Tag: cauda equina syndrome

So damn frustrated

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

So damn frustrated

So I did ONE stinking errand today and I am paying for it big time. My ankle gave out on me just a little while ago so I decided to take a nap. OOPS I didn’t get the memo it was going to cause me MORE fucking pain. My mother is cooking dinner downstairs in the kitchen and I have no clue how I am going to get there. I just took a strong pain pill to see if that helps. I already took 2 of my regular pain meds and I can’t take any more for the next few hours.

I am so depressed I want to cry. And there is construction going on the street over from me so I can’t even get a decent rest from noise. They are remodeling a house and adding shit to it. I just hope they quit soon so I can have peace. I texted my sister that I am in pain and she says to elevate my foot. Like that is going to really do anything! It’s already elevated sort of. I have it on a pillow. Might not be the best pillow but it works for me. So much for me changing my sheets this weekend. I will be lucky to make my cake Sunday when I want to.

I’m really frustrated that this is happening. I didn’t do too much today and I wasn’t on my feet that long. I technically didn’t walk more than I normally do so I don’t understand why the fuck I am in pain. Granted the temperature dropped significantly from yesterday so that may be a factor. It was 70 degrees yesterday. Today it’s 50.

I got notification today that my disability pass for the public transportation system has been approved. Monday I need to go to the office to get a new card as my current card expires in a couple weeks. I hope the money transfers over or I am going to be pissed. I just got a credit card and have been making small purchases on it. Small purchases add up quickly and I don’t want to put more money on my card if I don’t have to when there already is money on there.

I just put on my Red Sox slipper socks. They act like compression stockings because they are so tightly knit. I love them for this reason and they keep my feet warm. I had the ceiling fan going but I just shut it off because it’s cold in my room. I think my mother is going to turn on the heat tonight. Temps are going to fall again as I just got a freeze warning advisory from WeatherBug. It’s supposed to be FALL MOTHER NATURE!! Not winter, ya fool!

Psychache Unreal

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Psychache unreal

I was listening to a few of my favorite songs and then psychache hit. Psychache is the emotional pain that you feel when basically every thing sucks. I was thinking about my father, the Sox, and other stuff and the psychache just became unbearable. I feel like I should take something for it but there is nothing for me to take. Pain meds, even Tylenol, are useless. Doesn’t help that my ankle is throbbing. Nothing like it was last night but I just noticed that it’s swollen and painful. Not a good sign.

I hate when my heart feels like it is being torn apart. It’s the worse feeling in the world. I had a temporary break when some things on Twitter and Facebook made me laugh. One was about a great dane that was trying to escape his house through his skylight. The picture was really funny. The second one was about Pavlov. It was a psych joke that really had me busting out laughing. I don’t remember how the joke went. I am never good at remembering jokes. I usually tell them in the wrong order.

I don’t really know why I am hurting so badly. Sure the sox season is over and I am still grieving for my father. I just feel like that has been old news for a while and why should it be bothering me tonight? I have been thinking of suicide again. While I was typing up my previous blog, I read about the treatment for BDD (body dysmorphic disorder). The article said that CBT is effective in treatment in most patients. Great. Another thing for me to have CBT. There is a book on it but I don’t plan on getting it because I just ordered one for managing chronic pain. I will have three books on CBT, all on various conditions. I don’t really believe I have BDD. Maybe some symptoms of it but not the full disorder. One of the examples they gave was about a person who felt there nose was crooked and people were staring at them. I don’t feel that way. I just think I am ugly and every body knows this. They know I am fat because I am definitely not skinny by any means.

Growing up, I was always compared to my cousins who were thin. They always said to me, why don’t you be like so and so. I couldn’t because my father kept calling me fat so I felt like I had a reputation and permission to be fat. I couldn’t let him down. And because he called me ugly all the time, I just assumed every body else thought so too because he was my world.

I had a surprise when I came home today. I found out I had leaked urine in my pants. I stunk really bad. I was so embarrassed. I changed and felt immediately down. I guess my mood has been sinking since then. It’s so tough because I never know when I am full and lately between all the meds I have been taking, it’s been hard to pee some times or know when I am full. Plus I haven’t been drinking too much so that just makes things harder and stinkyer. It’s because of my nerve injury that I don’t have a sense of my bladder like I used to. I lost it back when I got it the second time around 10 years ago. I always feel a loss of dignity when this happens. You would think that after 10 years I would be used to it by now but I am not. It still hurts my pride. It makes me feel ashamed. It really sucks.

somewhat good Friday

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, chronic physical pain, depression, mood disorders, suicide

Somewhat good Friday

I did all that I had to do today. I went to my Starbucks to get my coffee and sat for a little while to write. Next thing I know, it’s time to leave for my appointment. I get there fifteen minutes early. It went well. The NP was really nice and set me up with a new PCP, which was about time. I see him in Dec. She said he is a good guy. I tend to be skeptical of this until I actually meet the person. My back was a little out of sync but I got to and fro okay. I went to the pharmacy to get my meds and there were no problems. I didn’t wait too long and they had vanilla pudding so I am plan on making my pumpkin fluff this weekend. I took out the cool whip that was in the freezer. I might also make the cake. We’ll see how the back goes.

My therapist called and she was bullshit I don’t see the CBT people until next month. She is still trying to see if I can see her on Monday. I was really appreciative that she called me on her day off to check in with me. I didn’t sleep too good last night and sent my psychiatrist an email, which she still hasn’t responded to. I might page her today, while it’s day light, to talk with her. I got so much going on and I don’t see her for another three weeks.

I kept thinking of wanting to kill myself today. I could have done it, if I had the bottle of pills with me. I don’t know if I would be able to walk to my destination but I would have tried. Now it’s just a guessing game as to when I will try. I really don’t give a fuck anymore. I am tired of being in pain every day and night. I am tired of losing sleep because of pain. I talked about that with the NP today and told her I sometimes had to take 6 pills a day to get relief. I am hoping when I see the doc in Dec he changes the order so I can have 2 more pills a day. Then I won’t be scrambling at the end of the month wondering what to do with my meds.

I’m very sleepy. I did a lot today on little sleep. I hope I don’t stay up all night again tonight. That will just be torture. Part of the reason I couldn’t go to sleep last night was because I was having PTSD symptoms. I had to keep reminding myself that the back pain I was experiencing wasn’t CES happening again. I had to take at least 2 ativans to calm down. It was really terrible.

Scary Moment in the Kitchen

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, chronic physical pain, depression, mood disorders

Scary Moment in the Kitchen

After the ballgame and baking, I retreated to the confines of my room to relax my ankle who was bugging me. The two slices of cake that I had were my lunch and I wasn’t up for dinner. I participated in BPD Chat and it was a good chat. Then I got hungry and didn’t know what to make. So I finally decided baked beans and a hot dog would be okay. As I went downstairs to make my dinner, my mother saw what I was wearing. A hoodie because I was cold. She said to shut the kitchen windows. I said okay, thinking nothing of it. I got my stuff for my meal and went into the kitchen.

First thing I did was shut the windows and that was when trouble started. As I reached and stretched to get at the handles, my right hip didn’t like it at all. I closed the first window without too much difficulty but the second one caused me considerable amount of pain. I stood still for a while to let it pass, thinking nothing serious had happened. My mother had emptied the silverware from the strainer thingy so I decided to put them away. No straining or stretching but my back gave out on me. I couldn’t move an inch without severe pain. I yelled for my mother, but she is deaf. I didn’t know if I could let go of the counter to reach my cell to call her. I gingerly did so.

My mother came to the kitchen and I was paralyzed in pain. She helped me to a chair and I sat for a little bit. She helped open the baked beans and got a hot dog out. I also told her to take out some burgers so I can have them for tomorrow. Meanwhile I am in the chair and wondering how I am going to even eat dinner with my back killing me. I just sat there as there was nothing else I could do, least for the next few minutes. It was scary because I didn’t know how bad this was going to be. I really wanted to see my therapist Tuesday to give her some cake, but if my back was out, I couldn’t drive. I slowly moved and was able to get a pan for the water to cook the hot dog. I was being real gingerly moving as I didn’t want another spasm of pain. By the time I finished my meal, the pain abated but I was still sore.

The temps have dropped dramatically in the last 24 hours and will continue to drop into the night as they are calling for frost conditions. My back HATES temperature fluctuations of more than 10-20 degrees or more. It will just switch to being out and there is nothing I can do about it until the temp normalizes, which, in New England, can be days to weeks. All I need to do is something small and it will go out or do nothing at all and I am laid up. I must have closed those damn kitchen windows a million times and they have never caused me pain like they did today.