Category: chronic physical pain

Back pain, sleeping, and feeling like shit

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Back pain, sleeping, and feeling like shit

I woke up with my back hurting me. I have no idea if it was due to rain (probably) or the way I was sleeping. I slowly got up to take my meds and use the bathroom. I got back to my room and my upper back was cramping. I think I must have taken an Ativan because I didn’t wake up until my stupid mother called around 2 asking where I was. Fucking sleeping. Leave me alone!! I called her back around 3 and she wanted to know what was for dinner. She asked if I wanted raviolis or spaghetti. I wasn’t in a sauce mood so I said macaroni and cheese the way she does it. She makes elbow macaroni then puts American cheese on top, microwaves for 50 seconds and boom, dinnah! She said yes to that.

I got up and was mad she woke me up. I hate when I get into these sleeping modes. It is like I can’t get out of them. I had wanted to get up around noon to possibly make some eggs and then work on my book but that wasn’t happening, least not right now. I went through the book and put tabs in the book where there were corrections to be made. I also put an arrow in the mark if the next page also needed corrections. I didn’t want to use up all my Post It things. I will probably order another package or get them at Walgreens the next time I go.

I made supper and there were different dishes all over the counter. I had to put away some when my mother came in the kitchen while I was making the elbows. I had a pop tart to hold me over. I wasn’t very hungry today. I don’t know where my appetite went. I got to see if maybe it is a side effect of T (doubtful). Maybe lowering the dose of my mood stabilizer caused my appetite to be lower. I don’t know. It has been low since the whole sodium thing started. I have lost 8 pounds, if my scale is right. I don’t know what it will be at the doctor’s office. I swear they add weight so you are heavier than you are. If they didn’t cost to much, I would buy one just to see. I don’t see my PCP until January. It will be at the new location, which means I have to go to another way to the office and will be a bitch when I have to get my pain meds. I am going to see if he will give them to me when I see him so I don’t have to come back. I hope he won’t be a dick about this. But I don’t think so as I will just be getting my scripts a couple weeks before I see him.

I don’t know if I mentioned this, but I joined a writing community on Twitter. My followers have jumped over 200 follows since I joined. For the first day or two, I was struggling to follow back those that followed me. OMG it was nuts and my mentions went berserk! I am glad I joined because there are people I can talk to about writing and publishing and all things related. I was talking to someone last night about my book that I am editing. She was encouraging but when I brought up that it was on mental illness, the encouragement kind of dropped. It is a hard area for people. I gave them the link to my memoir and there were more mentions/notifications, LOL. OMG this community is great. I hope to get pointers and stuff. I responded to a publisher that was looking for someone to write their blog. They wanted me to write a blog about what got me into writing, a bio, and a picture. I don’t know if I want to do all that for a blog. I don’t really like how I look. I really don’t know what got me into writing and I certainly don’t have a bio. Just so many things to do and I hate it. I have to think about it. I really don’t want my bio on the web, though I am sure it is already out there, without my consent. Hell, people are trying to buy medical data and law enforcement has gone through my medical records because of the meds I take. I don’t like that at all. It pisses me off. I am sure if the members of congress had to have their records scrutinized by the police, they would have thought more (I hope) about the stupid PMPD or whatever it is called that gives them access. This is all without warrants!! Fucking stupid Congress has to GO. Hope it happens soon!

Saturday Blog 15 Dec 18

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 15 Dec 18

I just realized the month is half-way over and I have yet to change the calendar to Dec. Oh well. I didn’t sleep yesterday. I was up for about 21 hours since Thursday and then tried to crash when I got home from my psychiatrist appointment. Because I didn’t sleep and wake up as early as I wanted to, getting a urine sample proved to be impossible. After 2 hours, I left and the emailed my psych telling her I would drop it off Monday. She said the blood and urine had to be same day. Oh well. Next time, I won’t go to the lab unless I know I am going to pee because my damn bladder retention sucks! And it gets worse when it sees a cup or there are noises around. I just can’t relax to go. I tried and tried and nothing was working. I even went to another building’s bathroom and nothing! So hard. Then when I got home, it took a while to pee. I have been feeling off. I really didn’t eat anything yesterday except a protein bar at 3 or 330 am. I just wasn’t hungry. I wanted to have a burrito when I came home but I wanted to sleep, too. I had another protein bar and then took my night meds an hour early though I really didn’t get to sleep until my mother went to bed, like usual.

I was fricken freezing since I came home and could not get warmed up. I had to put the Red Sox throw on my bed. That helped. But then in the middle of the night, I had to take it off because I was fricken hot. I was able to go right back to sleep and then a couple hours later, I woke up with my bladder ready to explode. Oh now you work??!! It was 5 am. I went downstairs and then went back up. I checked my phone for messages and surprisingly, I laid back down and passed out again. I woke up again a few minutes before my morning med alarm. I took my meds and used the bathroom because my bladder was ready to explode again. I thought I would eat but I was too tired. My mother was cleaning out the back porch so the living room was a disaster area. I didn’t see her. I just used the bathroom and then went back up to bed. I wanted to make cookies but I fell back to sleep and then when I woke up, I was too tired to do anything. My stomach was bothering me, probably for lack of food. I went easy. I had some toast. Then made some ramen noodles and a cup of tea. I started sneezing in the kitchen after I ate. Some thing was making me sneeze but I have no idea what. I went back upstairs hoping to finish editing my book but was too tired. I took another nap. I was cold and hot off and on. My throat was hurting but it was okay swallowing. I think my mother stirring up the dust on the porch just set off my allergies. Or I am getting a cold. So much for testosterone causing energy. I haven’t had a decent sleep routine since the Sox won the World Series. I am either not sleeping or sleeping too much. If I was hypomanic, that would explain some things but I am not. I feel down most of the time. Maybe it is depression. I don’t see my psychiatrist until after the new Year.

After my psych appointment, I got my haircut again. I want to start shaving the sides and back again. When I am going to start this again, I don’t know. I wanted to start today but I don’t feel like it. I need to shower. One thing that might be gross to say is that my sweating has changed. I stink more now than I did before. I showered Wed and I smell like I haven’t in a week. I was so tired yesterday that when I came home, I didn’t even wash my hair so if there are hair clippings on my bed, I don’t care. I will try to shower tomorrow. I know I am just playing sleep catch up since I slept poorly yesterday and then was basically on the go all day. I left the house around 930 and didn’t come home till around 5ish. Long day on 3 hours sleep and no food.

I thought with the start of my transition and taking selfies, it would make me not think I am an ugly faced person. But I was going through my gallery of pics and all I kept saying was how awful I look in the pics, even with me semi-smiling. I was going to show off my haircut but I really didn’t feel like it. I wasn’t feeling well anyways. I would just look like a grump.

Doing things, editing, and hurting because of doing things

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Doing things, editing, and hurting because of doing things

So there has been a cookie recipe that I have been meaning to try but it needs fricken flaxseed meal and I haven’t had the chance to buy some. So I thought I would just make regular chocolate chip cookies and throw in some oats like the other recipe said to do as I love oats. I took out the butter and the chips. I made breakfast. Then I put my jacket, hat, and scarf in the wash. I wrapped a Christmas gift with the guidance of my mother as I SUCK at wrapping. I put my Powerade bottles in recycled bags so they would be easier to transport to my room. My back was killing me. I then went up to my room to edit my book. I have no idea what the fuck I did but I reached for something on my bed and my back didn’t like it. Now the skin where it hurt is very sensitive to the touch.

I got a good chunk of my editing done. While I was reading my book, I was feeling all these emotions, mostly sadness. I was also thinking of a better blurb for the back of the book and wrote a quick paragraph while I was taking a break in between stories. I can’t believe I wrote about my abuse history with my father in this book and the sexual abuse of the cousin even though I didn’t name him. I still can’t believe how powerful my writing is and it amazes me. I had to put some kind of notation at the beginning in case this triggered someone and gave some crisis numbers just in case. When I published this two years ago, I honestly didn’t think I wrote about suicide, but I did and a lot about depression so I felt I had to include that just in case. I really don’t want to be sued over someone who reads my book and then does something. I wrote a lot about my former therapist and how she was. I haven’t come across the story about trees and roots which is about my therapist and psychiatrist keeping me here. I am not sure if I took the story out or not. There are a few errors as I go along but mostly it is my use of the wrong word or saying no instead of not. Not huge things. I am changing things around, small things, not big ones. It is kind of draining me because the emotions are so high at times.

I went back to the kitchen for some ice cream and when I was finished, my foot started acting up. I was supposed to make supper for my mother and I. Now I regretted it. I took a breakthrough med and I wanted to take a Neurontin but it was way too early to. I would be a zombie and I don’t think I would be able to try and finish the editing. I have about 20 pages left or so. Going to try and finish tonight. But pain is being a damn bitch so who knows.

Editing, therapy, and other bullshit

by Midnight Demon, posted in Bipolar Disorder, blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Editing, therapy, and other bullshit

I had a good therapy session. We talked about my father and the day he died as well as other stuff he loved to do to make my life miserable. We didn’t end the session on a good note so I was feeling perplexed. I walked to the station, thinking about the things we talked about and decided I was going to get a steak and cheese sub for dinner. I have to remember to bring my inhaler with me now that it is freaking cold. My lung passages doesn’t like the cold air and I have been wheezing and coughing. I came home feeling like shit. Both feet were hurting. I had to wash my jacket and I figured I might as well wash my scarf and hat, too. I don’t know when they were washed last. The jacket smelled so it has been a while.

I went up to my room and texted my middle sister. We talked for a bit. I didn’t tell her how awful I have been feeling. I kind of wanted to but held back. I told my mother I didn’t want a party and she was like what about cake. No one likes the fucking cake. It goes to fucking waste! So I told her to make cupcakes instead and then people can pick it if they wanted to. But I only want my sisters and nieces and nephew. No one else. I guess that was a compromise as I really don’t even want to. I hate my fucking birthday so much. I really wish I wasn’t born some days.

I played with my phone saying I was going to edit my book and as I reached for a long sleeved shirt because I was cold, my damn foot went berserk. Fucking great. I had just taken a breakthrough pill like 10 minutes prior. WTF. My feet were cold so I carefully put my throw on then got my heating pad and gently put that on. Foot is still hurting but heat sometimes helps so here is to crossing fingers. I got my book and my axing tools (highlighter and pencil). I read a few chapters and one chapter got me. I was like shit, I wrote this? Sometimes I am amazed at what I write and other times, I am like that is such shit. One story, I axed a paragraph. I am just barely over 32,000 words for this book. This will bring me under 32,000. Just wonderful. Short story book is short. It is only around 124 pages, which includes the copyright page and title. Maybe I can find a blog or two I can add. I have done a lot of writing since then. But I want this book out by this weekend. I don’t want it sitting around because writing is hard. I worked on this book for two years and after 6 months of not coming up with anything new, I just said fuck it, I am publishing it (after I briefly edited it).

I know I am going to flare tonight. I had to walk to my therapist’s office because I missed the bus and I didn’t feel like waiting 20-25 minutes for the next one. I could walk there faster than that. So I did. And then I walked back. My heel is killing me for some reason. I don’t think it is liking the gel thing I bought anymore. I might have to do without for a while and see how I feel. But right now my CRPS foot is yelling at me. I just stood up to get another Powerade and OMG it screamed. Actually both ankle bones and foot screamed. I was going to take my Neurontin at 9pm but I am taking them with my night meds at 8. Fuck it. I am hurting and I know it is going to be a rough night. It will be a miracle if I sleep before midnight. Just hope tonight isn’t a fucking Christmas tree lighting up night. That is when different parts of my ankle and foot hurt with different pains all over and kind of switch from one area to another and then back again. FUCKING SUCKS!!! I never know what kind of weird pain I am going to be in.

My med alarm updated. So because I have two alerts in the morning for the different meds I take, it cancels out the noise. It will go off and then shut off. I think I will have to take one of the meds off the alert as I take all three together.

An hour ago, I had an anxiety attack which was an hour and a half after I took my night meds which includes Ativan. I knew from last week, it was the beginning of a pain flare. Yup. Suicidal ankle pain has started. I just want to fucking die. I have no idea when I am going to sleep. I am not going to edit my book. I will try tomorrow if I have some clear headed time. Fuck and I wanted to bake cookies tomorrow. Fuck this sucks!!