Category: physical pain

Dreaming about pain

by Midnight Demon, posted in CES, Chronic pain, chronic physical pain, depression, mood disorders, physical pain, writing

Dreaming about being in pain

Today I woke up at 05:30 after having a dream that my foot exploded into pain. I woke up to find that I was indeed in pain. I had somehow rolled onto my back (I am usually a side sleeper) and crossed my feet, which my bad foot didn’t like. I took a couple of pain pills and then tried to go back to sleep but I couldn’t. The pain just wouldn’t ease up until the meds kicked. By then I became fully awake and have been up the past several hours. I am starting to get cranky to the point of yelling at my deaf mother for having the TV too loud. I just took some more pain meds and some Ativan to try and take a nap.

I had therapy again today. This time I just bitched about my horrible day yesterday and we talked a little about yesterday being the anniversary of why I got into therapy to begin with: my father. I don’t like him anymore today than I did 22 years ago. He is the source of my problems and last night even though I was struggling, I really wanted to cut like I did when this whole thing started. I won’t go into detail about it because I am just too tired to stir up memories of that night. Actually today is the day I first started therapy 22 yrs ago. But it was the events on the 5th and 6th that lead up to it and me wanting to kill myself. Funny how chronic pain changes you. 22 years ago I wanted to die because my father was and still is an asshole and today I want to die because I am in chronic pain, physically and mentally. I know that I never will have a dad though I still call him that. To me he is just a sperm donor. The love I once had for him has been long gone and it isn’t coming back.

The weather certainly has got me still in pain. My spine is still aching and my thigh is just in nerve pain hell for some reason. I don’t know why. I haven’t had this type of nerve pain for at least a year or two. I hope that it doesn’t indicate that my scar tissue has grown more on my nerve root. I am always fearful of that but then the docs will just chock it up to me being overweight and the weight is compressing my nerves. I had a conversation with a doc that said that even if I was normal weight or sub-normal weight I still would have the same back problems. Being normal weight or less than what I am now is not going to really change the fact that I have had four surgeries at two different levels and that I have a deteriorating spine.

Despite being up early, I was not so productive today. I had to cancel my eye appointment because there was no way I was walking on icy sidewalks and risk spraining an ankle in this weather. I had breakfast and lunch and my coffee. I just got my tribute blend coffee from Starbucks in the K-cups for the Keurig. I love this coffee. It is such a very full bodied coffee that just tastes so good. I just wish it would keep me from being foggy brained but I think the meds are kicking in…

On another note before I take a nap, I finally found my missing journal. When I changed the sheets the other night I placed it somewhere and forgot where I put it. I knew it was somewhere in my room because why would I take it out. But it got buried in a hamper so I didn’t see it right away. I haven’t written in three days. That is a long stretch for me as I usually write every night before going to bed. It helps to relax me. Which is probably why I have been so worked up the past few days. I started writing this morning and probably will write another entry before bed. I am so glad I found it because I really like writing on paper more than on the computer. Just an FYI, there was an article I read a few days ago that said that people read slower on electronic devices than a hard copy paper. I found that interesting that the brain has to slow down to catch up with electronics than it does with say a book. But then, that is how most of us grew up with, a book and paper. I find that I have to print out PDF’s because 1) I can’t highlight the information I am reading on a computer screen and 2) I like to keep the hard copy just in case the computer malfunctions or key drive gets lost.

just a bad day

by Midnight Demon, posted in Chronic pain, depression, physical pain, suicide, writing

Today I had a bad day. I can’t describe more than that because I just am so overwhelmed I might start crying again.

I had my therapy session which didn’t go so well. We ended up talking about basically me getting out of therapy which she wasn’t keen on because she knew my result. I have another appointment with her tomorrow to go over weekend planning. I feel like I am in the hospital but on an outpatient basis. I also forgot I got visual therapy tomorrow. I really don’t want to go but its too late to cancel now. I have no idea what is involved and it kind of is scaring me a little. My eye doc says it just some exercises for my muscles as they don’t like to converge when I am reading, or something like that.

I would say today was kind of productive. I got my groceries delivered, vacuumed, and got my hair cut. I ordered some healthy stuff like steamed broccoli and apples to help cut down on my carbs. Least they will be the healthy carbs.

The weather has been awful today. It has been freezing rain to hail and my back has paid the price. I still can move but I don’t know how long that will last. I have tried all the exercises I know to move my hip extensors but they still feel locked. I know once it stops raining, the pain will go away but right now it sucks! My spine aches like no tomorrow and my scar hurts like a bitch. I used to love the rain. Now the rain hates me. Probably because I can no longer walk in it. I used to love walking around my neighborhood getting soaked to the bone. It was so refreshing. Course my mother thought I was going to die of pneumonia each time I went but I didn’t care. I learned the hard way of not staying in wet clothes though. I did one time and got very sick. I never did that again.

Austin and coffee

by Midnight Demon, posted in cauda equina syndrome, CES, depression, mental disorders, mood disorders, physical pain, psychache, suicide, suicide attempt

Today was a difficult day. I had an appointment with my psychiatrist and then I had group therapy. I first stopped for coffee and had about a half hour to kill before leaving so had something to eat with my coffee. As I am sitting there checking twitter and eating, the guy in front of me sniffles. I then sniffle. We both started talking about sniffling. Well, that wasn’t the whole conversation but that is how it started. We talked a little bit about our lives and what we were up to. We became coffee buddies. I do hope I see him tomorrow, though he says that he gets there early and I am not an early riser. I was only there early because I had my appt with my psychiatrist. His name is Austin. He was telling me how people mess up spelling his name and I asked how. He said with a W. I thought, oh geez. As I left to go on my way, I asked him when he was there most days and he said that time (before 1000), which is way early for me. But who knows. Maybe he will be the reason I get up in the morning and get out of the house for my one cup of coffee.

My appt with my psych went well. This week was our twentieth anniversary. I can’t believe it. I met her when I was 17 yrs old. That was a long time ago. I never wanted to leave her and she never wanted to leave me. So the card I got her it says that we have a weird relationship. That is why we are together, or something like that. I didn’t write anything more profound. I just didn’t have the time but thought those words were enough. She was happy and said that I was the most thoughtful person she knew. I gave her 20 cake pops to represent our 20 years together. I didn’t think of anything else to get her that wasn’t too expensive and too much. I know I should have but sometimes giving gifts to a psychiatrist can be tricky.

I then went to group therapy and like last week, I had intense feelings of wanting to kill myself after the group. This time was because the walk was too much. I got within a block of the building when my foot decided it didn’t want to go any further. It was raining and cold. I pushed further to get to group. It was the same trouble getting back to the train station. I was within a block of the station when my foot got too tired so was doing whatever it walk. At one point I just stuck it out like a penguin’s foot and walk like that for a few steps. It didn’t help but it got me closer to the station. I know tomorrow I am going to be hurting. It is the price I pay for walking.

Group therapy went ok. But again I felt really bad afterwards and called my therapist because I was in crisis again. I promised myself I wouldn’t go ahead with my plans because of my psychiatrist. It is our twentieth anniversary and I just couldn’t give her a present and then kill myself that week. That would be awful of me to do to her. So again I put off death. But I didn’t put off my therapist. She wants to meet tomorrow. She is sick with a cold and I am secretly hoping she loses her voice so she can’t talk. But knowing her she will talk anyway or I will have to talk more. Either way I am stuck with this crazy person.

I wasn’t sure I would finish this paper today. I had a couple of bowel accidents thanks to what I hope to be overdoing it on fiber pills. I had the runs and crapped my pants. I just don’t have any control over loose stool because of my nerve condition CES. I lost control after my fourth surgery. It has been six years now and I don’t think I am going to regain those nerves. It really sucks. The worse part was that my mother had to clean it up. Talk about feeling like a baby. All she kept asking me was to take Imodium but that would cause more problems for me as then I would get too backed up. I hate talking about bowels on my blog but today there is no way around it. It is shitty talk but it brings out the worse suicidal rage in me. I had to email my psychiatrist and tell her I took an extra Ativan because I just couldn’t deal. It was either that or OD on Neurontin which would have just turned me into a Zombie tomorrow. But that is how I cope. I don’t really want to cut. I don’t have the urge but I do want to crawl under a rock and die. I am so embarrassed and humiliated. My dignity went out into the toilet. And I don’t think I can get it back.

What started off as a good day went to the crapper. All because I lost control of my sphincter. That is what it is like living with CES, Cauda Equina Syndrome

what it’s like to be in physical pain

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, chronic physical pain, depression, physical pain, suicide, suicide attempt

Last night I was in wicked bad pain. I started to think about ending my life again. The pain was that bad. I don’t know what caused my pain to flair up. I didn’t do anything more than I usually do when I have a day to chill, which is most days. I took a walk to the post office and sub shop to get a sub, then went to the liquor store to get a drink and cash my scratch ticket. Then walked home. I guess I was walking out of sorts as I didn’t wear my AFO. It sucks to use it for short walks but I guess me not wearing it is causing some flare ups.

Today pain is not that bad. I did some reading on a big book that I am reading, Alexander Hamilton. I am making headway slow but sure. I have to read it when I am not too tired as my eyesight will become unfocused now. It really sucks but this week I am going to visual therapy to correct it. My eye muscles just need some adjusting. I should also be taking a multivitamin but it is a pain to remember everything I have to take. Last week I filled my weekly pill holder with everything I have to take with extras such as omega 3, vitamin d, senna, and iron. My night time meds looked like a meal. I normally take at least a half dozen pills a night, not including my pain or anxiety meds so with these pills added, there were a lot. Then I had to eat something to cover it so to coat my stomach. I tried not to eat too much, just a bowl of cereal or a slice of toast. But sometimes I will have a meal, like scrambled eggs and toast. My eating habits are not usual as I don’t eat regularly. I tend to eat every 6 or 7 hours, if that. And usually only have one or two meals a day, even though I am home and it isn’t good. I just don’t have an appetite most days.

I take a lot of meds for my various medical and psychiatric illnesses. I used to only take meds for my psych condition but since CES entered my life, I am on more meds than I can shake a stick at. And that is if I am having a good day. A bad day, I take more, especially to control the pain. Or if I just want to escape I will take some Neurontin. That drugs takes your to another planet for a couple of hours but lately it hasn’t been as effective as it once was. Which is disappointing. The only downside of this med is that it gives you the hungry horrors the next day. I have gained more weight on this med than any other but I try and eat better when I have the horrors because I know I will be eating more. It is the only time that my appetite will increase.

Anyways, last night was a bad night and now I am feeling fine and good, least for now. Pain doesn’t usually start until around 2100. If it is not too bad I will take pain meds and then be able to sleep in an hour or two. If I am up more than that, it’s going to be a night similar to last night where nothing can touch my pain and I am off to thinking bad thoughts again.

Sometimes weather can play a part in it. Right now it’s snowing so I know that the pain last night was more because there was precipitation on its way than anything. I am sensitive to this. I am just grateful it didn’t knock my back out. I have had rain storms do that and soon as it stops, I am fine. It is the weirdest thing to be in excruciating pain, not being able to move any back muscles one minute and then be fine the next.