at a complete loss

At a complete loss

I had requested my medical records from the pain clinic to see what they said about me. Mostly I wanted to see if they got things right and then see what else the fellow wrote. Basically, they don’t want to treat me because of excuse after excuse in opioid therapy. They really didn’t offer much in ways of treatment, other than to continue with PT (don’t see that happening if my pain is not controlled!)

I feel defeated. I see my psychiatrist tomorrow and I will tell her I plan on seeing an assisted suicide doctor. I don’t see what choice I have. I do have my second appt with the pain clinic but at this point, why bother? They aren’t going to do anything to help me. It says as much in their notes. I am not idiot.

I got my medical insurance invoice. The premium is now over $200 I have to pay every month. Just lovely. I knew it would be as my medical (not including vision and dental) is $198. Unfortunately, I need this in order to pay for my prescriptions.

I know my family and friends and bloggers will miss me. I wish I could stay. I just can’t bear the pain anymore. I was up and down stairs all day because we had the plumbers here to fix the shower. I also had to tell my mother what they were saying because she is hard of hearing. Even though I took a nap, I feel like shit. My ankle and foot are so damn angry at me because I took a shower. I had to. I haven’t had one all week! This is getting ridiculous. I was used to shower every other day. Now it’s maybe twice a week. Yeah, my quality of life is so good. Maybe I should cash in my pension from the hospital so my family won’t have to worry about funeral expenses. I know how hard it was when my father passed. We had a whopping few hundred dollar inheritance after all was said and done. Think I bought groceries with mine. I live the life. HAHA.

I know my psychiatrist is going to put up a fight with me. I am not looking forward to it. I hate arguing with her. But she is for life. She has done her best to keep me alive all these years. Just wish other doctors were as dedicated. She has been my biggest supporter, even when I thought there was nothing left for me do, as I have many times before. This time feels different. I don’t know when. I think I shall start the process of getting my pension and once I have it, pay off all my debts then give the remainder to my sister to “hold” for me. I know what a pain it will be to access my accounts once I am gone. It was hell just to write a check when my father passed.

My choices are becoming clearer

My choices are becoming clearer

I thought my PCP was understanding in how I was using my medication. He was taking notes on how I was using it and I thought he was okay with it. As what I am using right now is not the count that can last me the 28 days, I am frequently running low on meds by the time of my next refill. I sent him an email saying that I would like a count increase and that is when he says he can’t do it. Fucker! I feel so damn upset that yet another doc is refusing to help me with my pain. It is making suicide a lot easier to pull off.

I was really cold, again, today. I took a nap after made some breakfast/lunch. I had made coffee but it didn’t help to warm me or keep me awake. I was again up in the middle of the night and had shit sleep. I woke up feeling really hot and sweaty. I was having a dream about some female actresses that was just weird. I woke up and my foot and ankle were throbbing. I missed my dose because I was sleeping. I took a pill when I got up. Now I am cold again.

I’m going back to bed soon. I am going to find my will tomorrow and make some changes. I am also going to leave a note for my family saying that they should consider suing my PCP’s office for their neglect of my pain. I hate to bring the law into this but malpractice is malpractice. I am not getting the level of care that I need and am just being blown off.

Gender Dysphoria

I am having a hard time right now. My brain is playing games with me. My stupid female breasts are hurting me a lot tonight. If I didn’t know any better, I’d say I was going to have my menses soon. They weigh so heavy for some reason. Maybe it is because of the pain.

I can’t decide if I am male or female. I know I am a male but all my body parts are female. I am so distraught. It is making me tearful. I have no one to talk to that understands. I have one friend on FB that is trans ftm. I only met him because I met his mother through a mutual game we were playing at the time. Weird how things play out.

I know the pain will pass, eventually. I just hate it as it is just a reminder of who I am not.

There is a homeless guy by the Starbucks that I go to. Every time he sees me he misgenders me. Lately he has been calling me “lady”. Screw you pal, now you aren’t getting my extra buck when I have it. I hate my body so much. And having these painful things on my chest doesn’t make me like it any better. I hate being trapped in this shell.

I see the LGBT doc next week. I don’t know how it will go. It will be our 2nd appt. I need a minimum of three before being considered for hormone therapy. So frustrating. Wish I could have top surgery tomorrow and be done with these fuckers that hurt. Like I need more pain in my life. Just hate myself so much right now. I wish I was dead.

Nor’Easter number??

Nor’Easter number ?

We have had so many storms in the last few weeks that I have lost count which number this is. It is bad. I took a pic when I came down to the kitchen at noon and one of the screen doors was half covered in snow and the bottom was just a huge pile of snow that had drifted that end of the house. Surprisingly, I haven’t been in as much pain as I was yesterday. I was up most of the night, fighting nausea and then got really bad indigestion. I need to get some Mylanta the next time I go to Walgreens. I ran out and keep forgetting to grab it.

I made coffee with my new French press. I was so tired when I was making it that when it was time to pour the coffee, I didn’t know how. HAHA There is a lever now. My old one just had a screen that you turned. I love this new one. I made Kopelani coffee. It was good with caramel notes and like the guy at Starbucks said, a little smokey. I was glad it wasn’t overpowering. I drank half of it and got hungry so I made some boiled eggs. I wanted to make bacon but I didn’t have the energy for it. After I finished the eggs I went up to my room. I was so fricken cold, down to my bones. I felt like I was never going to get warm again. I was tired so decided to take a nap. I was just drifting off when my mother began calling me, telling me dinner was ready. I wasn’t hungry. I wanted sleep dammit! God she is so annoying! She heated up some beef stew that she made months ago.

I’m still not hungry. I could go back to sleep but decided to write for a bit. My ankle was kind of cramping when I woke up from my nap. It was hurting so I took a pain med. I wanted to read today but I don’t have the brain to do it. I might make some orange spice tea and just play on my phone. I’ve been on Facebook most of the day. A lot of people have been posting in my CRPS group. Makes the time goes by talking to my support friends.

My psychiatrist rescheduled my appt for tomorrow so I don’t have to go out. I will see her on Friday. Not sure what the city is gonna look like after the storm. It’s really bad with all the snow. In yesterday’s mail, I got a thing from my student loans. I get a piece of mail from them every few months. This one was telling me the interest rate was changing. I think there is an error because it went from 2.85% to 328%! I meant to call today but I forgot. I will call tomorrow. I also need to change my name with them