Tag: disability

completely wiped out

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Completely wiped out

I basically was on the go since I woke up this morning. I went to Starbucks. Had my drink and breakfast, wrote a little bit and then played with my phone. Afterwards, I went to CVS to get my mother some things and a binder for myself for my book. I plan on printing it out sometime this weekend to go over it and see if I repeated stories and also to edit it.

After this, I went into Boston to get my prescription. They didn’t have it ready so I had to wait. Finally one of the medical assistants came and got me and I left. By the time I reached the train station, I was wiped out. I think walking with the brace is slowing me down some and it’s tiring. I wanted to go to the grocery store to get pumpkin but I was too tired. I might go tomorrow.

I get to Walgreens to have my prescription filled and they tell me they need to call my doctor to verify it’s okay because I take the other medication. OMG. Seriously? Luckily I am not out so I can wait the weekend but still, it’s an annoyance. They said they will text me so we’ll see. I still haven’t received notification about the trilafon. I might have to hound my psychiatrist for that. This is why I hate when my refills aren’t in sync with appointment visits.

My foot/ankle is throbbing again. I just want to go to sleep but I need food. My mother offered to make soup but I am not in a soup mood. I am kind of in a tuna mood. But I think I need sleep more than food right now. I am getting cranky and I hate being cranky.

Pain Insomnia

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, Paranoia, psychosis

Pain insomnia

I never wanted to believe in this phenomena called “Pain Insomnia” because I feared it would happen to me if I did. Well, it’s happened. It’s after midnight and I am not sleeping because of pain. I am still listening to music but my foot and ankle are having a war as to which is going to hurt me more. So far my ankle is winning.

I started writing in my journal. I figure that would help me sleep. But nope, it didn’t. I wrote out my “suicide note” in my journal so in case someone reads it should I die they know they aren’t to blame for my death. I have tried everything I could to keep going but the pain is just too much. I just keep on taking pills left and right and that is not the kind of life I want to live. It’s bad enough this pain took away my jobs, my walking ability, basically my dignity. And still no one knows why I am in pain. Some docs have given me the elusive diagnosis of “complex regional pain syndrome” but I don’t fully meet the criteria for that because I don’t have color changes. I just have pain. All the damn time. And it’s worse at night so no doc can see what it is when I am not in the office during the day because that is not when I have pain.

My psychosis is not helping. I skipped a couple of doses and it caused the symptoms to return. Part of it is because my doc wants me on 1 dose a day but I need 2 a day to get relief. So I have this battle with the voices about taking my meds and it isn’t pretty. Mostly the battle is just take the bottle rather than a couple of pills. They don’t understand that by doing so, I might die. But they don’t care. Since when do auditory hallucinations care what you do when they command you to do something? They just want you to obey them. It’s gotten better now that I am back at 2 a day. I still get paranoid though. There was a guy at Starbucks today that was really antsy. I thought he could read what I was writing in my journal. Honestly, anyone that can read my handwriting, I give credit to. It’s complete chicken scratch.

My strong pain pills is ready to be picked up. I will head into Boston tomorrow and get it. I hope there isn’t a problem in the pharmacy. All this talk about opioid awareness has me wicked paranoid about filling my prescriptions. I haven’t had a problem but I don’t want there to be. It’s bad enough I have problems with my antipsychotic getting filled because of the new fucking system my hospital has, and that isn’t a controlled substance!

So while I wait for pain meds to make me sleepy or exhausted, I write till I am completely out of words. Insomnia sucks but pain insomnia is worse. One of my new Twitter follows was talking about how CBT (cognitive behavioral therapy) helps those with chronic pain but her insurance doesn’t cover it. I find that very discriminatory. I wish I could help her with it. But I don’t know where she is in the world. Hell, I am even trying to get into a CBT program yet I haven’t been called yet. I was hoping to hear from them by the end of last week and here it is a week later and still no word. I just hope my suicidality doesn’t hold them back. I am always fearful about this. I have had so many therapists deny me their services because of my suicidal history.

I need to go to the grocery store tomorrow to get pumpkin puree so I can make pumpkin cupcakes. I like to bake and I have this new recipe. It looks easy enough. I want to bring them to my therapist when I see her on Tuesday. I also have an appointment with her on Monday. I hope it goes well. She knows that I am suicidal. We have been talking about it for the past couple of weeks. Seems I am more suicidal this time of year than at any other time. She wants me to see me through the new year but I think she is wasting her time with me. I just feel so awful and not sleeping doesn’t help matters.

I had picked a date but I don’t think I will go through with it. There are a few things I haven’t done yet that I want to do before I end things. I was hoping to do it this week but pain stopped me yet again. Next week I will be really busy so the things I need to do will have to be the following week. And again, it all depends on my pain levels to do these things. I hate that I have to be dependent on pain to basically tell me what I can and can’t do. It really sucks.

I remember the last time I visited my cousin in Washington, DC. We went to the Smithsonian and saw a few museums. It was really fun even though my camera wasn’t too cooperative. My leg flared up the next day and I was laid up for most of the weekend. I felt really bad because I couldn’t do anything but put my leg up. Some vacation that was. I stood too long and it just flared up pain in my ankle, much like it’s doing tonight, except I didn’t stand too much today. I did go up and down the stairs a few too many times though.

Long day after a painful night

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Long day after a painful night

I didn’t go to bed until at least 3 in the morning. I was up in pain most of the night. Every time I laid down, my foot acted up and was very painful. It was giving me such anxiety that I had to take an Ativan to calm down or I knew I would be up till god knows what hour. Pain meds were worthless because the pain started after I took them, which has been the case lately. I texted my therapist that I was canceling sessions and that I was done fighting this bullshit.

We met today and talked about it. She said that I wasn’t cancelling the session or she would tack some more on. We spent the session talking about the difficulty of being in pain most of the night and the anxiety it is creating. If we talked about other stuff, I don’t remember but we are still on for tomorrow, much to my chagrin. I told her it wasn’t worth seeing her and she blew me off.

I gave her some of my cake. No sooner had I left her office, she texted me to say how yummy it was and she was eating the whole thing. I laughed. I was almost an hour early back with the car as I took it an extra half hour because I wasn’t sure of traffic as it was a new location that I got the car. I had to drive around the block as it was a one way street. I walked home and waited for my grocery delivery.

I wasn’t happy with my grocery delivery. They substituted the wrong kind of pumpkin that I needed for my pies and other goodies. And then the pie crust that I ordered was in pieces. I was not happy. I called them up and got a credit for those items. What I am going to do with the pie crusts now, I have no clue. I am so annoyed. Now I have to go to the store to buy the right pumpkin for my desserts. Good thing I don’t plan on baking until this weekend.

I am so fricken tired and annoyed. My mother called me while I was driving home and she asked where I was. I told her I didn’t know. I really didn’t. I knew I was either in Newton or Watertown but not sure where. I was driving for crying out loud. Then she asked why I was driving so I said to see my therapist. She misunderstood and thought I said visiting the cemetery. I got annoyed and rushed her off the phone. When I got home, she was mad at me. I don’t fricken care. Get a fucking hearing aid and I wouldn’t be so annoyed at you.

I put my groceries away. There was no room in the freezer for my things so I had to go to the basement to put some stuff there. Tomorrow I plan on making Hawaiian chicken. I can’t wait. It’s a slow cooker recipe so if I start at 1100 it should be ready by 1600 or so. I don’t know how thick the chicken breasts are though, that might determine how long I cook it for. Last time I made a similar recipe, the chicken got really dry because I over cooked it. I didn’t realize it because I was going by the directions not by how the chicken was prepared. Now I know what to look for. I got my Naan bread. Think I will have it with the chicken.

I haven’t had dinner yet. I had a cheeseburger when I came home. I might make the last patty but I really want cake. Or a nap. I can’t really decide. My ankle is killing me so it needs to be something simple. I bought avocados so I could make my avocado burger, but that seems like a hassle as I am getting lazy. I might just have a muffin and call it a night. I am really tired and cranky. I am sure I will pay for it tonight.

Random 850

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Every night, I take my night time meds between 2000-2100. Sometimes I take them earlier if I am feeling really tired. It seems no matter what time I take them, I am still up till midnight or later. I don’t understand this as I am very tired but I can’t seem to fall asleep as my brain just keep going round and round.

I know I wrote two other blogs today. Some days, I feel up to writing up to three blogs. I don’t think I have ever written four blogs in one day, unless it was a quote or something. Part of the reason I am having trouble sleeping tonight is because there is a skunk smell in my room and it makes me sick. I have to wait for it to pass before I can lie down. It went away and then another skunk smelled up my room so I sprayed my cologne to help get rid of the smell this time. I hate nocturnal animals.

I was listening to some music as I had music running through my head, as usual. Luckily it’s going now, for the moment. Sometimes music doesn’t help wind me down, especially if it’s music I really like. But it helped me write a letter to my friend in Texas. We are going to be Pen pals now as she wants a break from Facebook. I don’t mind letter writing as I love doing it.

My back seems to be fine now that I am not doing anything strenuous. I hope it stays that way because I have to see my therapist Tuesday. I want to give her my cake that I made. It’s really good. I should have put in more pumpkin spice seasoning but the directions doesn’t call for it so I just eyeballed it. It wasn’t enough. I will know for next time.

I tried reading Dostoevsky. I read two chapters and then I had to stop as it was just endless babble. Then I tried reading a new book and that was a bore. I am marking that off my list of books to read. It’s terrible. I will try a different book tomorrow. Maybe I will read more of the “Dark Tide”. It’s kind of hard to read because it has disaster written before it happened and I hate books like that. But I am a stickler for reading a book through once I am into it. The other book I am not into it at all so bye-bye.

I hope the CBT people call me tomorrow. Something tells me that my suicidality is going to be the hold up. I will cringe if it is. Seems I can’t get any new therapist with my suicidal history, which is so damn sad and frustrating. Doesn’t matter though, because if it doesn’t work out, I will just try to kill myself and see if that works out. Screw the system. I know my therapist will be pissed as all hell but oh well. I can’t keep living in this pain that I am in. It’s too much.

Thursday I am hoping to go to the MFA and check out the Frida Kahlo exhibit. I will be wearing my AFO so I shouldn’t have too much trouble walking around, especially if my ankle decides to be a fart. I don’t know why I didn’t think of it before. But it depends on my pain levels and how I do going out to see my therapist. Sometimes, going out the 30 miles and coming back just takes so much out of me that I need a day or two to rest. I haven’t been so good on resting after doing an activity but I got to be better at it or I am just going to be in more pain. Like tomorrow is going to be a rest day because I did a lot on my feet today with making a cake.

Today marks the 5th month passing of my father. I guess that is why he was on my mind a lot last night. I still don’t know why his last few hours were so much more on my mind than at any other time during my life. I guess it’s because there aren’t that many happy memories that I have of my father. But I will save the bitterness of his actions for another day. He is gone and no longer a control asshole in it so I am free on some level.

Today in BPD chat, there was talk about Marsha Linehan and her DBT stuff, like “life worth living”, “radical acceptance”, and so forth. I respect Marsha because she lived through a lot and then worked to make it so people would live despite the pain they were in. And her treatment of Borderline Personality Disorder works to give people much needed hope. Now it is applied to other areas of mental health and it’s working. My therapist, when she found out about my date, had said to me that we don’t have a life worth living anymore. We never did, least I never did. Maybe she thinks, falsely, that there was something of that semblance in our relationship. I don’t know. I had given up the beginning of September and I still have clung to the notion that my life is over because I can’t see myself going on and on in pain. Soon it will be over in the next few weeks, unless I get into a CBT program and it works. Then my plan will be off the table, least for now.

I have never understood the “life worth living”. It’s a hard concept for me to take in. I understand it. I am not a complete idiot. But I can’t find value of it in my life because of the pain that I am in physically and emotionally. There was a quote that someone had posted and I wish I had take it down or favorited or something. It held some significance to what I was going through and now I can’t remember what it was. I’ll have to go through the transcript of the chat.

A few weeks ago I had sent my psychiatrist my explanations of dying. She wrote back something and I replied that if I should die, she wouldn’t be responsible or to be blamed for my death. I never got a response back. I hope she knows that I meant it.