Category: suicide

Will the crushing pain ever stop?

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Will the crushing pain ever stop??

I was up all night, again, due to pain. My foot and ankle were playing a game of this part is going to hurt, then this, then that, and then repeat. ALL FUCKING NIGHT! I did what I could to control it but with pain that changes and is intermittent, it is very hard to control. Eventually the Neurontin knocked me out for a few hours. Then I was a hungry beast. I had a burrito followed by the tuna my mother made with some crackers.

I emailed my psychiatrist during the mayhem and she responded. She wanted to know what changed. I said everything is status quo with no help from the pain doc or my PCP so I am done. I am no longer going to try and get a longer acting pain med. I am going to make every damn effort to make sure that when I do die, there isn’t the financial stress of my death. So again, I played with dates and think sometime in June things will end. I just got to find a place to do it. That is a huge thing. But two months is plenty of time, right?

My foot is just being a fucking bastard today. The bones hurt so bad and feel like they are being crushed. It is a constant pain. I took my strong pain pill and an Ativan to try and take a nap but everyone decided to either call or text me at that time. I should have shut the phone off. My mother is planning on going out to the grocery store so she won’t be home for when my niece if off of school. So why you calling me? Call her mother and tell her. She isn’t going to be home either as she has a doc appt and I will be going with her.

My phone decided it was going to update the OS so wiped out all my preferences. Individual text tones are no longer an option. That sucks. It also got rid of my Star Trek ringtones. I can’t seem to get it back after I somehow disabled the sound. The whole setting option has changed. UGH. Then my music was GONE! But luckily, it was only because it wasn’t recognizing the SD card. I had to remove it then reinstall it. I also updated my now spare phone. I then realized that when I changed my niece’s contact information, the number wasn’t in my phone. I just had to call to get the number. Felt weird having to call my number to get my number, lol.

I missed the ball game today. I kind of saw a few tweets that said we scored two runs to take the lead and I don’t know what happened after that. I would have the Red Sox on mobile notifications but they don’t tell me the score during the game and if they do, they use a stupid box around the number so I have no clue what it translates to. It annoys the fuck out of me.

I just put in my refills for my meds for the month. I have four. It would have been five but I don’t have refills left on one. I will pick it up Tuesday as I know the Invega won’t be in stock until then. I was going to shower today but damn foot is a wreck. No way I am standing for 10 minutes just to aggravate the sucker. I’ll be up all night in pain again. Part of the reason my pain was so bad last night was that the barometric pressure was 30.14. Hi pressure equals a lot of pain. I am hoping to have my grocery order in tomorrow. I want to make morning glory muffins. There is a lot of good stuff in it, coconuts, carrots, apples, raisins. I haven’t had this kind of muffin in a long time. I think the coffee shop at work had them every now and then. They were so good and big. I hope my muffins are big. Usually they are small and look like a cupcake. That will be the adventure this week. I’ll try and make them before Easter so we can have dessert. I think my sister will be making a ham. Not sure what my mother is making. I thought she was going to make Pizzelles but she ended up washing clothes instead. Maybe she doesn’t have enough ingredients or something. I don’t know.

transition appt and other things

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide, transgender

Transition appt and other things

I’ve had an early day as I woke up around 5. I decided to stay up as I needed to get up at 7 to shower and get ready to leave the house the latest at 815. I played with my phone, talking to a fellow tweety buddy about stuff. I had woken up with spaghetti arms and she never heard of the term. I explained that it was a side effect of my antipsychotic medication. It doesn’t happen often but it does happen now and then. Around 6 I decided to heat up a burrito and then shower. For some reason, my heating method didn’t work as well as before as parts of the burrito were cold. I might have to use the second side at 40 seconds rather than 30. I had a glass of juice and then hit the shower.

By the time I was done, I was wiped out. I had about 45 minutes before I had to get dressed so I decided to risk laying down. I set my alarm and when it went off, I didn’t want to get up. I laid in bed for another ten minutes before getting dressed and leaving the house. It was sunny out and a little chilly but it would warm up a little by the time I got home. I just caught the bus to the station. While I was on my way, my friend texted me saying that she couldn’t meet me because something came up. She felt bad as she was looking forward to seeing me. I told her not to worry. I will be having frequent trips to the health center so there will be other opportunities.

The appt went well. I asked him what to do with the one female hormone I am taking to stop my periods. He said once I start testosterone, I can switch to a progesterone only pill until the T builds up in my system to adequately stop my menses. I might have a period or two while adjusting. He needs to talk to my psychiatrist and therapist and then I think by next appt, I could be ready to go for T shots. It will be weekly and could take as long as 6 months to show changes because of my age. I asked about top surgery and he said that can be discussed once I have begun changing. He asked if I wanted bottom surgery and I said no due to my nerve injury. I still don’t know how T is going to affect my sex drive or how it is going to be. I am kind of worried because when I was sexually active (some 15+ yrs ago), after my nerve injury it was very painful and I hated it. Since I have been out of that crummy relationship, I have not been with anyone. It’s so damn hard because even my urine is fucked up some days. Like the other day it was like all I did was pee. Then the next day, I hardly peed at all, no matter how much I drank. It’s so frustrating.

With the length of this transition, I am kind of thinking of how my plan is going to be and what to do about it. I haven’t put anything in motion, mostly because I haven’t been up during business hours to place phone calls. I emailed my psychiatrist in a kind of panic email about all of this as I was in a pain flare and basically going nuts like I do. I just get so overwhelmed with anxiety during a flare, like the world is ending kind of feeling. I also become more suicidal as I want to escape the pain. I don’t want to live anymore if I am supposed to spend the rest of my life in horrific pain every single day. I don’t know if it will be worthwhile going through the transition or to start it. I don’t know what to do. I keep thinking it will pass and I can manage the pain again, but then there are days where I am set in my ways and I want to go through with it. I still have time as it will take some time to organize things. I have no deep rush. I do know it will be sometime this year. I just don’t know when, specifically.

at a complete loss

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

At a complete loss

I had requested my medical records from the pain clinic to see what they said about me. Mostly I wanted to see if they got things right and then see what else the fellow wrote. Basically, they don’t want to treat me because of excuse after excuse in opioid therapy. They really didn’t offer much in ways of treatment, other than to continue with PT (don’t see that happening if my pain is not controlled!)

I feel defeated. I see my psychiatrist tomorrow and I will tell her I plan on seeing an assisted suicide doctor. I don’t see what choice I have. I do have my second appt with the pain clinic but at this point, why bother? They aren’t going to do anything to help me. It says as much in their notes. I am not idiot.

I got my medical insurance invoice. The premium is now over $200 I have to pay every month. Just lovely. I knew it would be as my medical (not including vision and dental) is $198. Unfortunately, I need this in order to pay for my prescriptions.

I know my family and friends and bloggers will miss me. I wish I could stay. I just can’t bear the pain anymore. I was up and down stairs all day because we had the plumbers here to fix the shower. I also had to tell my mother what they were saying because she is hard of hearing. Even though I took a nap, I feel like shit. My ankle and foot are so damn angry at me because I took a shower. I had to. I haven’t had one all week! This is getting ridiculous. I was used to shower every other day. Now it’s maybe twice a week. Yeah, my quality of life is so good. Maybe I should cash in my pension from the hospital so my family won’t have to worry about funeral expenses. I know how hard it was when my father passed. We had a whopping few hundred dollar inheritance after all was said and done. Think I bought groceries with mine. I live the life. HAHA.

I know my psychiatrist is going to put up a fight with me. I am not looking forward to it. I hate arguing with her. But she is for life. She has done her best to keep me alive all these years. Just wish other doctors were as dedicated. She has been my biggest supporter, even when I thought there was nothing left for me do, as I have many times before. This time feels different. I don’t know when. I think I shall start the process of getting my pension and once I have it, pay off all my debts then give the remainder to my sister to “hold” for me. I know what a pain it will be to access my accounts once I am gone. It was hell just to write a check when my father passed.

Pity Party

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide, suicide attempt

Pity Party

I rarely have pity parties. But tonight, something embarrassing happened to me that has been happening for a while and it just hit the wrong nerve. It depressed me because despite recovering from cauda equina syndrome (CES), not once but twice, I was ultimately disabled because of CRPS and chronic pain. Whether CES had a hand in it, I don’t know. It is doubtful as my last surgery was four years before my injury, a sprained ankle that was caused by intense spasms of my foot and ankle. That surgery was higher up the spine than my first surgery so I am not sure it affected my ankle and foot. There are a lot of what ifs, and I was pondering them today. Then the embarrassing incident happened and it hit me in the gut.

I can’t do much over what I have been dealt. I try to move on as best I can despite horrible pain. I am grateful my hands and upper extremities are not affected by pain. I don’t know what I would do if I couldn’t write anymore. I know there are speech to text things but I like the feel of pen on paper or the keys of the keyboard. I have my outlet with my blog to talk about how crappy the pain is and how it brings on my suicidality.

I was talking to my voices today, as I often do. We were discussing the use of testosterone and the effects of what they would do to me. That is if I don’t kill myself when I plan on it, which is soon. It all depends on how next week goes. I am nervous about it. I have even thought about assisted suicide, which may mean leaving the state and going to Oregon where it is legal there. It might take me a few months to save up for it, but what the hell. I can’t seem to get it right on my own. If a doc can prescribe me something to end it, that will help me. I don’t want to be in this level of pain or worse as I get older. It’s bad enough that just making my bed hurts. Making breakfast should not cause pain and I’m not talking something fancy, just making scrambled eggs and toast is a chore. I wanted to go to Starbucks today but my back was too painful because of the shitty weather, which is going to continue until tomorrow afternoon/evening. I’ll probably be in pain the rest of the week, more than my usual pain.

Right now my foot feels like it is being crushed. I’ve had to take my strong pain pill to quiet it down. That was an hour ago and I am still hurting. I am so frustrated that I have to wait for meds to work. Sometimes it’s 45 minutes. Others, up to two hours. I play with the Neurontin dose because I don’t want to be foggy the next day. I’ll take anywhere from 600 mg to 1200 mg a night. Some nights I don’t need it. It all depends. But when I flare, all the guns need firing. Pain today has been mostly in my foot. But my ankle hurt briefly. It piggybacks going up and down, from foot to ankle and back again. Sometimes it is the same pain, sometimes it’s a different pain in the different area of my foot or ankle. I never know what kind of pain I will get. The bone pain is the worse because that is harder to treat. It can be my malleolus or the metatarsals. And is always severe, like can’t move at all severe. I wish there was just one pill I could take for all of the CRPS pain. But there isn’t. And then there is an MGH resident that says opioids don’t work on pain at all. I like him to have CRPS. The meds might not take away my pain 100% but it brings it to a bearable level and that is all I need. Lately my pain has been rampant, a 7 or higher. Used to be a 6, now a 7 is my new “normal”. Before then, it was a 3. That was at least two years ago, maybe? What happens when my pain is a 10 every day? I probably won’t be alive to know. I hope so, anyway.