hey all,
I couldn’t find the link I used so I created one. here you go.
GC
Today has been difficult. I’ve had pain all day, sometimes excruciating and other times tolerable. I worried my morning contact person because the plan I took off the table, I put back on. It is staying on for now. I’m in a don’t give a shit mood. I’m tired of being in horrible pain. I haven’t done much yet I hurt so bad.
I really just want to die. I won’t do anything while I am here. I am kind of nervous about tomorrow and meeting with Bonnie (not her real name). I don’t think from here on out I’m going to be helped. It doesn’t help that I feel so hopeless that things will get better. My support group has been doing what they can for me but I feel like I shouldn’t share too much of my depression for fear of bringing people down.
I’ve been reading the Harry Potter and the cursed child for most of the day. I read it before taking my meds and I was in the wizard world for a while. Then I came back to reality and I didn’t like it. I really didn’t think I would like this book but I am, even though it doesn’t have too much description like a normal book does. It is mostly script with few descriptions of the scene. I know if it was written like a book it would be at least a thousand pages, minimum. But I am enjoying myself with it while I try to escape the pain and boredom of this place. I wish I brought my Kindle. Maybe I’ll ask my sister to bring it to me. A fellow patient who is being discharged tomorrow gave me some candy and tea. I was out of my regular tea as I didn’t think to pack it. All I have left is chamomile tea. I had two cups of Lipton today. It gave me the caffeine I needed. The coffee is wicked terrible so I don’t drink it.
My cousin said some things on Facebook that really got under my skin. I replied just as callous back. If he can’t understand my mental illness or physical pain, Fuck him. I’m not going to placate him. He could have said sorry to miss seeing you rather than he was disappointed. His choice of words, not mine. I’m tired of being judged by small minded people.
I have been sitting on my bed the last few hours. My tailbone hurts. Now it’s raining out so my spine is hurting. It was hot in my room so I had staff open my other window. Least it will get the air circulating. I really cannot stand heat. I miss my ceiling fan. The temp today has gone from 49 degrees to 60, which is kind of odd for Nov. I was freezing this morning but the heat seems to have kicked on high for some reason. Staff just looked at the controls for my room and it’s on cool so I don’t know what the fuck is going on. It is an old building so it does weird things.
I took another dose of Miralax for my bowels. I finally went though I still feel bloated. I’ve been trying to keep up with fluids because I woke up with a sore throat but that just made the feeling of being bloated worse. I am hoping all the food I ate gets digested by tomorrow. I hate this feeling of being full when I didn’t overeat. I know the strong pain pill is causing my bowels to be backed up but there is nothing I can do about it. I need it to help my pain as I can’t take it like I do at home.
I’m hoping tomorrow I have a better sense of when I will be going home. I really want to leave. Being here is just solidifying my planning. It is going to be tough because no a whole lot of “work” has been done since I have been here. I have been doing the PT stuff because it is easier to remember to do. Imagery has been ok but I only get so far before I wander off. The depression makes it hard to really focus on anything.
I woke up around 2 in pain so got some pain meds. I woke up around 8 after falling back to sleep. I wanted coffee but the damn breakfast dude had shut the doors to the kitchen. I don’t know why they do this for every meal. Drives me crazy. While I was waiting for him to open the door, my pain spiked and so did my suicidality. I just wanted to die. After I got the disgusting coffee and some breakfast, I met with my team. I told them I would retract the 3 day and the psychiatrist asked what changed my mind. I said the thought of going to a state hospital wasn’t appealing. After we talked, he gave me privileges just like that. After I told him I was suicidal. Whatever. I knew I wasn’t going to be able to go out today anyway. I just hurt too much.
I had a mental health counselor that I liked as my check in person and told her I hated being far away from the nurse’s station. She was able to have me change rooms to be closer. I had to walk back and forth with my things. That caused a flare up. I am staying in my room the rest of the night. I need to rest. I am wicked tired, like I’ve taken a sleeping pill. I am so wiped out from this chronic pain today. It has been fluctuating all day.
There is a service dog on the unit. He is very cute. The bugger had learned to leave the patient’s room so he has been hanging out for most of the day. This is the 1st time I have seen a dog on the unit.
It has been a really warm day out and so the unit has been stifling. I was sweating when I was done with the room change. I didn’t pack shorts so I ended up making them out of some scrub pants when I was last admitted. I am much cooler now. My room has the windows wide open so it’s nice and cool. I like it. I can not tolerate the heat, which I think has contributed to my pain being bad the past two days. If dinner wasn’t in a few minutes, I would take a nap. I will after I eat. I’m kind of hungry.
I hope that because I got privs today that my discharge date might be next week. Least I hope so. I want the fuck out of here. My psychiatrist wants me to stick it out but I really don’t see the point.
I went to two groups today. The 1st one was group therapy and I came out to the patients that were there. Everyone was supportive and I think there is another trans female on the unit. I hope we can connect but she seems very distant.
The other group was on stigma and I didn’t care for it. It was really boring.
I’ve been trying to sleep the past 2 hours but every time I lie down, my ankle and/or foot acts up. So I take something and that particular pain goes away only to be replaced by another pain in a different area of my foot or ankle. It is driving me nuts. Right now I have a brace on my foot. I had some medical tape on. That helped some of the pain until I moved my foot upward. Every time I move it, I’m in excruciating pain. It makes me want to die right then and there. I pound my pillow and I moan. No one can hear me. My mother is sleeping and deaf.
I posted a pic on Instagram with the brace on. I posted suicidal. I hope the cops don’t show up at my door tomorrow. I don’t know why I did that. I’m going to take it down. I don’t want trouble. Fuck. I am pointing my ankle downwards and I’m hurting. WTF. I’ve had enough of this bullshit.
I’m canceling my PT appt for today. The weather calls for flooding rain. I don’t want to go out just to get soaked waiting for the bus. I’ll email my PT after I cancel to let her know why so she doesn’t think I’m blowing her off. If I had a car, it would be different. Traveling by public transportation sucks sometimes.
I think the Zoloft is causing me to be nauseous. I had lowered by dose last week and was doing fine until tonight. I had to take a zofran to get rid of the feeling. I really dont want to puke. I’ve been on Zoloft for a year and a half or so. I’m not surprised it is making me sick. That was why I had to come off it. Most SSRIs cause nausea with me. When I see my doc next week, I’m going to ask her to possibly switch to something else, maybe venflexitine (Effexor). It has been the only drug I haven’t been on. I might have to have a break between meds or it could cause serotonin syndrome, which is not fun.
I took neurontin tonight to help with the burning. I hate when the physical pain is gone and it is replaced by nerve pain. I was reading an article about how there are few meds that help with nerve pain. What pissed me off was that it didn’t say what meds worked. Left you feeling like what is the purpose of the damn article. Hate that.
I had to put lidocaine on my big toe because it was acting up. I don’t know why some nights the top of it really hurts like it is being torn apart.
I hate when I am so very tired yet I can’t fricken sleep because of pain. I’ve taken all that I can. Just wish it would let up a little so I could sleep. I can imagine what my sleep study is going to be like. Always takes me forever to settle down to sleep. I even took an extra Ativan and I’m still up. Pain just doesn’t care what I take. Pisses me off. Think I’m going to brush my teeth. I need to go to the bathroom anyway. Stupid bladder! Walking downstairs is going to be fun. I need an immobilizer for my ankle so it doesn’t move. Maybe that will help. I just need it at night because that is when the pain is worse.
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