Category: chronic physical pain

swear post

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

Swear post

**********Warning offensive language in the blog post *************

I am in deep fucking pain and I can’t fucking stand it anymore. They say that swearing can decrease pain. What bullshit! If that was the case, I would be pain free by now! I wouldn’t need medication, just throw a couple of fucking fucks and boom, pain gone. Maybe it only works on stubbed toes. I don’t know.

I have been trying to sleep since I ended my blog about 4 or so hours ago. I took my meds a little after 1900. But when my mother came upstairs I had to check on her because she was breathing heavy. Then I had to pee. I then decided to have an ice cream sandwich and when I sat down, my fucking malleolus exploded. It felt like a burning hot rod was being driven into the bone. I looked down and there was a black dot on it. I foolishly fucking touched it and holy fuck I saw stars. I limped back up to my room. I dreaded going up the fucking stairs.

I got into bed and within a few minutes, the top of my foot felt like it was being grated with a cheese grater. It was so painful. I was ready to lose my fucking mind. It was just a little after 2200 so I took some Neurontin for the nerve pain. There is nothing else I can take. I took my pain meds at 2145. I don’t remember when I took the strong pain pill. Probably around 2000. For those that are new to my blog, I write in military time because I like it better than regular time. I think it is cool. Plus working in the hospital for so many years where I had to use it kind of stuck with me.

I might take another strong pain pill. I need something. I think I only took one pill today so I can take another one. I have been listening to my country radio station. On songs that I like, I have been tweeting the night time person saying I love the song. She is great as she quickly responds. One of these days I will get the nerve to call and request a song. I did that once and it was a disaster. I must have been on the phone with the person for at least five minutes and after the song I wanted he didn’t have, I was stuck to think of any other song. So embarrassing. I completely blanked out.

My favorite new artist Cam just did a cover song that she co-wrote with Sam Smith called Palace. It was okay. They didn’t show her face during the video. She is one hot woman! I love her. But she is younger than I am so I can’t really like her too much. But she does have an awesome voice.

I keep having waves of exhaustion and feelings like I am just going to fucking drop into sleep. I have been having these stupid waves all damn day. I was really hoping to be asleep by 2000. But for whatever reason, I am still fricken awake. I am kind of suicidal. The paper that I had to call for my pension is NOT for my pension. I am so frustrated. I probably am going to have to call my benefits office and see if I can cash out. Then I can seriously plan my death in three months. I hope the process is not too complicated. I just want to fucking die but I don’t want my family to be stuck paying for my funeral. I need to find my will that I wrote a few years ago. I want to update it. Got a few other details to get done then I can feel somewhat at ease about my planning.

I’m just fucking done with trying to go on. I can’t stand the pain anymore. The unpredictability of it is fucking distressing and waiting for meds to work all the time, wondering if they will. The losing sleep, the up all night, sleeping all day, just having no life. I can’t do this anymore. I just can’t I’ve tried the last few months to get help, but my docs are being cowards or just passing me off saying this one will take care of it when the no one really does. No sense in being hospitalized because they won’t do anything to help either. Just fuck it. Game over. Three strikes, you’re out!

waves of exhaustion are fun

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

Waves of exhaustion are fun

I was sort of having a good sleep, once I got to sleep when my stupid med alarm woke me up. I wasn’t quite awake so shut the fricken thing off, took my BP pill, and surprisingly went back to sleep until my alarm went off. I seriously detest taking this pill twice a day. I need the alarm to remind me to take it otherwise I am just getting half the dose I need to be on and I don’t want my BP to become unstable.

I had a fairly low pain day despite having pain spikes last night and going to bed late. I don’t remember much after midnight. I didn’t want to get up but when I said five minutes, it turned into ten and I started to rush. I had gotten dressed and got my muffins ready to be taken with me, then I realized I forgot my watch and had to go back upstairs. My mother then asked for me to take the recycles down and I told her I would when I came home as I didn’t have time to put them in the bin.

I got to Starbucks and because I rush, forgot my reusable mug. I ordered a new drink. Some kind of hazelnut macchiato that was supposed to be made with coconut milk but I changed it to almond. It also had mocha drizzle. It was okay but the milk made it kind of bitter. I probably won’t be ordering it again, least not with that kind of milk. I had a sandwich as I was to rushed to eat at home. I brought my Kindle hoping to read for a bit but I was so tired that reading was out of the question. I wrote in my journal for a bit before I caught the train into Boston.

I was early for my psych appt. I got really sleepy while waiting. My appt time came and I was still waiting. I thought I was going to fall asleep before my doc called me. I was so tired. I guess three shots in the macchiato was not enough. My doc finally called me and we chatted. She asked what was up with me and like I emailed her all week, I haven’t been sleeping due to pain. She asked where I stood with my PCP and pain doc and I said I haven’t heard anything in three weeks. So she emailed them asking them for a conference or something. My doc doesn’t play around. I love her for that. She did talk to the LGBT doc but was worried that without adequate pain control, she wasn’t sure how the hormones were going to affect me. I didn’t care. I already made up my mind about things. I told her I was suicidal and once I found a place to terminate, I was probably going to go through with my plan. I didn’t tell her about the other stuff. There was no point. I told her I wasn’t sure I want to start hormones as it all depended on what happened this month and left it at that. She didn’t press me for info. I started feeling weepy, like I have all week and said so. I asked her if we could increase the Zoloft as I am not a cryer. She said it could be hormones. I don’t care what the hell it is. I don’t want to be in the middle of my commute somewhere and have a meltdown over nothing. I told her 75 mg of Zoloft should be okay. So she refilled my script for that amount.

I left and was just so tired, I felt like crying again. It had started snowing and then sleeting when I got to the train station. I still want to go to the grocery store to get eggs. Even though we had like 6 dozen last week, we are down to like one. My mother baked and I used at least a dozen with my baking and cooking. We go through a lot of eggs. But the bus home came before the bus to the grocery store so I just went home. I stopped at Walgreens before home. The snow was coming down heavier and the wind was making it really cold. I couldn’t wait to get home. Before leaving the store, I bought some Reese’s peanut butter cups and M&Ms peanut because I wanted them. I didn’t even eat them when I got home. I made a frozen dinner and then went up to my room to change. It was cold in my room. I put my sweatshirt on and got under the fleece blanket. I still need to change my sheets but my back was hurting. My pain spiked a few times since being home. I just wanted to fucking die. My bones were aching so bad.

The one thing my psych said about the pain doc was that he wanted me to go to PT more than do anything else. I told her the stress of that. It is not going to happen with my pain levels and trying to do other stuff. I just cannot manage. The idiot also didn’t want me to wear my AFO anymore as he wanted more movement with my ankle. Since I was having a low pain day before the last block home, I was thinking maybe I should stop wearing it. I was only proved wrong as walking home my ankle crapped out on me. So screw him. He barely saw me for more than 5 minutes and didn’t even examine me. He just felt the temps on my feet. Some exam. Just pisses me off that this guy determined probably before I met him how he was going to treat me, or rather not treat me.

I plan on taking my meds early, reading 1984, and then hopefully sleep. Probably the last two aren’t going to happen but I can try…

Morning Glory Muffins and other things

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

Morning Glory Muffins and other things

In case you missed the link for the recipe: https://www.kingarthurflour.com/recipes/morning-glory-muffins-recipe

I woke up at 5 in pain. My ankle was screaming. I took some meds and was just beside myself. The depression that I have been feeling is getting worse. I just feel so hopeless. I managed to go downstairs to use the bathroom and then have some breakfast as I was hungry. I made four waffles and a cup a tea. I was starting to get a little sleepy by the time the tea was cool enough to drink. I went back to sleep after I drank it.

I woke up around 11. I found out the ballgame was at 2 so wanted to make these dreaded muffins. I should have used a food processor to chop in hindsight. I stood for about an hour walking around my kitchen getting things and mixing and stuff. I realized when while I was mixing it the apples I cut up were too big and the carrots were shredded too long. Oh well. It was the first time making this recipe. The muffins would just be chunky. They have apples, carrots, walnuts, coconuts, and raisins. It is a nice hearty muffin. It came out good. Even my mother liked it, and she doesn’t usually like my baking.

I went up to my room to rest and listen to the game. It was like the 7th inning and there still was no score. Price, the pitcher, left and then the Rays scored after a 2 run home run. Then we tied it in the 9th. We ended up winning in the 12th. I was happy. It was the 6th game in a row that we won. Our record right now is 6-1. Tomorrow they are off. Saturday is a day game, Sunday probably as well. I am happy with my team. I wish Red Sox Nation would give JBJ, the centerfielder a break. We probably would have lost the game had he not been playing today as there were some pretty tough balls hit to him.

My ankle exploded sometime around 5 and then again around 7 when I went to put eyedrops in my eyes. Same pain that I have been having all day. I hope I can see my psych tomorrow. She will understand if I don’t make it but it takes forever to get another appointment. I really hope I sleep tonight and don’t wake up fucking early in the morning. I can’t even give myself a “bedtime” because it never happens. I have been trying to stay off my phone when I want to sleep. Only trouble is that the books that I have been reading have been on my Kindle so the no electronics rule is out the window. I really need to read more but it’s so hard when the pain makes my brain mush. I can only read a few lines, like Twitter. I mostly just read a few tweets and skip the rest because they don’t pertain to me. I hate retweets because some of them are so not relevant to what I like. But whatever. Some of it is good because it keeps me in the loop of what Dotard is up to.

cooking Wednesday

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

Cooking Wednesday

I slept crappy for the third night in a row. I am so spent and labile. My mood keeps going all over the place and I am weepy at times. I was determined to make something today. I had silenced my phone not thinking it would not sound my med alarm. I wanted it to wake me up around 11. It never went off so I woke up around 1230. I really didn’t feel like doing shit but I was hungry and needed to make something.

I decided to make a three cheese egg and bacon burritos. I made four but my niece wanted mac and cheese, so after I made the burritos, I made the mac and cheese. I had that instead of the burrito. My ankle and back were acting up so that was all the cooking I was going to do. I tried to nap afterwards but I felt so depressed because I was in pain. I honestly don’t know why I am living. I just want to die. I didn’t know what to do. I thought about texting my therapist, but what was he going to do? I emailed my psychiatrist and got no response. I think that was worse than anything.

I got busy with social media. I had posted my burrito work on FB, IG, and Twitter. I probably post at least twice a month what I make. Someone on Twitter, who I don’t follow, replied to my tweet asking if I liked making breakfast. This is the fourth time a café or restaurant responded to my pics on food. I think it is funny as they just want my business, but other than the Indian restaurant, I am not going to go. Other than Starbucks, I don’t eat out. I might order from Grubhub but that is all. I mostly have been eating at home as I just can’t be bothered to go out anymore. I am in too much pain.

After I had dinner, I took a shower. I needed one. My foot cramped up and my back ached but it got done. I had bought compression socks for my foot and ankle and they came in today. I wore them for a few hours. They left a nice mark on my leg as I was drying off. I am going to try wearing them a few hours a day to control the swelling but don’t know if I will be successful.

I am so tired. I hope I sleep tonight during “normal” sleep hours. I think I might lose it if I don’t have sleep for the fourth night in a row. All three nights my pain started at 2200 or after. It’s just about 1900 right now so I have three hours before I know if I will be in pain all night or not. It used to start at 2000. Now the “magic” number seems to be 2200. Probably because I am ready to settle down and turn in at that time.

One of my Twitter buddies just posted an article that was in JAMA about not to prescribe opioids for severe to moderate chronic back pain or hip/knee osteoarthritis pain because it was shown not to prove function. I am sorry but that is just wrong. Most people who take an opiate for pain do regain some function because their pain is less and they can do more. I don’t trust their results. But all over the article was written, “don’t prescribe opioids” so a little bias?? Pisses me off.

I am doing an experiment. I just took my night meds but I am not going to take the Ativan, just yet. I will take it later when I want to go to sleep. Maybe then I can sleep through the night. I just hope I don’t have side effects from the antipsychotic.