brace clinic and other things

Brace clinic and other things

I went to bed late and woke up a few times before 10 am. I wasn’t in as much pain as I thought I would be, which was good. It was rainy and cold out. I went to the post office. A friend of mine wanted my second book so I mailed it to her. I have one copy left .I made oatmeal pancakes for lunch and after I cleaned up, I laid down for about an hour before I had to leave for the brace clinic. The neurologist still hasn’t called in my prescription for the new med. He takes a few days to respond to email so I know he will do it eventually. I’m in no rush.

I went to the brace clinic and they were running behind. They talked about somethings and we tried different braces but didn’t settle on any. The orthotist wants to make some modifications to the AFO I have and then see how that goes. If it doesn’t work, then I will go to the one type of AFO that I liked. I honestly feel like I am wasting my time with them. They don’t want to immobilize me so I guess I will just wear the boot when my ankle flares. The brace that I have and the one that I like don’t do that. But they will help me go up and down stairs better. I am frustrated that this is going to be more than one appointment to sort out.

I went to Walgreens before going home as I needed to pick up my prescription. I came home and my sister had a mutual friend over for dinner. I said hi and then grabbed a dish of pasta before going upstairs. My mother made chicken cutlets. I made a sandwich and at the pasta. I got full quickly and was only able to eat half of my sandwich. Guess it will be lunch tomorrow.

I am seriously questioning whether I should continue going to therapy or not. I was thinking about it until I fell asleep last night. I still haven’t made a decision about it. The thought of calling more therapists isn’t appealing to me. When I see my psychiatrist in two weeks, I will being it up to her again. I honestly don’t feel like I need therapy but that is just me. Still feeling the sting of losing my therapist of 16 yrs. Jan and Feb are going to be difficult months. And I don’t think the turkey brain I am seeing now is going to be helpful to get through it. I thought I was good at moving targets. He is better at it than I am!

a little bit of everything Monday

A little of everything Monday

I got about 5 hours sleep. I then went to Starbucks after making a PB&J sandwich for lunch. I ordered 6 shots of espresso and a donut. I wrote a little bit before I had to leave to see my psychiatrist. I kind of left early so had like a half hour to kill. I didn’t want to check in that early so I just found a bench outside the office and wrote a little more in my journal.

The appt did not go very well. I told her about having to go through withdrawal last week because I was late in taking my pain meds and she called me an addict. I tried to correct her saying I was dependent but it fell on deaf ears. She kept repeating addict and it make me hurt so bad. I seriously didn’t expect this from someone I have known nearly 25 years. She was being ignorant but it hurt none the less. I vented to my support group about it. I would school her later.

After the appt, I went to the Sprint store to change my name now that I have changed my license. It took maybe 10 mins. Crap. I still had like 2 hours before I had therapy. I went to a Starbucks by my therapist’s office and just ordered hot water for tea. I made Earl Grey. I waited for it to cool so I wouldn’t burn myself. The water was wicked hot. I wrote in my journal about what my psychiatrist had said. I then posted to a Facebook pain group if they had any information about the difference between addiction and dependence. The bathroom at Starbucks was out of order so I left to go to my therapist office. All the drinking fluids was building up and needed relieving. I just made it to the bathroom in time.

Therapy sucked. I told him about what my psych said and he said I should ask her what she meant. After discussing that, I just rambled about anything to make the time pass. I didn’t bring up mommy and daddy issues but the idiot asked me again what was my pain like. I swear he thinks I am making shit up. I told him it varies and depends on where the pain is. It is usually half my foot/ankle going outward starting about the 3rd toe. I told him I got depressed and hopeless and it was hard to keep up the mental stuff with the PT exercises the PT gave me. He said just do them. Yeah, cause it is that fucking easy. Are you serious?? He just annoyed me more than my psych ever did in all the years we worked together.

I get home and on the way, my cousin called me. He was unable to call the bank like he said he would to get information for me. Lazy ass. He said he would tomorrow. Sure, and I will win the lottery too. His mother really irked me because she called me while I was on my way to my psych appt. She wanted to know if my mother was okay. I told her she had to go to the bank, which her brother was going to take her. My mother wasn’t answering the phone. Well, maybe she was in the bathroom getting ready or taking a shit. I don’t know, I am not home. She got me fricken worried and all worked up. My psych sensed it when she saw me. I told her I would call my mother when I left as I was sure she was fine. She was. She was out and did some errands, which she obviously didn’t tell her sister. HOW DARE SHE! LOL fucking stupid bitch my aunt is. Freaks out all the fucking time over NOTHING!! I was so heated!

I get home and had something to eat before going to my room. I had a pile of mail. I brought it up to my room and then checked Facebook. The pain page responded with some links. I clicked on one and there was another link for a medical article on addiction and dependence. I opened it and read some of it. According to the article, because my pain is not adequately treated, I would have pseudoaddiction, where I watch the clock and appear “drug seeking” for relief of pain. I sent the PDF (attached to this blog APS_consensus_document here) to my psych along with saying that I felt hurt when she called me an addict. Then the tears flowed and I was a sobbing mess. It took me a good while to get composure. Then she responded and I bawled again. Fuck. She said it was not her intention to hurt me and that she didn’t want me to be dependent on the narcotics. Too late for that. And for that matter, I am dependent on my mood stabilizer, which I responded back to. I told her I didn’t want to be on opioids but the benefits outweighed the risk. I knew and accepted this just like I knew I needed meds for my mental illness. I told her the example of how I withdrew when I forgot to take my mood stabilizer for two days when my father was ill. I honestly didn’t think anything would happen but I had the same type of dizzy spell I had last week when I missed my pain med dose.

No one wants to be dependent on their meds but it happens to the best of us. I knew when I was 16 I would need to be on meds the rest of my life. There was no doubt about it. I had severe mental illness and the only way to manage it was through medication and therapy. Unfortunately, the therapy part hasn’t worked out yet. I can’t say I am cured, because I still have bouts of debilitating depression and suicidality. But lately, the pain has fucked up everything. Now I am depressed and suicidal due to a medical condition, Complex Regional Pain Syndrome. And there is no fucking way to control it because it is as unpredictable as the New England weather. I don’t even have the same pain twice during a flare up. It is all fucking different as night is to day. The only type of pain that is somewhat consistent is the fucking malleolus pain and the pain that is where my outward ankle and foot merge, just under the malleolus moving toward the foot. This pain drives me up the fucking wall. I had to text the Crisis Text line last night because I needed someone to talk to at 0100. I didn’t get a “counselor” till 0200. By then, I was sleepy and hungry. I made something to eat and then I said night to the “counselor”. The whole thing was useless. She kept wanting me to do some coping skills. I kept wanting to talk about dying. She didn’t want to hear it. How is that helpful?? Next time, I just write in my journal or maybe blog and hope the cops don’t show up at my door.

The temp dropped to 32 degrees. I had to shut the window because it was flipping freezing in my room. My feet got cold as ice so had to put on thermal socks. Then I had to use the bathroom again. I figure I would take my night meds when I came back to my room. My mother wanted me to make her bed. I did. Then got tucked back to my bed only to realize I didn’t take my night meds! Fuck. My ankle didn’t like me getting up again. I quickly took them and then got back under the covers. I put on a long sleeved T shirt. If the heat kicked on, I will take it off. Shit my foot is burning right now. Neurontin time!

Oh, while I met with my psych, we discussed the drug Vimpat. I wanted to make sure there were no interactions with the Trileptal as they both work on the same sodium channel thing. Last thing I need is my sodium (blood salt) to drop. She was okay with me trying it so I emailed the neurologist to go ahead and call it in. He hasn’t so far. The script for a refill of Trileptal my psych put it, never made it to the pharmacy. I had to email her again. For some reason, it had to be reviewed by the pharmacist so it is delayed. I’ve been on this med for over 10 years. If it is not ready for pick up tomorrow, I am calling to find out why it is not ready. If I didn’t have all my meds at this pharmacy, I would switch to another one. But this one is the closest to me and has better service than Rite Aid.

Sunday Blog 3 Dec 2017

Sunday Blog 3 Dec 2017

My Buckeyes won the Big 10 Championship last night. It was a nail biter in the 4th quarter. But an interception won the game! I was very happy. Unfortunately, my pain over rid my joy and I was up all night again. I didn’t go to sleep till around 5ish. I was kind of waiting to see if there would be news of the Football playoffs but it was too late. It would be announced today. I was not happy when I woke up because Alabama got OSU’s spot, all because the Bucks lost to an unranked team earlier in the season. The Bucks will play in the Cotton Bowl Dec 29th against USC Trojans. One of my CES friends is a Trojan fan so it will be interesting. I have been fuming most of the day over the committee’s choice of excluding the Bucks for a championship game. They deserved to be in the playoffs and I hate that one loss determined their fate. It was like the rest of their wins, including the Big 10 Championship, didn’t count. I am so mad.

My brother in law did not put in my ceiling fan like he said he would do. He decided to get a Christmas tree and go food shopping instead. So I guess me roasting and possibly getting a heat stroke are my choices. I am not going to risk an electrical fire by turning it on until it dies. I can’t stand the noise it makes either. And even though I found the right temp for the thermostat, my mother has turned up the fucking heat. I am now roasting. I wish I had heard the heat turn on before I went downstairs. My ankle flared up when I took off my slippers as I undressed to take a shower. The pain settled down but now is back up. I am so fucking mad. Now I am boiling mad because even though I found the right setting on the thermostat, my mother jacked up the heat. My room is so fucking hot right now and it’s not that cold out. Fucking bitch already pissed me off once today. She called me “miss” and then my birth name. I walked away like I didn’t hear her. My cousin has also been calling me my birth name even though I told him my name is G. Dumbbell also calls me GiGi, like WTF? What am I, a toy?? Pisses me off.

I know I am angry because of being in pain and I want to end my life. I am tired of this shit. I am tired of the sleepless nights. And now I am in pain, again. I joined the BPD chat. That was good. Now a damn social worker in one of the Carolinas thinks she can tell me what kind of therapist I need. PPPFFFTTT. Talking to the wrong person, lady. Then she tells me she wishes me well in healing. WTF is healing when you want to end your life every single fucking day?? Fucking please. Go find someone else to spew your good tidings and insight. I don’t need it.

I managed to go downstairs to adjust the heat, even though my ankle didn’t like it. My mother wanted me to do something but called me my birth name, again. I went back upstairs. Fuck her. Then she screams that she has been calling me my birth name for 40 years blah blah blah. I have kept quiet about it but today it is like pouring salt into a wound for some reason. I am just so mad. I think me not sleeping the past two nights have got me on edge.

I have therapy tomorrow and because it is past the 24 hour rule, I need to go. I am going to ask him about his mommy and daddy issues that he brought up the last time we met. Like to see what his answer will be. I don’t know if I will get anywhere with this guy. I’ve seen him since April and I don’t think he has been too helpful to me. I’ve had 2 hospitalizations and working on a third, possibly. I still don’t think we connect in any way but just tolerate each other. Just basically called him because he was the last name on my list and I said okay let me try him. I am glad he didn’t turn me away because of my suicidality and he doesn’t flip out when I talk about suicide, but on the other fronts, can you give me some guidance??? Like seriously, aren’t you supposed to help me?? Or did I get therapy all wrong all these years? My psychiatrist who I see every two weeks for about 20-30 mins gives me more validation than he has all fricken year. Though if I text him, he is more supportive than in session!! I don’t get it. I really don’t. I just go with it then write a bitch blog about him.

I had left my MP3 app on on my phone. I wasn’t using it but the thing doesn’t shut off when not in use. It was taking up memory and clogging up my phone. I turned it off and then for kicks, checked the phone’s RAM. It has more than my new laptop! No wonder it runs so damn slow!!! I definitely need to get more. I was planning to anyways as it was cheaper to buy it as is and then upgrade here and there. I just got to look at the manual and see how to do it.

I took my meds about 45 mins ago and now I am feeling sleepy. I will stop here. Later my readers!

Another night of being up all night in pain and other things

I drank some wine before bed last night to try and relax a bit. All it did was give me heartburn. The meds were making me sleepy with the addition of alcohol, but the pain didn’t care. I wasn’t going to sleep. My damn foot and ankle kept me up till around 5 am, might have been after as I wrote an email around 5. Then about 3 hours later, my phone kept going off but I was too groggy to figure out why. It went off again around 10 and it was the med app alarm. I had to take my pain meds. I shut it off and promptly went back to sleep. I didn’t get up again until around 1400 to use the bathroom. I went back to bed for another hour or so. Then hunger took over. I got up, took my pain meds, and then made a graham cracker cereal. I knew my mother would be asking me what I wanted for dinner but as I made my way back up to my room, she was lying down, sleeping. Oh well.

I played on my phone and checked my messages. Zipcar responded to my request for name change by telling me what to do to do so. I just did it before writing this blog. I sent them a copy of my legal document and my license. That should be good enough. Monday I will go to the Sprint store to change my name. I think I will do it either before I head into Boston or after my therapist’s appt. I still need to go to the bank near me to change my name for my lousy retirement plan. There is less than $200 in it because I no longer work and have been bad about saving money to put into it. Then, I think I will be done with name changing things.

I’m going to try and watch the OSU game. I can’t believe it’s the last game of the season. There might be a game come New Year’s, based on this game but that is it. They had a good season, my Bucks. Beating Xichigan last week was awesome! I don’t know if I will be able to watch the whole game like I did last week. I am not hurting big time but I am tired. I also had to wash dishes after supper because my mother was hurting. She had made fried mushrooms and Rapi, it’s really bitter. It’s from the spinach family, I think. I don’t like either. I made an egg McMuffin. That seems to be my kick the last few days. Then I will move on to something else. I wanted to make bacon today but didn’t get up early enough to do so. Be nice to have bacon and egg Mcmuffin.

My psych just emailed me. I forgot I had emailed her some time during my sleepless night. She needed to change the appt time, which I had a feeling she would do. I don’t mind as I was dreading the back to back appts between seeing her and my therapist. Now I have a few hours to rest in between. Does suck though because that means I need to be up earlier. Hope the buses are on time.