Tag: back pain

feeling sad about so many things

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Feeling sad about many things

I went to the BBQ my sister was having. My niece had a few friends over and the neighbors next store came over with their award winning macaroni and cheese. OMG this mac and cheese is so outstanding! I was talking with my neighbor about things and then my med alarm went off saying I had to take my 4pm med. I said I had to take a pill and I will be back but I went upstairs and couldn’t catch my breath. I was so winded. I became depressed because I hate that I am so deconditioned. I even went slow on the stairs but it didn’t matter. My heart rate went berserk. I had to rest. I had to charge my phone as well so it was just as well that I stay in my room.

I have been listening to Hamilton’s soundtrack. I finally got past the first part where there was rap. I can’t stand rap. It didn’t seem to bother me so much today. I really like this musical. I am debating on signing up to Disney Plus so I can watch the movie. I am not a huge movie person so I seriously have to decide to sign up for it. Hulu was giving a package deal of $12.99 for that stream, ESPN+, and some other stream provider. I might sign up for it just to watch some sports. The soundtrack has come to the end and I am in awe! This was such a great musical to hear. I nearly cried when Hamilton’s son died. Then he dies close to where his son did. Such a great story.

I have felt so down about not having energy like I used to have. I feel so weak and I can’t stand it anymore. I feel like a slug. I can only move slowly and if I try to move at “normal” speed I get more fatigued than anything. I know I will regain my strength one day but it isn’t coming any time soon and that bothers me. I should be more compassionate towards myself but I find it hard to be that way. I just feel so useless. I can’t even shower without feeling the need to sit down several times to rest my back. It is driving me mad.

I don’t know if I will come out of this depression that I am in. Seems like it isn’t worth it. I keep coming back to this and it is getting so tiring. I am not sure what gets me into these funks but I am 100% certain they are the same thing just hitting me at different points in time. Sometimes I have physical symptoms and other times I will just have the mental anguish. I am having the mental anguish now. I don’t think life is worth living. I think I will be better off dead. I don’t see the point in living but I keep going just because I just can’t stop. I surrender to the thoughts but don’t act on them. I never act on them and my therapist wonders why I don’t. I wish I knew the answer. I might just be afraid of dying or failing to kill myself. It is one of these two and I am not sure which one it is.

Reading Friday and Other Things

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Reading Friday and other things

I finally got a copy of “how to be an antiracist”. I started reading it today. I really want to be antiracist. I know racism exists even though I think I am not a racist. The book White Fragility taught me that. That is another good book to read.

I had PT yesterday and the first thing she noticed was my facial hair. She congratulated me on getting it. I told her there was a bald spot I have been trying to grow for months now and she said to just keep shaving it. So I guess that is what I am going to do when I get sick of having facial hair. I also noticed that having facial hair can bring facial hair so I am hoping this time around more hair sprouts.

I talked with my cousin last night. I asked him if he would take me shopping and he said yes. I will be going after my therapy appointment Tues. I hope to get some steak while there and maybe some burgers. I will get the frozen kind so that I don’t have to worry about them going bad in the fridge. The Bubba burgers are good to get. I also want to get roast beef from the deli and some pulled pork as I haven’t had it in a while.

Someone on Twitter said something about getting nugs from McD’s and I had to get some. Now I am so full that I won’t be having dinner with my mother. She is making fish tonight. I ordered a fish sandwich so I am good. I shouldn’t have ordered a cheeseburger but I did. I couldn’t finish all the nugs. I am glad I didn’t order fries.

I just called to get a ride to PT for Monday and found out all the rides are free right now. That is cool. I don’t have to worry about payments. I was worried I would have to put some money on today because I had booked the ride yesterday and knew there wouldn’t be enough for Monday’s trip. But I don’t have to pay. I wish someone had told me this sooner. I hope the ride doesn’t pick me up earlier like they did yesterday. I had to wait a half hour so I went to Walgreens to get some soap to wash my face. I just hope it helps with the acne that I have.

I got no response from my therapist on the message I sent her. I hope that we can talk about it when I see her Tues. I knew she wouldn’t respond but I was hoping that she would. We have a lot to talk about. I just hope that I am heard and not criticized for what I say. I was straight talking in the message about how things are and how I feel. I really hope she gets what I am saying.

a bad day of pain

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

A bad day of pain

I had a bad day of pain today. Ankle has been in a flare the past four days. Nothing was calming it down so I thought putting on a compression sock might help. It caused my high ankle to be bothered by the elastic at the top of the sock. I had to take it off. I could only take so much pain. My back was bothering me from sitting too long after my appointment with my psychopharm. It was good talking with her. I really missed her. She is back from having surgery two weeks ago. She faired better than me in that regard. I don’t think I would be back to work so quick.

We talked about my therapist and she asked if I wanted another therapist. I said I will discuss it with my therapist when I see her next. I don’t want to say yes and then we are able to work things out. I don’t have luck with therapists. They usually last a year with me if I am lucky, two years. More than that is a bonus but not expected. I really like this therapist but I am having trouble talking with her because of my fear of her laughing at me. I often feel intimidated by her and close up. I don’t even shoot the shit with her anymore because she becomes so rigid. It is hard to talk with someone when they have these expectations that you should talk about stuff. I get that is what therapy is about but I am literally not talking at all in sessions. I talk a little bit in the beginning but then I close down and it is so damn hard to open up. I also think because I have yet to attach a song to our work, it is hard for me to feel connected to what I am doing in therapy. Music lyrics always helps connecting me to therapy for some reason. I had quite a few songs with my therapist of 16 years. I would make her CDs to play. I was invested in the time with her. But my current therapist, I don’t feel like she gives a shit if I stay or go and that is hard for me to handle because if she isn’t in there with me, then I feel like I don’t have to say anything. She is noticing that I am not talking more. I can’t help but feel like this relationship is heading out the door. I will be sad to see her go because I know she is a good therapist, maybe she is just too good for me.

I just wrote her a letter. I told her my frustrations and more of what I just talked about. I think better when I am writing things out and I got a lot out in the message. I hate that I can’t talk to her in person. I think that is part of the problem but I don’t think it is going to change. I wish there was a room I could go to to have the conversation rather than for me to stay in my room. I think that is the other thing. I am trapped in my room with no way out so of course it is hard for me to talk. But the other problem is I feel she isn’t receptive to what I am going to say or is going to laugh at me for speaking about something. I am going through a lot medically and I haven’t been able to voice it to anyone but my friend in Canada. She is the only person in the world that gets what I am saying about my bladder and bowels and what have you. She also cares a lot about me and that is the thing with this therapist. I feel like she doesn’t care, like she can do without me and maybe she wants to get rid of me. I don’t know but I had to ask it. I know part of it is my whole nervous system being shocked with surgery on top of a CSF leak that is making me feel so drained that mentally I just am not there. I drift off and stay that way. I get like that while I am in session with my therapist and it is so frustrating because I just cannot think of anything to say. Nothing comes to mind. NOTHING!! It is like someone wiped my brain of all thoughts. My psych thinks it more neurologically than psychological. I am still recovering from surgery even though it has been 3 months but I haven’t really done anything in that time. I haven’t gone to Starbucks or any place else other than the pharmacy and maybe a grocery store. I haven’t gone for walks or even used the T to get around much because I have been feeling like such crap. But resting hasn’t been helpful for me. I do rest when I need it as when I went to the pharmacy to get the antibiotics I took a nap after. I had to I was so wiped out. I just conked right out.

I start PT tomorrow and I am kind of scared. I am scared it is going to hurt and cause me real exhaustion. In my current state, I don’t think a rigid regimen will work for me because I am just too weak. I am not strong enough for something rigorous. It is going to be a slow going and I have a good physical therapist that I like working with. She makes the difference in wanting me to get better. I haven’t seen her since last year when I was working on my right ankle to build it up. I am sure I am weak in my legs for lack of movement. I hope that I can build some strength up so that showering isn’t so damn tough. If I can shower without sitting down more than twice, I will consider that an improvement. I also want to be able to go upstairs without being so damn short of breath and my heart rate going bananas.

I hate being sick!

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

I hate being sick!

The UTI advanced to my kidneys. I am hurting big time but I think I caught it in time. I keep spiking a fever so I am not sure the worst is behind me yet. This year has been awful as it has been for a lot of people. I had to cancel my PT appointment and should have cancelled therapy but I didn’t and now I regret it. She is a good therapist but I don’t think she is for me. I have been seeing her for a year and I think that is my usual goodbye practice. I seem to stay with someone for a year and then we end, though usually it is on the therapist’s part. I was feeling out of it when I was talking with her so I think it was probably a good idea to cancel but I didn’t and now I am left with feelings. I don’t see her again till next week. I am not going to dare ask for another session this week. I still feel like she wants to get rid of me. I think she wants me to bring it up. I just can’t shake the feeling. I will try and bring it up next week when I talk with her next. I might ask my psychopharm about how to go about it. She may have some thoughts. I could be totally wrong but my gut is telling me something isn’t right with therapy. I am not sure how to fix it. Maybe it is me and I can’t be helped. I think I am too hopeless.

I rescheduled my PT appointment and I have it this Thursday. I hope I am feeling better by then. My back is spasming right now and it hurts so much. I hate when it gets like this. There is nothing I can really do for it except to take muscle relaxers then wait for them to work.

I keep spiking a low grade fever. I feel it coming on because my head will hurt. I don’t know if the back spasms have anything to do with the fever. Probably not. But I am hurting and I hate it. I swear the UTIs are getting worse each one I get. I don’t know what the solution is other than not cathing. That is a cause of the infection. But I can’t completely stop cathing because my bladder still is finicky and needs to be cathed at times. It is slowly becoming more a nuance than a help. I try to be so careful but apparently I am not careful enough. I might have to start using gloves and see if that helps.

Okay that is all for today. I need to go lay down. Back is killing me. ☹