tiring but good therapy session

Tiring but good therapy session

I woke up around 0630 in pain. It felt like someone was squeezing the shit out of my foot, for which purpose, I have no clue. It just hurt really bad. I took my meds and then went back to sleep, hoping I didn’t wake up past 1300. I woke up a few minutes before noon. My jaw was hurting me so I took some ibuprofen. I washed up and told my mother I would be home late as I had therapy. I just said I had an appt. She asked where and that was it.

I left for Starbucks and then I quickly wanted to go back to bed. I just ran out of gas walking to the bus stop. I put on music to try and stay awake. The bus came and I placed my order for Starbucks. They didn’t have my donuts so I ordered a sandwich. I wasn’t sure how my jaw was going to handle it but I did ok, being careful not to chew on that side. I was getting sleepier as time past and I regretted not cancelling my therapy appt. I had emailed my therapist before going to bed last night asking him about his expertise in PTSD matters. I got a response while at Starbucks that “we’ll talk about it during our session”. Fucking give me a damn answer asshole.

I wrote in my journal for a bit and then a friend texted me. We talked until it was time for me to leave to see dipshit. She sometimes annoys me because she doesn’t follow the texts or maybe dissociates and forgets what I said. I don’t know. I just hate when she asks a question to something I already answered. I got to my therapist office and told her I would talk to her later.

So I went in to see my therapist and we discussed the email. The whole session was about my cauda equina syndrome, surgeries, how I was treated, how my ankle was treated (or rather not treated), and the panic attack that lead to the ER visit last week. He wanted me to distract when I am panicky and not think about catastrophizing things in the back of my head. He understands that this is easier said than done. But the jerk didn’t answer the question as to his expertise to PTSD. He just said we just need to talk about it. I was annoyed but I liked his feedback about trying stuff. The hard part is, I already distract and try to calm myself but it doesn’t work 100% of the time.

I left the session feeling like he understood me but is still not willing to help me, now that I have had time to think about it. It’s frustrating the hell out of me. The place that I want to be seen at sent me an email but because it got filtered to my junk, I didn’t get it until now. Great. Another day of email tag. My therapist was very keen on noticing that I like to be in control of my health care and finding the care that I need. I so wanted to say, including with you but kept my mouth shut. My jaw was really hurting when I left from talking almost the entire session. I didn’t have any water with me so I couldn’t take my pain meds. I think I need to go back to the dentist to see if this pain is normal or something else is going on.

As I was walking to the train station, a million things were running through my mind. I wanted to write all of it down but I really wanted to go home and chill. The train was late so took a while to get to the Square. My brother in law called me saying he made a pasta dish. I said I would have some when I got home. He didn’t say it was with chickpeas. They don’t agree with me so I had an Ensure. I wanted the other nutritional drink but it went bad. I need to throw the three cases away. Such a waste. They were on my porch and when we had scorching heat, they must have turned bad. I’m not that hungry anyway because I am in so much pain.

My thoughts about the session are still lingering so I might write more about it later. I am really tired so I am going to take my meds and hopefully have a good sleep. I just hope my ankle doesn’t flip out later. It has been good the past few hours. The weather is cooler than it has been so I think that may be why.

very tired, weepy, depressing day

Very tired, weepy, depressing day

I woke up around 4 in pain. My jaw hurt and my ankle was berserk. I took some more ibuprofen and pain meds. Luckily, I went back to sleep. My alarm went off and I didn’t want to get up. I thought I had snoozed it but I didn’t. My new phone has a lit up screen with the day and time and any notifications. I glared over and saw it was almost 0930. I had to get up, brush my teeth and wash my face. Then I put on deodorant as it was going to be hot today. I then got dressed and was really feeling frustrated that again I got no help when I seeked it.

I had emailed my PCP last night before bed to tell him I was in the ER. I got a response asking if I wanted to be seen and if I did I should call the office. I didn’t feel like being examined again, so I told them I pass and my pain levels were “normal”, whatever that is. I didn’t get a response back so I hope they go away.

I had my espresso and a steak and egg wrap that I like. Unfortunately, chewing was difficult. And it hurt. I tried to eat on my left side but it was hard. It was the only thing I had to eat all day. I bought a scone but I couldn’t bring myself to eat it. I saved it for tomorrow. Before I knew it, it was time to see my psych. The train was late. I just made it to my appointment. My psych was getting worried as I am always early. I explained the train was late and so therefore I was. We talked about the ER and she read me the notes. She jokingly said I was aggravated because my BP was up. HAHA. I wasn’t lying about that! The notes said I had diminished sensation on my foot in various parts and decreased range of motion. Tell me something I don’t know. She reassured me that I wasn’t having a recurrence of CES. She said it so sternly that it kind of freaked me out and then I became weepy and annoyed. I started to cry a little. I was really depressed and just wanted my pillow. When I said that she asked if I wanted pills. HAHA no, just my pillow will be fine. We have an appointment next week as then she is on vacation for three weeks. She stressed that someone else would be answering her pager while she was away. I told her I would just email her. Unless I was in dire straights, I don’t think I will page her covering doc.

I left and fell asleep on the train so I missed my stop. Sucks because I missed the bus as well so I had to wait an hour for the next one. I just tried to snooze as I listened to Bon Jovi. I was still weepy and felt relieved I didn’t have CES again. I think that is why I was so tearful. But still, if someone looked at me the wrong way, I was bound to cry, that’s how sensitive I was today.

I came home and my mother said I looked exhausted. I told her I was. I told her I didn’t want anything to eat. She made me a plate and then called three times. I told her my jaw was still hurting and I just needed something soft. I opted to drink an Ensure rather than make boiled eggs. I am hungry but I just don’t feel like aggravating my teeth right now.

I did a dumb thing. Last night I put in a refill for my Zoloft. It was an older prescription but I didn’t see the newer one. In my “history” the refill wasn’t there. That was because there were no more refills and I had just had it filled on Monday. I am a dum dum. I put away the meds that I recently got.

I took 2400 mg of Neurontin to try and sleep. Unfortunately, my neighborhood had other plans. There were sounds of hammering and other construction noises. Every time I tried to relax to sleep, some noise woke me up. I was so annoyed. I eventually fell asleep. Now I am feeling groggy and foggy. I took my night time meds plus my pain meds and ibuprofen. I think ibuprofen and I are going to be friends for a while. The dentist was concerned because the novacaine numbed the right side of my nose. He called me this morning to see how I was. I called back when I shuffled around trying to wake up. I told him I was fine, sore but fine. I was kind of nervous though because while I was eating my wrap, I felt like sand was in my mouth. I hope a filling didn’t come out. I was too tired to go back to the office to get checked out. I will be back in two weeks for another filling so I will have him check it then, unless it hurts really bad or something.

I talked to my psych about my therapist and the coordinator for the pain group. I told her I am still looking for another therapist but haven’t had any luck yet. I jokingly said I must be on some kind of blacklist. HAHA. She said no. She did find it odd that no one called me back. I hope to hear from them within a week or so. Otherwise, I will try another place. Until then I will continue to see the nail picker. I am going to try and ask him if he is mocking me or just throwing things out there to show he is listening but not offer any advice to help me. I really don’t feel a connection to him. He is just there for me to ramble but that is not what I want. I want someone that is caring and is willing to help me find new ways in dealing with my problems. I thought that was what therapy was all about, not just rambling on about shit.

I kind of got suicidal when I got home. It was just passing thoughts but I just wished I was dead. I feel nothing inside that makes me feel alive. I am in so much physical pain all the time, it’s just draining the life from me. Like is this how I am supposed to live the rest of my life?? I know suffering is part of life but must it happen on a daily basis? I cried when I was in my room as I thought about this stuff. I couldn’t help it. I hate feeling miserable. I rather feel nothing or depressed. I am just tired of fighting all the time. I don’t get a break from it. It’s going to kill me eventually. I will be another Chester Bennington, but a no name.

ER visit

So I went to the ER tonight because my psych was worried something more was happening when I told her I couldn’t move my toes. It gets like that when I’m in severe pain but it sets off PTSD symptoms. I was having an anxiety attack which is why I called her. Anyway, the ER found nothing wrong with me and didn’t do any tests. I said just send me home so I can take my pain meds. The attending forcibly moved my toes downward causing me excruciating pain. Then told me I could move them. I told her she could move them, not me. Jerk face. She discharged me with me to follow up with my GP  I sent my psych and GP an email telling them the ER did nothing for me as I was “normal”. I am beyond exhausted and in more pain than I was when I walk in. Hope I sleep tonight. The novacaine wore off so now my teeth hurt. Just been a really long day.

the 4 AM painsomnia blog

The 4 AM Painsomnia blog

It is a little after 0400 and I still have not slept a wink. Pain is keeping me up. I have tried different drugs and was getting ready to settle down about a half hour ago, when I moved my ankle to get comfy and was rewarded with more pain. I am so tired, physically and mentally, of this crap. I don’t understand how normal movements of my ankle the way it is supposed to work are causing me loads of pain. It doesn’t make sense. Maybe my neuro can help me. I see her in a couple of weeks.

I have been adding apps to my phone. I still haven’t made the playlists on my MP3 player. That will involve my old phone and mega time. I actually don’t know if the songs will be on the old phone because I took out the storage card. It had all my music on it. Will really suck if I have to create each playlist and then try to remember what songs were in it. I had a good list going, too. Should have written it down before pulling the card out. Oh well.

I took my pain meds a little while ago, before my pain really hit skyrocket levels. I am debating on taking the strong pain med and another Ativan. With any luck I will be asleep by 0530. I hate when I am up all night. I probably will be sleeping all morning and into the afternoon again. I feel like waking my mother up and telling her I am going to sleep now so she has some idea that I don’t sleep when I am in my room. I could do it just to be a bastard.

I think the CRPS is spreading up my leg. Lately, I have been getting pains above my ankle, nerve pain, on the same side where my ankle hurts and where originally the swelling was greatest. It hasn’t hurt like that in a while so I thought it had gone away. Now it doesn’t seem to be the case. It just causes me to have hypervigilance and anxiety with my PTSD symptoms. That’s why I wanted to take the strong pain med and Ativan. Kill two birds with one stone. And it might help me doze off.

I keep trying to ignore the pain but it is throbbing and it changes and moves all over the place. One side of my foot will feel one thing, the top of my foot will feel another. My toes will feel something else and my ankle will just have several kinds of pain all at once. It can be up, down, and all around. There is no rhyme or reason to it, which is so frustrating. I took some Neurontin for the burning pain and applied Lidocaine so numb it. Then I move my ankle to get comfy and was overwhelmed with pain again just as I thought it was finally settling down. Fucker. It’s awake so so am I.

I took the meds. Fuck it. I need relief and sleep. I got to wait an hour or so for the Ativan to work. I was watching videos on Facebook. One of them was about how to cook eggs easily. It showed how to unpeel a boiled egg in a container after putting some water and then shaking it with a cover on the container. It was cool. Also showed how to make a poached egg in the microwave. I’ll have to see it again to learn how. I like poached eggs once in a while but they can be messy when you make it by pan. I saved the link so I have it in my saved thingy. I really like that option.

My sister thawed out burgers so she will be making them today. I know I am going to have a couple! That is my favorite summer food. I want to buy the grill thingy that you put on the stove to grill things without mess. I should have written down the number or the website. Maybe they will have it at Walgreens in the “shown on tv” section. It would be awesome to make grilled stuff year round. So when I wake up from my “nap”, the food should be ready, lol. I wish I had bought cole slaw with my grocery order. Maybe I will get it when I go grocery shopping later today. I need to get my bread that wasn’t delivered. My mother buys wheat bread, which is okay, but I like multigrain bread. It just tastes good. I also plan on buying some deli turkey breast. Boar’s Head just came out with a new kind called Maple Honey Turkey breast. I want to try it. I also want to get more ribs. They are so good.

I know I take a lot of psych meds, but having to take all these pain meds drives me nuts. It’s only because the pain changes so I need to adjust the dose or take lidocaine or Neurontin more because I know the opioids won’t respond to it. I never get to a zero but a three would be nice every once in a while. Someone liked one of my low pain tweets about wanting to shower on Twitter. It was back in June. Long time since that day. I think the weather has caused my pain to spike. It decreased another 10 degrees. It’s 57 degrees F right now. It was 70 degrees when I woke up at 1415, so many hours ago. So what is that, 13 degrees in a little more than 12 hours? No wonder I am in pain. Fucking human barometer I am. SUCKS!!