Timeline

Timeline

According to my blogs in January 2016, my voices had become worse and so had my depression. Then my father had his treatments. The end of the month he was hospitalized for chest pain. A few days later after discharge, he was readmitted with a chest collapse brought about, presumably, due to pleural effusion or an air pocket burst.

I was supposed to start PT for my back but never did because of the evolving care of my father. My depression worsened the more involved I was with the man. The voices ultimately were controlling me, though I didn’t realize it at first. This was despite taking an adequate dose of abilify and taking it faithfully every night. The only exception to this was when my father was readmitted for the collapsed lung issue. I missed a few days because it was late and I didn’t feel like filling up my pill box. I was haphazardly taking my meds. A few here, a few there that first week in March.

March was a markedly collapse of my father’s health. He was admitted every two weeks for pleural effusions or because of fluid build up in his system. He had stopped eating or was barely eating and drinking, even with support from my sisters. He lost weight and subsequently would develop pneumonia that was his last illness before being transferred to a nursing home for further care.

My mental health deteriorated. In the middle of March, after losing up to 15 pounds, I decided to go back on Zoloft, even though I didn’t think it would do much. We started off slow as I didn’t want to get sick off it, though my psychiatrist wanted me on 100 mg. I was happy with half that. My father died the end of April. I was hospitalized the middle of May after everything was said and done. We decided to increase the Zoloft to 100 mg and it was a quick admission. I was there only six days and have not been back, against my better judgement.

June brought havoc for me with the Orlando shootings and I felt the pressing need to notify authorities that the gunman had an alien parasite in his brain that caused his actions. The voices were rampant at this point and I discussed the matter with my psychiatrist and therapist before making any phone calls. It was at this point I got very agitated at my therapist for not believing me about the alien parasites and decided I wasn’t going to take the abilify any more. The voices by then were commanding me to do things and I went along.

A couple weeks later, I was feeling really paranoid while at my psychiatrist’s office. I was really scared she was going to kill me despite her reassurances that she was not. This was around the end of June. That day was terrible. The paranoia had increased due to some social media post by a Twitter follower I was following for PTSD. She had posted something to do for ISIS which is always a trigger for me. It freaked me out and the paranoia increased tenfold. I emailed my psychiatrist to get some trilafon to calm down as the agitation was terrible. Then there were problems with the pharmacy filling it. I was fuming. I have been on this medication for a long time and these young pharmacists were telling me how it was interacting with my medication. I scoffed because my psychiatrist knew the medications I was taking and if there were interactions, my psych wouldn’t be prescribing me the medication. She talked to these young people and I was able to get my meds, finally. Though it really frazzled me.

Because the trilafon was working while I was “sneaking it” behind the voices back, I was coming to the realization just how much they were controlling me. The noise in my head became much quieter and I was able to fight back, albeit slowly. I still felt I needed to be in the hospital and was seriously contemplating when my mother, who has diabetes, took a hypoglycemic episode and I found her down. If I was in the hospital, I dread to think of the consequences. I realized then, the beginning of July, that I had to get control of the voices so started taking the trilafon more frequently than every other day or every two days.

Since my father’s death, I have been feeling numb and distant. Things got better and I was feeling my “normal” feelings of depression or joy or something. But since the voices got louder and more demanding, I have noticed that I been feeling flat and not feeling much of anything. I feel blunted, like I should be feeling something but I am not. My therapist is calling this “negative symptoms” of psychosis but it’s been ages since I looked at a psych book to remember what those were. I used to know psychosis very well way back when I was young student in college but have gradually lost what I learned as I moved away from my calling and haven’t been in school in years.

Even as I am writing this, I feel disconnected, like a lightbulb has been turned off and I can’t find the switch. It doesn’t concern me. I don’t know why it’s concerning my therapist so much. But then she is very protective of me. I just don’t see the concern. Not having emotion is kind of a relief. It’s better than feeling the deep dark lows that I had been feeling. It has affected my writing some what. But then, my writing has not recovered much since my father’s death three months ago. I still feel as distant as I did back then.

therapy and not sleeping

I had therapy again today. She again brought up negative symptoms. She is afraid of her losing me, whatever that means. I told her I just feel nothing, like everything is blunt. I also feel flat. Her fear is that the longer this goes on, the more I am going to feel this way. I don’t get why this is of concern. Maybe I am missing something that she just isn’t explaining well enough.

We also talked about the possibility of seeing someone while she is away for a couple of weeks in August. She brought up the question of whether I would see someone DBT like as an adjunct therapist. I have no intention of seeing someone other than my therapist and my psychiatrist. I don’t think I will see someone while she is away. I probably will just write letters like I usually do when she is gone. It’s going to be a long two weeks. I need to find out if my psychiatrist will be away the same time. That will suck but it is a possibility. I will find out Monday when I see my psych.

I didn’t sleep well again last night. I woke up like every couple of hours. I wasn’t in pain or anything. I just slept for two hours here, three there and then woke up thinking it was time to wake up, but it wasn’t. I did finally get to sleep after the fourth time I was up. I slept for about five hours before my phone went off. Someone was calling me but I think it was the wrong number because they didn’t leave a message. And my mother called at her normal time to see if I was going out today. I don’t plan on it. I am just too tired. I am having coffee to try and wake up but it’s not doing much for me.

I might go to the grocery store to get some cream. I am almost out. I just don’t know if I am have the energy to do it. It’s much cooler today than it has been. I finally have the AC off as it’s really cold in my room. I like the cold but not freezing cold.

I need to call the PT place to set up an appointment. I do but don’t want to go to therapy. It’s down the street from me so it’s not like I will be going far. It’s just my fear that it’s going to cause more pain than what I am already in. And there is no guarantee that it’s really going to help me. I think docs like to send you when they don’t know what else to do for you.

Looks like today I am just going to sleep. I have no energy. I have no motivation. I don’t have anything that I really need to do today. I might get a Zipcar next week and see my therapist. All depends on if I get my funds.

Post 1854

I got practically no sleep last night. I didn’t go to sleep until after 0400. I was up most of the damn night because songs were singing in my head and the voices were out of control, despite taking the trilafon. I had taken 4 mg when I came home last night and then another one around 0300 when the songs were getting worse not better. I just could not settle down. I must have read like six chapters in the new book that I am reading because I thought that would settle me down but it didn’t. It was just a really tough night.

I didn’t do much today because I was so sleepy. My mother made some asparagus and eggs for dinner and that is all that I have eaten today. I just am not that hungry. It has been cooler today than it has been all week. I still have the AC on. I might turn it off after the sun goes down.

I had therapy today. It went okay though my therapist still wants me to let my psychiatrist know that I am not feeling myself. She wants me to tell her that I am feeling disconnected from things and feeling flat. I see her next week so I will tell her then. I don’t want to page her just to tell her this. I don’t think it’s all that important. If she brings it up tomorrow, I am just going to tell her to call my psychiatrist and tell her because I have no idea what she is getting at.

For some reason, my left leg is out of sorts today. I woke up sleeping on my left side and my leg just hurt really bad. I thought it was hurting because of the position I was in so I rolled over to my other side but it did no good. I have been taking pain meds most of the day to deal with the pain. Doesn’t help that my ankle is also acting up. I am glad today was a low key day because I would hate to go out in this kind of pain.

Because I slept through most of the day, I didn’t call the PT place to set up an appointment. I will try again tomorrow. I don’t know what kind of exercises they are going to have me do. I just hope it doesn’t aggravate my left ankle because that one really is a pain in the neck. I have tried PT with that ankle and it was a disaster. I am hoping that things will be better with my right as it’s more a central thing and less involvement. But we’ll see.

My night out

My night out

I went out with friends tonight for dinner. We had a good time though the train coming home was late and we were afraid we missed it. It was so filling. I ate way too much, even though I probably shouldn’t have had dessert. That just about killed me. And my friend who doesn’t like to waste food, finished off the desserts for us. It was too funny.

On the train ride home, a drunk got on two stops before I had to get off. He feel asleep soon as the train was moving. I was afraid he was going to topple over on me so I got up to move. He smelled so bad of liquor. I think he got off at my stop but I have no idea where he went. Thankfully he didn’t get on the bus that I went on to go home.

My mother is okay. I was worried something might happen while I was away but it didn’t. It’s the first time leaving her alone at night since her hypoglycemic episode the beginning of the month. It was good to get out with friends but I also was worried about my mother. I thought about calling her but I didn’t want to bother her. I figure my sister would give her the run down anyways.

It was so hot in the house when I came home. I didn’t leave the AC running because I wasn’t home and my mother would flip but I left the fan running to keep my room as cool as possible. It didn’t work out that way. I had turned off the AC during the night because I had a wicked bad sneeze attack before bed last night. The room was hot so I turned the AC on for a few hours before I had to shut it off again before leaving. The room was cool but not cold like it was when I left it. It was stuffy when I came home. Yuck. Now it’s nice and cool but it’s taken almost an hour to cool it off. I will be keeping the AC running all night, like I usually do in the hot weather. I can’t stand the heat. It just makes me crazy.

I have therapy tomorrow and Wednesday. I am not planning on going out the rest of the week. Only thing I will go out for is cream, which I am running low on. I don’t think it will make it till next week. I am also running low on coffee. I am so sad my Brazil coffee if coming to the end of the bag. They have a new kind of Brazil coffee at Starbucks that I have been meaning to try. I will next week when I can replenish funds. If I don’t like it, I will just get Pike’s coffee and Breakfast Blend. Both are mild coffees but different tastes, though Pike can be a little strong. I haven’t quite figured out how to scoop it so it’s perfect. One of these days.