my former co-workers and that is why my feet are angry with me.

The bowels are a mess because I don’t go every day. Chronic constipation from medications suck. If I don’t take Senna every day or every other day, I suffer from horrible gas and the wet farts that cause hemorrhoids and make my bottom uncomfortable. And now I have to have someone check my bottom for something or for advice on what to do with this incontinence that I wish I didn’t have. I just hope that it doesn’t cause me to become a suicidal maniac…

Movie night canceled

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, psychosis

Let’s try this again…
I was supposed to go to the movies tonight but my bad ankle is flaring up so walking is next to impossible. I tried writing this before when my word doc crashed. I think it was because of my new endnote add-in. It’s a bibliography program that is essential for writing research papers.
I picked up my new glasses today and there is something wrong with them. I seem to be seeing out of a mirror on the bifocal part. I need to take them back when I can get my sister’s car. Sucks because they are a little ways from me. I am getting grief for going to a Walmart that is at least twenty miles away from me. But it’s easy to go on the route so I don’t see the problem. I wanted to go there because it is right off the highway and easy to get to. I know there are other places around here but Walmart had the cheapest price for my progressive glasses.

I also have been slowly updating my laptop with updates. So far I am down to 58. I just reformatted the hard drive so that is why I have so many updates. And of course with every update there is a restart. I can’t update them all at once because there is one that is causing problems. I have learned that with Vista you have to install the updates slow and incrementally in order to do it. Takes longer but least it that one that is new won’t crash the whole process. Save you time in the end, I guess.
I still am delusional. I had a text from Volde last night saying to rob people’s houses. I was torn. I knew it was wrong so I just distracted myself until the meds kicked in. It’s been two weeks and I am still crazy, well a week and half. This is not good. I hope that by the time I see my psychiatrist again, this will have passed. I don’t like being this way. And I think the meds are giving me the dyskinesthia again. Nothing like feeling wicked restless in your own skin. It’s a terrible feeling, this gnawing sensation, like every fiber of your being is getting out of control and you just feel so wound up but not hyper-like. It’s like internal agitation x 100. You feel like there is this constant need to move, like restless leg syndrome except it’s every limb and your arms start jerking wildly and then your legs. The only thing that calms it down is another med, which makes you sleepy.

I am so bummed that I can’t go out tonight. I was really looking forward to seeing the movie Lincoln. But if I can barely make it down the stairs, how am I supposed to walk to Boston Common, and they have a ton of stairs at the Boylston stop. It’s an old trolley station that doesn’t have elevators. It would kill me to go up and down the stairs, even with my AFO (Ankle foot orthotic). It’s really depressing to have a walking impairment, which is why I am on disability, but still. I should be able to walk but I can’t. It just hurts too much.

Music is soothing

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, depression, mental disorders, mental illness, mood disorders, psychosis

For the past week I have been delusional and psychotic for some reason. I have not really been stressed over anything in particular but lately I have been becoming paranoid on crowded buses. It has been difficult but I have found that I become calm and more focused if I am listening to music. Doesn’t really matter the artist, just as long as its music I am distracted from feeling paranoid and psychotic. Music tends to drown out the voices in my head. So I have been listening to music more. Also been buying more music from my favorite artists. Terri Clark just came out with a classics album of country music and it is pretty excellent. I am going to burn it to a CD so I can listen to it on my new boom box, that is Spanish. Thing was created in Mexico and actually came with Spanish instructions…no Englese anywhere.

Met with my psychiatrist today and discussed my condition. As usual she had no answers for me, just keep doing what I have been doing and see you in two weeks. I am a difficult case, what you would call a non-responder. I have yet to respond to an anti-depressant that works more than a year. So far the only thing that has prevented me from ending up back in the hospital is a little Cymbalta. Otherwise I think my mood would take a nosedive and I would not recover. Course if thing were the way they were 20 yrs ago, I might still be inpatient from my June admission.

Got to work on my paper today a little bit, though I found out my citation program is VERY old, like 6 versions old…I have to get an updated version that is going to be pricey because I am no longer a student and I can’t wait till summer when I am to write this paper. I figure if I work on it a little at a time I will be able to finish it by Christmas, provided my mood doesn’t suck more than it already does and I can actually walk to Starbucks to get the reading for it done. The other day my bag tripped me and so I think I sprained my good ankle. But it’s not hurting me as much as my damaged one so who knows. I just know that my right ankle is swollen and hurts if I stand on it. It sometimes gets stiff when I wake up but after rolling it around a little it usually takes the pain and stiffness away. I hate being in pain all the time with both ankles now but there is nothing I can do except take meds for pain. CES sucks!