Category: chronic physical pain

Wednesday’s Musings

by Midnight Demon, posted in blogging, chronic physical pain, FTM, gender dysphoria, mood disorders, PTSD, transgender

Wednesday’s musings

I had a hard session in therapy Monday. We talked about mourning my mother for not being the mother I needed. It was hard realizing this is what I have to do to get past all these negative emotions I have about my mother. Right now she is in the hospital with either pneumonia or fluid around her heart and lungs and I just can’t deal. I was worried when she wasn’t up when I got up this morning but I didn’t think she had pneumonia. Her sugars were extremely high yesterday, so high that her monitor couldn’t give a number. I care for her as another human being but it is hard when I don’t get respect. The hospital called me to get her medication list and I was deadnamed and I am sure misgendered as well. I was probably called daughter as well. It’s things like this that hurt so much.

I also talked about the weight clinic and how my weight is keeping me from completing my transition. I wrote this on Twitter the other night: “In a frank mood right now. Kind of depressed and suicidal. All because I am a woman who desperately wants to be a man. I’ve dreamt of the day I would get these fucking things off my chest but b/c of a BMI I can’t have surgery. Which leaves me feeling suicidal. People always talk about saving trans lives but they never look at what is in the way of transitioning. I need to be a certain weight for me to be who I am. Totally sexist and discriminatory. I have weight issues and body issues. Going to a weight clinic seems shameful to me. Which only adds to me calling me a fat fuck who should die. Going to a weight clinic is not going to solve the BMI issue when losing weight already fucks with my head. Need to lose weight shit I will starve myself to that end before going to a clinic. And who’s to say once I lose the weight there won’t be another issue to prevent me from being a man? But apparently I can get my uterus out without a problem. Breasts seem to be an issue all the time. I just don’t know if my suicidality will end up killing me before I am a certain BMI.”

It fricken sucks that a number is keeping me from transitioning to a man. I told my therapist I would have my pcp make the referral to the weight clinic and see what they say. She reiterated to me that they are not my family and so wouldn’t abuse or shame me. I am so scared of doing this because of these reasons. I hope that I don’t have to become a salad eater to lose the weight I need to lose. I can only eat salad with a ton of dressing on it. I really like spinach salads but my mother always ends up boiling the spinach on me no matter how many times I tell her not to. She drives me crazy.

I have a UTI that I am waiting to be treated for. I hope they will treat me. I am going to call in a half hour if they don’t call me first. I need to know because peeing hurts so bad and I am going every two fricken hours. I feel so depressed about this. I have been in pain with this infection for the past ten days and I am sick of it. I called my doctor and am waiting for him to respond. I hate waiting. I really do.

Love Story vs Don’t You

by Midnight Demon, posted in blogging, cauda equina syndrome, CES, chronic physical pain, COVID19, CRPS, depression, mood disorders, painsomnia

Love story vs don’t you

As you may know by now, I am a huge Taylor Swift fan. Her latest album, Fearless (Taylor’s version) has been playing since I have been able to download it to my phone. There are two songs I absolutely love. One is Love Story and the other is Don’t You. I am having a hard time deciding which to put on repeat because I want them both on my top 25 playlist. Right now the numbers are below 50 for Love Story and over 50 for Don’t You. (The numbers are how many times it has been played as recorded by my MP3 app.) I have been thinking of making a playlist with just those two songs so that I can listen to them back to back. I might just do that. Don’t You has been really talking to me, but not in a psychotic way. I just can really relate to this song so much. Taylor’s new music has been really good and there have been songs I can finally relate to. I feel like that her new music has been grown up as she is older now. My other dilemma with her music is that I follow her lyric bots for the album folklore and when a lyric plays and I don’t know the song, I want to listen to the album to know what the song is. It is driving me crazy not knowing.

It is almost 2am. I woke up an hour ago because of pain. And I had to pee as it has been six hours. I was able to void without cathing so I am happy about that. I am not happy I have a uti. My culture came back positive for bacteria. I haven’t heard from the NP yet if she is going to treat it or not. I have been feeling yucky the past two weeks since the cramping started. I have had busy back to back days and am really tired but cannot seem to sleep. I want to change my sheets but it will be a hassle as I have stuff on my bed again. I got Amazon packages surrounding my bed. I just have to take two downstairs to put on my porch. It is my new coffee that I love from Starbucks called Spring Day. It is limited so I bought a bunch while I had the money.

I was able to wake up early this morning to get my first vaccine shot. It took less than twenty minutes and I was early. I had to stay a little longer than the usual 15 minute observation period because I had an anaphylaxis reaction to ginger. Ginger is not in the vaccine but they wanted to be cautious because I had this reaction. The only reaction I am having right now is a sore arm and a headache which Tylenol helped very much. I had to ask my doctor if taking Tylenol on a daily basis is good. He said as long as I don’t go over the 2000 mg dose a day I am ok.

Don’t you

by Midnight Demon, posted in blogging, chronic physical pain, COVID19

Don’t you

Don’t you is a new song on Fearless Taylor version. It is my new favorite song. I have been listening to it since I left PT an hour ago. I have had a long day and I know I usually set a 500 word limit for myself but today has been a fucking day. I started the day with an appointment with urology. I have been given strict orders on how long between voids. I usually have 6 hours but they want it to be 4 especially if I have been drinking a lot and can’t go. Which means that if I can’t go on my own, I have to cath. I’ve also been given a hat to measure my urine. If I am going between the 4-6 hours and have a lot of urine >300mLs, I need to go more frequently. This is to prevent my bladder from stretching. Which means putting myself on a fricken timer for bladder reminders. Fuck. I thought I was done with this shit. Things were going so fucking well and now they suck. I really don’t want to be thinking of bladder function all the damn time. This just really sucks.

I came home and was dizzy. I had bought a Gatorade while waiting for the bus and drank that. I was going to wait to order food but as I was dizzy I thought I should eat something so I ordered a big mac. It’s all I’ve eaten today and probably will be. I just came home from PT and feel more dizzy than I did this afternoon so I am just going to drink Gatorade and rest. My blood pressure is normal so that is good. I know I am probably dehydrated because I haven’t been drinking throughout the day. I also been sweating a lot so that just adds to my exhaustion. I really hope that I can get up tomorrow morning for my vaccine appointment.

PT has gone well. My shoulder is much better than it was four months ago. Today was my last session for it. Next week I start the covid deconditioning program at the PT place. I already know it is going to take a lot out of me. I was working on one the machines today and did five minutes, twenty-two seconds and I was perspiring and exhausted from it. It is one of the machine the PT said I would be using so yay. She was testing my shoulder to see how I would do.

I am completely exhausted. But I wanted to write a blog because it has been days since I last wrote. I am going to watch China Beach and rest the rest of the day before med time.

Don’t call me daughter 6

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression, gender dysphoria, grief, mental disorders, mood disorders, transgender

Don’t call me daughter 6

Yesterday I was in the kitchen with my mother and I was in a mood. I wasn’t feeling so great and just wanted to do what I needed to and go back to my room. My mother was there and asked what was wrong. She wanted me to talk to her. Fuck that. She lost that right when she refused to call me son. From now on I will correct her when she is misgendering me. But I am not going to talk to her for any reason other than what goes on in the house. I am not going to talk to her like I did before about my ailments and doctor appointments. She is getting to be the egg donor and if that is what it takes to cut off feelings from her then so be it.

I’ve been having a hard time with the cramps. I don’t know if they are uterine or bladder related but as an experiment, I cathed and felt relief at first only to have severe pain afterwards.  I don’t know what to make of it and I have cathed since. Taking a double dose of Miralax was a bad idea. I had colon blow and woke up with crap in my pants. Luckily, I didn’t get any on the bed. I had to shower and what is worse my mother had to use the bathroom so I was so embarrassed. I need to time taking it right. Thing is it is so unpredictable when it works. It could be a few hours or could be a day. There is no time table to expect when to go.

I am still have cramps and being really down about it. I called my gyn to make an appointment for the exam. It is in May. I see the uro NP this week so I am going to tell her and ask for a urine culture to be done just to be sure I don’t have an infection that could be causing this. I really am not looking forward to surgery again but there is little choice I have. Once the offending organ is gone is should be apparent what is causing what. I doubled my bladder spasms pill yesterday to see if it would help and it did a little bit. Maybe this is bladder related. I won’t know until the uterus is gone. I got my bladder on a schedule again. I didn’t want to do it but I have gone past the six hours I am supposed to go. I can’t keep holding on to my urine for so long. It could be why I have spasms as well.

I wonder if my mother is ashamed of me and that is why she doesn’t want to call me son. It would make sense. I don’t get the sense she is proud of me. I just don’t understand why she can’t accept her child. This bothers me so much. When you bring it up to her, she is dismissive. Then I think about all the abuse she put me through and it just makes me so sad and angry. She used her trust as a mother to do her evil bidding of abusing and touching me when she had no right to touch or look. I get mad at my pediatrician who documented all these things and didn’t do a damn thing about it.