An Hour of Energy

An Hour of Energy

I woke up and was feeling good. I made breakfast and coffee and then had some really good energy so I decided to run the errand I wanted to do. That proved harder than I thought because half way to the store, my back acted up, making it hard to walk. It wiped out my energy levels pretty fast. By the time I finished what I had to do in the store, I was wiped out. All of this took less than hour to do. I feel so rotten.

I came home and put my stuff away. I then made it to my bedroom and got undressed. My back and ankle started acting up. Pain med time! I was hoping, as foolishly as that may be, that I would have the energy to bake after my errand. No can do. I will do it on Sunday like I planned. I just hope there is room in the refrigerator for the pan.

I got the letter from the CBT place saying where to go and what floor they were on. I was thinking about this when I go a trial run and then it hit me that I could go to my favorite restaurant at Government Center. They have the Asgard burger that is wicked good. It’s an Irish place and I have been there a few times. I really like going there, when I am in the area. I also will be taking pics of the new station so I can show you. It’s really cool.

I just bought a book about managing chronic pain through CBT. I wanted to know what I was getting into before I go to this appointment. I flipped through the book, which isn’t that thick, and I am cringing on the exercises. One of them asks what increases/decreases your pain. That is a hard one because I sometimes don’t know what increases or decreases my pain because it is all over the place. What makes it hurt today, won’t make it hurt tomorrow and vice versa. It’s really challenging because even on days I don’t do anything but sleep, I will have severe pain at night. Or I could be walking all over the place, feeling good, no pain and have a good night of no pain. Then the next day I am in agony for the next few days. The worse is when I wake up in pain. That blows the day and it’s hard to get moving. Other times, I could be having no pain and all of a sudden my ankle decides not to work anymore and gives me severe pain if I do try and use it. So it’s not a clear cut answer. And even if I rest and take meds, that is mostly all I can do for my pain. Nothing else helps decrease it. But in the meantime, I am withering in agony until the pain meds kick in.

Then they had a section where you wrote down automatic thoughts. My automatic thoughts when I am withering in agony is to kill myself. Some of the thoughts they had in the book was “the pain will kill me”. I had to say yes, but I will help it do so. Just give it a nudge with some bottle of pills and hope it’s enough to do the job.

Seeing as I am cooped up for the rest of the day, I will start reading it today and see how it goes. I have never been a fan of CBT but I am willing to try and put aside my pessimism and sarcasm to see if this will help me. It is my last hope before I finally throw in the towel. I have exhausted other treatments and nothing has seemed to help. I know there are other pain meds I could try but I really don’t want to be playing with narcotics when there are opioid nuts fighting against ALL of them being “bad” for everyone, including chronic pain patients. Hell, with every script that I get with my pain meds, I get a handout of what to do if I am misusing my meds. It’s a joke. I know the addiction problem is real. But without these meds, you might as well sign my death certificate.

I am really depressed my little errand took out most of my energy and now I am cooped up. I was feeling really good while I was making breakfast. I don’t know what happened. Granted, I didn’t make anything extravagant. Just bacon, toast, and coffee. How hard is that?

Is it possible to be happy while being horribly suicidal?

Is it possible to be happy while being horribly suicidal?

Today while waiting for the bus, I was listening to my music. It wasn’t the normal playlist I usually listen to but I was playing all my songs in my music file. A few songs came on that I really love and I caught myself singing along and just feeling happy. It got me wondering what the hell was going on because the past few weeks I have been so suicidal. Hell, last Friday was my death date that I didn’t go through with and yet I still feel the urge to end my life. Yet here I was, singing along to the music like I didn’t have a care in the world.

I know people feel relieved once they make the decision to end their life. It’s like a burden is no longer on their shoulders. That the tasks that were impossible are now possible because things are going to end soon for them. I know this because I have felt it. I have gone through it. Yet somehow, some way, I have managed to survive the death dates and the horrible suicidal thoughts that have plagued me since I was young. My therapist calls me the exception to the rule. I some times call myself a coward for not going through with my plans. After all, I always keep my promises to other people but I never have been able to keep a promise to myself, and that include ending my life at some future date.

I wonder if I have finally lost my mind because I was happy this afternoon. How is it possible to feel joy and happiness after a suicidal episode? It didn’t last too long. Just for a few songs and then I started thinking about writing this blog because I think it’s important to talk about. Suicide claims over 40,000 lives each year in the US alone. Today happens to be “World Mental Health Day”. So I find it even more fitting to talk about suicide.

I’m not going to talk about statistics and data that I could bore you with about suicide. I have just my experience and knowledge that I have learned since studying about this epidemic the past 8 years. When I am not suicidal, I try to learn as much as I can about the treatments for it because it might help me through another episode. There is a lot of research out there. The top ones are CAMS, CBT, and DBT. I have given DBT a try and didn’t like it. That was more than 17 years ago and it has evolved just like CAMS has evolved over the last 25 years.

CAMS (Collaborating and Assessment of Managing Suicide) was developed by Dr. David Jobes and is by far, in my opinion, the best way to manage suicidal episodes. It is comprehensive, easy to administer and score, has a treatment plan, and doesn’t involve more paperwork than regular clinical administrative stuff. That is what I love about this tool. In it you use the forms called the Suicide Status Form to assess suicidal plans and also develop treatment strategies with the client instead of for the client. It’s a collaborative approach because everyone’s suicidal episode is not the same. What causes me to feel suicidal is not going to be the same for the next person.

Brief Cognitive Behavioral Therapy (CBT) has been shown to help those with suicidal thoughts and attempts. It can be used in conjunction with CAMS after assessment has been made. It’s important because this therapy helps with the cognition of suicide better than any other treatment. See the work of Craig Bryan for more information about this.

Despite my happiness lasting for a few moments in time today, I still feel a little content, which is better than I have felt the last few months. I don’t know why this has changed and I hope it’s not the bipolar in me shifting to mania. I always get worried when I am not depressed because it is what I am so used to. But I will take it. Tomorrow maybe totally different than today. Hell, tonight might be totally different than what I feel right now. But I don’t feel like taking my life today, and I think that is a good thing.

Therapy session

My Therapy session

I had therapy today, my third session this week. We mostly talked about how I am in serious pain and that I didn’t sleep very well last night. I told her I have to call my doctor’s office and reschedule the appointment with my NP as I will run out of my medication by Friday. I did call and will be seeing another NP to get my medication refilled. My NP is off the weekend. Figures. I hope my back is better by then as I still am having a hard time moving around.

I asked my therapist if she could call me on Friday. She is not in the office on Fridays but seeing as it was the day that I was going to end my life, I wanted to talk to her. She agreed and when she has some time open, she will call me. She is also trying to see if a slot opens up tomorrow for me to talk to her.

I broke out the heating pad to put on my back. It is helping, a little bit. I feel really terrible that I am in so much pain. It didn’t help that I didn’t get much sleep last night. I was up every couple of hours because I kept on having bad painful spasms. It was horrible because I would be paralyzed in pain. I couldn’t move at all. I hope the heating pad helps and that I am able to walk and stand again. I took an extra baclofen. I am hoping that helps too.

We didn’t talk about anything therapeutic today. We just kept talking about how the pain was affecting me and how lousy I felt. Then we talked about the reading challenge that I am doing. I don’t think I am going to complete it because I haven’t been reading that much the last few days. It’s been hard to read when you are in pain.

The last few days, some one has been hammering and making loud noises in my backyard. It’s driving me crazy because I have been trying to nap and can’t do it with all the noise. It’s terrible. I wish I could make them stop but I can’t. So all day long I am hearing this pounding noise and I have no idea where it’s coming from. I think it’s from the street over from me but I am not sure.

I haven’t received any calls from the resident. I hope he/she calls today. I really would like to get it set up as soon as possible. I really wanted to go out today to get my espresso but that isn’t going to happen. I thought about making coffee but I should be knocked out soon from my medication.

How Darkness Seeps In

I didn’t go to sleep till around 3 am. I had the itch to write but all that I wrote was “it’s late”. The rest of what I wrote was boring and I am going to toss it. I really wanted to write about the psychosis getting out of hand and switching antipsychotics but all I did was outline my thoughts. I guess it’s a start.

Around this time last year, I was signing and faxing papers for the New York Times as I wrote an article they would be publishing. It was exciting as I never dreamed of writing for the Times. It was an extremely high ego boost. But it didn’t last long as I crashed into a deep depression afterwards that stuck around and is still lurking around. I guess I have been depressed for almost a year now, my longest episode. The psychosis didn’t really affect me until November of last year. That was when the abilify stopped working for me and I just thought things were still going okay.

It wasn’t until my back went out and I got scared I would have to have surgery again that my depression really worsened, causing the psychosis to also worsen. Add in the stress of my father’s ill health and it was a perfect recipe for disaster. I started having the physical symptoms of depression and lost some weight because I wasn’t eating. It’s easy to reflect on this as time has passed but it wasn’t easy while I was going through it. The psychosis really got worse after the Orlando shooting. That is when I stopped taking the abilify because the voices told me to. I was under their command. I just thank my lucky stars that I didn’t call the FBI like I wanted to because I was so delusional. I wanted to let the FBI know that they should look for a parasite in the brain of the deceased gunman because that what was causing him to act the way he did. I truly believed there was aliens planted parasites in ISIS followers that was making them evil and do bad things. I still believe this.

The voices wanted me to take more medication than was necessary for a few weeks. It wasn’t until the paranoia got out of control that I decided to go to trilafon to help with all the craziness that was going on in my head. My therapist was fearful I was going to lose it or take my life. I also started emailing crazy stuff to my psychiatrist which she had to stop because it was not the run of the mill stuff I normally sent her. If I had to “talk” to her, I had to page her. I couldn’t understand but now I sort of do. What I was writing was a little concerning. But it was my new “normal”. It wasn’t until I was at an adequate dose of trilafon that I realized just how crazy I had been.

All throughout this psychotic phase I was going through, I didn’t think it was bad. I still don’t. I had become more distant from my feelings and empty. It was like I felt nothing. I was hollow. These feelings didn’t last long. They were then covered up with depressive feelings and sometimes suicidal stuff.

My chronic pain reached its breaking point. I had my last flare up and I was going to make sure that it was going to be my last. It hasn’t happened yet, but it will. I am tired of living from flare up to flare up and having little to no relief for days. The only way I can get relief is by taking pain medication around the clock, and sometimes I have to take the strong pain meds to break the cycle. I am hindered in my activities and it sucks. Even walking around my own house is troublesome during these flare ups. I can’t make myself something to eat, showering is next to impossible, even brushing my teeth is a chore.

Dealing with mental illness and chronic pain is very difficult. It requires a balance. I am grateful I am not working because I think I would be dead by now. The emotional toll it takes to work, I just don’t have anymore. It was difficult in the beginning to get used to all the free time in the world that I had. Going to Starbucks provided some routine for me but on days when the depression was bad or my pain levels were out of control, even that routine was soon broken. Now I go whenever I can just to get out of the house for an hour or so. It’s rare that I will be out for more than two hours. My anxiety and paranoia get too much and I have to return home.

I spend the majority of my time in my room. I write, read, and follow Twitter and Facebook all from the comfort of my bed. I have to keep my left ankle elevated to keep it happy. It’s not like it won’t flare up because it can and will. I still haven’t figured out what makes it happy and what makes it really angry. I thought walking and standing aggravate it but I can have hours where I am on the bed and the slightest movement can hurt me. It’s so aggravating and frustrating because what causes it to hurt today, won’t cause it to hurt tomorrow. It is very depressing, which only intensifies my suicidal tendencies.