Saturday Blog 64

I didn’t sleep very well last night. I woke up every few hours. When I got up, I made coffee but my half and half was sour so I couldn’t drink the coffee. I wanted to go to the grocery store so I went to get my pumpkin stuff and some bacon. I also bought celery so I can add it to my tuna sandwiches. I thought I would have enough energy to make the cupcakes but I don’t. I just want to go back to sleep.

OSU won 58-0 against Rutgers. And Nebraska is winning right now in the first quarter 7-0. I would watch the Nebraska game but I just can’t. I want to be on my bed resting my leg. I am in pain again from walking around the store and then going to Walgreens to pick up my prescription.

After I came home, I was starving because I didn’t have lunch. I had some Naan with some tuna my mother made. I ate all the tuna and most of the Naan. Then I had a nectarine. Now I am bloated and very sleepy.

I keep thinking of my date and what I am going to do about it. If I don’t go through with my plan, I will feel like a failure. If I try and don’t succeed, then at least I tried and that will be that. But I won’t know unless I try and I want to die very badly. I am feeling all sorts of feelings about this. Sadness is the chief one, guilt is another. I know I don’t have to do this but what choice do I have? The thought of living through this nightmare is astounding. I can’t take the pain day in and day out anymore, not when my daily living activities are involved. There are some days I can’t even stand long enough to brush my teeth. How is this living?

My therapist is working hard so that things don’t come to an end soon. In the end, it’s really just my battle and my battle alone. I have tried to prepare her for my death but she doesn’t want to hear one word of it. I have three sessions this week with her, one of which will be in person. I get to drive out there and see her. I am hoping to have my pumpkin cupcakes made tomorrow to take with me when I go. She’ll like that.

Pain Insomnia

Pain insomnia

I never wanted to believe in this phenomena called “Pain Insomnia” because I feared it would happen to me if I did. Well, it’s happened. It’s after midnight and I am not sleeping because of pain. I am still listening to music but my foot and ankle are having a war as to which is going to hurt me more. So far my ankle is winning.

I started writing in my journal. I figure that would help me sleep. But nope, it didn’t. I wrote out my “suicide note” in my journal so in case someone reads it should I die they know they aren’t to blame for my death. I have tried everything I could to keep going but the pain is just too much. I just keep on taking pills left and right and that is not the kind of life I want to live. It’s bad enough this pain took away my jobs, my walking ability, basically my dignity. And still no one knows why I am in pain. Some docs have given me the elusive diagnosis of “complex regional pain syndrome” but I don’t fully meet the criteria for that because I don’t have color changes. I just have pain. All the damn time. And it’s worse at night so no doc can see what it is when I am not in the office during the day because that is not when I have pain.

My psychosis is not helping. I skipped a couple of doses and it caused the symptoms to return. Part of it is because my doc wants me on 1 dose a day but I need 2 a day to get relief. So I have this battle with the voices about taking my meds and it isn’t pretty. Mostly the battle is just take the bottle rather than a couple of pills. They don’t understand that by doing so, I might die. But they don’t care. Since when do auditory hallucinations care what you do when they command you to do something? They just want you to obey them. It’s gotten better now that I am back at 2 a day. I still get paranoid though. There was a guy at Starbucks today that was really antsy. I thought he could read what I was writing in my journal. Honestly, anyone that can read my handwriting, I give credit to. It’s complete chicken scratch.

My strong pain pills is ready to be picked up. I will head into Boston tomorrow and get it. I hope there isn’t a problem in the pharmacy. All this talk about opioid awareness has me wicked paranoid about filling my prescriptions. I haven’t had a problem but I don’t want there to be. It’s bad enough I have problems with my antipsychotic getting filled because of the new fucking system my hospital has, and that isn’t a controlled substance!

So while I wait for pain meds to make me sleepy or exhausted, I write till I am completely out of words. Insomnia sucks but pain insomnia is worse. One of my new Twitter follows was talking about how CBT (cognitive behavioral therapy) helps those with chronic pain but her insurance doesn’t cover it. I find that very discriminatory. I wish I could help her with it. But I don’t know where she is in the world. Hell, I am even trying to get into a CBT program yet I haven’t been called yet. I was hoping to hear from them by the end of last week and here it is a week later and still no word. I just hope my suicidality doesn’t hold them back. I am always fearful about this. I have had so many therapists deny me their services because of my suicidal history.

I need to go to the grocery store tomorrow to get pumpkin puree so I can make pumpkin cupcakes. I like to bake and I have this new recipe. It looks easy enough. I want to bring them to my therapist when I see her on Tuesday. I also have an appointment with her on Monday. I hope it goes well. She knows that I am suicidal. We have been talking about it for the past couple of weeks. Seems I am more suicidal this time of year than at any other time. She wants me to see me through the new year but I think she is wasting her time with me. I just feel so awful and not sleeping doesn’t help matters.

I had picked a date but I don’t think I will go through with it. There are a few things I haven’t done yet that I want to do before I end things. I was hoping to do it this week but pain stopped me yet again. Next week I will be really busy so the things I need to do will have to be the following week. And again, it all depends on my pain levels to do these things. I hate that I have to be dependent on pain to basically tell me what I can and can’t do. It really sucks.

I remember the last time I visited my cousin in Washington, DC. We went to the Smithsonian and saw a few museums. It was really fun even though my camera wasn’t too cooperative. My leg flared up the next day and I was laid up for most of the weekend. I felt really bad because I couldn’t do anything but put my leg up. Some vacation that was. I stood too long and it just flared up pain in my ankle, much like it’s doing tonight, except I didn’t stand too much today. I did go up and down the stairs a few too many times though.

Agitated and Aggravated

Agitated and aggravated

I have not been able to settle down since coming home. I feel really agitated and things are unsettled. The voices are loud but they are mumbling so I can’t understand what they are saying so I am frustrated. I have tried listening to some music to calm me down but that hasn’t worked. It just gets me more agitated. I just took some Ativan and some trilafon to try and calm down because I really would like to sleep before my pain shoots off.

I am really annoyed at my therapist. I really didn’t want to have a session with her but she plays this game with me that if I can come up with a good reason, I can skip the session. I never can come up with a good reason as the reason is, I just don’t want to talk with her, which isn’t a good enough reason. I texted her that she might get my voicemail or I might block her call. I am so annoyed. In order to avoid the phone call, I am tempted to get another Zipcar and go out to see her again. Course, if I do have the phone call, I can just put her on mute. I don’t get why this fucking woman drives me insane.

Then the ballgame was a shit show. Price, who is getting paid $30 million, gags in big games so we lost tonight because he gave up the long ball one too many times. That didn’t help my agitation, at all.

Voices are commanding tonight. They want me to pick a bottle and take the whole thing. I hope the trilafon works soon. I hate this uneasiness I am feeling. It’s partly my fault the voices are out of control. I missed my afternoon dose of trilafon because I was driving today. I hate missing doses but it happens. I have to be better about taking the dose. I want to page my psychiatrist but it’s late. She will just tell me to go to the ER and I don’t want to. They will admit me and I don’t want to be admitted. This will pass. I can handle the voices by ignoring them even though I am agitated.

Well, too late to beat the pain in my ankle. It has just started. Fuck. I just took my pain meds so now I have to wait till they kick in. I hate this feeling. I am feeling out of control and yet I am in control. I had something to eat so that made me feel better as I haven’t eaten much all day. Sometimes not eating will cause me to become agitated, too. I know part of the reason I am aggravated is because I am overtired. I didn’t nap when I came home from therapy like I wanted to. Then my groceries came and I had to put them away. By the time that happened, I was so tired I didn’t know if I should eat or sleep. So I did neither.

I am so tired of fighting myself all the time. It’s really tiring. Actually, it’s exhausting, between the voices, the depression, the physical pain, the emotional pain, and then the emotions that go with it. I just want to die. I don’t know when this will happen. I hope that it will happen soon but I just don’t know. There are so many factors that go into it that I am just plain scared of it so I don’t do anything but think about it. I don’t tell anyone what I am thinking because I don’t want to be stopped. I pick dates. I plan a destination. But will I go through with it? I just don’t know.

Random 850

Every night, I take my night time meds between 2000-2100. Sometimes I take them earlier if I am feeling really tired. It seems no matter what time I take them, I am still up till midnight or later. I don’t understand this as I am very tired but I can’t seem to fall asleep as my brain just keep going round and round.

I know I wrote two other blogs today. Some days, I feel up to writing up to three blogs. I don’t think I have ever written four blogs in one day, unless it was a quote or something. Part of the reason I am having trouble sleeping tonight is because there is a skunk smell in my room and it makes me sick. I have to wait for it to pass before I can lie down. It went away and then another skunk smelled up my room so I sprayed my cologne to help get rid of the smell this time. I hate nocturnal animals.

I was listening to some music as I had music running through my head, as usual. Luckily it’s going now, for the moment. Sometimes music doesn’t help wind me down, especially if it’s music I really like. But it helped me write a letter to my friend in Texas. We are going to be Pen pals now as she wants a break from Facebook. I don’t mind letter writing as I love doing it.

My back seems to be fine now that I am not doing anything strenuous. I hope it stays that way because I have to see my therapist Tuesday. I want to give her my cake that I made. It’s really good. I should have put in more pumpkin spice seasoning but the directions doesn’t call for it so I just eyeballed it. It wasn’t enough. I will know for next time.

I tried reading Dostoevsky. I read two chapters and then I had to stop as it was just endless babble. Then I tried reading a new book and that was a bore. I am marking that off my list of books to read. It’s terrible. I will try a different book tomorrow. Maybe I will read more of the “Dark Tide”. It’s kind of hard to read because it has disaster written before it happened and I hate books like that. But I am a stickler for reading a book through once I am into it. The other book I am not into it at all so bye-bye.

I hope the CBT people call me tomorrow. Something tells me that my suicidality is going to be the hold up. I will cringe if it is. Seems I can’t get any new therapist with my suicidal history, which is so damn sad and frustrating. Doesn’t matter though, because if it doesn’t work out, I will just try to kill myself and see if that works out. Screw the system. I know my therapist will be pissed as all hell but oh well. I can’t keep living in this pain that I am in. It’s too much.

Thursday I am hoping to go to the MFA and check out the Frida Kahlo exhibit. I will be wearing my AFO so I shouldn’t have too much trouble walking around, especially if my ankle decides to be a fart. I don’t know why I didn’t think of it before. But it depends on my pain levels and how I do going out to see my therapist. Sometimes, going out the 30 miles and coming back just takes so much out of me that I need a day or two to rest. I haven’t been so good on resting after doing an activity but I got to be better at it or I am just going to be in more pain. Like tomorrow is going to be a rest day because I did a lot on my feet today with making a cake.

Today marks the 5th month passing of my father. I guess that is why he was on my mind a lot last night. I still don’t know why his last few hours were so much more on my mind than at any other time during my life. I guess it’s because there aren’t that many happy memories that I have of my father. But I will save the bitterness of his actions for another day. He is gone and no longer a control asshole in it so I am free on some level.

Today in BPD chat, there was talk about Marsha Linehan and her DBT stuff, like “life worth living”, “radical acceptance”, and so forth. I respect Marsha because she lived through a lot and then worked to make it so people would live despite the pain they were in. And her treatment of Borderline Personality Disorder works to give people much needed hope. Now it is applied to other areas of mental health and it’s working. My therapist, when she found out about my date, had said to me that we don’t have a life worth living anymore. We never did, least I never did. Maybe she thinks, falsely, that there was something of that semblance in our relationship. I don’t know. I had given up the beginning of September and I still have clung to the notion that my life is over because I can’t see myself going on and on in pain. Soon it will be over in the next few weeks, unless I get into a CBT program and it works. Then my plan will be off the table, least for now.

I have never understood the “life worth living”. It’s a hard concept for me to take in. I understand it. I am not a complete idiot. But I can’t find value of it in my life because of the pain that I am in physically and emotionally. There was a quote that someone had posted and I wish I had take it down or favorited or something. It held some significance to what I was going through and now I can’t remember what it was. I’ll have to go through the transcript of the chat.

A few weeks ago I had sent my psychiatrist my explanations of dying. She wrote back something and I replied that if I should die, she wouldn’t be responsible or to be blamed for my death. I never got a response back. I hope she knows that I meant it.