Tag: cauda equina syndrome

Frustrating Sunday

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Frustrating Sunday

I woke up in a funk. I didn’t feel really well but still wanted to go food shopping. I had some coffee and then rested a little bit before getting dressed. I went to the store and within twenty minutes, my back started cramping up. I just gathered things that were on the top of my head rather than look at my list. There was stuff I forgot but I will be going back sometime this week with my cousin. I came home from shopping exhausted and in pain. I can’t believe the fatigue I felt. I got a headache and it is really bad. It turned into a migraine. I took some meds for it but it still hasn’t helped yet. I am so tired that I can’t rest. It is like I am too over tired to rest. I hate when I get this way.

My mother will be making hamburgers for supper with the meat I bought. I am glad because I don’t think I can manage making dinner. I bought frozen dinners. But I forgot ice cream. I hate that I did. I have been in some kind of brain fog the past few days. I don’t know if it is because of the Latuda or not. I just feel spacy and forget things. I feel like I am dissociated but I really haven’t lost track of time or anything. I just forgot what I have been doing. Like yesterday morning I wrote a blog after I had breakfast. I cannot tell you what the blog was about because I forgot I wrote it. I just remember that I finished it around noon time and then I took a nap. I am so frustrated that I am so spacy.

I am also frustrated that I have no stamina to do food shopping. I am totally wiped out from the little shopping I did. My back hates me right now and there is nothing I can do about it. I have a killer headache. I feel so low it isn’t funny. I don’t think I am ever going to have the stamina I had before surgery back in March. It is driving me crazy and I don’t know if things will get better. I hope that when I start PT that somethings do get better but I know it will be a while before I see any progress.

I have such tension in my neck and shoulders today. It really hurts when I turn my neck. My shoulders feel so heavy. It is creating so much tension in my neck that it is making my headache worse. I woke up like this so maybe it was the way I slept. I just know that it is annoying the fuck out of me. Today is just not a good day. Tomorrow I plan on going to the pharmacy to get my flu shot. Once I get it, I need to let my pcp know so they can update my records. I just hope I don’t get sick after I get it. That will really suck.

Saturday Blog 03102020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Saturday Blog 03102020

I woke up early so I ordered breakfast because my foot is hurting me so much I can’t stand that long. I didn’t have coffee, though I should make it. Yesterday’s cup wasn’t fulfilling to me. Maybe I will have tea instead. I don’t know. I am so indecisive. I am listening to Hamilton again. I think it is becoming my Saturday thing.

I had to order another micro USB cable because it took forever for my Kindle to charge on the one I have and it kept on disconnecting while plugged in. The beeping was driving me crazy! I finally bought the new shaver. I don’t like it. It doesn’t give me a close shave like I was hoping it would. It works though so I don’t want to return it. There are days when I don’t want to shave but growing a beard while I still have breasts looks ridiculous to me. So I try to shave every other day or three. I really like shaving with a razor but sometimes it just isn’t feasible because of pain so I will use a shaver.

My foot is killing me today. It feels like my metatarsals are being crushed. I hate bone pain. It is so difficult to treat. I am so tired of being in pain. It really is in itself tiring. I wish I could sleep but I am too wired. I had a difficult time sleeping last night. I didn’t go to sleep till after 0200. Pain was keeping me up. I had taken a shower and set my foot off. The water hit my foot/ankle and it felt weird before it flared up. I have been in pain since.

I talked with my cousin who has bipolar disorder last night. He told me he will take me shopping some day next week when he feels up for it. I said ok as there isn’t anything urgent that I need right now. I do need to go shopping though. I need to get some food and snacks. My mother also needs juice. I know when I do go, I will be tired. I still don’t have the stamina I once I had before surgery. Fricken sucks that it has been almost seven months now and I still am not back to being even 90% better energy wise. I need to go to Walgreens for my flu shot. I think I will do that today.

Grocery Day

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Grocery day

I had my groceries delivered today. I tried taking them up the stairs by myself but I couldn’t. I had to have my nephew help me. I did way too much and am now paying for it with back spasms and pain. I just hope I didn’t do anything to compromise myself. I am just four weeks post op. I am not supposed to lift anything heavier than a gallon of milk. I was stupid to think carrying the bags was a great idea. I was winded after my first trip up the stairs. Today was warm and muggy which didn’t help me at all. I was sweating like a pig.

I had a late delivery because it was the only time that they had open. I ordered my groceries late because I woke up late yesterday. I was glad there was still open for today. I am resting now with the AC going. I think I will take a nap. I haven’t eaten anything all day except leftovers. It wasn’t really filling. I don’t know what to order. I might order from a local sub shop and have a pastrami sub with fries.

Last night I printed off the skill sheet of DBT that my therapist gave me. I have been trying to do it but doing it in spurts. She never responded to the message I sent her so I am not that keen on doing them daily like she wants me to. I see her Thursday. Tomorrow I see the psychiatrist. I had asked for a med increase and he wanted to see me so I agreed. Voices have settled down some. I still have the stupid music running through my head constantly. OMG it is all Hamilton music and it shuffles songs. I am tempted to listen to the soundtrack again to make it stop temporarily. Listening to music tends to hold off on it. It is driving me crazy because it repeats all the time from the moment I wake up to the time I go to bed. All fucking day long I have music in my head. And it plays like I have the MP3 player going. It is annoying but no medication has helped settled it down. It kind of did when I was on a high dose of the Invega. I don’t want to be on a high dose again. Too many side effects that I don’t like. I will stay on the dose I am on now. If it doesn’t work then I will switch to something else. I don’t want to increase it.

I couldn’t find the sub shop so I ordered Chipotle. I haven’t had it in so long. It will be good to have some rice and beans with steak. I love their burrito bowl. It is my favorite next to their actual burrito. I might get it later this week when I get my haircut. I haven’t decided which day I am going to go. Might be Thursday as my therapy appointment is in the late afternoon. I can go in the late morning and still be home in time.

Friday’s Thoughts 25092020

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Friday’s thoughts 25092020

I went out for the first time since my surgery. My mother needed an errand done and I volunteered to go so I could go to Starbucks. I had a cloud caramel macchiato and a pumpkin scone, which I will have tomorrow morning for breakfast. It took me a while to get home because I had to take two buses but it was great to get out. I am wicked tired from the outing but that is to be expected. I am still not 100% recovered from surgery and I am definitely deconditioned. It is going to take a while for me to recondition myself to things. Tomorrow I am going out with some friends. We will be ordering from a restaurant and then watching a movie. It should be a good hangout session.

I got in touch with my psychiatrist after I wrote to him this morning about the voices being ramped up. He agreed to increase the Invega to 6 mg a day. He then wants to check in early next week. I had a hard time trying to sleep last night because of pain and insomnia. I didn’t go to sleep till 5 am this morning. My mother woke me up with her request to do the errand. It wasn’t until noon time so I had enough sleep. I am really tired after the outing so I think I am going to try and make it an early night tonight. I am not going to listen to the ballgame. That just gets me excited. I listened to last night’s disaster game until the 4th inning. I had to shut it off as the pitching just fell apart. They lost 13-1 last night, their last home game of the season. There are only three games left in the season for the Sox. I am sad that it is over but glad it is because they really sucked this year. They are in last place, again.

I tried making an appointment with PT today but got their voicemail. I left a message but haven’t heard back. I probably will on Monday. I hope to have the cramp decrease this go round with them. That was one of the reasons why I couldn’t sleep last night. I kept on having cramps in my back and pain. Today I am sore and my lower back is hurting but I think that is from all the walking I did today. My ankle isn’t happy with me either. It started up a couple of hours ago and hasn’t settled down. The pain meds helped some but not all of the pain. Nothing ever takes away all the pain.

I am excited to see my friends tomorrow. It has been nearly a year since I last saw them because of this stupid pandemic. I am glad we are ordering from the restaurant rather than having a sit in it. I am kind of paranoid about being in restaurants these days. If we were going to a restaurant, I probably wouldn’t be seeing my friends. I just don’t want to risk getting infected. I just hope my ankle settles down by the time I wake up tomorrow and I get some decent sleep tonight.