Category: physical pain

discouraged and fatigued

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mental disorders, mental illness, mood disorders, physical pain

I have serious mental illness that disrupts my thoughts and shifts my mood to hopelessness and suicidal in an instant. I lose motivation to do things. Just getting out of the house is hard. 2 this condition is flat out driving me insane.

I asked my physio what are the goals of therapy and she laid it out for me and stressed I need to be doing the home exercises to regain what I have lost. It is stressing me out that going to my appts and then having to rest the day after or two is not working. I’m still in pain. She wants me to go to some functional program. But it takes full commitment, 2 or 3 days of being there 8-2pm. I honestly don’t know if I can do that. Some days I can’t get out of bed because I’ve been up all night in pain. Monday’s are worse because I have to walk to my therapist’s office. I just don’t know what to do. I just want to lay around the house and go to Starbucks and write. But pain is limiting me to even do that. I’m not adequately controlled with my pain so how the hell can I do these exercises if I hurt. Just fed up and want to quit everything.

I don’t know what to do anymore. My PT emailed me with goals and wanting me to go to a functional program at a different SRH location. My depression makes doing anything hard. Pain compounds this. I haven’t been doing much with the home exercises because I am exhausted after going to an appt the day before or even going to PT appt. PT is saying I need to commit to the therapy to regain function (haven’t had function in my ankle for 17 yrs mind you) and decrease fatigue in my foot/ankle. I’m starting to feel like a failure but I am not getting adequate pain control and I don’t know if I ever will. Just making breakfast today and taking out the trash hurt me. Making the squash killed me. Going up and down stairs hurts every single day and I do that a lot. Add the PT and it will overflow me. I feel like I am drowning. I am out of the house at least 3 times a week. I just can’t keep up. I move I hurt. I don’t move I hurt. How can I win?

If I don’t get adequate pain control soon, I am just going to end it. Why bother?

Sunday blog 28 Jan 18

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders, physical pain

I didn’t have s good day. I had a hard time sleeping because of pain. Woke up every few hours to take more meds for relief. When I woke up during the morning hours, my back was hurting. It had started last night before I laid down. I had sneezed earlier in the day. I think I pulled a muscle. I wanted to use a tennis ball some time today to massage it out but never did. I feel so useless. I had bouts of anger today at my condition.

I don’t want to continue with physical therapy. I keep going back and forth. I just want to call tomorrow and cancel my remaining appts. Only thing is, I just ordered a mirror from Amazon last night. Couldn’t sleep so I was browsing. Found one that I think might work. I don’t know if it will help me. A couple of people in my CRPS group are doing it but they aren’t sure about it either. I think I just want to be better now and it is not going to happen. It is going to take time like dealing with the depression. You don’t want to wait for the meds to work in 6 to 8 weeks, you want relief now. It is very hard.

I had a somewhat good time when I went over my cousin’s last night. I ate more than I should have. Oh well. He really doesn’t understand chronic physical illness. He said that he knew someone that was like me, that canceled on short noticed. He said he “understands” but he didn’t. I brought it up to him that it is hard to be social when you are in pain. I had a better time talking to his walls. Jerk. The whole time he talked about his anxiety and money issues. His phone kept ringing and he would answer to say he has company. He smoked 4 cigarettes while I was there. I had to shower when I came home.

I wanted to bake today but it never happened. I have to use the zucchini soon or it will go bad. Maybe Tuesday I’ll make it. Depends on how I feel. I have back to back appts tomorrow so will be out most of the afternoon. I don’t know what kind of stress that will cause. Just hope I can sleep at a reasonable hour tomorrow. I’m going to read a chapter of my baseball history book. I wanted to read at least two so will settle for one. I haven’t touched the book in a week. Seems I only read on weekends. Least I am reading something other than social media.

Lunch with a friend and other things

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, mood disorders, physical pain

I went to bed around 3. Pain was being such a fuck. I was getting hopeless and depressed. I sent my psychiatrist a message but she never responded. I see her Monday. I hope that she understands what I am going through.

I woke up around 6 and then around 830. I didn’t want to leave the comfort of my bed. I didn’t have to leave the house till around 1030. I had a list of things to do after I saw my friend for lunch. It would depend on how much pain I was in but I would try.

I went downstairs to put the groceries away. The delivery came and I just put away the frozen and refrigerated stuff. I left everything else as I wanted to sleep. My mother was up. She asked why I left the stuff and I told her why. I did three trips to the kitchen, my office, and the back porch. I was exhausted afterward. I didn’t feel like showering. I went upstairs and got dressed. I brought my tote bag with me as I didn’t feel like carrying my backpack. I grabbed my mug for coffee. I needed coffee.

It was cold and the wind made it colder. I didn’t wear my scarf. I wish I did. The bus seemed to take forever. It finally came after twenty minutes. I thought about ordering a mobile order for Starbucks but I didn’t know what I wanted to drink. Even when I got there, I was staring at the menu. I finally decided on a toffee latte and a cheese danish.

I brought my journal along in case I had time to write but I didn’t. I took a few sips of the latte to make room for the lid and then left for the train station. As I was walking to the station, my friend messaged me about meeting 15 mins later. That was no problem. I waited for her at the restaurant.

We had a good time catching up. The food was good. We talked about all kind of things. The last conversation we had was about our friend who died by suicide 2 years ago. It was something we were hoping to avoid but couldn’t. Chris was a close friend to her than I was. She told me aspects of his life I didn’t know and it made me angry the his partner treated him wrongly. It was sad that he took his life for reasons only he would know.

My friend and I parted. She went back to her building and I went off to do my errands. I literally went around one big circle, with the train station being the starting point. I did all the I wanted and added one. I made an appt with a new eye doc as my doc retired. I need new glasses as I have been having trouble reading with the ones I have.

I went back to the Square and froze as I waited for the bus. I missed the 1420 so had to wait for the 1520. It was on time. I was feeling ok pain wise. Least I was until I got up at my stop. Then it felt like a rod went through my ankle. I limped the rest of the way home.

I got home and there was mail and some packages for me. I brought them inside, sorted them, and then dashed up the steps. I needed to use the bathroom. It was too late. I wet my pants and I wasn’t happy. I changed and then opened my packages. Some were for the kitchen as I bought a new electric can opener. Hope it is easy to use. The rest of the stuff I brought upstairs. My feet were ice cold. I put on a pair of socks. My mother was making the cod I bought yesterday for dinner. It was really good.

After dinner I was really cold and sleepy. I decided to take a nap. I wasn’t expecting the door bell to startle me awake. I woke up all disoriented, not knowing where I was or what time of day it was. I was still cold. I didn’t go downstairs to see what was going on. I snoozed for a bit before my bladder told me to get up again. I went downstairs and it was really cold. I turned up the heat a notch. Probably will regret it but least I’ll be warm!

Atypical migraines are so much fun

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, mood disorders, physical pain

I didn’t have the best sleep. Woke up in pain, the same pain I’ve been having the last three days. I managed to go back to sleep for a few hours. Then I got up to use the bathroom and brush my teeth. Decided to make breakfast even though it was noon. It came out alright. I was debating making coffee but thought I would go back to sleep. My ankle was still being a fuck. Bearing weight just killed me as did any movement. It was close to 1230 by the time I finished breakfast. I decided to go to the Square to get a haircut, my Casi Cielo, and burgers for tonight and then pick up my prescriptions.

I was kind of early for the bus so had to wait. It was cold and sunny. I had to wear my Sox hat because the sun was in my eyes. The wind made it feel colder than it was. The bus came and I got to the Square. I went to my barber’s shop. He was available so I didn’t have to wait. I showed him a cut I wanted rather than the usual one i get. It looked really good. I like it.

I then went Starbucks and got two bags of my coffee. I wanted a cup of that coffee but they didn’t have it for the day. I was bummed. I had a mocha instead. I didn’t stay too long as the next bus was coming. I went to the butcher shop for burgers. I also looked at the cod. It was 12 bucks for a pound and a half. I got it. I really wanted fish. I walked back to the bus stop and waited.

Bus came and then I went to Walgreens. I thought they would have the invega that was out of stock yesterday but it didn’t come in today. They said it could be tomorrow and if not call them and they can shop around for where I can get it. I was bummed. I started to feel dizzy but it was manageable. I walked home. The package my friend in Canada sent me arrived. I got the mail and brought it all upstairs. My mother wasn’t home. She was down her sister’s. I put the stuff away and then brought my package upstairs. The dizziness got a little worse as I climbed the stairs.

I opened the box and it had a lot of things. Two mugs, a journal, a cute stuffed giraffe, and a Canadian towel. Chocolate too! I was so happy. It made my day.

My mother came home and I was getting a little hungry. Maybe that was why I was dizzy. I made us dinner and the dizziness got worse. I went up to my room and the big light hurt my eyes. Took me a little while to realize it was a migraine. I took my migraine meds. I feel better but am wicked tired, which is typical after a migraine. I wish I could sleep but I got to stay up for my grocery delivery. It is coming soon, I hope.

I made a list of things I need to do tomorrow. If I get 2 of the 4 done I’ll be happy. I am glad I figured out the dizzy spells were of migraine activity than something else. Hate it that I have atypical migraines. Here I was thinking it was a withdrawal of some med but I have been taking all my meds and have not been skipping doses. So weird. I am glad it is sorted out now. Now I know what to do the next time it happens.