Saturday Blog 63

Saturday Blog 63

I did not have a good night sleeping. I woke up in the middle of the night in pain. I took some more pain meds and tried to go back to sleep. I was able to fall asleep about an hour later. I woke up with the same kind of pain in my ankle. I was glad I didn’t have to go anywhere today. All I wanted to do was order pizza and watch college football.

I was able to order pizza and it has been the only thing I wanted to eat today. I watched half of the Huskers game. They were leading 14-0 when I stopped watching and won 52-17 when I woke up from my nap. Pain meds and pizza coma caused me to have to lie down. I woke up in time to watch the OSU game. That game was incredible. They had 2 interception touchdown returns and a fumble recovery. They are currently in a weather delay as heavy rain and wind is in the area. I figured I would write as there is nothing I can do but wait till the game comes back on. OSU is leading Tulsa 20-3 at the half.

I am still in a lot of pain. I am trying to stay off my foot/ankle as much as possible but watching football gets me excited and I want to stand to watch the game on TV. Stupid I know but, I am a guy and that is what guys do. Doesn’t help that I have a small TV so I can’t see the downs and stuff when I am sitting.

Today is World Suicide Prevention Day. I am having a hard time with it because I feel so suicidal. Most of my Twitter friends are suicide preventionists so I have been getting tweets left and right about what to do if you are suicidal and all the typical bullshit that goes with it. I just can’t deal with it today so I have been on and off Twitter for most of the day. Most of the time, I will just post game updates from the OSU game but not really reading the tweets, unless they are sports related.

My sox played in between the Nebraska and OSU game. It must have been a quick game because by the time I was up around 1530, it was over and it started at 1300. They lost 3-2. I have been reading that there have been some miscues by the rookie they called up from double A. I really don’t blame him as he is too inexperienced for major league ball, in my opinion.

My foot is really hurting me and I don’t know when the second half of the OSU game is going to be played. I really want to take another dose of pain meds so I can go to sleep again. I am really tired. I had a cup of tea to try and keep myself awake but it didn’t really do anything. I really need to empty my recycle bin but that involves going down two flights of stairs and I am just not up for that. I am in too much pain for that.

Ankle Chronicle Rant and Other things

Ankle Chronicle Rant and other things

For the past several hours, I have been in severe pain because I decided to walk down a ramp instead of level ground. I had no idea it was going to cause me this much pain, but it is. All I want to do is sleep but I am so tense that my neck is hurting me. Being in this much pain, is causing havoc. I seriously want to amputate my ankle. I have thought about this a lot of times. But fortunately, I don’t possess the power tools to get the job done.

I forgot to mention some stuff to my psychiatrist in my appointment today so I emailed her. She is so worried about me getting severe side effects from my anti psychotics that I had to remind her about the more simpler side effects like constipation and urinary retention. I haven’t been on this medication since before my nerve injury so I don’t know how it is likely to play out. So far, I haven’t noticed anything worse, except possibly, starting my flow of urine. I didn’t mention this to my psych because I really do not want to see a urologist.

Anyway, she seemed fine with my description of the matter and what I am doing for the constipation. I didn’t tell her about the starting the flow of urine because I knew that might raise some eyebrows. I am okay with it unless it becomes worse. I hate having a nerve injury that causes these things. The nerve injury is what is causing my foot and ankle to be a dick. I swear that if I didn’t get my second diagnosis of Cauda Equina Syndrome, I would not be disabled today. Or maybe I would be, but it would be because of mental difficulties rather than physical ones.

I am very exhausted from dealing with physical pain all the damn time. It seems the pain syndrome is just getting worse and trying to control it is getting more complicated. I have to time my pain medication accordingly or I am in severe pain. And when my regular pain meds don’t work, I have to take the stronger pain meds. If neither of these meds work, then I know it’s nerve related pain so I have to take Neurontin. It is a true juggling act managing my pain.

I know that my pain flare up today was caused due to me doing to much the last few days and not having a rest day in between. I have been out of the house since Wednesday and have not slowed down some. Yesterday, I walked more than I should have because I didn’t want to wait for the bus for an hour. I walked four blocks home and that caused my ankle to falter. Today I had my doctors appointments and couldn’t cancel them so I walked around the hospital to go to the two appointments that I had before my ankle had enough. It didn’t help that I stood on the train for five stops. I have been taking more chances and in the end, it just causing me more and more pain.

I was supposed to meet up with friends tomorrow but I canceled that engagement after my ankle basically said fuck you to me on the ramp. I really was looking forward to seeing my friends as we don’t get to meet up that often. But I needed to take care of myself and that means ordering pizza tomorrow and watching (hopefully) college football games. Last week the games I wanted to watch were not on in my area. This week, I am hoping at least one game is in my area.

I also need to shower. I wanted to do so tonight but my foot was having no part of standing whatsoever. Even standing to take my meds was a hassle and that was for less than two minutes.

Psych and Neuro Abnormality

Psych and Neuro Abnormality

I saw my psychiatrist today. She was kind of miffed at the neurologist for suggesting that the trilafon is behind the music stuff playing in my head. She intends to email her and set her straight as she has never heard of such a thing. She said that I am a mystery to her. I laughed. She wanted me to read Oliver Sacks to get a better idea of things being weird in psychiatry/neurology. I told her I would look him up.

I was able to get my pain meds filled without a problem, thank god. If there was a problem, I was going to raise hell. I purposely stayed at the pharmacy to make sure there were any glitches. Then when I was walking home, my ankle said it wasn’t going to work anymore. I was going down an inclined part of the walkway and it just gave out on me. I was cursing myself for having walked that part of the street. It can be a trigger for my ankle giving out on me. Luckily, I had my trusty cane with me so it helped. I am really pissed because tomorrow I was going to meet up with some friends and now I can’t do that. My week is done.

Today was extremely humid so of course I am a sweaty mess. I have to wait till my pain meds kick in to take a shower. I was going to shave but seeing as I won’t be going out tomorrow, I might as well keep my whiskers. It will have to be a quick shower anyways as my ankle and foot will murder me if it’s a long one.

My mother had dinner for me when I came home. I ate it quickly, then went up to my room to cool off. Now I am craving pizza. I can’t decide if I want a whole or a half. I just want two slices but they won’t deliver just two. I wish I could just walk to the pizza place but I can’t. Guess I will have to wait till tomorrow to satisfy my pizza craving.

I told my psychiatrist about the book I am writing. She didn’t seem that enthusiastic about it. But she is happy that I am writing. I also told the NP about my writing adventures. She was a little enthused about it. I told her about my pain being horrendous and she didn’t have anything to say to me. She just gave me my script and off I went. I found out that my diagnosis is “other chronic pain”. It was on the prescription. That doesn’t help me. I guess I never will find out why my ankle likes being a fucking pain. Another abnormality.

Civic Duty and other things

Civic Duty and other things

I saw my neurologist, who wasn’t really helpful in figuring out why I listen to music in my head all the time. She thinks it might be my antipsychotic causing the problem, or some medication that I am taking. So as long as the lyrics don’t tell me to kill myself, I am to live with the music stuck, on repeat, in my head. Just fucking lovely. Not only do I have to live in pain, I got to deal with this bullshit.

After the appointment, I was kicking myself for not bringing my Kindle to read as it was a long train ride back to town. I decided to do my civic duty because they were holding city elections today. So I did that. As I just got off the bus, and the next one would probably be at least a half hour to an hour, I decided to walk home. I didn’t want to stand around for the next bus. It was a long walk but I was feeling okay. That all changed once I hit the main street where I live. I was maybe ¾ home when my ankle was saying fuck you. The other side of the street was blocked off with cones so I wasn’t sure if I could cross where I was. So I decided to be a good citizen and walk to the crosswalk as it was close to my house anyways. While going by a convenience store, I decided to play the Powerball game as it’s $555 million. I expected to be in and out but nope, I got behind a guy that was playing all sorts of numbers left and right. I was ready to just walk out when he finished playing close to $40 worth of lottery numbers. Unreal. I got my quick pick and hurried home. I was starving and I was getting hot because it was really humid out. The last time I ate was around 0530 this morning. And it was now around 1230.

I came home and made a cheeseburger. I cooked it really well. In fact, I think I overcooked it to my tastes but the burger was sitting in the fridge for a few days and I wanted it well done. My ankle was not happy with the cooking. I changed and went up to my room with the AC on and rested. About an hour later, exhaustion struck and I needed a nap. My cousin must have called about an hour later. I knew what that was about. My mother wasn’t home yet so that meant she went shopping. No way was I going up and down stairs with my ankle screaming at me. I ignored the calls. They knew I was home and my mother was bullshit. But my cousin is a fairly healthy male so why the fuck can’t he bring the bags upstairs?? It pisses me off that I am expected to just because I am home. So I didn’t care that my mother was mad. My ankle is killing me and I still have two appointments tomorrow that I need to attend to. I have no idea how I am going to manage. I need to get my pain meds refilled and I need to see my psychiatrist.

I am really hoping the “black box” warning I heard about doesn’t affect me tomorrow. I will really be bullshit if I don’t get my meds because of these stupid warnings. But I won’t know until then whether or not I will get my meds. It’s a worry that is in the back of my head.

I wrote a little bit in my journal this morning as I had time before my appointment. I had about an hour so I was really early. I rather be early than late anyways. And with the T, it’s better to be early. I just wish I had my Kindle so I could knock down some Dostoevsky. I really wasn’t thinking about it because I had such a shitty sleep and woke up an hour and a half before my alarm went off. I didn’t dare try to go back to sleep because I really wanted to make coffee. I made it perfectly and it was so good, I wish I had more so I could have had a second cup.