paying the price of “normal”

Paying the price of “normal”

I woke up around 5 in pain. I took some meds and luckily went back to sleep. I woke up around 10. I had made some overnight oats to have for breakfast so I had that. Then I got busy making my gravy (tomato sauce). My ankle was feeling okay so after I had things going, I decided to make my Nantucket cranberry cake as well. I made coffee as I was preparing the ingredients for the cake. I had to melt butter and let it cool. I tried to stay off my feet as much as possible but, like I said, I was feeling good so went a little too much standing. After putting the cake in the oven, I added meatballs to the sauce and let that simmer for another hour. I finished my coffee and played with my phone.

I had to do the clean up and I was procrastinating doing it. I wanted to make spaghetti for lunch so as I was going to the porch to grab a box, my ankle said no. That ended the feeling good. I put the boot on and went about making spaghetti. The sauce was almost cooked. And when I came back with the box of spaghetti, the cake was done as well. I stuck a toothpick in the center to make sure and it was done. I let it cool on the stove. My mother told me to make the box of spaghetti so we could have it for dinner. I made the whole pound. I had a few meatballs while I was waiting for the water to boil. Then I went back out to the porch to grab some plastic containers to store the goodies. I planned on giving some sauce and cake to my psych when I see her on Monday. I also plan on bringing some cake to my barbers.

I had a bowl of spaghetti when it was done. Then I had a piece of cake. It was still warm and it was good. I love this cake. I then set about doing the dishes and clean up. I washed a few of the big bowls and what I used to make the spaghetti. Then my back had enough of standing. I soaked some of my t-shirt as I was rinsing a pan. That was fun. Never fails to get take a bath while I wash dishes. I was having some pain in my foot and I was getting exhausted from doing everything. I decided to take a nap and then finish washing the stuff. I went up to my room to take some pain meds and when I took off the boot, my malleolus (ankle bone) exploded in pain. Sometimes it is just a flash of pain that goes away so I lied down to nap and the pain got worse. I was in agony. I started crying because the pain was so bad. I needed to take some strong pain meds but I couldn’t move due to pain. The slightest movement of my ankle cause the pain to intensify, which only made me cry harder. I eventually rolled over and sat up to take my meds. I then posted to my support group about the pain I was having. So much for trying to be normal today.

Between my regular and strong pain meds, the pain is under control again. I am still sleepy. I wanted to sleep but I didn’t dare lie down again for fear of pain. I read twitter and came across and interesting tweet about Ireland’s shameful history. I read the article. It was about a mother and baby home for illegitimate children or children that were born out of wedlock. Usually these women were the victims of incest as they were young as 15. Once the babies were born, the mother usually stayed for a year and then they were forced out to look for work. The babies were left behind to be cared for by the nuns. One woman who had walked by the home when she was going to school had wondered about the children there and became obsessed in finding out more. It was a dark story about how the land was built over and the abandoned septic systems were like graveyards of the young children, from a few weeks old to age 3. It was a very interesting story. Here is the link to the story if you are interested: https://www.nytimes.com/interactive/2017/10/28/world/europe/tuam-ireland-babies-children.html?smid=tw-nytimes&smtyp=cur

I got hungry after reading so went downstairs for some meatballs. My mother had finished washing what I left. She wanted me to wipe down the counters. I did that and put away the food, except for the cake as it didn’t need to be refrigerated. My ankle didn’t like this. I went out the porch to grab some bottles of water and then went back up to my room. I feel really sad that I couldn’t have a day without pain. I know I probably did too much but I wanted to do this. Now I am paying the price for trying to be “normal”. I hope I am able to sleep tonight.

Disability Sucks

Disability sucks

I somehow slept all morning. I didn’t wake up till around 10 or so. I wasn’t hurting too bad when I went to the bathroom. I had to use my sister’s because my mother was using ours and I had to pee really bad. My back was aching because it was 52 degrees. But I knew I had to keep moving or it would just stiffen up. I decided to head to the square to get a haircut. My mother wanted me to pick up some eggs. I caught the next bus.

My regular barber wasn’t in yet so I had his associate cut my hair. He did a really good job. I love it. I then I went to Starbucks for something to eat and a mocha. I wanted a snickers latte today. I got it hot rather than iced. I took out my journal after I ate but I didn’t write. I wanted to go home so I went to the grocery store for the eggs. I also decided to get a rotisserie chicken for dinner so my mother wouldn’t have to cook. I forgot to get stuffing so stopped in Walgreens to grab some and get my prescriptions that were finally ready.

I got home and put things away. My ankle was hurting but I couldn’t take my regular pain meds as it was too early. I took a strong pain med instead. I rested before I went back to the kitchen to peel potatoes as I wanted mashed potatoes with dinner. I really like making mashed potatoes. Around 1500, I went downstairs and wasn’t in too much pain. That all changed as I went to throw something in the bag for recycle when my ankle acted up. I could no longer bear weight on my foot. Fuck. I decided to wear the boot that I had to immobilize my ankle. It took me a while to put it on as it has been a while since I last used it. I was barefoot as I was wearing slippers. It was okay at first and then the padding was irritating the top of my foot. I was able to continue cooking. I made the mashed potatoes and stuffing. My mother had come into the kitchen so I asked her if she wanted to eat now. She said okay as everything was done.

I couldn’t believe the difference in walking around in the boot! I wasn’t hurting as much. My PT emailed me back a long message. She said it was okay to wear the boot but not to bed. She didn’t want me to wear anything while I slept. That kind of stinks because when I try to sleep, I have more pain. She gave me imagery stuff to do when I am in so much pain. She said that if the pain increased or got worse to see my doc.

I really miss cooking. I want to make a marinara sauce and a cake this weekend. Maybe now with the boot, I will be able to. I want to take a shower to get the excess hair off my head. I am really tired though. I don’t know if I have enough energy for it. Maybe after I take my night meds. Taking my night meds always seems to wake me up. I just hope it doesn’t make me bloated like it did last night. I swear sometimes it like I take another meal my stomach feels so full afterwards.

Release

Release
Song by Pearl Jam:
I see the world
Feel the chill
Which way to go
Windowsill
I see the words
On a rocking horse of time
I see the birds in the rain

Oh dear dad
Can you see me now
I am myself
Like you somehow
I’ll ride the wave
Where it takes me
I’ll hold the pain
Release me

Oh dear dad
Can you see me now
I am myself
Like you somehow
I’ll wait up in the dark
For you to speak to me
I’ll open up
Release me
Release me
Release me
Release me

I love this song and I am glad it came on my Pandora playlist I created called, Pearl Jam. I am in a shitty mood. I have been thinking about a story that has been brewing in my head the last few months but have yet to put it into words or write it out. I just haven’t had the motivation.

Tonight, I am in a lot of pain. I had taken my foot out of the covers because I had burning pain. After a few minutes, it calmed down. After a few more minutes, I got the worst pain down my foot. I put it back under the covers and it didn’t calm down. I still feel this pain. Most of my pain tonight is in my foot. The ankle seems to have settled down some.

I’m feeling very despondent, like nothing matters. I want to go to sleep but I got a lot on my mind because I want the pain in my foot to stop but it shows no sign of stopping. And even though it has been hours since I ate, I feel bloated. Seems like my meds make me feel this way. I swear it is like eating another meal when I take so many meds at night.

I was thinking of writing a blog called “should I die” or “if I would die” but I lost my train of thought and never wrote it. This is the third night in a row that my suicidality is high around the same time of night. I don’t know why this is. Psychache is also high and when mixed with physical pain, it is a bad combination. All my thoughts are about death and dying.

I told the social security person while I was filling out the paperwork for name change that I was trans as it asked what sex I was. Apparently, without a doctor’s note, I had to put what I biologically am. I am saddened by this. Just another kick me while I’m down. I wonder if I’ll ever be truly male. Right now I’m in so much pain I really don’t think it matters. I don’t matter. Nothing matters. Heart hurts and there is no pill for that kind of pain.

in a rotten hopeless mood

In a rotten and hopeless mood

I had a difficult night sleeping. Every time I moved my ankle, it hurt. If I moved my foot, it hurt. And it wasn’t a “normal” pain that I feel, it was excruciating so much so that I was moaning and punching my pillow. This happened several times as I tried to sleep. I finally went to bed around 4 am or so. I woke up about 4 hours later. I called my PT and told the secretary that I wasn’t coming in due to pain and no sleep. I took some pain meds and my morning BP meds. Then emailed my PT to let her know I wasn’t blowing her off. There was supposed to be heavy rain today but it never showed. It’s really humid, which I don’t like.

I went back to sleep until around 1300 or so. My pain was down so I chanced a shower. I also shaved until my trimmer ran out of juice. Then I had to manually shave with a razor. I was sweating after I dried off. Hate humidity. I had something to eat, last night’s leftovers. I then went back to my room to cool off as I had the AC on. I was tired from the shower so tried to nap. Soon as I laid down, my stupid ankle went berserk. I was in so much pain, I started crying. My mother called at that moment and I just broke down on the phone. I was in the middle of an email to my psych as I was feeling really hopeless and suicidal at this point. Like what is the point of going on if I am just going to be in pain every single day without adequate relief? I texted my therapist and he responded with that I must be feeling frustrated and lonely. Whatever! Stupid jerk. Monday he was a caring and understanding therapist and today he is a jerk. I am so done. I really wanted to put my plan back on the table. Thing is, I might be too fat to do the deed.

My check came in while I was still up in the middle of the night. I paid a few bills. Now I got to wait till Friday for the rest of the checks to clear. I can’t touch my account until then. If I have at least $60, I am going to try and go to the RMV Friday to update and renew my license. I just hope it isn’t too early to do so and then I have to go back closer to the expiration date.