New Year 2019

I may throw in some goals but I really don’t expect them to come to fruition. I’ve been having a hard time sleeping past few nights. Pain has been making sleeping at night impossible. So I sleep during the day to wake up at night to stay up all night. Fun cycle.

Last night I was trying to sleep. I would slightly doze and then wake up in pain, either my foot or ankle or hip. 3 am my hip was hurting because my body was one way and it wanted to lay flat rather than on my side. Had to use a heating pad which needs replacing because it is worn out. It doesn’t get hot like it did only on high setting. So I had this on my hip. And waited for pain to calm down. Then put of the fucking blue, my foot/ankle explode and I am instantly suicidal. Like I want to kill myself right this second. I didn’t know how but as I lay there immobile, I thought of ways. And I swear if I could have moved and acted at that moment, I would have. I was so pissed off. I was a lot of things i don’t remember now nearly 24 hours later. I took an ativan when these thoughts and impulses passed and I could move my hip without screaming. I think I might have taken another pain med too because I was in pain. Around 6, I took 1 neurontin hoping for an hours sleep. It never came. My brain was just fantasizing all these things I had to do today and just wanted to say fuck it and sleep. Did I do that? No.

Around 1030 I got up to start the day. I had to cook 6 pounds of chicken wings for my sister’s party. I had two glasses of coffee before I started. I had to cut the chicken, wash, then cook it. It was falling off the bone when it was done and it was way too early for people to come in. So it just sat on my sister’s counter because my mother had to use our oven for her stuff.

It was a good party. I had two glasses of spiked eggnog. Hoping that would dull the physical pain. Nope. I had stuff to eat. Talked with my cousins. The pain started to get worse. I could barely walk. Noises were affecting me severely. Like I couldn’t handle the loud talk of anyone or the screaming of the two babies or my cousin playing something on his phone. It was just making pain worse. I left. I said happy new year good bye. I got upstairs and didn’t know if I was going to make it. I thought the eggnog was going to come up. I took some zofran. I was late with my meds so took them. I could not lie down. It cold in my room and my foot was so swollen my slipper made an indentation mark. And it was ice cold. Turn on broken heating pad! Luckily it never got painfully cold but did get painfully hot. I am still trying to sleep and failing. I should be tired because I technically have been awake since 30 Dec 7pm! I am not fucking tired. I should be. And after this, I am shutting off the lights and trying for sleep. I realized I probably been having problems because I turned up the heat a degree. Bad choice. I need cold. I should have known when I was sleeping with just my sheet on it was too hot in my room.

I don’t have any 2019 goals like I said. I wanted to end my life 24 hours ago and it is still fresh. I emailed my psych but she is out of office until Wed so probably not going to get a response. I don’t need the hospital. I really just need to stop having flares or have meds to control flares. And then longer I don’t and the longer they last, I am going to be a suicidal maniac. I am hoping it was just the stress of the holidays but I got huge financial worries this month. I got to pay for my meds which I knew but still impulsively bought shit off Amazon. I won’t know what anything costs until later today, I hope. I still won’t know if my therapist is a provider until I see him Wed. And then I will probably need to decrease our sessions because I can’t pay for them. Fun pit in my stomach right now. And then I worry my pain meds won’t get covered or T. We’ll see. I need a refill sometime this month. But if it is really expensive, I don’t know if I can afford it.

So more stress = more pain. Lovely cycle.

Saturday Blog 29 Dec 18

Saturday Blog 29 Dec 18

I’ve been having a bad flare the last few days. My mood has been awful. I emailed my psych last night with a meme about this dog that growls and then something happens and it appears to be smiling. That is how my ankle is. My ankle is all growling and barking in the wee hours of the morning but when I see the doctors, it is all nice and smiling.

My pain started around 5 pm. That wasn’t a good thing. I took some pain meds and when it really acted up after I had some dinner after I took my night meds, I decided to take some gabapentin with it. I really want some alcohol. I am tempted to have some honey whiskey. I have about maybe three shots left in the bottle, more if I cut to half a shot. I wanted to get another bottle when I got my mother some whiskey but shit, the price has gone up since I last bought it, and this was for a smaller bottle! I am starting to feel like drinking because the pain meds aren’t working and the alcohol just makes you don’t care. I don’t want to get in the habit of drinking to ease my pain because that isn’t good.

I had this plan of recording a sentence or two on a daily basis what goes on in the day and how my pain was, what the barometric pressure was, things like that so I can track patterns if there are any. Especially as my mood stabilizer is lower. I had to decrease it again because I have been feeling crummy. My sodium is right where it was two weeks ago. One point below normal. I am still not sleeping or I am oversleeping. I don’t know how I am lately. I can’t be up during the day as I am really tired because I am not sleeping. I sleep during the day to catch up on sleep and then I can’t sleep at night because I slept all day. It is driving me nuts.

Yesterday, an author I don’t know but was with this publishing company that I am following on Twitter published her first memoir called “In the gray area of being suicidal.” I offered to review it. It was on Kindle for like 4 bucks so I bought it and read a few chapters. They are not getting a good review from me. It is so sugar coated I swear it was giving me diabetes. I had to take a break from it. I get the author was dealing with a grave subject but there was like no emotion at all. It was just words on a screen. I am not liking this book but I will read it and then review it. I have already told the company that it will not be a favorable review from me. If they choose not to accept a 5 star rating, fine. There are other places I can review the book.

And I am getting anxiety which can only mean that my flare is going to get worse. Lovely. I already took the max of my meds not even two hours ago. Guess will try an Ativan to calm me down before I flip the fuck out.

My new insurance card came. I have to sign up through a “portal” to get information, but I can’t do that until Jan 1st as I am a new member. UGH. I hope my therapist is somewhere on the list of providers so I can figure out what I am going to have as my copay. I know he is not in the network but not sure what tier he is on. So fucking confusing. And according to the HR information they sent out, I was under the assumption that this new plan was a Neighborhood Health Plan network but the card has Aetna, which is a fucking bastard when it comes to chronic health issues. I hope they don’t determine prescriptions or I am fucked. The whole thing is making me nervous. I need to stop spending because I still have one prescription to pay for in like 10 days. It is the first of what I will be paying for the year. A new medication, too. This is going to be fun budgeting meds and insurance again for the next 5 or 6 months. I am not sure what I am going to do if my mood starts to go haywire and I need to be on another mood stabilizer. Not sure what there is to try. I got a thing in the mail today about my retirement benefits and I had to laugh. Like WTF. They gave me a website to go to if I am no longer employed. Making the whole pay out in cash and then try to kill myself all that much easier, if I can do it. Because these flares if they don’t have better control, I am heading that way. Each flare has been worse than the last and have last longer than they did the last time. I am not liking this.

My sister is having a New Year’s Eve party. I asked her if she wanted me to make chicken wings. She said yes so I will be making them. The only problem is 1) our oven temp has been screwy lately and 2) my mother needs the oven because she will be making calzones. I have no idea what time the party is but the wings take at least 4 hours to cook, especially as there is so much more than what I normally make. I bought a new wing sauce that I will be using. It is a mango habanero sauce. Sounds sweet and hot! Hope it is good. I might make half using the other sauce I use. Someone else is making wings, too. Last year, they were gone in the blink of an eye. They were so good! I hope she also makes her macaroni and cheese. That is the bomb! But none of it will matter if my damn ankle pain is through the fucking roof. Nice way to ring in 2019 being bedridden. Fingers crossed it won’t happen.

Blogging from phone: hectic day

My grocery delivery was late. I hate a 10-12 slot and it didn’t come till after 12. I quickly put away my stuff. I had 4 large cookies to finish off the batch I made a couple days ago. I will be making another batch this weekend as I got the flaxseed meal.

I sat on my bed for 10 minutes figuring out the bus schedule and time it would take to get dressed, do an errand, and then wait for the bus. I really didn’t want to go out. But I needed to pick up my scripts and get my blood drawn. Off I went.

I didn’t being my bag with me. I just grabbed my coat and scarf as it was cold out. I had coffee at home so I wasn’t going to Starbucks. Bus came like 20 minutes minutes while I was waiting. I was already exhausted. I got to the hospital and went to my pcp’s office. Then I went to the blood lab. My doc didn’t put in the order. I had to wait an hour for all to be done. I got a new phlebotomist who was afraid to draw me so another guy that I knew did it. Ugh. I left and then went to the store. I had to pick up stuff for my mother and also wanted steak for dinner. There was no steak I wanted. I left to catch the bus home.

I went to the pharmacy to fill my meds. They didn’t have a full quantity. I would have to go to another pharmacy. Ugh. Tomorrow is going to rain so now I will have to get wet. I am not happy. I wanted to sleep tomorrow. Least the temp will be a little warmer.

I had my mother make some eggs for dinner. Then I got hungry for the 1st time in 2 months. I ordered some steak tips and mozzarella sticks. It was good except the steak had a bunch of peppers and onions with it. Yuck. I saved the leftovers. Now I am quite tired. My ankle is killing me because while taking off my pants to change into my PJs, my ankle got caught and felt like I was ripping it off. It still has not calmed down. My mother had me do the few dishes in the sink. I debated on blogging but felt like I had to.

My sodium is at the same number. I was shocked the doctor called me with results. He was very nice. I didn’t know my psych was out of the office. Oh well. I decreased the mood stabilizer again so am taking 300 twice a day. Hopefully in a few days my energy comes back. I hope I don’t have to go off my med. I see my psych next week so we’ll see how I feel.

I bought a mango habanero sauce I want to try for my chicken wings. I forgot to get then while I was out today. Maybe I will get them tomorrow. I want to have them for the New Year’s eve party my sister is having. I have to buy a lot of wings. Not sure I can do it or afford it. All depends how i feel.

Mumble Jumble

Mumble jumble

I shouldn’t have had coffee at 430 PM last night but I did and I ended up staying up till at least 4 am or so. I was also in a bad mood as I was thinking more about what my mother had said to my brother in law’s mother. I couldn’t stop thinking of how she doesn’t accept me. It sent me into despair/suicidality mode. I just couldn’t stop thinking of being dead. Like snap my fingers and I no longer existed. I got some responses. Then a friend in my support group was not so supportive as she doesn’t understand how I could be male. Not what I fucking needed at that moment! She is questioning that if I am biologically female, then I am female. UGH. I need like a print out or something for these people. Maybe I can show my mother, too.

I finally paid a bill that I wasn’t able to on my phone for some reason. I think paying it has sent my checking account in the red but I won’t know until everything clears. My mother didn’t go to the bank today, which means, ha ha, I will have to do it tomorrow. I need to go out anyways so probably not a big deal. But the bus schedule has changed this week so getting to the Square is a pain in the ass. I will have to look at the schedule to see when the bus is coming every time I want to head out because it is at all different times. So fucking stupid. I have my groceries coming in the morning. If I am not too wiped out, I will do my errands. Wish there was a McDonald’s around. I really would love a filet of fish sandwich. I miss having one close by. Now the nearest one is nearly 2 miles away and I would have to take two buses to get there. So dumb. Maybe I will treat myself to some Thai food tomorrow if I go into Boston.