Tag: chronic illness

The sad truth about CES

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, depression, medical, mood disorders, suicide, suicide attempt

8-Dec-12

I’m faced with a dilemma. A friend of mine that I have known for the past year or so via email has just emailed saying that she is going to kill herself soon because she just can’t take it anymore. She feels no one will care and that Obamacare wants her to commit suicide anyway because she has a chronic illness and it will cost too much to keep her alive.

I feel I should let someone know but I don’t want to betray her confidence in me by telling people about her plan. She doesn’t want to be talked out of it. I understand where she is coming from and it troubles me that I can’t do anything to try and stop her. I know that if I do, she will probably not talk to me again and most likely be more determined than ever to try again or just attempt it without talking to me first about it. Her husband has neglected her emotionally. She has no one to talk to except via email. She has no close family members and is dependent solely on her husband for everything as she is in a poor state of health. I am mad at the husband for failing his wife. Maybe she is right and she will be better off dead. I often feel that way but I can feel the pain in what she writes and I know the agony and psychache she feels.

I just wrote her an email begging her not to go through with it and have me try and talk with her about things. To al least email me when she does so I can be with her so she isn’t alone when she dies. I don’t know what else to do or say to her. I know I could ask someone in the group to call her but like I said before I don’t want to betray her confidence. I know in suicide there is no confidences or promises but I hate just sitting here not knowing what to do. It really sucks to be in this type of position. Who am I to stop her? I know the pain she is going through. I know the misery it brings. I know the loss of dignity that this dreaded nerve condition brings. It’s awful that she has someone living with her that doesn’t care anymore. It makes me sad that she has to go through this alone. I hope that my email finds her and that she hasn’t done it yet. If I don’t get a response then I’ll know that I was too late in reaching out to a friend in need. I don’t even have her number to call her and check on her. I knew that she was suicidal in the past. We have talked about it many times before.I just didn’t know she would go through with it. Sometimes writing about what you are going to do puts you in a better frame of mind. It sometimes proves to be cathartic. I know that if I write the most horrible depressing, despairing letters I feel better afterwards. I don’t feel so suicidal afterwards. It sucks being in pain all the time and not having any relief. I get why she wants to do this and I respect her decision. All you can think about is death when you are in pain 24/7 because all you want is relief. Doesn’t matter how you achieve your death, you just know dying is better than living. It takes its toll on you that no one else can understand except for other who suffer with you. No one except someone with the same or similar condition can know the depths of despair, hopelessness, exhaustion, chronic pain, chronic worry that this condition brings. It’s an invisible illness as after surgery, you can’t really see the damage anymore on the MRI or x-ray but you can feel it. The constant burning, loss of sensation, loss of bowel/bladder, loss of sexual function all encompass this illness caused by stenosis, disc herniation, or trauma to the cauda equine nerves, the horse’s tail. It’s the bundle of nerves that begin where the spinal cord ends, usually at the L1/L2 vertebrae.

just a blog 2

by Midnight Demon, posted in Chronic pain, depression, mental disorders, mood disorders, suicide, suicide attempt

Today I got a Christmas letter from a good friend of mine. He sends out a Christmas letter every year since I have known him, going on fifteen years now. He is old fashioned and types his letter on a typewriter. For those not familiar with one, it was an old keyboard with ribbons that transfers what you write on a scroll type mechanism. If you watch episodes of M*A*S*H, Radar is always typing on one for his daily reports.

I will not be sending out Christmas cards this year. I thought about it and I certainly have the time to do so, I just don’t have the energy. This is the first holiday season where I am out of work. I thought about sending out a Christmas letter with an update about what I have been doing and that I am no longer working, that I am on disability from work, and that I am a writer or at least working on my writing through a blog and other professional work. I am not getting paid for any of it but they don’t need to know that. Since not being able to work, I have found that my writing is my solace. It is the one place I can be free at and be at least content with it. Don’t get me wrong, I still have my severe bouts of depression, my suicidality that peaks whenever a flare up occurs, and being suicidal in general. Just because writing makes me content doesn’t mean that my illness has been cured. Far from it as my psychiatrist and therapist can attest.

Last night I had one of my flare up that lasted until almost four in the morning. I was not a happy camper. I couldn’t sleep because my foot exploded in pain. I wrote to my psychiatrist at two thirty in the morning, telling her exactly what is going on. The police has not shown up at my door so I am guessing she is ok with what I wrote. I was venting because I needed to and I wanted to let her know what goes through my mind during these awful episodes.

Last night I also emailed a psychologist but for a different reason. I wrote to him thanking him for coming up with his pain scale and the reasons why I use it and how effective I have found it. I have not heard back from him as of yet. Maybe I won’t. Or maybe he is just too busy right now to answer something from someone he doesn’t know. Or maybe he saw the email and thought it was junk and deleted it.

I had a busy night writing last night. My hand was still sore for typing so I used a pen to write down most of my thoughts. My journal entry has at least three pages of writing. Write, write, write. Seems like that is all I did last night. I couldn’t read because I just didn’t have the mindset to do so. I just didn’t have the concentration necessary for it. I was too much in pain and in restless spirits to lay down and read. I really need to catch up on my Hamilton book. This is a 600 page book and I am only in the one hundreds. I have been updating my Goodreads website about my progress which I haven’t done in quite some time. It is an interesting book and keeps my attention. It is just very, very wordy.

pain rant

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, mood disorders, suicide, suicide attempt

Dear Doc,

It’s 2 am and I am in severe pain. I already took 2 vicoden and 2 ativan (not at the same time). I don’t know why my foot is in such awful pain. I need something to cover me as this is ridiculous. I just want to end my life whenever the pain gets this bad. I don’t know what to do. It’s 2 am and it’s not like the DOC can call in a script for more meds, and I doubt they would because they don’t know you from Adam. Most they can do is tell you to go to the ER. But the ER isn’t going to do anything because you know they are not going to find anything wrong. My foot isn’t red, bruised, discolored in anyway shape or form. It might be a little swollen but that is all. And it HURTS like bloody hell!! I’m tired of this shit and want to put a noose around my neck. This is the 2nd flare up in two weeks. Both have come from standing/walking too much and temperatures fluctuating more than 20 degrees or so. And this is just December.

 

by the time you read this, this will all be just a vague memory but I want it recorded somewhere so I know I am not going crazy. hopefully I’ll get some sleep. Maybe having some oxycontin will be a good idea for nights like tonight. I don’t know anymore. I just know I can’t go on living like this.

a migraine rant

by Midnight Demon, posted in Chronic pain, depression, medical, mental disorders, mental illness, mood disorders, suicide, suicide attempt

3-Dec-2012

I got a migraine today and it sucks. My face is numb and it feels like someone is driving an ice pick in my right eye. I don’t think I will go out today as the weather is too bright. Sometimes I wish I could put a dimmer switch for days like today.

 

I am scheduled for an MRI tomorrow night. I find this kind of scary because I know my head is going to be examined and my back is going to pay the price. I can’t lay flat for too long. I am going to need a muscle relaxer and pain meds to get through this. The reason I am going for the mRI is because I have been experiencing blurry vision despite getting new glasses. I don’t know if it is migraine activity that is causing this or what but I don’t like it and my eye doc is concerned. I have made an appt with a neuro-opthlamalogist. I saw this guy last year when my visual field showed some new defects. I still have the unexplained defect. The doc thinks it is just an atypical migraine causing this. I just hope that that is the case and nothing more serious is going on.

 

Sometime this week I have to trek out to Brookline and pay a parking ticket so I can renew my driver’s license. Sucks that this is the hold up to me renewing. I already paid Cambridge. Hopefully this is the last time a parking ticket stops me from renewing. Last time I had three tickets, all from the city I live in because of “ticket day” A.K.A street cleaning. I swear it is just a way for the city to collect revenue as the machines do not clean the streets anyways. I am glad I don’t have a car anymore to worry about which side of the street to park on. It’s now I think $100 per citation. CRAZY!! Just to “clean” the street. It is awful.

 

I think I’ll make myself some coffee. Maybe that will kill this migraine…

Never made the coffee as I was too lazy to clean the pot. I use a French press and I have not cleaned it out. I did tonight so I can make coffee tomorrow. Migraine has subsided though my vision is still messed up. It keeps on going in and out, the more I try and focus, the worse it gets. It is pissing me off to no end.

 

On another note:

I am HATING the commercials for Cymbalta. I am hating how they are promoting an antidepressant for back pain. I take Cymbalta, and it does not help my pain one bit!! And I have been taking it for a long time. It does help with my depression. I find that I am less weepy and suicidal when I take it. Hence why it is an ANTIDEPRESSANT!! I think it is false advertising in the FULL effect for this drug. It also helps with the neuropathy some what that I have, which is another use of this drug and I am on a low dose (20 mg). I find that my burning foot hurts less when I take, though it will do nothing for the flare ups I have when I spasm/cramp up. I can see people overdosing on this because they will just think it is “safe” because it is not a narcotic. So when they are in pain, they will pop it like Tylenol. I find this disturbing. And I don’t like the depression hurts bullshit. I have also found it does NOTHING for my psychic pain. Yes, depression does hurt. In fact it can lead to suicide and hence kill you. But like I say, people who are in pain can become desperate very quickly, like I did and maybe a little more should be paid to that. Would it kill a PCP to ask if they are suicidal before prescribing this medication? I don’t see how anyone but a neurologist or a psychiatrist can prescribe this drug for the safety of their patients. My neurologist takes the time to get to know me and actually wants me to live a happier lifestyle. But I can never be happy because I am not a happy person. I suffer too much and when you suffer you just cannot put on a happy face all the time. It becomes exhausting. I think that is why since going on disability I have felt a certain freedom. I know it is because I am no longer forced to pretend that I am happy, to show the world the other side that no one sees. Course I will say I am kind of lonely because I don’t have any contact with my co-workers nor do I have an active social life anymore. I might go out with a friend once a month, if that. But that is it. I have not left the house since Friday. I just cannot be bothered to get dressed to get a cup of Joe. I just sit in my room, playing on my laptop, writing blogs, and listening to my Taylor Swift. I order food and have gained a lot of weight because of my inactivity. Do I care, not so much. I have never been concerned about my weight. Course it is a thing I hate about myself but the only other thing I can do is starve myself and what fun is that? I love food and it loves me. What difference does it make I don’t know. Should I diet? Yes, I should but diet implies that I actually give a shit. I just got a twitter message that says the human body needs 1000-1500 calories a day to survive. If I stay within that limit, maybe I will lose weight. I will eat protein bars and have smoothies. Which reminds me I still have yogurt in the fridge I have not eaten yet. I am addicted to Chobani’s Champion yogurt. It is a Greek yogurt and is mixed berries. I love it!