Saturday Blog 57

Saturday Blog 57

It’s another hot day. We are in the middle of a heatwave as the temp has been above 90 for more than three days. The humidity sucks. I was going to go out today but I overslept. You really have to get up early and go to Starbucks or you might not be able to get a seat. It was too hot out to attempt it so I just stayed in. I made my own coffee, which I think I only have one cup left. Hope it’s enough to get me through till Tuesday when I get paid next.

I read a little bit today. The story just seems to be dragging on and on. No real drama or action. I am close to being in the middle of the book and still have no idea where the story is heading. But I will read the book anyways because I am a stickler like that.

I didn’t have lunch or breakfast until about a half hour ago. My mother was asking why I didn’t eat. I told her because I was sleeping. Then I had coffee and it killed my appetite further. The house is really hot so I try not to be outside my room for too long. I think for supper I am going to make a tuna sandwich. I don’t know why I have been craving tuna lately. It’s like my go-to food when I don’t know what else to eat.

I have been feeling down since last night. I thought about my father and it brought about a deep sadness. I texted my sister and she said she felt the same way whenever she thought of him. Then I was a little bit haunted by suicidal thoughts. I just thought about what it would be like if I was dead. I so just don’t want to live anymore. I don’t know why I am living. My life just seems stupid.

One of the clinicians I follow on Twitter was looking for readers for his upcoming new textbook. I emailed him to see if I can read one of the chapters and give him feedback. I told him I am not a student but I have lived experience. I hope he doesn’t turn down the request. I plan on getting the book anyways but if I do read it, it will be a free copy and my name will be in the book.

I keep perusing my blogs hoping to find one “good enough” for my book. There hasn’t been many that I have come across yet. I know most of my blogs are just my day to day struggles and accounts of my daily activities. Most of the blogs deal with my never ending nerve pain or some type of pain that I am having in my foot/ankle. I think I wrote more about my pain than about my suicidality/depression. Now my blogs are mostly about my psychosis and dealing with voices. I am still in pain but I just don’t write about it.

I also used to write about my father as he was always the source of aggravation for me. Since his death, I just been dealing with his loss. The memories of what he went through the last four months of his life are still fresh in my mind. I never got to finish the story of his last hour of death. Maybe it’s better to keep it in my mind rather than on paper.

my new book and other musings

My new book and other musings

Last night I was struggling with fixing the errors that my word doc had on it on my new book. I wanted to see how many pages I had so I knew how many more to write. After all was said and done, there seems to be about 99 pages to go. If I work at least 2-3 pages a day, I might be able to get it done by the end of the year. I have been going over my blogs that I have written over the past year and sort of picking out which ones I deem “best” for my book. It’s a lot of work as I have a LOT of blogs as I write nearly every day, sometimes twice a day. But it beats having to open up word docs on my screen and reading them. This way here if something seems interesting, I just pull up the word doc, and then pasted it in the template that I have, once I edit it to make sure there are no errors.

I didn’t do anything except make coffee today, so far. I had a crappy sleep as I kept on waking up every two hours or so. It was so annoying. So I slept late right through the afternoon. I haven’t had anything to eat except for two cookies. I am out of my coffee. I seriously have to buy some more next week. I can’t be without my coffee. I might have to use my sister’s Keurig this weekend. The Keurig cups she has is decent coffee. It’s not Starbucks quality but close enough. I am going to try the new Brazil coffee next week and see if I like it.

I started reading a new book on how to write a novel by Lawrence Block. I don’t think of myself as a novel writer but after the new book is written, I will have to write something else. I don’t know if I can do it but I can try. I know I am no Neil Gaiman or even Lawrence Block but writing does come naturally to me.

Yesterday I was bored so I decided to clean out my junk hamper. It was a collection of all suicide research articles and books. I don’t know how they accumulated there but they did. Unfortunately, the book I was hoping to find, wasn’t there. I have no idea where the book is so I marked it off my reading list as “read”. I was half way through it anyway. It bothers me that I don’t know where this book ended up. I will find it when I am looking for something else.

I was going to shower last night but I got lazy. I think I will today after dinner. It’s a really hot day, again and the house is hot. I was hoping for it to cool down last night but it never did. I want to try and go out tomorrow to get an espresso over ice while reading the psych book I bought. It would be nice to finish the chapter.

My friend in Canada sent me the link to her post office. They have Canadian Star Trek stamps that I want to get for my brother-in-law and I. I think he will really like it as he is a Star Trek junkie like I am. The stamps don’t come out in the US until September. I plan on getting several sheets to save as well as use, not that I use snail mail that often. Or maybe I will just save them.

Timeline

Timeline

According to my blogs in January 2016, my voices had become worse and so had my depression. Then my father had his treatments. The end of the month he was hospitalized for chest pain. A few days later after discharge, he was readmitted with a chest collapse brought about, presumably, due to pleural effusion or an air pocket burst.

I was supposed to start PT for my back but never did because of the evolving care of my father. My depression worsened the more involved I was with the man. The voices ultimately were controlling me, though I didn’t realize it at first. This was despite taking an adequate dose of abilify and taking it faithfully every night. The only exception to this was when my father was readmitted for the collapsed lung issue. I missed a few days because it was late and I didn’t feel like filling up my pill box. I was haphazardly taking my meds. A few here, a few there that first week in March.

March was a markedly collapse of my father’s health. He was admitted every two weeks for pleural effusions or because of fluid build up in his system. He had stopped eating or was barely eating and drinking, even with support from my sisters. He lost weight and subsequently would develop pneumonia that was his last illness before being transferred to a nursing home for further care.

My mental health deteriorated. In the middle of March, after losing up to 15 pounds, I decided to go back on Zoloft, even though I didn’t think it would do much. We started off slow as I didn’t want to get sick off it, though my psychiatrist wanted me on 100 mg. I was happy with half that. My father died the end of April. I was hospitalized the middle of May after everything was said and done. We decided to increase the Zoloft to 100 mg and it was a quick admission. I was there only six days and have not been back, against my better judgement.

June brought havoc for me with the Orlando shootings and I felt the pressing need to notify authorities that the gunman had an alien parasite in his brain that caused his actions. The voices were rampant at this point and I discussed the matter with my psychiatrist and therapist before making any phone calls. It was at this point I got very agitated at my therapist for not believing me about the alien parasites and decided I wasn’t going to take the abilify any more. The voices by then were commanding me to do things and I went along.

A couple weeks later, I was feeling really paranoid while at my psychiatrist’s office. I was really scared she was going to kill me despite her reassurances that she was not. This was around the end of June. That day was terrible. The paranoia had increased due to some social media post by a Twitter follower I was following for PTSD. She had posted something to do for ISIS which is always a trigger for me. It freaked me out and the paranoia increased tenfold. I emailed my psychiatrist to get some trilafon to calm down as the agitation was terrible. Then there were problems with the pharmacy filling it. I was fuming. I have been on this medication for a long time and these young pharmacists were telling me how it was interacting with my medication. I scoffed because my psychiatrist knew the medications I was taking and if there were interactions, my psych wouldn’t be prescribing me the medication. She talked to these young people and I was able to get my meds, finally. Though it really frazzled me.

Because the trilafon was working while I was “sneaking it” behind the voices back, I was coming to the realization just how much they were controlling me. The noise in my head became much quieter and I was able to fight back, albeit slowly. I still felt I needed to be in the hospital and was seriously contemplating when my mother, who has diabetes, took a hypoglycemic episode and I found her down. If I was in the hospital, I dread to think of the consequences. I realized then, the beginning of July, that I had to get control of the voices so started taking the trilafon more frequently than every other day or every two days.

Since my father’s death, I have been feeling numb and distant. Things got better and I was feeling my “normal” feelings of depression or joy or something. But since the voices got louder and more demanding, I have noticed that I been feeling flat and not feeling much of anything. I feel blunted, like I should be feeling something but I am not. My therapist is calling this “negative symptoms” of psychosis but it’s been ages since I looked at a psych book to remember what those were. I used to know psychosis very well way back when I was young student in college but have gradually lost what I learned as I moved away from my calling and haven’t been in school in years.

Even as I am writing this, I feel disconnected, like a lightbulb has been turned off and I can’t find the switch. It doesn’t concern me. I don’t know why it’s concerning my therapist so much. But then she is very protective of me. I just don’t see the concern. Not having emotion is kind of a relief. It’s better than feeling the deep dark lows that I had been feeling. It has affected my writing some what. But then, my writing has not recovered much since my father’s death three months ago. I still feel as distant as I did back then.

therapy and not sleeping

I had therapy again today. She again brought up negative symptoms. She is afraid of her losing me, whatever that means. I told her I just feel nothing, like everything is blunt. I also feel flat. Her fear is that the longer this goes on, the more I am going to feel this way. I don’t get why this is of concern. Maybe I am missing something that she just isn’t explaining well enough.

We also talked about the possibility of seeing someone while she is away for a couple of weeks in August. She brought up the question of whether I would see someone DBT like as an adjunct therapist. I have no intention of seeing someone other than my therapist and my psychiatrist. I don’t think I will see someone while she is away. I probably will just write letters like I usually do when she is gone. It’s going to be a long two weeks. I need to find out if my psychiatrist will be away the same time. That will suck but it is a possibility. I will find out Monday when I see my psych.

I didn’t sleep well again last night. I woke up like every couple of hours. I wasn’t in pain or anything. I just slept for two hours here, three there and then woke up thinking it was time to wake up, but it wasn’t. I did finally get to sleep after the fourth time I was up. I slept for about five hours before my phone went off. Someone was calling me but I think it was the wrong number because they didn’t leave a message. And my mother called at her normal time to see if I was going out today. I don’t plan on it. I am just too tired. I am having coffee to try and wake up but it’s not doing much for me.

I might go to the grocery store to get some cream. I am almost out. I just don’t know if I am have the energy to do it. It’s much cooler today than it has been. I finally have the AC off as it’s really cold in my room. I like the cold but not freezing cold.

I need to call the PT place to set up an appointment. I do but don’t want to go to therapy. It’s down the street from me so it’s not like I will be going far. It’s just my fear that it’s going to cause more pain than what I am already in. And there is no guarantee that it’s really going to help me. I think docs like to send you when they don’t know what else to do for you.

Looks like today I am just going to sleep. I have no energy. I have no motivation. I don’t have anything that I really need to do today. I might get a Zipcar next week and see my therapist. All depends on if I get my funds.