Tag: physical pain

bad day at PT

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Bad day at PT

I wasn’t in too much pain when I woke up around 1015 this morning. I had to leave early because I needed to mail a book out to one of my CES friends. She wants to give it to her husband for Christmas. Hope it arrives in time. It was cold but not frigid as I waited for the bus. I got to the place around 1215, which still left me a half hour before my appt. I went to a Dunkin and had a sandwich and coffee. And I had to have some donuts, too.

I saw the therapist as I checked in. I waved hi and she asked if she could have a few minutes to eat lunch. I said sure. That gave me time to finish my coffee. My pain was around a 3 or 4, the lowest it has been in quite some time. She decided to give me a try on a stair step thing. I did that for about three minutes. My ankle felt tight but it didn’t hurt. Then we did some other core exercises. My pain level didn’t change too much. Next she wanted to look at where my pain was so I took my sneakers and socks off. I pointed to where it hurt. My ankle was hanging off the table as she poked and prodded lightly. I was getting a bad feeling about this as my ankle didn’t feel right. She had me move my ankle this way and that, moved my toes manually as I couldn’t really do so, for 16 years. She said they were tight. Duh, I didn’t get movement back after 16 years. She said my joint (ankle) was tight. Next thing I know I got a cramp in the area that has been hurting me and I saw stars. It hurt so bad, I started crying. I couldn’t help it. She tried to ease it but nothing she did helped. I was in a flare. It took the rest of the time we had to settle down some so I could put my socks and sneakers back on. I felt bad I cried. I never cry in front of people, but I must have felt “close” to her because the tears were there. I was dreading going home but there was nothing I could do but grin and bear it.

She gave me some stretches and exercises written on a piece of paper and told me when I get home to put a warm compress on my ankle. She also wants me to email her tomorrow to let her know how I am doing. We also set some appts up in the new year. I was thankful to leave. Unfortunately, I had to stand for at least 15 minutes for the bus to take me to the station. I then I had to wait another 20 for the bus home. I kept standing and walking around, sitting while waiting for the bus. I got annoyed the bus hit traffic near a school zone. I wish I had a car so I could drive home. I hate taking the bus but there really is no other way I could travel to my destinations.

By the time I got to my stop, the pain had let up a little bit but walking was still difficult. I took off my AFO when I got home. I got a facecloth and ran hot water on it. I figured it would be warm by the time I put in on my ankle. I went up to my room carefully and got undressed quickly so the cloth didn’t become cold. It was still warm and I left it on my ankle until it got cold. It felt a little better. I took my pain meds. I figure if the pain didn’t go away in an hour or two, I would take the strong pain pill. I then got on my laptop with the intention of writing a blog but it didn’t happen. I was goofing off on the net. I still was thinking of writing but a wave of tiredness came over me and I didn’t know if I should nap or not. By the time I was done goofing off, I was hungry. I tried to order a sandwich but you needed a minimum of $10 and the sandwich was $8. Oh well. I wanted cold cuts but didn’t feel like going back out. I asked my sister if she was coming home after work. She said later and what’s up. I told her I wanted her to buy cold cuts for me and she said she had some in her house. Score! Now I just needed the pain to stop enough for me to go down two flights of stairs. I eventually made my way down. The sandwich was good. She had turkey and salami and rolls.

I am so tired right now. It’s too early to take my meds. I wanted to watch Home Alone but I forgot where I put it. I think it’s in a CD case. I am hurting too much to stand that long taking it off my bookcase as there are other things on top of it. I will try and look for it tomorrow when hopefully the pain is down. My ankle is really throbbing. I am tempted to put some lidocaine on it. But it’s kind of cold in my room and I really don’t want my foot to get frozen like it did the other day.

Pain too much today

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Pain too much today

I woke up around 8. According to my phone (I have no idea how it knows when I sleep), I slept 9.5 hours. I went to the bathroom and then came back to my room. I was going to make cookies today. Around 0840, my mother calls me to go to her room. I do and she is kind of slurring her words, which can only mean trouble. She said she felt weak and to get her blood sugar testing supplies. I also got her some juice. Her sugar was 70, which is kind of low but not really low. She drank the juice. I think she might have been lower but her body recovered because her sheets and bed clothes were wet. She wanted me to take them off so she could wash them. I did so and brought them downstairs. I asked her if she needed any help going down and she didn’t. I went down carrying her water glass and testing supplies.

When she came down, I asked what she wanted for breakfast. She said an egg McMuffin. I made if for her and then took out my oatmeal I made. I wanted an egg McMuffin but I had the oatmeal. I might make if for dinner. Her sugar went up to over 150 after breakfast. I stayed until I knew she was okay. All the going up and down stairs killed my ankle. I rested for a bit and then checked to see if my prescription was ready for pick up. It was still listed as out of stock so I called. The tech I was friends with said the stock just came in and by the time I got there, it would be ready. Cool. Except, I really didn’t feel like going out. I waited a little bit and then got dressed. I wore some sweatpants as I didn’t feel like wearing jeans. I then went downstairs and checked on my mother. I asked her if she would be okay for like 20 minutes while I went to the pharmacy. She said she would be. I grabbed a coupon for White Castle burgers and left. It was warm so I didn’t wear a jacket. I grabbed the burgers from the freezer. They also had buffalo wings so I grabbed a box of that. I got my meds and sure enough the new med is a controlled substance because it needed my ID. I thought that was weird but whatever. By the time I came home, it was almost noon time, too late to take a dose. I put the oven on for the wings. I had bought a Coke Zero, which I thought was regular but turned out to be cherry. I like cherry coke better than Pepsi. It tasted okay.

By the time I got back to my room, my ankle had started to act up and my foot was beyond painful. I got back into my PJs as the sweatpants were too warm. I figured I would give some time for my pain to settle before making the cookies. Nope, it never settled. I then I had to go back downstairs because I had to pee. I put the cream cheese back in the fridge and covered the cinnamon sugar I made in prep for baking. I had some craving for pancakes but I didn’t want to tax my ankle more than it was already. I was still a little hungry after I ate the wings. I made the burgers instead. It was quicker and easier than pancakes. I asked what my mother was doing for dinner and she said leftovers. Guess I will be making the egg McMuffin after all. My ankle is still hurting. I am off it now as I am writing this, but CRPS doesn’t care. Pain will still happen. I took a strong pain pill as I just couldn’t stand the ankle flare anymore. According to my phone, I have already taken more than 2100 steps. I am taking it with a grain of salt as I found out that shaking the phone will add at least 30-40 steps. Going up and down stairs probably added 1000 steps I didn’t really take.

I got an email letter from my PCP. To my surprise, results from the sleep study are back. I have very mild sleep apnea, which can be treated by losing weight. It was noted in the report that I woke up a few times due to pain, which is what I have been telling him all along. He didn’t say anything about putting me on a longer acting pain med, so I sent him a message. It’s kind of late so I probably won’t get a response until tomorrow or Thursday. I know I need to lose weight but I got bigger fish to fry. I just wish the damn combo of Invega and gabapentin didn’t send my appetite through the roof. Being immobile on some days doesn’t help either as there are days I don’t leave the house, mostly due to pain.

Painsomnia Strikes Again

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Painsomnia Strikes Again

So after I read three chapters of Tex, I was getting sleepy. I twittered for a while before a chat began that I didn’t want to participate in. All day a certain part of my ankle had been throbbing and feeling like it was being dug into. When I decided to sleep, all fucking hell broke loose. My metatarsals, particularly the heads, starting hurting. And the pain piggy backed from there. Ankle. Metatarsals and back again. I took a strong pain pill, hoping it would settle down. That was about two hours ago. Now in addition to these pains, other parts of my foot and ankle are hurting. They are lighting up like a Christmas tree. I just want to lie down and sleep but I know if I try, I might be in more pain. I haven’t tried yet. I just took some gabapentin as now my foot is on fire as well. I didn’t take it earlier because I didn’t think it would get to this point.

Time is now 0115. I need to be up in about 8 hours. I doubt I will sleep that long. I never do unless there are interruptions. I might lie down and see if anything bad happens. I just don’t want to play the lie down and sit up game that my foot likes to play. I have the bad foot out from under the blankets. It sometimes help with dealing with the nerve pain because the slight pressure of the sheets and blankets irritate my skin nerves. I keep it out until it gets cold and then put it back under to warm it up. That is the other game it likes to play, out and in.

Wish me luck. I am going to lie down and try and get comfy. I hope my sister got me the body pillow I asked her to get me for my Xmas/bday gift. I think I will be more comfortable on that than just a head pillow. The nice thing about the body pillow that I wanted was that it had different positions you can put the pillow in so you can sit up in bed while reading or using a laptop, with your back being supported. I tend to lean forward when I am sitting as my spine is that way. Sitting straight up hurts my back but having a pillow near my lower back does help. The past few days I have just been house bound, going out for just 10-20 minutes at a day. It sucks because when I walk down the street, it kills my legs because I don’t use them enough. It’s hard to go out every day when a) you’re in pain and b) depression kills the motivation you have to go out. Just brushing my teeth was hard. But I did it.

Ceiling fan replaced, finally!

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Ceiling fan is replaced, finally!

My brother in law finally replaced the ceiling fan today. Hoorah! Even though the one my mother had looked the same like mine, it was different. The light fixture on mine had like 3 settings whereas my mother’s only had two, off and on. I like this better. It has 4 lights but I only use 2 as they provide enough light for me to see. I mostly use my desk lamp as sometimes the ceiling fan light is too bright, like it is now. I will change lights when I take my meds in a couple of hours.

I was supposed to get one of my meds refilled last week and forgot so when I was filling my med box for the week, I had to order them. I made it so it would be ready in a couple of hours as I didn’t want to miss a dose. I hate missing meds because my brain forgets things. It’s my hormone pill so I can’t miss one as I don’t want my menses, though I found out in my last admission that I could miss up to 3 days. Fuck that. I probably will have to come off them anyway when I go for testosterone. I won’t find that out until Feb when I meet with the LGBT doc.

I see my psych tomorrow and will need refills on two meds as I don’t have anymore. She had told me that MGH will be having an LGBT clinic soon. Seeing as I don’t get MGH notifications anymore other than what is on twitter, I will ask her to tell me when they are up and running. It will be more convenient than where the LGBT doc is as that is in the heart of Boston. I think I am going to chance taking the later bus. I usually leave an two hours before my appt so I can write and drink espresso at Starbucks. I don’t feel like doing that. I know I might regret it. If I wake up early enough, maybe I will go. It all depends on how I feel.

I cancelled my therapy appt for tomorrow. I am going to talk to my psych about therapy and whether I truly need it. He is the first therapist that allowed me to cancel two weeks in a row without questions. Usually, they say come in to talk about it. Not him. He doesn’t even ask why I am cancelling. I really feel like he doesn’t care, even though he says he does. I never heard from the other two therapists that I emailed. I might call them and leave a message. Some time after the holidays or maybe during, I will somehow google therapists in my area and see who I can find. I wish there were resources for people with my history looking for new therapists. I am still angry that my former therapist left me high and dry without one and then terminated our relationship. The few therapists she wanted me to see were not taking on new clients. It’s so hard finding a good a therapist, and then finding one that fits with you. I thought it might work with the one I am seeing, I really did. But I am tired of feeling like it would be better for me to talk to the wall or my voices than him. Both give the same feedback, none, though talking with my voices is fun sometimes, except when I want to sleep and they want to chat. That drives me crazy.

I can’t believe my birthday is the end of the week. I am dreading it. I really want to spend at least one birthday with my father’s side. It just makes me sad knowing I will be spending it with my mother’s side, who I cannot stand, well, my cousins are okay but I can’t stand one of my mother’s sisters. I feel more loved by my father’s side because I grew up with them. Due to my father’s fight with my mother’s mother, I never knew her side until I was 13. I just knew one of her sisters because she made it a point to keep contact with her despite my grandmother telling her kids not to be in touch with my mother. Just makes me mad that the fight happened and then I was to embrace these people that were my family yet didn’t act like family. They were totally different than my father’s side in a couple of ways that I won’t mention. Now that only one of my father’s sister is surviving and in poor health, I want to spend more time with her. I might get a Zipcar so I can see her in the afternoon one day as a surprise visit. I love my aunt. She is my godmother. Her memory is kind of gone so she doesn’t know who I am most of the time and her hearing is going. It’s also hard for her to understand language as she has Parkinson’s disease. Her son and daughter in law take really good care of her, though it is hard watching her deteriorate. It is taking a toll on them that I cannot imagine. Just kills me that I can’t do anything for them but be there for them.

Last night as I saved my blog (I use a word doc before posting just in case of a website glitch, I don’t lose it), I decided to possibly work on the story that has been running in my head. I wanted to see what I had in the outline. I panicked when I didn’t see it on my laptop or 128 GB thumb drive. That meant it was on the 64 GB that I formatted. Thank goodness I backed it up before erasing the content. I would have lost the paper. I then put the thing on the One drive so I can have it where ever I go. I can access it through my phone. I am glad I back up my files every other month or so, for that reason. Least if I lose one, I have another copy somewhere else. So my message to all of you reading this that write: BACK UP YOUR FILES!!!